Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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there are a lot of posts out there that are positive and healthy coping mechanisms for handling the holidays. this is not one of them :)
i think there's like. going to be times in your life you will be stuck in a social situation that you cannot escape from gracefully. i do not know why the internet doesn't believe these times exist. it's not always just that your physical safety is at risk - sometimes it's legit like "i just don't currently have the energy or time to put in the effort of responding to this." sometimes it's a coworker you hate so much. sometimes it's just like, fine, you know? like you know you can handle your aunt when she's cheerily horrible, but if you actually set a boundary around her, it's going to be weeks of fallout with your father.
i don't know why people think the answer is always just "cut them out!" or "don't let them get away with that!" because ... the real world is tricky and complicated. i think kind of a lot of us have an internal "radiation poisoning" meter for certain people. like - i'm talking about the ones who are absolutely giving you gradual ick damage. like, you can handle them, but you'll be exhausted.
and yes. you absolutely should listen to your therapist and the good posts about handling others and set good boundaries and take care of yourself. prioritize peace.
HOWEVER :) ...... since im often in a situation with a Gradual Sense of Ick person i cannot just "cut out" of my life (without losing someone else precious to me) - i have sort of developed the most. maladaptive form of mischief possible. because like, if i'm going to have to listen to this shit again, i like to have a little bit of private fun with it.
now! again, i am physically safe, just mentally drained by this man. you should only do this with people you are not in danger with. which leads me to my suggestions for when your Unfortunate Acquaintance shows up and says oh everyone pay attention to me.
my favorite word is "maybe!" said as brightly and happily as possible. whenever the Horrible Person starts in on a topic you do not want to go further with, particularly if they make a claim that you know to be inaccurate, do not respond to it. you and i have both tried to actually argue with this person, and it hasn't gone well, because this person just wants the drama of an argument. however, "maybe!" gives them literally nothing to go on. it is incredibly disarming. they are used to people having some response. they know they can't prove what they're saying, and maybe! treats them like the child they are. it dismisses them in the politest way possible.
i like to say maybe! and then, in their stunned silence, immediately change the subject. this is because i have adhd and i will have something unrelated to talk about, but if you can't think of topics fast enough, i recommend just pointing to something and saying, "isn't that lovely?" because fuck you let's bring in some positivity.
by the way. that second trick - of pointing to something and stating an opinion about it? - that just works on its own, like, 70% of the time. i picked it up from teaching preschoolers. it's an intentional "redirect". it stops children crying and it also stops grown adults from finishing their explanation on why women belong in kitchens. dual wielding!
keep it silly for yourself. i absolutely do not care if people think i'm fucking stupid (it's more fun if they do) and as a result i will purposefully misunderstand things just to see how long it takes them to realize i've completely removed them from the subject at hand. when they say "women aren't funny" i get to be like. "which women." "all women." "all women in america?" "no in the world." "like the mole people? the people in the world?" "what? no. like, alive." "oh are we not counting the mole people?" "what the fuck are you talking about." "you don't believe in the mole people?"
similarly, i play a personal game called "one up me." my Evil Acquaintance literally knows this game exists (my family & friends caught onto it and now also play it) and it always fucking gets him. i don't know why. you have to be willing to be a little free-spirited on this one, though. the trick is that when they make one of those horrible little bigoted or annoying comments they are always making, you need to go one unit weirder. not more intense, mind you - just more weird. "you don't look good in that dress." "yeah, actually, my other dress was covered in squid ink due to a mishap at the soup store." "you shouldn't wear such revealing clothes." "wait, what? oh shit. sorry, your son tears off strips when no one is looking and eats them. i swear it was longer before we left the building."
the point of "one up me" is to completely upend this person's narrative. we both know this person likes setting up situations where you cannot "win" and then they really like telling other people how badly you handled it. in a usual situation, if you respond "please don't say something that rude", you're a bitch. but if you let it happen, you're letting yourself be debased. they are not usually expecting door number three: unflappably odd. because what are they going to say when they're telling everyone how badly you behaved? "she said my son eats her dresses" ".... okay?"
if you can, form an allyship with someone whomst you can tagteam with. where they can pick up on your weird "soup store" story and run with it.
the following phrase is amazing and can be deployed for any situation: "oh, be nice :) it's the holidays!" i do not know why this works as often as it does. i'll say it for the most random shit. i think this is bc most of the time these people know they're being impolite, they just like to fight.
godbless. when in doubt, remember that you could always start stealing their pens.
the whole point of this is - if you can't escape. maybe see how long you can just be. like. a horrible little menace.
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The archeocete Perucetus colossus dives through a coastal bloom of jellyfish in the Pisco Basin (southern Peru), some time during the Eocene (with bonus multiview).
I originally intended to add epibionts to this reconstruction (reflecting the specialized communities found on many living whales, especially baleen whales). Yet, interestingly, it appears that most animal epibionts and ectoparasites of modern cetaceans, such as whale barnacles (Hayashi et al. 2013) and remoras (Friedman et al. 2013), only appeared in the Neogene or late Paleogene, or have a poorly known (co-)evolutionary history, like whale lice (Pfeiffer 2009, Iwasa-Arai & Serejo 2018) and pennellids (large parasitic copepods) (Hermosilla et al. 2015). So, no epibionts* for big lad Perucetus!
References and notes about the reconstruction:
*animal epibionts. Unicellular eukaryotes like diatoms were most likely present on early cetaceans, given their prevalence on modern large marine animals (Ashworth et al. 2022). Of course, it is possible that other animals (i.e., early, less specialized representatives of modern groups, or different taxa altogether) were also already exploiting the surfaces offered by these early whales; however, this remains entirely speculative.
The reconstruction of Perucetus proposed in its original description (Bianucci et al. 2023) includes some rather odd (if interesting) choices about soft tissues, including limbs with webbed and distinguishable fingers, and a manatee-like tail. While these choices might be defendable in light of the rather basal status of Perucetus among cetaceans, I opted for a more derived look based on the assumption that fully marine cetaceans like basilosaurids would have probably rapidly acquired hydrodynamically favorable adaptations, pushing them towards a more familiar Neoceti-like appearance (even though Perucetus itself was likely a poor swimmer (Bianucci et al. 2023), it seems likely to me that this was a secondarily acquired trait, given the less extreme morphology of other basilosaurids).
Reconstruction in the multiview scaled to ~18 m in length after the estimations of Bianucci et al. (2023).
References:
Ashworth, M. P., Majewska, R., Frankovich, T. A., Sullivan, M., Bosak, S., Filek, K., Van de Vijver, B., Arendt, M., Schwenter, J., Nel, R., Robinson, N. J., Gary, M. P., Theriot, E. C., Stacy, N. I., Lam, D. W., Perrault, J. R., Manire, C. A., & Manning, S. R. (2022). Cultivating epizoic diatoms provides insights into the evolution and ecology of both epibionts and hosts. Scientific Reports, 12(1), Article 1. https://doi.org/10.1038/s41598-022-19064-0
Bianucci, G., Lambert, O., Urbina, M., Merella, M., Collareta, A., Bennion, R., Salas-Gismondi, R., Benites-Palomino, A., Post, K., de Muizon, C., Bosio, G., Di Celma, C., Malinverno, E., Pierantoni, P. P., Villa, I. M., & Amson, E. (2023). A heavyweight early whale pushes the boundaries of vertebrate morphology. Nature, 620(7975), Article 7975. https://doi.org/10.1038/s41586-023-06381-1
Friedman, M., Johanson, Z., Harrington, R. C., Near, T. J., & Graham, M. R. (2013). An early fossil remora (Echeneoidea) reveals the evolutionary assembly of the adhesion disc. Proceedings of the Royal Society B: Biological Sciences, 280(1766), 20131200. https://doi.org/10.1098/rspb.2013.1200
Hayashi, R., Chan, B. K. K., Simon-Blecher, N., Watanabe, H., Guy-Haim, T., Yonezawa, T., Levy, Y., Shuto, T., & Achituv, Y. (2013). Phylogenetic position and evolutionary history of the turtle and whale barnacles (Cirripedia: Balanomorpha: Coronuloidea). Molecular Phylogenetics and Evolution, 67(1), 9–14. https://doi.org/10.1016/j.ympev.2012.12.018
Hermosilla, C., Silva, L. M. R., Prieto, R., Kleinertz, S., Taubert, A., & Silva, M. A. (2015). Endo- and ectoparasites of large whales (Cetartiodactyla: Balaenopteridae, Physeteridae): Overcoming difficulties in obtaining appropriate samples by non- and minimally-invasive methods. International Journal for Parasitology: Parasites and Wildlife, 4(3), 414–420. https://doi.org/10.1016/j.ijppaw.2015.11.002
Pfeiffer, C. J. (2009). Whale Lice. In W. F. Perrin, B. Würsig, & J. G. M. Thewissen (Eds.), Encyclopedia of Marine Mammals (Second Edition) (pp. 1220–1223). Academic Press. https://doi.org/10.1016/B978-0-12-373553-9.00279-0
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something bad happened to you, and you died, and you came back wrong.
not wrong all the way. the little ways. you forget important dates, stopped going out with friends. it's harder to make you smile. you're apathetic towards things you used to love, afraid of places you used to go to cheer up. quieter. flinching. different.
you came back for love. you're still here for love. what pulled you back was a brightness so loud that even death couldn't outshout it. death heard the call and smiled at you and said okay. go home. somebody is waiting for you.
but you came back different. like lot's wife; you've turned into salt. you used to chirp through life in hops and skips; but now you lose skin just standing up. you have to move slower, skimming across this world without-touching-it. most things feel dull - until they're suddenly all-too-much. life, and being alive just rushes up and over you and you get hopelessly crushed.
you try to explain it to them: it is ugly, but this is what you are, now. the huge golden hoop of your halo now a little bronze ring. you are still watering your plants and wearing the same clothes. after all, you worked hard to come home. this life; so odd and off-color, now that you are wrong.
but they waited for you - it's just that they wanted the "you" that happened before this. the "you" that could sing in the show and hug people tight and look at a blade without breaking down to cry. the you with a smile in pictures. god, holyshit, it's like looking at a completely different person, isn't it. that other-you; the one they actually wanted.
you are the consolation prize. you are the body that forgot the ghost. you are the memory of the bad thing, and the death after; like you are wearing that memory as a banner. you are a fragment, an assembly. simulacrum. you don't make eye contact in mirrors, afraid the light will glance off and your true nature will flash back at you.
you hear them talk about it in their hushed, desperate whispers. sometimes they even admit it to your face; harsh and violent, acid thrown at christmas dinner. god, can you just fucking be normal again. you do not remember what normal is. you had to climb so far to get back here; you are far too exhausted. you want to open the glass door of your heart and show all the gears. can you help resolve whatever got messed up?
you try so, so hard. you came back for them. because you believed they would love you, even when you were so horribly broken. because you believed they would be patient. because you believed unconditional meant "without exception." you cannot do things the same way. you just get tired too quickly these days.
you want to put them on a couch and pour them the tea with hands that shake more than they remember. you want to line them up and draw them a map of where you have had to wander. you want to show every bruise in a backsplash; the little helpless ant of your soul carrying all that weight, over and over. you want to say: yes! it is different! but i did it for love!
you want to say: "i'm not the same, but i'm yours and i'm here. can that be enough?"
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