Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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one of the things about being an educator is that you hear what parents want their kids to be able to do a lot. they want their kid to be an astronaut or a ballerina or a politician. they want them to get off that damn phone. be better about socializing. stop spending so much time indoors. learn to control their own temper. to just "fucking listen", which means to be obedient.
one of the things i learned in my pedagogy classes is that it's almost always easier to roleplay how you want someone to act. it's almost always easier to explain why a rule exists, rather than simply setting the rule and demanding adherence.
i want my kids to be kind. i want them to ask me what book they should read next, and i want to read that book with them so we can discuss it. i want my kid to be able to tell me hey that hurt my feelings without worrying i'll punish them. i want my kid to be proud of small things and come running up to me to tell me about them. i want them to say "nah, i get why this rule exists, but i get to hate it" and know that i don't need them to be grateful-for-the-roof-overhead while washing the dishes. i want them to teach me things. i want them to say - this isn't safe. i'm calling my mom and getting out of this. i want them to hear me apologize when i do fuck up; and i want them to want to come home.
the other day a parent was telling me she didn't understand why her kid "just got so angry." this woman had flown off the handle at me.
my dad - traditional catholic that he is - resents my sentiment of "gentle parenting". he says they'll grow up spoiled, horrible, pretentious. granola, he spits.
i am going to be kind to them. i am going to set the example, i think. and whatever they choose become in the meantime - i'm going to love them for it.
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Consider this: ghosts are actually exactly what the Fentons think they are.
They're snapshots of a longing so strong, unfinished business so deep it reaches out beyond life. Lingers just a bit longer. And if it happens to meet a dense cloud of ectoplasm (invisible to the naked eye, but omnipresent even in the mortal realm), it coalesces. The ectoplasm fits into the shape of it. Which, when the desire is strong enough, it's got a rough idea of its self-image. This tends to mean a more humanoid figure, though it's more often warped in some way–a self-reflection, skewed by said desire. The warping varies on the dead soul’s perception of themselves, the intensity of their desire, how much time passed after death, and how much ectoplasm was present.
In short… no matter how “normal" a ghost looks or acts, it really, truly isn't human. It's animated ectoplasm with a single goal: an obsession. Nothing else. They're more akin to plants than animals, following a single drive with no emotion. They react to stimuli, recognize threats (including other ghosts), and can even imitate human speech and mannerisms to obtain fulfillment of their obsession.
Not “evil" by any stretch, but they're entirely driven by instinct. A tree doesn't pause to consider the rocks it breaks with its roots. A cordyceps doesn't torture its host for fun, or kill with malice. It just does. It follows code in its DNA to survive and multiply–And ghosts just follow the code in its ectoplasm to fulfill its obsession. The more powerful a ghost, the better it's able to overcome obstacles preventing this–whether through brute force, or manipulation. This power is always directly proportional to the amount of ectoplasm present at the time of formation, and how much time passed since death.
What then, does this mean for Danny? Danny, who's previously come to the conclusion that he's only half-ghost, which surely explains how he retained his mind? His independent thoughts and emotions?
What does this mean for Phantom, who experienced an entire world’s worth of ectoplasm condensed as a singularity, at the exact time of his death? Whose strength only grows and begins to exceed every limit they previously thought possible?
If a ghost was as strong as him… could it mimic a human perfectly? Down to a molecular level?
Could it, in its desire to fill an obsession… trick its own fake mind into thinking it was still human? Or half-ghost?
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it is all chaos and entropy. the thing is that the chaos and entropy make it beautiful and lovely.
yes, it's true that nature and the universe are uncaring and unspecific, and that is terrifying. i have lived through some of the unfairness - i got born like this, with my body caving into itself, with this ironic love of dance when i sometimes can't stand up for longer than 15 minutes. i am a poet with hands that are slowly shutting down - i can't hold a pen some days. recently i found a dead bird on our front porch. she had no visible injuries. she had just died, the way things die sometimes.
it is also true that nature and the universe are uncaring and unspecific, and that is wonderful. the sheer happenstance that makes rain turn into a rainbow. the impossible coincidence of finding your best friend. i have made so many mistakes and i have let myself down and i have harmed other people by accident. nature moves anyway. on the worst day of my life she delivers me an orange juice sunset, as if she is saying try again tomorrow.
how vast and unknowing the universe! how small we are! isn't that lovely. the universe has given us flowers and harp strings and the shape of clouds. how massive our lives are in comparison to a grasshopper. the world so bright, still undiscovered. even after 30 years of being on this earth, i learned about a new type of animal today: the dhole.
chance echoing in my life like a harmony between two people talking. do you think you and i, living in different worlds but connected through the internet - do you think we've ever seen the same butterfly? they migrate thousands of miles. it's possible, right?
how beautiful the ways we fill the vastness of space. i love that when large amounts of people are applauding in a room, they all start clapping at the same time. i love that the ocean reminds us of our mother's heartbeat. i love that out of all the colors, chlorophyll chose green. i love the coincidences. i love the places where science says i don't know, but it just happens.
"the universe doesn't care about you!" oh, i know. that's okay. i care about the universe. i will put my big stupid heart out into it and watch the universe feast on it. it is not painful. it is strange - the more love you pour into the unfeeling world, the more it feels the world loves you in return. i know it's confirmation bias. i think i'm okay if my proof of kindness is just my own body and my own spirit.
i buried the bird from our porch deep in the woods. that same day, an old friend reaches out to me and says i miss you. wherever you go, no matter how bad it gets - you try to do good.
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