#immunosupression

[heardatmedschool]

“With a transplant, you exchange an illness for another one that we are more equipped to manage.”

#medicine #med school #medblr #transplant #organ transplant #immunosupression

[sapphic-sprite]

wear a mask please! some of us will die if we catch covid or will be sent to the hospital for a cold! by wearing a mask you are making it easier for us to just exist in public places!

#very sick of being so isolated just for being immunocompromised #I can’t to ANYTHING #wearing a mask is literally so easy and would make it so I can at least go to the supermarket without fear #disabled #disabled queer #disabled lesbian #immunocompromised #immunosupressed

[churlishopossum]

My spouse and I have Covid and while it looks like I won’t have to go to the hospital like I worried all day yesterday, I would genuinely love some love/support/soup from y’all, this shit is rough

#turns out immunosupressants actually do suppress your immune system

[metamatar]

one of my friends got diagnosed with an autoimmune disease that's gonna fuse his spine in about a decade

#he applied to grad school with me #and its not really looking like a smart idea to leave a high paying tech job to take on debt while also trying to pay medical debt #shit sucks #so before he starts the immunosupressant regime he's gonna be on for the rest of his life #we're actually eating every terribly unhygienic street food there is to find in delhi

[lafoiaveugle]

Happy Death Day, Year 14

If you don’t know me, I celebrate a birthday in February the worst month, and a death day in November. Both are equally important days to me, even if I tend to forget which exact day my Death Day is. Anyways, every year I talk about the things I'm happy for, the little bit of advice I can give, and fuck it I'm making it an actual thing.

Are you…Dead? No, I am not dead. Wouldn’t it be ironic if November 23rd/24th ends up being my official death day though? I wouldn’t put it past the universe.

No, see at the age of 20, it really looked like the universe was trying to decide whether or not I should be alive. I ended up in the hospital multiple times due to an incurable autoimmune disease, and then a car accident landed me in ICU for a month. That happened to be the week before Thanksgiving through days before Christmas (if I remember correctly) and I’ve been celebrating it ever since. For those who weren’t there, I’ll spare you the graphic details, but I went from “she won’t likely survive the night” to “she might survive, but she’ll never walk” to “she’ll walk, but never unassisted,” to “okay but you have to wait another month because we are mostly afraid you’ll break your arm again.”

Note: They were right to fear this last one. I literally fell my first tennis match back during WARM UPS. Didn’t break my arm again. Did gain a killer backhand knowing people would target the scar.

People nearly die every day. Why celebrate this? I don’t think I am a pessimist by nature, but I do genuinely appreciate an anniversary to remind me about all the things I am truly thankful for, especially an anniversary without the added side effects of familial trauma, colonizer guilt, and forced cheer. No, instead I reflect on the things that keep me alive now, fourteen years after my death day. And when you add in the growing political unease and two years past the beginning date of a pandemic, I personally need to be reminded to take a minute and be thankful. The date represents a hard year, and a reminder to myself that while I now have a healthy relationship with the concept of me dying, I’m still so glad I’m here. So no, I don’t mentally calculate all the days I nearly died (every day I drive on the highway, let’s be real). But I do take a minute every November to compose my thoughts on life.

How are you celebrating this year? Well, I’ve started my morning with three cats using my bed to play “the floor is lava.” I’ll see my wonderful mom and two of my amazing siblings and grandmother for Thanksgiving lunch, then hanging out with Redd once he gets up from his super late shift last night. I’ll be in contact with those I love through out the day because we all will be navigating family. Maybe for fifteen I’ll throw a party or something. Fifteen extra years with me — you’re welcome (no really I’m so sorry.)

What new items are on your thankful list? First, I am thankful to the scientist out there working on “orphan diseases.” A new medication came out this year that could potentially put me in remission, get me off steroids, and potentially get me off my chemotherapy med. How amazing is that? I’ve spent the majority of the last two years fighting off the depression that comes with hearing a world constantly talk about how you aren’t important because you are sick. Or that you are less important because you are sick. The universe disagrees, bud, but I digress. I’ve been thinking about how thankful I am I didn’t give up on podcasting. Last year, especially this time of year, was incredibly rough and I did not consider podcasting a fun escape anymore. I had made the mistake of who I chose to cohost podcast with, I had men belittle my intelligence and tell me I was dramatic. I knew I was done hosting, being in front of a mic, but I was ready to move behind it permanently, into a writing position if I was lucky. Fortunately, I didn’t do any of that. I started up a podcast idea that was all consuming, I put myself on a time table that ended up requiring me to be in front of the mic again, and I’ve had to come face to face with some real repercussions and consequences of what had happened in 2021. Because of that, I have so many new people I adore working with, I have new friends I can’t imagine how I got this far without them in my life, and a genuinely great team to help push it forward. And it’s in the finals for some awards — look I know I throw myself into something when I cannot cope, and I’m glad this time it’s been a healthy project. One that has changed me for the better. I am also thankful that I’ve gained strength to stand up for myself more. I’m still working to gain back my confidence and self-worth, and I have made great strides forward in setting boundaries of who is allowed in my life and why. I also adopted two cats this year — a very outgoing part dog named Tempo, and a trained rogue who will steal your heart named Astrid. Along with Inanna, they keep our apartment loved, cozy, and chatty actually.

But again, none of this could be accomplished on my own. I have a support system of an amazing mom and step dad who may not always understand me but will support me (through the teasing). I have 3 siblings that just mean the world to me and inspire me to be a better person by watching them grow. I have Keira, who has only shown me kindness, friendship, and love, reminding me again that family is never just blood. I have four amazing best friends that are just as willing to talk me through the anxiety attack as they are to tell me when I am the problem. I never expected “Am I being dramatic or…” to be the way I orient myself in life, but I am so thankful they don’t judge it. I am thankful for the group of doctors and nurses I need to live. Not only that they all help keep me alive (and sane!) but because I’ve somehow found doctors that listen and work with me, rather than talk down to me.

What advice would you give someone post 14 years after nearly dying? I feel like I should put a caveat on my advice: most of this is advice I have to give myself regularly.

Stop trying to find the meaning of life. Just live. Don’t live to work, live for life. If that’s family, if it’s creating, if it’s traveling, cool! Find work/life balance and find it early. I didn’t have it at 20; I really didn’t have it until 33/34. It is life changing. If there is a secret to the universe, a “reason to be here” then I have figured out what my reason is, and what the universe’s reason might be. I don’t love the second, but I can only control the first.

Down time is healthy. Doing “nothing” is healthy. Producing something at all times is not healthy.

You can only control you, and that fucking sucks. Let me be clear — it’s a good thing I can’t control other people or how they react, and it’s even better no one can control me! Does that mean I like it? Absolutely not! Humans are unpredictable and you have to learn to roll with it.

Giving 100% and spoon theory actually overlap, and it took me way too long to realize that.

Notebooks don’t buy happiness. But an e-ink tablet is coming very close.

Teaching your cat to play fetch (or to “bring me the toy so I’ll play with you”) is a great idea in theory, ruins bathroom time quite frequently.

Know your worth. And you are worth it.

#happy death day #advice #advice 14 years removed #immunosupressed #orphan disease #near death tw #idk #thanks #thanksgiving #this day isn't always thanksgiving #but it's nice excuse to hug my mom #and my youngest siblings

[king-beetle]

Just came off two weeks with covid and strep, absolutely delirious with fever, closest I've been to death in a long, long time.

#please think about your immunosupressed friends #we're dying out here

[diah-the-demon]

i need to constantly remind myself to not sing while i am still recovering from a cold cause its not gonna help at all

#i say this after ive been singing for the past hour while it has a very noticeable effect on my voice #also yes im still recovering from my fucking cold #after 5 fucking days #sometimes i forget how much being immunosupressed affects me until i get sick and it leave me to be dead weight for a week straight

[yay-depression]

guess who’s finally kind of feeling better? me!!

#i’m still coughing a little #and my nose was bleeding a lot today #but i can talk again! and i can breathe through my nose at least 80% of the time! #so i’m saying that i’m feeling better #it only took my body /six fucking days/ to recover from the common cold #that’s fine #welcome to being immunosupressed

[hopalongfairywren]

Wren your egg lore is so interesting

Thank you!! Without spoiling too much, I'll tell you a bit about how it is the 'egg' spores infect their host, scientifically speaking. (from discord) Basically, premature spores get inside an open wound and into the bloodstream. From there they release proteins that are similar in structure to a certain immune cell, allowing them to stay undetected by the immune system. These spores also have immunosupressing effects. The spores make their way into the central nervous system via the bloodstream. SEM spores in addition to already being similar in shape and structure to helper T-cells, which are critical to the process of activating the immune system against threats. The spores are disguised as Helper T-cells, and even produce their own chemical signals altering other immune cells. From there, they circulate throughout the body undetected by other immune cells due to the proteins and chemical signals the spores produce. Once into the bloodstream, the disguised spores make their way into the right and left common carotid arteries, which are located in the neck. As the spores travel deeper into the internal carotid arteries, these disguised cells end up at the cerebral capillary wall and penetrate it through extravasation. This includes producing a special Exoenzyme signal to essentially trick the endothelial cells into opening up- and allowing the spores into the brain tissue. From there, they use chemokines to navigate to the cerebral cortex.

#thanks for the ask! #the wren calls #mcyt #mcytblr #mcyt worldbuilding #dream smp #dsmp #dsmpblr #dsmp lore #tw medical #tw fungi #egg arc #egg lore #eggpire #speculative biology #speculative immunology #the fungus among us chronicles

[oliviawebsite]

i take immunosupressing meds now so i should wear a good mask no matter what but even in the "Liberal Bubble Bay Area" i see maybe 2% of people wearing one anymore it makes me feel weirdish but i refuse to die from a stupid virus so it stays on. also black kn95s look cool as hell

[greenyvertekins]

You said Flynn tried to screw around with Maria's backstory in the Encyclo-Speed-ia? How so?

By claiming that her NIDS was kept in remission by the low gravity environment. This is bullshit for numerous reasons.

One - The ARK does not have consistent low gravity. The low gravity areas are concentrated on the outside areas of the ARK, not the inside. And I doubt Maria would be permitted to remain in such areas.

Two - This makes no sense from a medical standpoint. Low gravity is in fact harmful to the human body. Without the level of gravity that we experience on earth, those who live in space habitats are prone to severe muskuloskeletal problems because the body isn't being subject to the duress under the force of gravity that us terrestrial people undergo. This is why those who live onboard the ISS have to undergo two hours of intensive physical workout every day on a specially-designed treadmill to prevent muscle and ligament weakening and bone reduction. Whatsmore, Maria's NIDS is an immunocompromising disease. So how would low gravity conditions alleviate it? If anything, low gravity conditions are proven to be immunosupressive in themselves. Three - If Maria's condition was as stable as made out to be, Gerald wouldn't have been as desperate as he was to complete Project Shadow, motivating him to seek out the Black Arms. His diaries in Battle get-across how desperate he is to save his terminally ill granddaughter. She had no real time left because she was weakening by the day.

Four - Maekawa outright stated in a PM conversation to a fan on Twitter that the reason why Maria lived on the ARK was to keep her close to the lab and away from Earth's pathogens. Not because of it's low gravity environment.

#Verte's asks #Maria Robotnik

[self-loving-vampire]

Would you still get robo-bits if it was the kind of future where you need to buy a lifetime's worth of immunosupressants (to keep them functioning) that are produced by a megacorporation known for lacing their products with orphan tears and rat hair or whatever?

With the disclaimer that this isn't really how prosthetics seem to work in real life:

It would depend entirely on the calculation on one's quality of life.

A lot of people are really scared of having to take medicine for life, but for a lot of disabled (And trans) people that's just part of their routine and far better than the alternative of not having access to said medicine.

Even for conditions that are not immediately lethal or anything, using medicine regularly to manage them can make your life better.

For example, a lot of people in intense and frequent pain would have a better quality of life and ability to function if they used painkillers, even if their issue was chronic and they ended up needing them for life.

It's all about what makes your life better and more satisfying, not about using medicine as little as possible.

And of course, if the trade-off looked like the prosthetics would not improve your life enough to be worth it then you can just not do that as well. Just like how after I had surgery I decided to use regular painkillers rather than opioids after analyzing the list of risks and side effects provided for them. It was fine.

(Also I did 80 squats immediately after surgery one time because I was just so happy about not being in constant physical pain. Probably a concerning sight for all the nurses but it was fine. I'd like to say I'm just built different but since I do have chronic fatigue I was really tired and sore for days as a result.)

[shesnikt]

me: i feel great considering its immunosupressant day i guess its a week with minimal side effects lets be productive

brain: hey you know how you were expecting a migraine on friday or saturday

#‹ ooc ! / charlie af . › #FUCK FUCKITY FUCK SHIT BULL ASS

[faofinn]

14. 'I Might Be A Teeny Tiny Bit Sick, But It's Fine.'

@sicktember

Within the week, Harrison had succumbed to the cold the family had all suffered through. Miserable in bed, he was just happy that they'd gotten through Christmas. The boys were all still off, though, in that weird post-holiday daze. With   his immunosuppressants, he'd known it would be a case of when, not if, he'd catch it. 

Still, it hit him like a freight train. He'd had the start of a sniffle when he woke up, but by lunchtime, he was stuck on the sofa. Each movement set him off coughing, each sniffle and sneeze making everything ten times worse. 

Taidgh was worried about his husband. They'd all been hoping he'd avoid the cold the others had had, even though they knew it was unlikely. His immunosupressants just made it more worrying, the likelihood of him getting more sick looming over their heads. He fussed the best he could, but he knew what Harrison was like. Too stubborn for his own good. Next to him in bed, he worried at every cough, listening to every breath. 

Harrison tossed and turned, eventually giving up as it turned light. He headed downstairs and settled on the sofa, wrapped in the blankets there. His paracetamol had yet to kick in, and he felt awful.

Taidgh hadn't had much sleep either, but he must have dozed off at some point, because when he rolled into his space, he found it empty. Sheila had taken the boys overnight, so Harrison could rest, and it gave Tai the space to worry about his husband without the kids underfoot. 

He grabbed a hoodie and headed downstairs, worried. “Hars?”

Propped up on the sofa, Harrison had eventually fallen asleep. The tv played quietly in the background, reruns of infomercials and crappy adverts.

When Taidgh didn't get a reply, he was even more worried. But as he came downstairs he found Harrison on the sofa, asleep and curled up in about a million blankets. With a sigh, he headed into the kitchen to make tea for the pair of them, plenty of honey in Harrison's. 

Tais pottering on in the kitchen woke him up, leaving him dazed and confused. He barely made it to sitting before he started coughing again, struggling to catch his breath between bouts. 

He was more than a little grumpy, pissed at Taidgh for being so loud. He always was, it was usually part of his charm, but when Harrison wanted peace and quiet? Far from helpful.

Tai settled next to Harrison, humming. “Made you tea.”

"I don't want tea."

“Honey in it, to soothe your throat.”

“I’m not sick. I don’t need it.”

“Mm, sure. I’m sure I married you with that fucking awful cough, come to think of it.”

“Oh, piss off.” He grumbled, falling into Tai’s lap.

“Coughed all the way through the vows.”

"Stop." He gently slapped Tai's knee.

“Why I married you, really.”

"Shut up." He shook his head, adjusting his blankets. "I'm trying to sleep."

“I love you, you daft sod.”

"You30'.re just saying that to be nice."

“I’m always nice.”

"Only when you want something."

“Ouch.” He said, reaching down to run his hand through Harrison’s hair. “I’m worried about you.”

Harrison hummed in content. “I’m fine.”

“Mm, sure you are.”

“Okay, fine. I might be a teeny, tiny bit sick. But it’s fine. I’m fine.”

“A teeny tiny bit, eh?”

“I already regret saying anything.”

“Of course you do. You need to be careful. Should I call your doctor?”

“God no, they’ll just admit me.”

“Maybe for good reason.”

"Tai, no." He whined. "I'll be fine, I just need to rest."

“You just said your doctor would probably admit you!”

"They're just being dramatic. I'm gonna go to bed."

“At least stay put here for a bit. You look comfy.”

He sniffed. "I was until you started bugging me."

“Alright. Have a nap, then. I’ll keep playing with your hair.”

Harrison hummed, already drifting. "I'm not even tired."

“Mmhmm.”

"I'm fine."

“Sure you are.”

He'd almost fallen asleep when he started coughing again. Back pressed up against Tai, he groaned,his body shaking with effort exhaustion.

Tai rubbed his arm in an attempt to soothe him. “Oh, Hars.”

"I might not be okay."

“You sound awful. Why don’t we call your doctor?”

"Maybe we should."

“I’ll call. And Sheila, too. She can have the boys tonight.”

"Can she?"

“I'm sure if she can't, Fao or Finn can. Let's worry about you.”

"Can we just stay here?"

“Let's just see what they say.”

"Just for a little longer. Go to bed, lie with me."

“Half an hour in bed.” Tai agreed reluctantly. “And then I’m calling.”

#sicktember #whump writing #whump prompt #whump #harrison #taidgh cole #harrison x taidgh #immunosuppressants #hars is post liver transplant #bless him #really ought to be more careful #'i might be teeny tiny bit sick but its fine' #sicktember day 14 #this is just cute tbh #hars really ought to go to hospital #but ofc he wont

[mcatmemoranda]

Anti-glomerular basement membrane (GBM) disease was previously called Goodpasture disease. Anti-GBM is a rare condition characterized by acute glomerulonephritis and pulmonary alveolar hemorrhage. This condition is also referred to as a pulmonary-renal syndrome. The most common presentation is hemoptysis or cough in the presence of gross hematuria. Look for the presence of anti-GBM antibodies. Treatment includes plasma exchange and immunosupression with corticosteroids and cyclophosphamide

#anti glomerular basement membrane #goodpasture #renal

[fvckw4d]

My doctor, in his infinite wisdom, decided that instead of prescribing me a med I've already taken with little adverse affects ("it MIGHT interact with something or put strain on your body or make you addicted somehow, despite being non addictive, theoretically in the future" was his reasoning), that I should be prescribed a THIRD immunosupressing steroid and a heavy sedative that won't show positive affects for 6 weeks that also interacts with every medication I regularly take. They really just hand out those medical degrees like candy huh.

#He straight up admitted a psychiatrist would rather lazily prescribe the med he doesn't want me to have than deal with me. #Too bad getting a psych when you're poor is so hard lol #☠️ #chronic illness #chronic pain #medical malpractice #I feel weird tagging I never tag but oh well