Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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there are a lot of posts out there that are positive and healthy coping mechanisms for handling the holidays. this is not one of them :)
i think there's like. going to be times in your life you will be stuck in a social situation that you cannot escape from gracefully. i do not know why the internet doesn't believe these times exist. it's not always just that your physical safety is at risk - sometimes it's legit like "i just don't currently have the energy or time to put in the effort of responding to this." sometimes it's a coworker you hate so much. sometimes it's just like, fine, you know? like you know you can handle your aunt when she's cheerily horrible, but if you actually set a boundary around her, it's going to be weeks of fallout with your father.
i don't know why people think the answer is always just "cut them out!" or "don't let them get away with that!" because ... the real world is tricky and complicated. i think kind of a lot of us have an internal "radiation poisoning" meter for certain people. like - i'm talking about the ones who are absolutely giving you gradual ick damage. like, you can handle them, but you'll be exhausted.
and yes. you absolutely should listen to your therapist and the good posts about handling others and set good boundaries and take care of yourself. prioritize peace.
HOWEVER :) ...... since im often in a situation with a Gradual Sense of Ick person i cannot just "cut out" of my life (without losing someone else precious to me) - i have sort of developed the most. maladaptive form of mischief possible. because like, if i'm going to have to listen to this shit again, i like to have a little bit of private fun with it.
now! again, i am physically safe, just mentally drained by this man. you should only do this with people you are not in danger with. which leads me to my suggestions for when your Unfortunate Acquaintance shows up and says oh everyone pay attention to me.
my favorite word is "maybe!" said as brightly and happily as possible. whenever the Horrible Person starts in on a topic you do not want to go further with, particularly if they make a claim that you know to be inaccurate, do not respond to it. you and i have both tried to actually argue with this person, and it hasn't gone well, because this person just wants the drama of an argument. however, "maybe!" gives them literally nothing to go on. it is incredibly disarming. they are used to people having some response. they know they can't prove what they're saying, and maybe! treats them like the child they are. it dismisses them in the politest way possible.
i like to say maybe! and then, in their stunned silence, immediately change the subject. this is because i have adhd and i will have something unrelated to talk about, but if you can't think of topics fast enough, i recommend just pointing to something and saying, "isn't that lovely?" because fuck you let's bring in some positivity.
by the way. that second trick - of pointing to something and stating an opinion about it? - that just works on its own, like, 70% of the time. i picked it up from teaching preschoolers. it's an intentional "redirect". it stops children crying and it also stops grown adults from finishing their explanation on why women belong in kitchens. dual wielding!
keep it silly for yourself. i absolutely do not care if people think i'm fucking stupid (it's more fun if they do) and as a result i will purposefully misunderstand things just to see how long it takes them to realize i've completely removed them from the subject at hand. when they say "women aren't funny" i get to be like. "which women." "all women." "all women in america?" "no in the world." "like the mole people? the people in the world?" "what? no. like, alive." "oh are we not counting the mole people?" "what the fuck are you talking about." "you don't believe in the mole people?"
similarly, i play a personal game called "one up me." my Evil Acquaintance literally knows this game exists (my family & friends caught onto it and now also play it) and it always fucking gets him. i don't know why. you have to be willing to be a little free-spirited on this one, though. the trick is that when they make one of those horrible little bigoted or annoying comments they are always making, you need to go one unit weirder. not more intense, mind you - just more weird. "you don't look good in that dress." "yeah, actually, my other dress was covered in squid ink due to a mishap at the soup store." "you shouldn't wear such revealing clothes." "wait, what? oh shit. sorry, your son tears off strips when no one is looking and eats them. i swear it was longer before we left the building."
the point of "one up me" is to completely upend this person's narrative. we both know this person likes setting up situations where you cannot "win" and then they really like telling other people how badly you handled it. in a usual situation, if you respond "please don't say something that rude", you're a bitch. but if you let it happen, you're letting yourself be debased. they are not usually expecting door number three: unflappably odd. because what are they going to say when they're telling everyone how badly you behaved? "she said my son eats her dresses" ".... okay?"
if you can, form an allyship with someone whomst you can tagteam with. where they can pick up on your weird "soup store" story and run with it.
the following phrase is amazing and can be deployed for any situation: "oh, be nice :) it's the holidays!" i do not know why this works as often as it does. i'll say it for the most random shit. i think this is bc most of the time these people know they're being impolite, they just like to fight.
godbless. when in doubt, remember that you could always start stealing their pens.
the whole point of this is - if you can't escape. maybe see how long you can just be. like. a horrible little menace.
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Eddie is beginning to wonder if he’ll ever reach a point where Steve couldn’t reduce him to this state.
This state being… transfixed. Eddie is sure he must look like a lovesick cartoon. In fact, if he could manage to drag his gaze away, he’d probably find red hearts circling around his head in a halo, popping like little bubbles.
But Eddie can’t move his eyes. Can’t even close his mouth either.
Steve’s talking to him too, which is most definitely worse — he’s totally missing every word. He can see Steve’s lips moving, pink plush lips wrapping around words but fuck, that was a total trap because now Eddie is just looking at his lips. He tries to refocus, to listen. His eyes just wander back to what he was staring back at the first place.
Was Steve like this all the time? Just a walking around looking so damn delectable?
Or is it Eddie, just a starved man who’s been living off stolen glances, for as long as he can remember? For once, he’s learning, he’s allowed to look.
And by God, is he looking.
Steve’s not even doing it on purpose either, which probably makes the whole thing funnier. Eddie knows what his boyfriend (boyfriend! he thinks giddily in his mind) looks like when he’s cleaned up to impress. He can spot the way Steve preens beneath Eddie’s lingering gaze.
This is not that. Today, Steve is just cleaning, a usual Sunday morning ritual.
He’s got some old sport shorts on and he’s clearly grown a bit since he first got them— unless Hawkins has always been giving out slutty little shorts to the basketball team (They haven’t. Eddie would know if they did.)
He’s wearing one of his wife-beater singlets too. It’s a little on the scrappy side though, considering it’s nearly see-through with how worn it is.
Honestly, in Eddie’s humble and gay opinion, it’s stupidly hot. The dark hair dusted across of Steve’s chest is visible beneath it, the shirt showing off the shape of his broad chest. Even better, his happy trail is visible and goddamn, if that doesn’t make Eddie happy, he doesn’t know what will.
But it’s not even that.
Quite frankly, Eddie’s rather embarrassed that he’s basically blue-screening because Steve is pulling out the cord out from the vacuum cleaner.
But… but he’s yanking it up towards his chest, slow and strong repetitive motions— that take enough effort to make his biceps bulge with every tug.
Eddie can’t stop watching. The cord must be several metres long and he’s not sure if he should be cursing it or thanking it for the view he gets; Steve’s tan arms flexing and rippling. Try as he might, Eddie can’t help imagining how they must look when Steve’s got his hand aroun—
“—hello? Are you even listening to me?”
Steve’s voice cuts into Eddie’s dangerously side-tracked thoughts and he pauses his tugging at the same time. It’s the thing that finally allows him to break his lustful stare at Steve’s arms. Oh God, he just got all hot and bothered over his boyfriend doing the vacuuming.
“Hello.” Eddie says back, because that was the first word to register in his brain. “I mean- yes. I’m—”
Eddie decides mid-sentence that he’s not getting away with the lie. He pivots. “Okay, no, I didn’t hear that. Would you please tell me what you just said, oh lovely sweet man of mine?”
Ever the butterer-upper, he was. Thank God it works on Steve. He rolls his eyes a little but there’s an adoring grin on his lips.
“Man of mine,” Steve mutters amusedly under his breath. He drops the vacuum cord on the carpeted floor and leans down the grab the handle of the vacuum. “You just kinda froze when you came in. I was asking if everything was okay? I’m just doing this room then I’ll be done, if you don’t like the noise.”
Eddie adores that Steve’s taken his silence as though he might be afraid of the vacuum cleaner or something. He nearly snorts aloud at how far from the truth it is.
“Uh huh.” Eddie nods, not bothering to correct him. He jerks a thumb behind him, pointing at nothing. “I’m just gonna…”
He spins on his heel and exits left stage, fast as he can while still looking normal (he’s unsuccessful, as he leaves a baffled Steve behind him.) As he enters into the kitchen and decides to fix them both a pot of coffee, Eddie lets himself giggle over the pure absurdity of what just happens.
It’s mortifying. It’s hilarious. He can never tell Steve.
Except, when Steve comes to find him in the kitchen and trades a kiss for some coffee, Eddie can’t help it. All he ever wants to do is make Steve laugh.
He decides it’s worth the embarrassment when Steve laughs so hard coffee comes out his nose.
Steve teasingly promises that he’ll to try be less distracting, then rescinds his words at Eddie’s abject reaction (“Don’t you dare.”) looking far too smug— in a delighted sort of way. Preening, in that way Eddie loves.
Their first kiss, as Eddie slides onto Steve’s lap and loops his arms over his shoulders, fingers dancing on those tasty arms, tastes a little bit like coffee. Their mugs grow cold, untouched.
Eddie doesn’t mind — he’s too busy finding out that the rest of their kisses taste like something between sunlight and Steve.
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