This is a genuine question but would epilepsy fall under neuropunk? I just haven't looked into it fully and at a distance the community is mostly focused on autism/ADHD. It's confusing because it's a thing that isn't the same kind of punkness as my ADHD/BPD with NPD traits stuff. It's something else entirely. More physical than my BPD but less physical than hEDS, if that makes sense. Feels somewhere inbetween.
yeah, it would! nonpsychiatric neurological conditions count under neurodivergent (what neuropunk is based around). that's the cool thing about the term neurodivergent - it doesn't draw a line between "physical" and "mental," or encourage conditons being boxed into one or the other.
for example, I'm neurodivergent for both my schizophrenia and my spinal nerve condition. i'm neurodivergent for both my autism and my involuntary movements (which ,I don't know if they're seizures or from the spine condition). etc. etc. and i can be neuropunk in relation to all of these things.
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hey, i don't want to put you out or anything, i was just wondering if like off the top of your head if you knew any disability studies articles/books/whatever that center (or even just feature) tic/involuntary movement disorders?
so the answer to this was pretty much no but i spent a bit of time poking around and turned up this 2023 undergraduate honors thesis (link) by a student with tourette’s which seems like a solid starting point for going down the citation rabbit hole!
that piece is “The Embodied Performance of Tics and Tourette Syndrome in the Academic Environment” by Benjamin Allen; i’m only ~1/4th through rn but they argue for a continuum of ticcing + criticize the diagnostic system so i’m comfortable reccing it on that front! the (non-medical) tic-related works cited there are:
Buckser, Andrew. “Before Your Very Eyes: Illness, Agency, and the Management of Tourette Syndrome.” Medical Anthropology Quarterly, vol. 22, no. 2, 2008, pp. 167-192.
Buckser, Andrew. “The Empty Gesture: Tourette Syndrome and the Semantic Dimension of Illness.” Ethnology, vol. 45, no. 4, 2006, pp. 255- 24. https://www.jstor.org/stable/20456601.
Curtis-Wendlandt, Lisa. “Time and the Tic Disorder Triad.” Philosophy, Psychiatry, & Psychology, vol 27, no. 2, 2020, pp. 183-199.
Curtis-Wendlandt, Lisa, and Jack Reynolds. “Why Tourette syndrome research needs philosophical phenomenology.” Phenomenology and the Cognitive Sciences, vol. 20, no. 4, 2021, pp. 573-600.
Miller, James. “The Voice in Tourette Syndrome.” New Literary History, vol. 32 no. 3, 2001, pp. 519-536. Project MUSE, doi:10.1353/nlh.2001.0039.
Trubody, Ben. “Ticced off: An Interpretative Phenomenological Analysis of The Experience of Tourette’s Syndrome.” Journal of the Society for Existential Analysis, vol. 25, no. 2, 2014.
i also searched a handful of disability studies journals for a variety of keywords (movement disorder, tic, tourette’s, involuntary movement, chorea, huntington’s) but didn’t turn up much unfortunately, so all but the first of this next list include someone with tics and/or involuntary movements rather than being about moving involuntarily.
haven’t read these so i can’t speak to the politics / quality (although i’ll make a post if i’m able to read more) but here’s what seemed potentially relevant! also if anything is paywalled please don’t give T&F your money lol, try SciHub or if you can’t find something i can ask around for somebody with institutional access!
Cultural Differences in Reactions to Tics and Tic Severity (2021)
Using virtual reality to implement disability studies’ advocacy principles: uncovering the perspectives of people with disability (2023)
I had every right to be there: discriminatory acts towards young people with disabilities on public transport (2020)
From comedy targets to comedy-makers: disability and comedy in live performance (2015)
From the Case Files: Reconstructing a history of involuntary sterilisation (2010)
i also want to mention “Movements of the Uncontrollable Body Part Two” by Bronwyn Valentine (2019), a creative writing piece about her experiences of embodiment + ableism with spina bifida that i first read pretty soon after it was published & went looking for after developing my movement disorder a year ago because it was so impactful. @fndportal also has some incredibly vital work.
also if you haven’t already read Rosemarie Garland-Thomson’s Staring: Why We Look, it’s not specifically about involuntary movements but definitely a core text for theorizing any visibilized disability.
i hope some of that is helpful!! if anybody checks any of these out i’d love to hear your thoughts/critiques! all the best to you & i hope these offer some resonance with + understanding of your experiences 💓💓
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reminder again that anxiety, ocd, autism, adhd, trauma, fnd, pandas/pans, etc., do NOT cause tics
if you have tics you have a tic disorder
if you have at least two motor tics and one vocal tic you have tourette syndrome
also remember that there's a lot of different types of involuntary movements
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i sure love suddenly feeling inexplicably Off and slightly unaware of my surroundings only for my body to begin randomly, sometimes violently, jolting. and then it goes back to normal as if nothing happened. like ??? hello ??? there wasnt even any loud/sudden noise this time. the tv was on normal volume. what do you want from me. what is this shit
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Hey there, do you have some cool sources on other types on involuntary movement that are not tics?
Yes, I do! Here is a list of involuntary movements, a simple description, and links to resources on them:
Akathisia -> an inability to remain still
StatPearls article
cleveland clinic article (very good)
Akinesia -> the loss of spontaneous, voluntary muscle movement
StatPearls article (free article)
healthline article
Athetosis -> slow, continuous, involuntary writhing movements commonly affecting arms and hands
healthline article
Chorea -> rapid, chaotic movements that seem to flow from one body part to another
NINDS article
StatPearls article
Dystonia -> sustained or repetitious muscular contractions; often produces abnormal posture
mayo clinic article
NINDS article
StatPearls article
Hemiballismus -> sudden, intermittent, flinging, or ballistic high amplitude movements commonly affecting proximal limb muscles
StatPearls article
Myoclonus → sudden, brief, involuntary muscle twitches
mayo clinic article
NINDS article
StatPearls article
Parkinsonism -> a clinical syndrome characterized by slowness, rigidity, tremor, and postural instability
StatPearls article
parkinson's disease vs parkinsonism
types of parkinsonism (parkinson's UK)
types of parkinsonism (parkinson's foundation)
Stereotypies -> repetitive, rhythmic movements with typical onset in early childhood
stereotypies in adults
medlink article
Tardive Dyskinesia -> uncontrollable and repetitive movements of the tongue, lips, face, trunk, and extremities
webmd article
Tics -> sudden, rapid, recurrent, and nonrhythmic movements or vocalizations
mayo clinic article on tourette syndrome
NINDS article on tourette syndrome
child mind institute article on tics and tourette
Tremor -> rhythmic back-and-forth or oscillating involuntary movements
NINDS article
classification of tremor
(at request I can find Tumblr or blog posts talking about personal experiences with some of these movements)
Basic definitions come from this article: https://www.psychiatrist.com/pcc/effects/drug-induced-abnormal-involuntary-movements-prevalence-and-treatment/
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Having a psychologically induced physical disability be like “sorry I can’t walk right now I’m sad.” And it’s completely unexaggerated and literal.
I’ve been in therapy for ten years, and have been inpatient, iop, and partial hospitals. I was taught unresolved trauma and stress can cause like. Stomach and heart issues, migraines.
No one ever told me whatever the actual duck THIS is could happen. Like yeah, my new normal is that crying and panic attacks and triggers make me jerk around involuntarily until I’m catatonic. Is that. How does. PLEASE TELL ME I’M NOT CASE 0 FOR THIS??? MY DOCTORS ARE SO CONFUSED BUT APPARENTLY ACCORDING TO PSYCHOLOGY PROFESSIONALS ‘YEAH, PSYCH DISORDERS CAN CAUSE THIS.’ While also seeming confused. I am baffled myself. Like huh???
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