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How to make a cheap Migraine friendly lamp shade.
When starting out with migraines, I was extremely (and still am to a degree) photosensitive/photophobia. My lamp didn’t have a dial for its brightness, so I couldn’t dim it without either buying a new blackout lampshade or a new but dimmer lightbulb.
Instead, I grabbed a couple of sheets of black construction paper, duct tape, and used my current lampshade as the mold, and created a lampshade to go over my current one. It worked wonders! I didn’t use a cap on top due to a possible fire hazard, so I still have to angle the lamp shade carefully but it is much more bearable.
Here’s my finished product:
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While it’s clearly uneven, it follows the “It’s not for fashion, it’s for function” mantra I have about migraines. You can feel free to add your own designs, I simply didn’t because I don’t have the energy or willpower for it.
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gbuda73 · 1 year
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20 things only people with MS or other chronic illness would understand
1. My hair hurts
2. My brain feels numb
3. The air blowing on my hurts
4. Hugs hurt
5. I can't remember how to get home
6. I can't remember what I was doing
7. Just the smallest fever makes me feel like I got hit by a truck
8. I'm to tired to eat
9. Baths/showers exhaust me
10. It hurts to move
11. I need to sit down and cook dinner
12. I feel like I'm thinking in slow motion
13. My teeth break of no reason
14. I feel so guilty about stuff I can't do
15. I fear my daughter will be sick too
16. Most doctors don't really get it
17. Sweeping the floor makes me feel sick and dizzy
18. I tripped over nothing
19. I hope this place doesn't have stairs
20. I hope I don't pee in my pants
I'm sure there's so many others.. you are not alone we understand
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"Others with invisible disabilities have told me stories of times they've chosen not to seek help for symptoms like debilitating pain after feeling dismissed the last time they sought support."
"I know from my own experiences, when you're so used to having difficulties convincing those around you you're worthy of support, the validation of feeling genuinely heard — by a doctor, a journalist, or anyone at all — is liberating."
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ladymidnytemare · 2 years
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INVISIBLE DISABILITIES AWARENESS WEEK 2022 all this week has been about raising awareness for those of us who live with #disabilities that cannot be seen. We are forever having to be our own advocates, reminding society that we are sick even though they can't see it. Even as recently as while I was undergoing my #Cancer treatment, my existing invisible conditions were mostly overlooked, and instead of #disabled I was seen as uncooperative and entitled. This of course led to feelings of massive guilt, shame and frustration on top of the pain and anxiety I was already enduring. I'm disabled, not a diva!! Society needs to change its attitude, and this is why we still need Awareness. #invisibledisabilities #invisibledisabilitiesawareness2022 #autism #depression #mentalhealth #chronicillness #anxietydisorder #personalitydisorder #colostomy #ostomate #stomastory #colostomylife #stoma #ileostomy #urostomy #cancerblog #surgery #cancersurvivor #lifeaftercancer (at Cardiff) https://www.instagram.com/p/Cj98KMxsIS0/?igshid=NGJjMDIxMWI=
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randomninity · 2 years
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Invisible disabilities week 16-22 October ‘22 - I, SONIA, HAVE ONE, do you??? 👉🏻 Reply below 👇🏻 #invisibledisabilitiesweek #invisibledisabilities #incapacidadesinvisiveis #semanadasincapacidadesinvisiveis #disabilities #incapacidades #visibleincapacities #incapacidadesvisiveis (em Gueifães) https://www.instagram.com/p/Cjm8qXEqzno/?igshid=NGJjMDIxMWI=
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raseforcrps · 2 years
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Posted @withregram • @invisibledisabilities EXCELLENT NEWS! Invisible Disabilities Symbol signed into law on June 30, 2021 by Governor Jared Polis! [Symbol is optional and voluntary]. Colorado’s HB21-1014 Disability Symbol ID Identification went into effect July 1, 2022. The bill adds the voluntary option for a person with a disability to request that the Department of Revenue place a discreet disability identifier symbol on the person’s driver’s license or identification card. The symbol represents all types of disabilities, such as cognitive, neurological, or physical disabilities. This has been available in Alaska and was also just passed in Utah! The Invisible Disabilities Association is in conversations with other states, too. For more info NationalDisability.ID It takes many, many hours and lots of funding to create bills and bring awareness, education, support and resources. Please consider supporting IDA monthly, yearly or through our annual IDA Awards Gala Fundraisers. IDA is working hard to make a difference in your community and around the world! Thank you! The IDA Team Invisibledisabilities.org #invisibledisability #invisibledisabilities #nationaldisabilityid #chronicillness #chronicpain #hoh #autism #hiddenillness #invisibleillness #legislation #dmv #stateid https://www.instagram.com/p/Cgujs9aOZlC/?igshid=NGJjMDIxMWI=
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lexdexsolutions · 3 months
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Mastering PIP Success: Crafting Effective Supporting Letters for Your Application
Working on a Personal Independence Payment (PIP) application can be a complex journey, but the power of effective supporting letters cannot be overstated. In this blog post we will explore the critical role of supporting letters in a PIP application, identify who can provide these letters and what they should encompass, offer valuable tips for crafting compelling narratives, and present real-life…
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vix-the-star · 1 year
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So my part 2 of day 2 at @rupaulsdragcon because @ginnylemon69 is a legend who deserves their own post. Ginny is a queen who stole my heart by being so aware of access issues. Having people in the #LGBTQ community who really get accessibility is rare. We treasure those that are trying to make the world more accessible and inclusive. I’m loving dropping off a treat bag every day to help you get through drag con. Look after yourself and see you on day 3!! #FancyASlice #GinnyLemon #Icon #DragConUk #AllDragIsValid #CrippingQueer #AccessIsARight #AccessibleDrag #AccessibleQueerVenues #QueerCrip #DisabledAndCute #InvisibleDisabilities #DisabilityAwareness #WheelyAdventures https://www.instagram.com/p/CnINAeJsVvU/?igshid=NGJjMDIxMWI=
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msfoord · 1 year
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Your girl's a bit under the weather & won't be singing at #OnTop, tomorrow Send good vibes 💖 (Don't worry, it's not covid! I think the thunderstom asthma has mucked me about & my dysautonomia doesn't like sharing my body and has cracked it haha) [ID: Bette, with her pink hair curled, wearing a light pink Bettie Page marabou nightgown & robe, is lying on a grey and blue bed spread, pulling a silly sad face with her bottom lip protruding] #PinkPinUp #MelbourneMusos #DisabledMusicians #Disability #Disabled #InvisibleDisabilities #InvisibleIllness #ChronicallyIllBitches #ChronicAndIconic #Pink #PinUp #Musician #MusicianLife #Muso https://www.instagram.com/p/Ck9-WseyqQw/?igshid=NGJjMDIxMWI=
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essentialise · 2 years
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New podcast coming out soon! #invisibledisabilities #autisticentrepreneur #founderstories #startupjourney #entrepreneurmentalhealth #workplacewellness #neurodivergentbusiness #disabledandproud #empowerthenextgen (at The Qube) https://www.instagram.com/p/CkIbBW4jvbx/?igshid=NGJjMDIxMWI=
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sistersu · 2 years
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Love my @rexalldrugstoreofficial pharmacist!At the beginning of the call he made sure I had my EpiPen nearby. He congratulated me on staying calm through everything as getting excited can increase cortisol and make allergy reactions worse. He advised me which course of action to choose from the options available to me currently. He said the best choice would be to take the 50 mg Benadryl pill and to stay in as it will make me extremely tired. If it doesn’t work and I have problems with my breathing and I’m still wheezing then I need to take my EpiPen I am grateful to God that it was put in my heart when my allergies started to act up to play as soothing playlist of hymns from @dappytkeys YouTube channel it helped keep me calm through it all. #staycalmandsurvive #MusicSavesLives #GreatPharmacist #BenadrylTime #AllergiesSuck #InvisibleDisabilities #InvisibleIllness #AllergyAttack https://www.instagram.com/p/CeT4-5xrYGE/?igshid=NGJjMDIxMWI=
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How to be prepared that a movie will trigger a migraine.
I highly recommend the website, doesthedogdie.com
They have categories for flashing lights and images, misophonia triggers, and triggers for PTSD or phobias of all kinds.
You can look up by the title of whatever media you chose- whether movie, book, comic, etc.
I highly recommend this website to anyone that wants to avoid a migraine or avoid a trigger for their mental health’s sake.
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gbuda73 · 7 months
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This needs to be shared, needs to be read, and most importantly heard.
Sertraline- Zoloft
Venlafaxine- Effexor
Citalopram- Celexa
Mirtazapine-Remeron
Fluoxetine- Prozac
Duloxetine- Cymbalta
Seroquel- Quetiapine
Lamictal- Lamotrigine
Lexapro- Escitalopram
Wellbutrin- Bupropion
Lorazepam- Ativan
Klonopin- Clonazepam
Abilify - aripiprazole
Tegrotal - carabamezipine
Buspar - buspirone
You may know what these tablets are or know a loved one who takes them, but in case you don't, I will fill you in. That medication allows people to deal with a normal day to day life. Although most days it leaves them tired, spaced out, emotionless, or even super emotional.
Crazy right? Why would anyone want to feel like that?
Well this is why!!
You see, some people suffer from severe depression and anxiety.
In their brain it doesn't sit right, something seems different. They notice little differences that other people wouldn't. Most days they wake up sick and feel sleepless.
They consistently overthink every situation.
Was a comment about them; was it a joke?
Was that person supposed to laugh?
Or did they mean it?
Are they being nice?
Are they talking about them?
Do they talk about them?
They then think, I bet they don’t like me really.
They say sorry all the time. They feel like they annoy everyone.
And for all those questions they will spend hours trying to answer. Let it all build up in their mind, until it sends them to tears...... it's mental that they see things that way.
It's not only mental changes, but physical changes. They don't eat a lot or they eat way too much. Insomnia, up all night answering questions to situations that don't even exist, or sleep too much and waste half their day still feeling tired.
They still smile and they have every excuse for when you ask why.
But the tablets can help them. Because they know when they start to feel this way or think this way, they need help.
They know that when their behavior starts to change, They need guidance. And they understand that they don't need to be ashamed. They don't need to be understood. They just need to be accepted. Everyone is fighting a battle and sometimes you need to be kinder.
So I may just be another person who's talking about mental health....
Living with this illness is hard, but trying to understand it, is even harder. It’s also 100 times harder if they have another condition on top of this.
Don't suffer in silence.
Mental health is just as important as physical health.
Be part of the healing.💙
Be understanding.💙
Be kind. 💙
💙 Copied and pasted.💙
Sometimes don’t even try to understand, just simply love that person, support them, and be there when they need you. Some people in my life have truly mastered this, and for you I will forever be grateful!
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puppiemomo · 8 months
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I am too tired to try and be human.
Too tired
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thechaoticbookwyrm · 1 year
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I'm struggling today; struggling to figure out who I am and become confident in my identity as a disabled person. Struggling to accept myself as I am because, I feel like there is SO much that my body should be able to do that it just can't. Add starting up physical therapy again on top of it, and my will to live is seriously dwindling... I hate the way they look at me, and I hate the way they make me feel. The pity on their faces kills me. Tomorrow we're going to the zoo, and I have to use a wheelchair or I can't go.. and that too hurts me. It shouldn't but, it does. I just wish I could be "that" girl for one day, the healthy girl that I never got to be. #chronicillness #chronicallyillauthor #ChronicPain #ChronicPainLife #ChronicPainAwareness #Insomnia #InvisibleDisability #InvisibleIllness #InvisibleIllnessAwareness #Spoonie #NoSpoons #SickAutoimmuneDisease #sickgirlproblems #sick #wheelchair #BabeWithMobilityAids #TheysWithMobilityAids #emotional #alternativegirl #shethey #Depression #dysphoria #DisabledCreator #disabledbutnotreally #disabledandcute (at Ingleside, Illinois) https://www.instagram.com/p/Ckj-8O5N3MD/?igshid=NGJjMDIxMWI=
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