#invisible disability

[tumble-tv]

The body isn't body-ing

#chronic illness #chronicpain #chronic disability #other chronic illness bs #chronic disease #chronically ill #disabled #disablity #fibromyalgia #undiagnosed chronic illness #chronic disorder #chronic pain #physical disability #invisible disability #disability #physically disabled #invisible illness #cpunk #crip punk #cripple life #cripple problems #cripple punk

[wormslikeme]

Yearning ahead

Being chronically ill for me is wanting so desperately to ask for comfort (for me it’s mostly physical comfort I need) when in pain but being too:

A) anxious that people will reject me/take it the wrong way

B) not wanting to bother anyone, so I just sit silently in pain

C) wanting so desperately for someone (anyone at this point) to just like…..be physically there for me when I’m suffering.

Like when I have a migrane all I want is for someone to hold me and tell me it’s going to be okay. It may not make the pain go away but it would sure beat crying into my pillow and gripping it in a pitch black room while I try not to throw up from pain. Completely alone.

#chronic illness #pots #dysautonomia #pots syndrome #chronically ill #actually chronically ill #chronic illnesses #chronic migraines #migraine #migranes #chronic pain #invisible disability #disabled #in so much pain #please I just want to be held #owie #ouch ouch ouch

[appoxy-is-tired-and-in-pain]

my autistic ass when someone talks about "masking" in a subtle enough way so that I have no idea if they support masking in public (wearing a mask) or if they think people with invisible disabilities should mask (hide their disability and act like abled people) because it's "better for everyone" (ps. it is not, fuck ableists)

#chronic pain #chronic disability #chronic illness #chronically ill #disability #chronic fatigue #invisible disability #disabled #autism #actually autistic #autistic culture #autistic experiences #neurodivergent #neurodiversity #neurodiverse stuff #invisible illness #yipee

[spookysalem13]

My health has lead me to needing to call out from work again. I feel so guilty.

This time its my fibromyaglia and rheumatoid arthritis that's causing weakness and pain throughout my whole body. Severe swelling and agony in my joints.

My brain is so entirely fogged I can't even verbally articulate a sentence properly. I don't know why, please let me know if you're also chronically ill, especially if you deal with a lot of high inflammation levels. And if you also struggle to articulate speech as your inflammation levels rise. Because for me, it seems to be my first signal something isn't right.

So today is an under the heated blanket, in bed with my kitty kind of day.

The fatigue is so bad I anticipate sleeping a great deal. Other than sleep my intentions are to spend time in my social media communities today. It's always comforting to me.

#long post #life update #life upd8 #chronic pain #chronically ill #disabled #feeling guilty #invisible disability #disability advocacy #chronic fatigue #chronic illness #fibropain #fibromyalgia #fibro problems #rheumatoid arthritis #arthritis #autoimmunedisease #autoimmune disease #sjogrens #celiac #ehlers danlos syndrome #hypermobile ehlers danlos #hypermobility #im in pain #im tired #im sick #im tired of this shit #im tired of this grandpa #story time #my morning

[wheelingwithgrace]

Me: *walks with crutches for support*

Random child: You're paralyzed!?

#disability #disabled #spoonie #actually disabled #physical disability #chronic illness #invisible disability #actually chronically ill #humor #paralyzed #physically disabled #mobility devices #mobility aid #crutches #cripple punk #crip punk

[chroniclesofchronicillness]

This makes so much sense

#chronic illness #chronically ill #chroniclesofchronicillness #chronic pain #invisible illness #invisible disability #spoonie #mental health #pots #svt #trigeminal neuralgia #potsandspoonies #100 percent

[zebulontheplanet]

Just a reminder that people who still live with their parents as adults deserve respect and for you to stop being ableist. There are multiple reasons someone could still live with their parents! From invisible to visible disabilities, finance issues, and more!

Stop using the “well they’re gonna turn into a creep living in their parents basement” punchline! It’s disgusting. STOP. BEING. ABLEIST. STOP. FORGETTING. THE. POOR.

#autism #zebrambles #actually autism #actually autistic #visible disability #invisible disability #neuordiversity #neurodivergent #physical disability #financial issues #society #ableism #tw ableist language #tw ableism #Zebplanet

[potsiepumpkin]

When the chronic fatigue is chronic

#chronic illness #chronic pain #disability #pots syndrome #postural orthostatic tachycardia syndrome #chronic fatigue #invisible disability #fibromyalgia #spoonie #chronic life #hypermobile eds

[colourmeastonished]

Body swap movie where one of them has invisible disabilities and when the other one lands in their body they immediately collapse catatonic on the floor from the pain and fatigue and the first one is like 'oh damn guess I don't have to worry that I'm faking it anymore'

#i have this fantasy of one my able bodied friends and or coworkers occupying my body for like an hour #just to get a real sense of how much i am truly weathering hellfire every day of my life #sometimes i take stock and im like holy crap ive gotten so used to so much #im a frog in a pot and ive convinced myself the bubbling is just fun ambience #my thoughts #invisible disability #chronic illness #chronic pain

[sunnywalnut]

Local PSA: invisible disability does NOT mean you can live your life like a "normal person" invisible disability meant that if a stranger looks at you in public they wouldn't know what's going on.

Like if a wheelchair user were to decide to run into a corner store to grab a candy bar because they know that their legs can last that long without, the cashier wouldn't know.

Or someone with "mild" scoliosis walking upright through their shoulder leans slightly to the left. Maybe they just have bad posture. The lady in the next isle thinks to herself.

The person with EDS or POTS or whatever sort of condition wearing compression gloves out and about. Perhaps it's a fashion statement?

Or what about the people with intestinal issues? They can look like "normal people" too.

You never know what someone is going through.

You never know what they might need to survive or if they're on the edge of a flare up or even if they are currently going through one just by one look.

I think both disabled and non disabled need to realize this. You're not "no longer disabled" because you can "live without" disability aids. They're there to help you. To make your life easier. If living without a cane is going to make it more likely you'll fall over and hurt yourself, use the cane.

If you need to sit down to do dishes or cut vegetables because you need to save your legs for taking out the trash, sit down.

If you need a shower chair because you don't know if you'll pass out, use the shower chair.

People are going to judge you regardless for multiple reasons out of your control.

I'd rather they judge you while you're being safe.

You don't need to struggle to be "normal."

You can just be you.

However that looks for you.

Use your disability aids.

#disability #disabled #disabilties #this has been a psa #mobility aid #invisible disability #invisible illness

[theamphibianmen]

"low support needs disabled people are often not believed to have a disability at all and therefore struggle to get accommodations."

"high support needs disabled people's accommodations are often seen as 'too much' and therefore are not met."

"neurodivergent people's needs are often dismissed because nothing is physically wrong with them."

"physically disabled people people often cannot physically access buildings and people refuse to do anything about it."

"invisibly disabled people are seen as lazy by society."

"visibly disabled people are ostracized from society."

IT'S ALMOST LIKE THERE'S NO SUCH THING AS A SOCIALLY ACCEPTABLE DISABILITY

#disabled #neuordiversity #neurodivergent #disability #ableism tw #ableism #physically disabled #physical disability #invisible disability #visible disability #this is not a personal attack on anyone I promise #if you'd like to add on go ahead

[tumble-tv]

"kill them with kindness" WRONG run them over in your wheelchair 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽

#wheelchair #ambulatory wheelchair user #ambulatory mobility aid user #chronic illness #chronicpain #chronic disability #other chronic illness bs #chronic disease #chronically ill #disabled #fibromyalgia #undiagnosed chronic illness #disablity #chronic disorder #chronic pain #chronic fatigue #invisible illness #invisible disability #disability #physically disabled #disabilties #cpunk #cripple life #cripple problems #cripple punk #queer cripple #crip punk #undiagnosed chronic pain #joint pain #screenreader unfriendly

[hellyeahsickaf]

I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)

It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:

How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.

Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."

How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills

How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud

Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides

Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance

Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!

There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.

Please boost!

#signal boost #please reblog #chronic pain #chronic illness #disability #fibromyalgia #cfs #chronic fаtiguе ѕуndrоmе #actually disabled #spoonie #me/cfs #cfs/me #long covid #important #invisible disability #ehlers danlos syndrome #lyme disease #chronically ill #cpunk #cripplepunk

[cosmiccripple]

idk who popularised the narrative "i don't let my disability stop me" but it needs to be stomped on, pulverised by a meat grinder and then thrown into the depths of the sea never to be seen again.

it is by far the most popular ableist narrative and i see it so much and immediately just think i'm a bad person for not being able to 'get over' my disability despite the fact it's an incurable, permanent and severely disabling disability.

stop stop stop stop pushing the mindset that people have to persevere despite their disabilities in order to be a worthy person

leave me alone and let me be disabled in peace

#physical disability #actually disabled #disability #invisible disability #physically disabled #chronic disability #chronic illness #chronically ill #chronic pain #crip punk #cpunk #c punk #cripplepunk #cripple punk #angry cripple #cripple #multiply disabled #disabled #disabilities #ableist bullshit #ableism

[riddledem0n]

Yesterday the 12th of May was Fibromyalgia awareness day. I'm a little late uploading it, but spreading awareness is being done nonetheless. Lots of love for my chronic pain people!! <3

#fibromyalgia #fibromyalgia awareness #chronic illness #chronic pain #disabled #disability #disabled artist #chronic fatigue #chronic fatigue syndrome #hidden disability #invisible disability #spoonie #chronic migraine #migraines #artist

[chroniclesofchronicillness]

Sometimes best isn’t always possible

#chronic illness #chronically ill #chroniclesofchronicillness #chronic pain #invisible illness #invisible disability #spoonie #mental health #pots #svt #trigeminal neuralgia #just try