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#ill go back to therapy one day when i feel like paying for it ig
myescapediary · 1 year
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Another update:
I decide to update my tumblr whenever i’m really sad and cant process what im feeing or thinking so this might be type long so ill break it down. where do I even start?? Its been two months and four days since I came on here. Based off my last update um...
RU update:
there is five weeks left of the semester!! Crazy how fast time flew by, its been ok haven’t make friends tbh but hopefully next semester is different. I am nervous about finals and I still haven’t paid off my tuition.. I also have my internship placement interview that I am so nervous about. I hope i do good and i am just so excited and scared at the same time. 
New job: 
I got a job!! I work at a Physical Therapy clinic and its been good so far, way different from my last job. Although i only work two days bcs of school, i am so ready to be full time once the semester is over. I am tired of not having money and i need to pay off my credit cards smh. 
Social Life: lmao might have to break this one down too... 
lets start of with Franco: that was a nice time, distanced myself bcs he was giving bf vibes and wanting a relationship, not what i want.. DV: um with this one.. said i was going to exchange my gifts and then cut him off.. well, his gifts are still sitting in my room LMAO! Idk whats going on with that, i just been avoiding him, he gives me an ick now... J: still around, it’s been really weird, idk why. He stood at my house for two days then his “girl” came to my house and confronted him about him staying here since he lied and she thinks i’m not in his life anymore, welp he went home the following day. He says he wants nothing w her but i’m sure he does, he prob just doesn’t want to be the first one to get into a relationship. Now lets talk about the one thats been taking a toll on me for no fucking reason... 
JZ, ok well from last update i seen him at esquina was awkward. Fast forward to 3/10, went to B’s bday party. Me and JZ spoke shit out like fr we kept it cool and it was nice getting the closure I needed, told him how i never wanted a relationship with him etc. I also mentioned how he blocked me from viewing his stories and him viewing mine. Mind you i’m not even that lit bcs i didn't want to do anything stupid since this is the first time being around him since brunch lmao. Night goes on, we dancing then i’m dancing on him cus why not and i notice he keeps staring at my lips and i eventually play dumb and let him kiss me =, first time i backed off second time we made out for like 2 seconds LMAO. Ok, i then let him be and distance myself, I notice B wants to get with him so i’m avoiding them although he isn't fully paying attention to her, fast forward, we end up getting kicked out and we going home. B is in the car w me asking for JZ and how she wants him to take her home and how he “kissed her”. ok anyways, he doesn’t take her home and she lied about that and he told everyone he only kissed me cool. I obv felt a type of way seeing them bcs idk why he got me feeling like this for him, when he doesn’t do shit bruh. Following day we go to Scarlet’s and B is with him and i was like great.. they was always together and i was lowkey hurt, why idk but I was. I just hoped she wasn’t going to NYC with us too.. 
Ok we go to NYC with the boys for St.Pattys day, its me ad libi and the guys from brunch... off the bat Jacob is being an asshole and bringing brunch up all the time, found out that I was crying for JZ that day of brunch like wtf?? ad to play it off like i remembered that LMAO. Ok, i avoid JZ all night then remembered the following day going up to him and my dumbass being drunk bringing up B to him talking about some, i’m not dumb you want her and he’s like no I want u and i’m like you’re not acting like it and thats all I remembered. He been watching my ig stories since B’s bday but idk my dumbass always does some dumb shit to push him off. I think its the thought of him not wanting me what kills me, like wtf? Following day all his boys said how they would get with me and how i’m bad like wtf let me heal you from your ex?? LMAOO JK. But that was another story, they prob think i’m easy after brunch but hell na, jacob was buggin and swears. Ok well that was on 3/18 and I haven’t seen him since. 
I am just driven by the fact he doesn’t want me ig? but then he goes kissing me and saying he wants me? is he that much of a bitch? like I don’t understand fr and me wanting answers makes me want him more and honestly he isn’t even that cute, well he is but like for me to be this “obsessed”. He def needs healing from his ex bcs he be liking sad shit and how he can’t trust females.. He is just such a cool person and his vibes are it, his style and the way he talks god. I don’t know what JZ did to me but he got me going through it without doing anything bruh. No need for me to feel this way. And the fact he knows i’m down bad for him prob gives him an ick and i see why but i try to avoid him and be cool but i fuck it up somehow. I clearly can’t drink when i’m around him. I just wished he was open to getting to know me and not making it weird. But yeah, that’s mainly what’s been making me upset,I was over the thought of him till i was around him for 2 weekends straight. They talking about NYC next weekend and staying over there, idk if he’s going and idk if B is going. If she goes that shit gonna blow mine but we’ll see. 
I should be doing homework but here’s me writing a whole book lol.
March 25, 2023 
4:19pm 
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peachysuho · 6 years
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plounce · 3 years
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what if gay CATS........... were gay PERSONS
(info on this au under the cut)
theyre all shitty young adults just kind of. getting through their early 20s as best they can. or as much as they can. maybe things will get better someday, but right now they’re kind of spinning their wheels
magic exists but like eh it’s not a big thing don’t worry about it. it’s around but like whatever. not many people have it and it’s mostly just like. a curiosity or a party trick
demeter and bombularina are together, tugger and mistoffelees are together, bombularina and tugger occasionally fwb, it’s cool and aboveboard and it’s all fine
demeter:
bisexual with a preference for women. 24 years old
semi-psychic (not as powerful as tantomile or coricopat). tends to have vague and confusing prophetic dreams
dropped out of grad school for sociology due to trauma and ensuing intensified mental illness. kind of bitter about it, but tries to get through every day. general anxiety disorder even before all that
very nervous around most men she doesn’t know & trust
currently working at a barnes & noble starbucks, which sucks. she recently became the assistant manager, which turbo sucks because now she has more work for only like a buck raise, but at least she’s getting reliable shifts
her go-to therapy is cutting her hair with scissors. her hair is fried to all hell from regular bleaching
she’s learning how to crochet because she’s decided she needs to do something physically productively creative with her hands to distract herself from Stuff
bombalurina:
bisexual. 24 years old
got her bachelor’s in english two years ago and hasn’t found a job in her field and has kind of given up on it for now
she’s been bartending for like four years, does freelance editing work on the side. will occasionally write listicles for clickbait sites if she needs extra cash
literally any extra money she can save goes to tattoos. her right sleeve’s almost done
has natural red hair but dyes it cherry red
a hedonist to cope but is also just a natural hedonist. likes a good bath
i know that like the typical thing fandoms say about female characters is “doesn’t take shit” for the girlboss points but she truly does not take shit anymore. she used to take people’s shit sometimes but at this point in her life she’s tired and she has a girlfriend to be protective of. she has a couple people whose shit she will take (mostly just tugger) but besides them (and having to practice basic customer service to keep her job) she’s tired of other people’s shit! enough!
my personal take on bombalurina is a mix between the riot grrrls of the 90s and 80s punk girls, and then a dash of the greaser chicks from grease. i saw that spiked collar and my brain went OH okay i can run with this somewhere fun. same for demeter, but less so - she just has the piercings.
demelurina:
bombalurina met demeter in college at a women’s activism club, noticed her because of her dimple piercings and was like “oh someone else with a lot of metal in her face, i’ll sit next to her”
they were each other’s first off-campus roommates and were close friends. made out a couple times, but it was mostly a lot of sexual tension. there was a lot of bombalurina staring at demeter while she or demeter made out with someone else
demeter was on and off with her high school boyfriend munkustrap and bombalurina was like “oh he’s so much more stable/calm than me and she needs that, i party a bit too much for her, i shouldn’t try anything” so she just sort of. lets their almost-there peter off
(this is all bombalurina’s internal thoughts - demeter always was interested in her, but thought she was too boring for bombalurina. so neither of them thought they could pursue it)
bombalurina graduated and moved somewhere cheaper further away from campus. they kind of drift apart
munkustrap and demeter peter off and he moves away for a job (they’re still good friends, it was a very amicable breakup) and then demeter gets with macavity, which is a deeply toxic situation for her and sucks hugely and throws her whole life really off track. won’t go into further details
she finally manages to break up with him and calls bombalurina at like 2 am asking if she can pick her up, and also if she can sleep on her couch, it’s okay if that’s not okay, she just. really needs a place she feels safe, and her gut is telling her to. and of course bombalurina says yes
bombalurina also knew macavity and had also made out a couple times with him at like parties and stuff (see: staring at demeter as she makes out with people). something about transference of feelings - bombalurina was into him for a couple moments because he and demeter had a thing.
this is due to me interpreting the song “macavity” as actually about bombalurina wanting to fuck demeter and her singing as a half-repressed expression of that. i use my really good wlw brain to reach that conclusion. it’s kind of a non-competitive version of eve sedgwick’s take on the love triangle. (<-- normal thing to say)
but anyway demeter stays on bombalurina’s couch and she tries so hard to stay on track but eventually she just has to drop out. bombalurina helps her with that too. she’s just really supportive even as demeter’s life is at its lowest point. when she gets home from bartending she gets demeter to go to sleep
she just Stays with her and makes her smile and reminds her that her life isn’t over, there’s still things in her day to enjoy, to keep her trudging forward
bombalurina is roommates with tugger at this point - he also recently dropped out and demeter knows him because he’s munkustrap’s brother, so he’s Trusted and also is like “hey it’s okay that you dropped out, im here and im chilling and you like me and respect me at least a little, and you have a bachelor’s degree at least!” (more on him later)
demeter is like “oh god ive been crashing at their place for so long not paying rent, theyre gonna ask me to leave, im such a freeloader, they wont take my attempts at paying rent” but then bombalurina and tugger are like “hey! the lease is almost up! we found a pretty good 3 bedroom, do you wanna have your own room for real?” and she nearly cries because 1. the RELIEF 2. oh my god you want me around???
cut to bombalurina helping demeter put together an ikea dresser (tugger got banished to the kitchen to make crystal light lemonade for them because he’s useless with a screwdriver) and demeter has two epiphanies:
1. i thought i was ready to d*e four months ago and here i am making a dresser to put clothes into in my new apartment where i live and feel safe and loved. im still not happy but im still alive and im making a dresser
2. holy fuck im back in love with my best friend, and ten times more than i was back then.
so she like kind of freaks out because she’s already imposed so much on bombalurina, how could she impose her FEELINGS on her like this, oh no oh no oh no
meanwhile bombalurina’s back in love with her even MORE and she’s also like no... she’s already dealing with so much... i don’t want to make her uncomfortable or feel unsafe in her own home especially after her recent relationship trauma... i just want her to feel safe around me...
you might think tugger as their roommate would be like “JUST KISS” but he is in fact pretty oblivious because he is self-absorbed. mistoffelees on the other hand..
eventually they do have a big confession of feelings after demeter has a bad day and it’s very dramatic and they make out in the rain. and it’s like. well this is a movie scene. but also im cold and damp. let’s head inside our home and get warm and dry :)
and then they go inside and and talk through everything, all their feelings (not just their romantic feelings but like ALL their feelings) and their shared histories and bombalurina is like “do you think you’re... ready for a relationship right now? like that would be a good thing for you?”
and demeter considers it. she does stop and think. and then she says, “with anyone else... probably not. but it’s you. and i feel so safe around you, and we’re already so close. you make the future feel more worth it. you make more days alive feel not just tolerable, but something to look forward to. and knowing you’ve loved me all this time... it’s nice. it’s good. i’m - i’m understating it so much, it’s more than nice, it’s just - it’s a lot. i wish i had noticed back then.” “hey, hey, don’t blame yourself. i’m the one who never said anything.”
anyway. everything works out, and they start dating for real :)
tugger:
bisexual. 22 years old
dishwasher at the same bar bombalurina works at. she got him the job. he keeps bugging her to teach him bartending tricks and on slow nights she will agree to
he dropped out of their four year, but he managed to secure an associate’s in communications before he dipped
trying to be an ig influencer hotboy and hopefully get modeling jobs from that but his phone’s camera sucks shit so his account isn’t really going anywhere. but he continues to post his low resolution shirtless selfies
trying to cope with being the failure son who does not have a fancy nonprofit job with a salary and healthcare by being self-absorbed and self-aggrandizing
it works about 60% of the time and 60% of the times that it doesn’t he’s able to hide it
he dropped out right around when bombalurina graduated and he was like HEY! ARE YOU LOOKING FOR A ROOMMATE WHO DOESN’T CARE IF WE LIVE TEN MILES AWAY FROM CAMPUS? WELL HAVE I GOT A SOLUTION FOR YOU: ME!
to which bombalurina (who has fooled around with him here and there and thinks he is funny little man and genuinely goodhearted, and also he has rockin abs as a plus) says munkustrap already asked me if i need a roommate and if i do to consider you, because you don’t want to move back home. in other words: yes, you little idiot
they do fool around with each other but they are both very understanding that it is strictly platonic and for fun, especially once they become roommates. they both do not desire each other for anything serious
he did have a bit of a crush on each other when they met (hot punk older girl who’s friends with his brother) but 1. it dissipated pretty quick after they fooled around for the first time because it was not a very serious crush 2. she was in the middle of being in love with demeter so she was focused on that, emotionally
he got his ears pierced a couple times in high school but bombalurina inspired him to get a couple more. she went with him when he got his nose pierced
demeter has always understood that him and bombalurina are strictly fwb, has never been an issue.
she and him like to bleach their hair together when their hair schedules line up (he bleaches his way less often then she does), but she refuses to use his fancy conditioner that keeps his hair unfried because it’s expensive, even though he tells her to go ahead and use it, please, the health of her hair is giving HIM anxiety, demeter please. please demeter
mistoffelees:
gay. 20 years old
has magic. it’s pretty good magic but again: magic is not a big deal in this concept
a bit spooky. skulks around. a bit of a bitch but also very very nice. chooses when to speak
he has postings on craigslist and fiverr about finding lost objects and people with magic. like a gig economy private detective
side job is a waiter at a fancy restaurant
sometimes he gets paid VERY well from the private detecting, depending on the client. he does ask his psychic friends (tantomile & coricopat) to give a quick glance over on some of the more suspicious clients just to make sure he isn’t finding someone who should not be found by that person.
doesn’t go to college. is roommates with his sister victoria, who’s a freshman and studying dance. moved into town with her so she wouldn’t have to live in the dorms by having a guaranteed roommate.
tuggoffelees:
the general vibe i want for these two is mistoffelees walking around town or driving around in his shitty toyota camry while tugger tags along because he’s bored and thinks this is cool as shit
the general tone of the au is “magic isn’t a big deal” except for tugger, who thinks mistoffelees’ magic and his magic freelancing is the coolest shit ever. this is mostly because he just likes mistoffelees. “there are people who can do cooler shit than me, tug” “yeah but i don’t KNOW them also theyre not as COOL as you” “you had to explain to me how instagram reels work”
idk how they met i just think tugger shows up at his and bombalurina’s apartment one day (this is when demeter has moved in but they havent moved to the 3br yet) with this dude to dash in and pick something up and bombalurina is like “uh. who’s this” “oh this is mistoffelees he’s SO GOOD AT MAGIC” [mistoffelees nods hello] “okay bye bombalurina see you at work!!!” “uh. later”
after that he just shows up a lot. sort of ambiguous if theyre dating or what for a while before bombalurina straight up asks like “hey does the dude you’re dating know we fool around” “the dude im - what?” “... the little magic guy who keeps using our hot cocoa mix. misty.” “oh. uh. we aren’t dating.” “... do you want to? because you’re kind of all over him constantly” “um. well! haha, if i wanted to, i could! haha!” “yeah get back to me on that”
tugger trying to use his ig clout to get mistoffelees more work even though 1. he has no clout 2. mistoffelees has a very stable client base. but mistoffelees appreciates the effort. the self-promo guy promoing someone other than himself... the highest expression of love...
mistoffelees is A Nonthreatening Man plus he’s pretty obviously gay so demeter is chill around him pretty quickly. when mistoffelees is over they’ll sit on the couch where demeter sleeps and watch documentaries quietly while she crochets
they both occasionally say spooky shit at the same time because magic stuff. bombalurina and tugger are both torn between “that was cool as fuck” and “god that’s unnerving”
just a lot of tugger following mistoffelees around on his jobs and mistoffelees letting him because he’s fond of him and them occasionally getting into minor peril and interesting shenanigans, but it is 90% fetch quests
i think the first time they met tugger was taking selfies in front of a hydrangea in a public park and he saw mistoffelees walk up with a shovel and start digging in one of the flower beds and he thought he was hot so he went over and offered to take over on the shoveling to look strong and masculine and he ended up digging up a skull, which mistoffelees picked up and said “thanks” and then walked away
mildly terrifying but also very interesting and tugger’s days are kind of boring and dishwashing kind of sucks as a job to do like every night and he is a person who thrives on novelty so. moth to a porchlight
i think they do start making out for fun here and there and then a while later theyre out on one of mistoffelees’ jobs and someone asks “who’s the guy with you” and mistoffelees replies “oh that’s my boyfriend, don’t worry about him” and then it’s like. “HUH? I’M YOUR BOYFRIEND?” “uh. yeah? i assumed. is that okay?” “i mean yeah of course i think you’re great! how long have we–” “oh like a while.” “oh. uh. cool!!”
they just hang out a lot. mistoffelees enjoys teasing him and enjoys his warmth and bombasticity and tugger likes watching and helping him solve little mysteries around the county because it’s always something new. they’re kind of a comedy duo. they just enjoy spending their time together and following mistoffelee’s internal magic gps to find lost dogs and lost necklaces
yeah right now this au is just vibes and just sort of. continuing forward with your days and your weeks and your months. just young adults hanging out
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fmdtaeyongarchive · 3 years
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q3 2021 update & plot call !!
below the cut, you can find an update on ash’s current life, career (or rather absence of), and development for quarter three, as well as plot and thread ideas! if you see anything that you’d like to plot out or write with him, like this or message me, and we can get to it! i have a lot in mind about where ash is right now, so i might add more and expand later on!
mentions of ash’s continuing struggle with mental illness under the cut in case you don’t wanna read that rn
professionally
ash is on hiatus the whole quarter so... not much going on here.
uhh basically the first two days of july he was still trying to get bc to let him take a break so schedule threads could be set then if they cross paths at the bc building! he’s going to be participating in concert rehearsals for knight to a less intense extent since bc, as of the beginning of his hiatus, fully intends him to participate in the concerts. he’ll miss about the first half of the tour, but in july and august he’ll still be attending knight tour rehearsals some to keep up. schedule threads can also be done then!
(note that he’ll be missing the bc city concert as well — i don’t see him dropping by just to support either tbh, sorry bc ppl. white knight duo ver tho let’s gooooooooooo)
ash will eventually start writing music and finding his love of that again though and that’s pretty much the most work he can do during his hiatus, so it’d be cool to maybe have him write, compose, or produce for a few people that might be releasing later this year or sometime next year if anyone is interested? :) we can see if ash would work for it. there’s also opening for him to ask a few people he’s close to to sing some demos for him when he starts trying to write again!
personally + plot ideas!
explaining how he got to his hiatus would take me all day but he basically forced bc’s hand in letting him take time off (well, he wanted to leave knight and retire ngl but his manager was like... you know that’s not going to happen let’s try a hiatus <3). you can read my badly-written solos for part of it (i still need to write more) but generally, the most other muses might know is that they might have run into him acting kinda moody/down or impulsive/irresponsible lately, he made a very uncharacteristic post on social media that hinted at being unhappy with his life currently and losing passion/excitement for even the things he used to value most highly before his social media was deactivated by bc lmaaooo. the post would have probably conveyed Something was up it it wasn’t like genuinely super triggering-level content i promise !! bc released a statement shortly after stating he’d be going on hiatus without mentioning a definitive end date.
so there’s the possibility a muse might have checked up on him after that post / the hiatus news to see how he was doing?
tbh ash isn’t going to be seeking out meeting new people during his hiatus. he’s taking time to himself and is only going to make any effort to hang out with people he’s comfortable with. those he’s not close to, he’s going to have to interact with by running into unintentionally.
he’s getting a place in jeju in the early-ish part of his hiatus. he’ll be spending a lot of time there at first because he just wants to get away from seoul, so it’d be nice to set some threads there if your muse has the time to hop over to visit him if they have anything resembling a free day. (again a certain level of closeness would be necessary, but i think one good heart to heart conversation beforehand could bring someone closer to him enough for that rn! even over text tbh lmao). chuseok would be a really good time for this !! i imagine catching up over lowkey dinners or heart to hearts under the stars, that found family ash has actively fought having lol
(that place in jeju is also going to be where he starts to want to write music again too, so music based stuff there would be chill?)
heart to hearts in general anywhere would be really good for ash right now so please give me those! they can be in seoul too for sure.
he’ll be moving into a new apartment in seoul eventually, though that will probably be a little later in his hiatus? he had some bad fan/sasaeng run-ins right before his hiatus and having so much time off makes him realize he wants to move. someone can help him house hunt or if someone else is looking for a place, they can talk together about it. i want him to realize he wants to move into a smaller place that can feel more like home
once he does move, muses are free to come over and help him set up / be his one-man housewarming party. that’s a little down the line tho !! so we might not want to plot that as a thread to write right this instant
he may also be getting a pet ! muses can come look with him at a shelter or he can run into people there!
this would be a little later in his hiatus, but it’d be interesting if once he’s doing a little better, he gets the urge to dance and runs into a muse at the dance studio. idk that he’ll ever fall completely back in love with dancing, but he might rediscover some of what he did love about dancing and ash and this muse often run into each other as he visits that dance studio a little more often and they eventually bond over it / do some dancing together.
those who still really have that passion for making music ash has lost, talk to him about it <3 he misses it. he might cry but tbh he’s liable to cry in any thread
he’s cutting his hair short and dying it back to black this month, so it would be possible to run into him at the hair salon!
ash will want to be inside at home mostly at the beginning of his hiatus, but as it goes on, he’ll start to branch out and that will offer some more opportunities to hang out. he’ll try not to go to bars and clubs really, but small music venues or jazz lounges, small indie cinemas, galleries, those kind of things will be up his alley
idk that there’s much plotting to be had around this, but this long hiatus on top of the other hiatuses he’s had and his acting out before this hiatus is going to make some of the bc team realize it might not be super wise to keep pushing him hard as a cf model (and in the long run, just less of pushing him as a major idol star within the company in general tbh) so he’ll be able to get some more tattoos and piercings and will become more comfortable, hopefully, with presenting himself how he wants to be seen / having some development in that good ol’ lack of bodily autonomy aspect ash has always had going on. he’ll be coming out of hiatus living much more of his 2021 jk fc truth with the full sleeve and the eyebrow piercing .
uhhh ? pretty far down the line but i’ll mention it while it’s on my mind :) i think it’d be cool if ash did a collab (mini-)album (or two?) at some point after getting off hiatus. i’d want it to be someone he really clicks with creatively (though they don’t have to be a songwriter — i can see it working as collaborative songwriting or as ash feeling really inspired to write for them) and wants to work with since it’s not going to be something he’s letting bc push him into it at that point, and something that just happens organically. realistically, this would work with a female vocal best by far, maybe a male rapper just based on the songs ash does / i can see him doing. probably wouldn’t want to commit to anything fully rn unless it really clicks but i wanted to throw the idea out there :)
uhmmm?? ig i should also mention ash will be paying attention to his health both mental and physical he’s been neglecting for a while. there isn’t too much to say regarding plotting here because he needs to handle it himself with trying new therapy, medications, understanding there’s some stuff beyond “just” his depression going on. coming to accept nothing’s ever going to be perfect, but that self-awareness and effort can help more than denial can. not super plot potential-y but i’ll mention it since this is all the personal update section
basically, ash is taking time to recover mentally (and physically) and ultimately hopefully leave hiatus in a better place than he started where he can be more comfortable in his career, even if just a little bit, in himself, and in his life. if he can have some good, developing threads during the time, that’d be great!
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mojoflower · 5 years
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My child with CIDP (a chronic neurologic illness)
Thank you for asking, @sunshinemeansmylove.  I’m always happy to share our story -- it’s cathartic.  And also, *I find it interesting, so I assume others do, too ;)
Almost ten years ago, when Phoenix had just turned 5, he started walking oddly.  We didn’t think much of it for a day or two, because he didn’t complain of anything hurting.  It got bad enough that one of his preschool teachers asked about it, so we took him in for x-rays and whatnot.  But they found nothing.  They put him in a boot for possible Kholer Disease, just in case (I don’t even know what that doctor was thinking), and with the boot, he essentially stopped walking altogether, and kept saying he didn’t want to go to preschool anymore:  so I took him out.
Within a week he’d stopped playing as much.  He appeared quite content just watching everyone else play.  He’d only stand on sidewalks instead of going on the grass.  (You need to know that he already had a long history of medical shit, because he didn’t walk until after 2, and didn’t talk until late, and was diagnosed with Pervasive Developmental Delay and “symptoms relating to autism” and had had 3 years of intensive therapies and Early Intervention by this point.  So I figured the grass thing was sensory, instead of balance.)
He started doing stairs on his bottom, instead of walking, and one day he fell down them.  (We’d moved into a new house... with stairs... only 4 months earlier.  Of course.)  The next day, he was on the living room floor, playing with his matchbox cars, and couldn’t get up.  That was the last time he stood for weeks.
All this time, he remained sweet-natured and amenable and never said that anything hurt.  But now he couldn’t walk and couldn’t stand.  We rushed him to the Children’s Hospital (which in Atlanta is very reputable, thankfuckinggod).  They ran tests.  Oh, god, they ran tests.  He didn’t have reflexes at all, and couldn’t feel his hands and feet.  This is hands-down the most terrifying period of my life, ever.
Finally, with a spinal tap and a horrifically invasive and ghastly and painful EMG test (wherein they jab a pin into your thigh muscle, poke another further down the leg and run an electrical current between the two to measure degree of  blockage in the transmission).  Phoenix had complete nerve conduction blockage (100% paralysis of his legs... it was moderately better in his arms and hands).
He cried and screamed and begged me and Daddy to help him while the doctor was doing this (it took something like half an hour).  But they couldn’t give him pain killers or tranquilizers of just knock him out, b/c that would have messed with their results, so we had to hold him down.  It’s the worst thing that’s ever happened to me, and to this day I won’t go to the hospital without a bottle of xanax in my purse, because the doctors can’t prescribe it for the parents, even though EVERYONE NEEDS IT, because you have to be calm for your kid.  Fuck, I’m crying just thinking about it.
We brought him everywhere in a little red wagon, which CHOA uses instead of wheelchairs, all nestled up with blankets and his lambie.
(One utterly thoughtless fucker -- not his neurologist -- said if his nerves didn’t work and it was progressive, it’d eventually move up his arms and legs until it reached his heart and lungs and suppressed breathing and then he’d die.  Which is factually true, but jesus christ.)
We thought he was going to die.  Over less than 20 days he’d gone from normal(-ish) healthy kid to a lump in a hospital bed who couldn’t move his legs at all and couldn’t wrap his hands around anything, couldn’t hold you back when you held him.
CIDP in children is incredibly rare.  It’s a super-rare condition regardless, but usually people get it as adults (average age 50).  It’s something like .000005% of the population.  Like, maybe there are 20 kids in the entirety of metro Atlanta who have it.  CIDP is a neuropathy in which the person’s immune system begins attacking the insulating sheath (myelin) around nerve cells, starting at the peripheral nervous system (hands/feet, legs/arms).  Without this fatty sheath, electrical signals from the brain simply don’t transmit to the muscles.  In many cases, there’s intense, phantom pain associated with it, but thankfully, Phoenix has only ever been numb, and I pray with my whole atheist heart and soul that it never changes.
But we lucked out, and the neurologist we got at CHOA identified CIDP fairly quickly (within a week, during which we never left the hospital, of course) and started him on IVIg.  IVIg is intravenous immunoglobulin -- essentially strained human plasma -- to remove all but the specific antibody Ig.
(SO PLEASE:  GO DONATE OR SELL YOUR PLASMA, it’s keeping kids like mine out of wheelchairs.  It costs more than gold, it cannot be synthesized or taken from animals.  They don’t know the exact mechanism by which it works (they call it a “black box”) but it does, and it’s fucking miraculous.)
With sufficient IVIg, the myelin sheath is repaired fairly rapidly.  At first, he needed infusions every three days.  (Generally, specialists told me, kids his age will go into remission after a year or two.  Phoenix, bless, is special and never has, even though I kept waiting and waiting.  Almost ten years later, and he’s steady like clockwork, remission never on the horizon.)  Over the years, we’ve managed to stretch the intervals to 15 weeks.  Which is great, because insurance HATES US:  the pharmacy cost alone is easily $100k+ a year, not to mention hospital stays and clinics.  Annually, we have to defend his need to go at whatever interval it is at the time, they’re always pushing us to stretch it further.
So he’s been on maintenance for many years.  There are some visual cues if he begins to decline, like his feet slapping when he walks, or using the bannister with two hands when he goes upstairs, but it’s not always that obvious.  This week, I asked him if it was the CIDP when he tried to get out of band practice for the third time, and he said yes, but I don’t see those other cues (although he’s been laying on the sofa for a few weeks and has stopped hanging out with his friends and is sleeping longer) so I don’t know if I just handed him a really good excuse to stay home and play computer games.
He’s been low-key complaining for about a week, and our next IVIg appointment isn’t until Oct. 1st.  You have to schedule months in advance so rescheduling for earlier isn’t possible, not to mention insurance will gleefully not pay if it’s earlier than 15 weeks (which means $9-$17k out of pocket, depending on the whimsy/voodoo of the hospital billing department).
So.  Yeah.  This is what it’s like to have a child with a chronic illness.  (CIDP is Chronic Inflammatory Demyelinating Polyneuropathy, btw.  It’s essentially the lifelong version of Guillain-Barré, that thing you see warning signs about when you go get your flu shot.  It can only be maintained, not cured.)  This is a good example of why it’s so vital for laws to prevent insurance companies from turning people down due to preexisting conditions.
It’s hard, as a parent.  He could be a typical teen who’d rather not spend all day in school... or his nervous system could very literally be slowly deteriorating.  I have to make judgement calls all the time, and sometimes I’m wrong.  It’s kind of terrifying.
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diariesof-kg · 3 years
Text
Accountability.
08_12_21
I don’t have much to blog about.  I was thinking of not typing my blogs but record and post.  It would be easier for people to listen than read a 4-page letter about my thoughts.  This helps me cope with my thoughts, since they are all over the place and some things come to the forefront that I forgot about.  I want to take time to reflect slightly.  I want to take accountability for myself.  As I get more comfortable speaking about what happened to me for nine months, it’ll be easier to post it on my IG.  It’ll be easier for my followers to understand me.  To understand the mind of someone who lived in silent.
After everything ended, I cried for a week straight.  And it wasn’t no small cry, it was so bad, I couldn’t breathe.  It was so bad, I felt like I was so empty.  And as I reflect, I see myself sitting at the desk, trying to work and crying.  But I also see the light at the end that I could not see before.  I remember telling my therapist, that I was officially beyond repair.  And that I worked so hard to self heal from the same shit I told myself I would never deal with again.  That’s the accountability for myself.  After 2016, I worked very hard to heal with no therapy and was dating easily.  I was likeable asf.  So it hurts and I am disappointed in myself that I repaired me just to have to do the shit all over again.  I think when I think about that, I cry a lot.  Because I’ve been through so much and of course everyone watched my relationship on IG, because I posted it all over.  And when I got out, everyone was happy for me.  I am disappointed because I allowed myself to allow the things to happen to me.  The moment she appeared at my house unannounced because I didn’t come to dinner was a red flag to remove myself.  And I didn’t.  The moment when she cursed me out just for asking about posting photos of me and her, was a red flag.  There were so many flags waving and I ignored them.  I have to take responsibility for my ignorance.  Some of it is my fault, because I allowed it.  I told myself and I told God, I WOULD NEVER end up in a situation like I was years ago.  I had understood the signs of abuse, I had read so many blogs and articles.  But I fell hard and fast.
There is a lot of disappointment that I feel and although they tell me, it’s not your fault, it still sucks.  Maybe if I was less of a lover I wouldn’t feel this way.  I legit was going on dates and had no interest in anyone.  Although they really wanted to date me or see me again, I declined.  Plus I had booked this TV show and in order to get a Capricorn attention or time, you have to honestly work for it.  And I think this Taurus knew that.  That’s why it was so easy to capture my attention and so easy to get me.  And it sucks.  Especially when she said I flaked on her, when I really had to film this show.  That should have been some sort of sign from the universe to skip over this one and date someone else.  I feel so eh.... I am still trying to figure that out.  I am according to so many others “hard to get...” I am not hard to get, you just have to have that vibe that vibes with me.  I think I liked her from the conversation and I never felt that type of energy from any other women I went on dates with.  But still after that, I should have known.  By now I’d be proposing or some shit to the right women.  But instead I’m picking up the pieces of myself to start healing all over again. 
I don’t even have the energy to date.  I feel like I am stuck on her, like some weird ass soul-tie, but I no longer want her.  It took about 90 days to get rid of those feelings and wanting someone who never wanted you.  It was hard.  Despite having a restraining order, parts of me wanted to just talk to her, parts of me wanted to be intimate, parts of me never wished it happened.  But I realize that it was meant to happen.  And this portion, I can’t wait to share with the public, because the push-pull was real.  It’s a battle between your mind and heart.  It’s a battle between those on the outside.  But at the end of the day it was me who made the choices to remain strong and not fall for it.  I am also realizing that, I was used for the moment.  At the beginning she said she was talking to someone else before me and parts of me wished she chose the other girl.  Parts of me is wondering why me?  Was it easier to manipulate me?  Was it because I am a Capricorn and I love money?  Because of what?  I feel used.  I even feel more disgusted, because I broke my 90day rule of intimacy and later she tells me before our date she had sex with some female who had a whole girlfriend.  If that doesn’t scream RED FLAG, I don’t know what does.  I don’t condone infidelity.  I have to take responsibility for falling deaf on things that were clearly present.  I don’t date cheaters!!! And she’s a damn serial cheater.  I fault for myself again for just not paying attention.  If yall don’t understand how the signs were clearly present, I don’t even know.  I honestly don’t date cheaters and I am very adamant about that.  I never cheated in my life! So WTF.
And it’s so crazy how women think that I have multiple women when I don’t.  Yes I have women interested in me, but do I talk to them all at once, No!  We usually end as friends and they date someone else, while I’m single and they keep in contact, because they like me.  And when they do bring up about wanting me, I put them in their place, because if you do that, then you lose me as a friend, so they understand.  My phone has no lock or code on it.  You can look through my shit.  It’s mind boggling.  So the advocate today asked, what did you guys argue about the most?  And honestly there was no answer to that.  It was either I wasn’t communicating enough or I wasn’t doing what she wanted.  It’s got to be an issue with the Taurus, someone ask Chris Brown. Lol.  Like seriously my friend dated a Taurus and that taurus physically did harm.  You can’t tell me they are not violent.  She has a restraining order on that bish.  So.... if everything is good with a Taurus and a Capricorn except the communication is 3/5 then, what’s with the violence.  I don’t think anyone can decipher it, except all the taurus I spoke to said they love hard.  I love hard too, but you don’t see me controlling or manipulating anyone I dated.  I don’t need to be in control.  Just some sort of weird chemical imbalance to me.  
You know what sucks is my brother.  He never got along with other people I dated and he just jumped into her arms and was so happy.  Damn *insert sad face*  My brother matters and I always said, I can’t date people if you don’t get along with him, because humans with disabilities are beautiful and deserve the same recognition.  And it definitely shows your character.  One time he said her name and I had to explain to him, that she gone home and never to return.  Isn’t that crazy.  He doesn’t understand, but understands. I can’t tell him NO, don’t say that, because he would not understand it.  I feel sad about that, because my brother had a “friend” someone that acknowledged him and he loved that.  And I am responsible for sort of taking that away.  Plus he’s a dude he love thick women. Lol, I’m done with him, he’s a character. 
I need two days of a break from blogging.  Lol, My weekends are to relax.  But I am disappointed that I may not buy a Tesla, because it’s so damn complicated.  Like wtf Elon. Lol, I need to do an interview or an update, because I am so different now.  But like I said several celebrities follow that page and one I know.  And I just don’t have that confidence to be okay with them knowing, it’s so weird.  I mean when I meet H.E.R. like on some intimate shit, best believe we having a whole conversation. Lol. I did reach out to H.E.R. management though.  I am serious about her singing at my reception after I’m married.  
I still need to write this will and beneficiaries documents.  I am still very sure that my next partner can have my assets.  Because you honestly never know.  It’s not something I’d bring up on the first date, Lol, but it’s there.  I am always a planner.  I be two years ahead but still be stuck in the current year.  I do want to fall in love again.  It’s still there, maybe by 2022.  I thought I’d bounce back but I can’t and I’m impatient but I can wait.  But I signed up for classes, and I am going back to OT, so I really don’t have time for no one else unless they were persistent like she was, but even then I couldn’t trust them.  It’s a process.  It really is.  And of course I think once I feel this soul-tie completely break and separate Ill be ready.  And ignorance is a bliss.  Because I told her she was my person and when you say things out loud, the universe listens.  So that’s why it’s taking longer to move on.  I am so spiritual it sucks sometimes. 
It’s past 10pm and I need to sleep... until next time.
0 notes
marketerarena-blog · 6 years
Text
Crisis Text Line– Chief Medical Officer Covers the free service, mental health, therapy and more – Podcast 97
Today I’m talking with the Chief Medical Officer for The Crisis Text Line. It’s a free confidential text message service for people in crisis. Anyone can text 741 741 in the US or in Canada text 686868 – and services are available 24 hours a day.
There’s been a lot of talk about suicide on social media and in the news with the recent passing of Anthony Bourdain and Kate Spade. Sadly suicide is on the rise in the US – Suicide is the 2nd highest cause of death for people age 15 to 24. It’s tragic and if nothing else it gives us an opportunity to talk about it. So… that’s what we’re doing today. I want to share this resource in case you or anyone you know needs it.
Go to www.RunEatRepeat.com for all the show notes …
And because I mention it during the interview I’m going to start off by sharing how I first went to therapy and why I’m so comfortable talking about this stuff.
  If you’re new here…
My name is Monica and I started Run Eat Repeat over 9 years ago to talk about training for my 1st marathon and weight loss struggles. I fell in love with running and with sharing my story so the site grew into an amazing community and now this show!   Check out Run Eat Repeat.com for training tips, recipes and random life updates! Welcome welcome!!
  Warm up:
I talk about going to therapy a lot and I joke about it a lot too. I estimate I’m joking 86% of the time.
But I want to talk about something serious today with covering the topic of self harm, mental health and suicide while trying to make it feel like a normal conversation, ya know? I talk about mental health a lot. I think it’s okay to not feel okay. I think it’s okay to go to therapy. I think it’s okay to be open about mental illness – just like it should be about an illness like diabetes or hypothyroidism or a broken bone.
I mention on the call that I went to therapy in college and I wanted to share my first experience – why I went to therapy originally and how I got started going and finding a therapist.
And it occurred to me that while I think it’s cool to talk about therapy and mental health – not everyone feels like that. Maybe someone is embarrassed about it? Or maybe you think therapy isn’t necessary??
So I was curious – why do I think it’s okay to go to therapy?
And I realized because no one ever told me it was weird. And because it was such a normal part of life and conversations with my first long term boyfriend in college. I just realized this! I used to go to Sunday dinners with his family and sometimes they’d talk about therapy like it was another hobby. It wasn’t any different than any other dinner conversation.
So I thought – oh, I should check that out… and I did.
I was in college and still on my mom’s health insurance. I just looked on the back of my insurance card and called the number to see how I could find a therapist.
I went to someone they referred me to, paid my co-pay and had one or two sessions with a female therapist a few cities over.
I didn’t really dig it so I looked for another one and eventually found someone near my part-time job. And I liked her!! And I kept going… (insert long ramblings probably not super helpful or relevant here about therapy)
Moral of the story – I thought all of this was very no big.
So I feel comfortable talking about mental health the same way we might talk about missing a sale on running shoes… or something more serious?
I want everyone to be more comfortable talking about this – which is why I wanted to share the number to the text line and other resources.
And also wanted to remind you that sometimes I joke about serious things – not because I don’t take them seriously, but because to me it’s not very different from the fact that I’m into running or cooking or failing at doing perfect eyeliner even after 288 tries.
I want to encourage you to be open minded – to everything and everyone.
Be curious.
Be kind (to yourself as well).
Speak truth in love.
Extend everyone grace that they might be having a hard time, might not know how to express themselves, might not understand how you feel.
Ask for help if you need it.
Offer help if you think someone else does.
Don’t take it personally if someone doesn’t want to talk to you. But offer to be there if they do.
And finally…
tell everyone that you love them (and tell them to listen to the Run Eat Repeat podcast).
Thank you! You’re the best!
Now let’s get to the main event!
    Main Event – Crisis Text Line
Today I’m talking to the Chief Medical Officer with the Crisis Text Line Dr. Shairi Turner.
Dr. Turner has a Master of Public Health from the Harvard School of Public Health,  a Medical Doctorate from Case Western Reserve School of Medicine and a Bachelor of Science from Stanford. She trained at Massachusetts General Hospital and the Children’s Hospital of Boston. Before taking her current position she was Chief Medical Director of the Florida Department of Juvenile Justice and former Deputy Secretary for Health at the Florida Department of Health.
Her resume and advocacy are beyond impressive. And I’m very happy to have her on the show today.
  We discuss…
What is the Crisis Text Line?
Why is suicide on the rise in the United States?
Suicide is the 2nd highest cause of death for people age 15 to 24… Why is that?
How social media can impact mental health?
How do we keep an eye out if we think someone is at risk for hurting themselves?
What do we say or do if we think someone we know may be at risk for hurting themselves?
Always Ask – when someone contacts the Crisis Text Line they always identify and ask if someone is thinking about hurting themselves.
   Reminder – The text line is a crisis resource. If you need support or someone to talk to please reach out to your health center at school, look into therapy or mental health resources, check your health insurance options.
    Crisis Text Line and Suicide Hot Line info:
Homework and Awards:
1. Name something that is awesome about YOU!
2. Share the Crisis Text line on social media or somewhere that can be passed on and maybe help someone.
I’ll also be posting on Instagram and Facebook so you an share from there directly.
Check out the Race Discounts page to save on Rock n Roll LA, Rock N Roll Vegas, Lexus Lace Up, Run Revel and more!! All the discount codes and links are on that page!
  Got a question?
If you have a question for me – email [email protected] or call the RER voicemail line 562 888 1644
Tag @RunEatRepeat on Instagram and let me know what you’re doing while listening.
  And if you need motivation to workout, want to share a Rest Day Brag or just feel like encouraging someone else – comment on my daily Run Report on IG with your update!
Thanks for listening and have a great run!!
The post Crisis Text Line– Chief Medical Officer Covers the free service, mental health, therapy and more – Podcast 97 appeared first on Run Eat Repeat.
https://askfitness.today/crisis-text-line-chief-medical-officer-covers-the-free-service-mental-health-therapy-and-more-podcast-97/
0 notes
steffancockrell · 6 years
Text
Crisis Text Line– Chief Medical Officer Covers the free service, mental health, therapy and more – Podcast 97
Today I'm talking with the Chief Medical Officer for The Crisis Text Line. It's a free confidential text message service for people in crisis. Anyone can text 741 741 in the US or in Canada text 686868 – and services are available 24 hours a day.
There's been a lot of talk about suicide on social media and in the news with the recent passing of Anthony Bourdain and Kate Spade. Sadly suicide is on the rise in the US – Suicide is the 2nd highest cause of death for people age 15 to 24. It's tragic and if nothing else it gives us an opportunity to talk about it. So… that's what we're doing today. I want to share this resource in case you or anyone you know needs it.
Go to www.RunEatRepeat.com for all the show notes …
And because I mention it during the interview I'm going to start off by sharing how I first went to therapy and why I'm so comfortable talking about this stuff.
Tumblr media
  If you're new here…
My name is Monica and I started Run Eat Repeat over 9 years ago to talk about training for my 1st marathon and weight loss struggles. I fell in love with running and with sharing my story so the site grew into an amazing community and now this show!   Check out Run Eat Repeat.com for training tips, recipes and random life updates! Welcome welcome!!
Tumblr media
  Warm up:
I talk about going to therapy a lot and I joke about it a lot too. I estimate I'm joking 86% of the time.
But I want to talk about something serious today with covering the topic of self harm, mental health and suicide while trying to make it feel like a normal conversation, ya know? I talk about mental health a lot. I think it's okay to not feel okay. I think it's okay to go to therapy. I think it's okay to be open about mental illness – just like it should be about an illness like diabetes or hypothyroidism or a broken bone.
I mention on the call that I went to therapy in college and I wanted to share my first experience – why I went to therapy originally and how I got started going and finding a therapist.
And it occurred to me that while I think it's cool to talk about therapy and mental health – not everyone feels like that. Maybe someone is embarrassed about it? Or maybe you think therapy isn't necessary??
So I was curious – why do I think it's okay to go to therapy?
And I realized because no one ever told me it was weird. And because it was such a normal part of life and conversations with my first long term boyfriend in college. I just realized this! I used to go to Sunday dinners with his family and sometimes they'd talk about therapy like it was another hobby. It wasn't any different than any other dinner conversation.
So I thought – oh, I should check that out… and I did.
I was in college and still on my mom's health insurance. I just looked on the back of my insurance card and called the number to see how I could find a therapist.
I went to someone they referred me to, paid my co-pay and had one or two sessions with a female therapist a few cities over.
I didn't really dig it so I looked for another one and eventually found someone near my part-time job. And I liked her!! And I kept going… (insert long ramblings probably not super helpful or relevant here about therapy)
Moral of the story – I thought all of this was very no big.
So I feel comfortable talking about mental health the same way we might talk about missing a sale on running shoes… or something more serious?
I want everyone to be more comfortable talking about this – which is why I wanted to share the number to the text line and other resources.
And also wanted to remind you that sometimes I joke about serious things – not because I don't take them seriously, but because to me it's not very different from the fact that I'm into running or cooking or failing at doing perfect eyeliner even after 288 tries.
I want to encourage you to be open minded – to everything and everyone.
Be curious.
Be kind (to yourself as well).
Speak truth in love.
Extend everyone grace that they might be having a hard time, might not know how to express themselves, might not understand how you feel.
Ask for help if you need it.
Offer help if you think someone else does.
Don't take it personally if someone doesn't want to talk to you. But offer to be there if they do.
And finally…
tell everyone that you love them (and tell them to listen to the Run Eat Repeat podcast).
Thank you! You're the best!
Now let's get to the main event!
    Main Event – Crisis Text Line
Tumblr media
Today I'm talking to the Chief Medical Officer with the Crisis Text Line Dr. Shairi Turner.
Dr. Turner has a Master of Public Health from the Harvard School of Public Health,  a Medical Doctorate from Case Western Reserve School of Medicine and a Bachelor of Science from Stanford. She trained at Massachusetts General Hospital and the Children's Hospital of Boston. Before taking her current position she was Chief Medical Director of the Florida Department of Juvenile Justice and former Deputy Secretary for Health at the Florida Department of Health.
Her resume and advocacy are beyond impressive. And I'm very happy to have her on the show today.
  We discuss…
What is the Crisis Text Line?
Why is suicide on the rise in the United States?
Suicide is the 2nd highest cause of death for people age 15 to 24… Why is that?
How social media can impact mental health?
How do we keep an eye out if we think someone is at risk for hurting themselves?
What do we say or do if we think someone we know may be at risk for hurting themselves?
Always Ask – when someone contacts the Crisis Text Line they always identify and ask if someone is thinking about hurting themselves.
Tumblr media
   Reminder – The text line is a crisis resource. If you need support or someone to talk to please reach out to your health center at school, look into therapy or mental health resources, check your health insurance options.
    Crisis Text Line and Suicide Hot Line info:
Tumblr media
Homework and Awards:
1. Name something that is awesome about YOU!
2. Share the Crisis Text line on social media or somewhere that can be passed on and maybe help someone.
I'll also be posting on Instagram and Facebook so you an share from there directly.
Tumblr media
Check out the Race Discounts page to save on Rock n Roll LA, Rock N Roll Vegas, Lexus Lace Up, Run Revel and more!! All the discount codes and links are on that page!
  Got a question?
If you have a question for me – email [email protected] or call the RER voicemail line 562 888 1644
Tag @RunEatRepeat on Instagram and let me know what you're doing while listening.
Tumblr media
  And if you need motivation to workout, want to share a Rest Day Brag or just feel like encouraging someone else – comment on my daily Run Report on IG with your update!
Thanks for listening and have a great run!!
The post Crisis Text Line– Chief Medical Officer Covers the free service, mental health, therapy and more – Podcast 97 appeared first on Run Eat Repeat.
0 notes