Nothing will dispell the "the curtains were just blue" myth faster than writing something yourself, because the amount of pretentious symbolism i am putting in my silly little fanfics is ridiculous. I mean SO much with these words, literally every single one of them. This fic has twenty five typos and zero correct uses of punctuation but if there's curtains you bet your ass I put thought into what colour they were.
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I think so many people are so deeply alienated from themselves that they have no clue how to exercise their free will and autonomy. For some, this alienation runs so deep that they are afraid of their own autonomy and humanity. It is completely understandable why one would have those feelings, but it can be worrisome.
I want to help others who feel this way, so here are small things I have done to exercise my free will:
Add "guilty pleasure" songs to playlists and actually listen to them (I have a ton of late 1990s-early 2000s music I listen to now proudly that I never listened to in the past out of shame)
Getting the décor item, bath set, bed spread, ect. in the patterns you like, even if it's "childish" (I got a dinosaur-themed wastebasket from the kids' décor section and I adore it)
Taking a new route to get to a place you go to often
Eat dessert first
Celebrate well, and often
Collect things that are "odd" or don't seem like an "acceptable" thing to collect (somebody on my "for you" page collects dandelion crayola crayons and it was so cool!!!!!!)
Incorporate one new piece in an outfit you wear frequently (e.g., a new chain, a necklace, ribbons, bracelets, ect.). Challenge yourself to add onto the outfits if you feel up for it.
Sing along to songs without worrying that you sound "good" or your intonation is completely accurate
Read a book from a genre you weren't allowed to read as a kid (comics, thrillers, mysteries, anything!)
Walk without having a specific destination or goal
Pick up a new craft without expecting yourself to master it or to ever be "good" enough. Get your hands messy.
I don't want to shame anybody for not feeling as though they have free will or that they are exempt from exercising it. However, I wanted to give ideas so that you might read this list and find your own ways to express your intrinsic autonomy and will. You deserve to be a person, to feel alive, not just living. That is what our lives are for.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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lead balloon (the tumblr post that saved me)
if this comic resonated with you, it would mean the world to me if you donated to this palestinian family's escape fund.
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no creative notes because this isn't that kind of comic.
I know I don’t owe any of you anything but I still felt compelled to write about my long term absence. And I feel far enough away from the dangerous spot I was in to be able to make this comic. I have a therapist now, and she agreed that making this could be a very cathartic gesture, and the start of properly leaving these thoughts behind me. I am still, at seemingly random times, blindsided by fleeting desires to kill myself. They’re always passing urges, but it’s disarming, and uncomfortable. I worry sometimes that my brain’s spent so long thinking only about suicide that it’s forgotten how to think about anything else. Like, now that I've opened that door for myself, I'll never be able to fully shut it again. But I’m trying my best to encourage my mind in other directions. We'll see how that goes.
I am still donating all proceeds from my store to Palestinian causes. So far, I've donated over $15K, not including donations coming from my own pocket or the fundraising streams which jointly raised around $10K. In the time since I made my initial post about where this money would be going, the focus has shifted from aid organisations to directly donating to escape funds.
If you'd like to do the same, you can look at Operation Olive Branch, which hosts hundreds of Palestinian escape funds or donate to Safebow, which has helped facilitate the safe crossing and securing of important medical procedures for over 150 at-risk palestinians since the beginning of the genocide.
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something bad happened to you, and you died, and you came back wrong.
not wrong all the way. the little ways. you forget important dates, stopped going out with friends. it's harder to make you smile. you're apathetic towards things you used to love, afraid of places you used to go to cheer up. quieter. flinching. different.
you came back for love. you're still here for love. what pulled you back was a brightness so loud that even death couldn't outshout it. death heard the call and smiled at you and said okay. go home. somebody is waiting for you.
but you came back different. like lot's wife; you've turned into salt. you used to chirp through life in hops and skips; but now you lose skin just standing up. you have to move slower, skimming across this world without-touching-it. most things feel dull - until they're suddenly all-too-much. life, and being alive just rushes up and over you and you get hopelessly crushed.
you try to explain it to them: it is ugly, but this is what you are, now. the huge golden hoop of your halo now a little bronze ring. you are still watering your plants and wearing the same clothes. after all, you worked hard to come home. this life; so odd and off-color, now that you are wrong.
but they waited for you - it's just that they wanted the "you" that happened before this. the "you" that could sing in the show and hug people tight and look at a blade without breaking down to cry. the you with a smile in pictures. god, holyshit, it's like looking at a completely different person, isn't it. that other-you; the one they actually wanted.
you are the consolation prize. you are the body that forgot the ghost. you are the memory of the bad thing, and the death after; like you are wearing that memory as a banner. you are a fragment, an assembly. simulacrum. you don't make eye contact in mirrors, afraid the light will glance off and your true nature will flash back at you.
you hear them talk about it in their hushed, desperate whispers. sometimes they even admit it to your face; harsh and violent, acid thrown at christmas dinner. god, can you just fucking be normal again. you do not remember what normal is. you had to climb so far to get back here; you are far too exhausted. you want to open the glass door of your heart and show all the gears. can you help resolve whatever got messed up?
you try so, so hard. you came back for them. because you believed they would love you, even when you were so horribly broken. because you believed they would be patient. because you believed unconditional meant "without exception." you cannot do things the same way. you just get tired too quickly these days.
you want to put them on a couch and pour them the tea with hands that shake more than they remember. you want to line them up and draw them a map of where you have had to wander. you want to show every bruise in a backsplash; the little helpless ant of your soul carrying all that weight, over and over. you want to say: yes! it is different! but i did it for love!
you want to say: "i'm not the same, but i'm yours and i'm here. can that be enough?"
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part of knowing me is watching me self-destruct. you cannot save me, you cannot fix me, and you cannot stop me.
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fuck you ageism fuck you life ending at 30 fuck you makeup industry forcing us to feel bad about a natural process fuck you hustle culture fuck you instagram fuck you youtube fuck you glorification and deification of youth fuck you who make people feel bad for not having "achieved anything" in their 20s fuck you people who peaked in high school and try to drag everybody down by insisting it's all downhill after 19
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thriller bark . .
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i should’ve killed myself when i was a kid
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the first night
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Small tasks
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hgrng...thinking of love
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im such a ‘‘i want ur attention but don't wanna bother u’’ kinda person
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I think a fair number of (able-bodied) people don’t understand that cripple is a slur. It’s a slur. It’s offensive. Physically disabled people can reclaim it *if they want to*, but they don’t have to. They can be offended by it if they want to as well. Both are valid.
Also, you can reclaim it FOR YOURSELF! You don’t just get to call other people cripples because you decided to reclaim it. That’s personal. Saying “oh, I can say that because I’m physically disabled” only applies if you’re referring to YOURSELF that way. You do not get to tell other people in your community what they should and shouldn’t be comfortable with.
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