i hope that sometimes fifteen's psychic paper shorts out and shows what fourteen's thinking back on earth. he tries to sneak in somewhere and the guard's like this just says 'need to pick up cat food'? and fifteen's like 🥺 they got a cat
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man I wish people understood how much it sucks ass to be neurodivergent and trying to find the middle ground where people like/tolerate you. like, I'm either "boring" (trying to wait my turn in conversations, holding space for other people, taking a back seat to let others get some spotlight) or "too much" (too loud/talking too much, getting excited to share, trying to participate in group conversations/activities). No one really talks about how much of being neurodivergent is just sort of trying to make yourself palatable.
I feel like so much of my life has been spent trying to find this effortless sort of middle ground everyone else seems to automatically already know, and I'm always swinging too far one way or the other. I'm lucky to have neurodivergent friends who grok me, but goddamn I wish that I could just like, exist without the constant background script in my brain that's like "you're being too loud. You're not talking enough. you're being self-centered. you're being boring. you're wrong, you're wrong, you're wrong." I feel like I'm back in high school trying to make friends but stuck as the eternal "weird kid"
it's just... lonely and sucks bad.
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you're in the habit of denying yourself things.
if someone asked you directly, you would say that you love a little treat. you like iced coffee and getting the cookie. you drink juice out of a fancy cup sometimes, and often do use your candles until they gutter out helplessly.
but you hesitate about buying the 20 dollar hand mixer because, like. you could just use your arms. you weren't raised rich. you don't get to just spend the 20 dollars (remember when that could cover lunch?), at least - you don't spend that without agonizing over it first, trying to figure out the cost-benefits like you are defending yourself in front of a jury. yes, this rice cooker could seriously help you. but you do know how to make stovetop rice and it really isn't that hard. how many pies or brownies would you actually make, in order to make that hand mixer worthwhile?
what's wild is that if the money was for a friend, it would already be spent. you'd fork over 40 without blinking an eye, just to make them happy. the difference is that it's for you, so you need to justify it.
and it sneaks in. you ration yourself without meaning to - you don't finish the pint of ice cream, even though you want to. the next time you go to the store, you say ah, i really shouldn't, and then you walk away. you save little bits of your precious things - just in case. sometimes you even go so far as putting that one thing in your shopping cart. and then just leaving it there, because maybe-one-day, but not right now, there's other stuff going on.
you do self-care, of course. but you don't do it more than like, 3 days in a row. after that it just feels a little bit over-the-edge. like. you can't live in decadence, the economy is so bad right now, kid.
so you don't buy the rice cooker. you can-and-will spend the time over the stove. you can withstand the little sorrows. denial and discipline are practically synonyms. and you're not spoiled.
it's just - it's not always a rice cooker. sometimes it is a person or a job or a hug. sometimes it is asking for help. sometimes it is the summer and your college degree. sometimes it is looking down at scabbed knees and feeling a strange kind of falling, like you can't even recognize the girl you used to be. sometimes it is your handprint looking unsteady.
sometimes it is tuesday, and you didn't get fired, and you want to celebrate. but what is it you like, even? you search around your little heart and come up empty. you're so used to denying that all your desires draw a blank.
oh fuck. see, this is the perfect opportunity. if you had a mixer, you'd make a cake.
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"But if college was free, then people would abuse that and get useless degrees" hell yeah I would! If I could go to college without debt I would make it my job to get a degree in every little thing that interested me. I'd get a doctorate in film studies. I'd have a bachelor's degree for every science I like. I'd try to learn at least 5 languages with varying results. I would learn something "useful" like coding and then follow it up with a ""useless"" degree like art history. I'd be the world record speed run holder for getting every degree possible.
But I can't afford college without going into massive debt, so instead I spent the last 5 years trying to figure out what I am passionate enough about to consider going into debt over, because unfortunately being passionate about everything is extremely expensive to pursue.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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