i talked about it a little bit already but i have things to say about it. for context, i was born with amniotic band syndrome. the amniotic band wrapped around my left wrist in utero and stunted the growth of my hand. i was born with about half a palm, four nubs for fingers, and a twisted half of a thumb. i can open and close my thumb and pinkie joint like a claw.
yesterday at work i had a shift in the room with 5-10 year old kids. i had my left hand hidden in my sleeve (a bad habit of mine). a kid asked if he could see my hand, and even though internally i was debating running into traffic, i said “sure you can” and showed him my hands. he stared for a moment, looking disturbed, and then said “i don’t want to look at that anymore”. that hurt to hear, but i understand that kids are new to the world and he probably didn’t mean it out of malice. i put my hand away again, told him that it was okay, and that i was just born that way.
he then went on to talk about how he knows a kid with a similar hand to mine and called it “ugly”. i told him that wasn’t a very kind thing to say and that he wouldn’t feel good if someone said that to him, and he replied that no one would say that to him—because he has “normal hands”, and he’s glad he does because otherwise he’d be “ugly”. i tried to talk with him for a bit about how everybody is born differently, but he just started talking about a girl he knows with a “messed up face” and pulled on his face to make it look droopy. i went on some more about how it wasn’t very kind to talk about people that way, but the conversation moved on to something else.
i’ve told my supervisors about it and they’re going to have a talk with his mom. what i wanted to say is this: i’m genuinely not upset with the kid. kids are young and naturally curious, and he clearly simply hasn’t been taught about disabled people and kind ways to speak to/about others. which is why i am upset with his parent(s). i know he’s encountered visibly deformed/disabled people before (he said so himself!), yet his parent(s) clearly haven’t had any kind of discussion with him about proper language and behavior. i knew from birth that some people were just different than others, but my parents still made a point to assert to be kind to and accepting of others. i wonder if adults in his life are the type of people to hush him and usher him away when he points out someone in a wheelchair. that kind of thing doesn’t teach politeness. it tells children that disabled people are an Other than can’t be acknowledged or spoken about; which, to a child, means disability must be something bad.
i’m lucky enough that this was a relatively mild incident, and that i’m a grownup with thicker skin. i’m worried about the other kids he mentioned to me. has he been talking to them this way? when i was a kid, i had other kids scream, cry, and run away at the sight of my hand. or follow me around pointing at me and laughing at me. or tell me i couldn’t do something because i was ugly or incapable or whatever. one time a girl at an arcade climbed to the top of the skeeball machine, pointed at me, and screamed at me to put my hand away and wouldn’t stop crying until she couldn’t see me anymore. another time, a kid saw my hand, screamed at the top of her lungs, and ran into my friend’s arms, crying hysterically about how i was scaring her. that second incident made me cry so hard i threw up when i got home. i can kind of laugh it off now, but having people react to me that way as a child is something i’m still getting over. why do you think i have a habit of keeping my hand in my sleeve? it just irritates me to see children that have clearly not been taught basic manners and kindness—their parents Clearly missed something pretty important .
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non-queer/gender boyfriend content incoming
rhys: *showing me an image on his fb feed that says 'autistic play is not inappropriate play'* what does this mean? inappropriate play?
me: autistic children will often play or interact with things differently to their neurotypical peers like... instead of building something with lego just sorting the blocks into size and colour or what have you and non-autistic adults see this as doing it "wrong" or not "appropriately" and try to stop it and force you to "play" how you are "supposed to". but there is nothing wrong with engaging in play differently as long as it isn't hurting someone, you're simply having fun in a way they don't understand. repeatedly trying to force autistic children to "play properly" isn't going to work it's just shitty and will make them feel bad because they don't understand what they're doing "wrong"
rhys: ohhhhh! is that why my mum would get frustrated with me for just posing my action figures on a shelf in cool ways and would try to get me to like. bash them together
me: yep! the "normal" way of playing with action figures is to act out scenes and make them interact with each other. but you had more fun arranging them nicely and looking at them.
rhys: i don't think she meant anything bad by it
me: not intentionally, no. she just didn't understand that is how you played and thought you just didn't know what you were doing and were confused
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Seeing as I just got my diagnosis of level 1 autism (what used to be called “Asperger’s”) coincidentally at the same time that my partner and I started watching NBC’s Hannibal series, I’ve been having a couple thoughts about neurotypical vs. neurodivergent experiences regarding “toggling” different emotional responses. Motivation, empathy, fear, etc. are malleable to some, fixed to others; and sometimes, to those who aren’t born with an automatic reflex in one area or another, it’s a little like breathing or blinking on purpose.
Sometimes (and I think this is the autism at play, now that I have a chance to reframe most of my behavioral tendencies in a new light), someone will tell me a joke, or mention something funny—you know how it is, something genuinely funny—enough to “tickle” my internal sense of humor. But sometimes, even though it does, I feel no physiological urge to laugh.
So, when that happens, I kind of just … pull one out manually.
Sure, some people might think it’s disingenuous. One might make the claim that I don’t actually feel any appreciation for the joke, and instead it is societal pressure to placate the other that motivates me to do it. But the thing is … it’s not. It just isn’t. Even if it doesn’t sound like amusement without dialing up my affect, I do find it funny. It’s just that sometimes a wire in my brain doesn’t quite connect, and I have to push to make the appropriate Human Sounds in order to indicate that I just experienced humor.
The sensation is there, but the action is mindful. Even if I slip up or forget or aren’t diligent enough with how it sounds, I know for a fact that I did find the joke funny, even if the teller thinks I’m only politely going along with it. From what I understand about identifying emotions, it would seem that there is no difference between a choice and a reflex.
This is one example. There are many others, and they all relate to different experiences and emotional deficits. Fake laugh? Ehhh. Intentional laugh? Oh, definitely.
And I think sometimes, for certain individuals, loving is a bit like that, too.
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also i'm sick of people treating emotional eating as something that makes you pathetic
it's LITERALLY consensus that it's caused by poor emotional regulation (which is caused by trauma or disability most of the time) and issues related to trauma and it's often genetic (purely anecdotal but i literally come from an entire line of emotional eaters)
and also from the autistic and adhd community i feel like the only autistic/adhd comorbid person who COMPULSIVELY and EMOTIONALLY eats and everyone on tumblr seems to like. not do that. even though compulsive and emotional eating is more often associated with more severe presentations of adhd/more common in afaik low-middle and middle support autism presentations and autism that's frequently comorbid with intellectual disability so i guess you people don't wanna be like Those Autistics, which, somehow includes me!
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I'm annoyed by the biphobic bs again. Nothing new to see here. If you read more don't come make it my problem.
I'm not even bi I'm just exhausted on their behalf because the biphobia in this fandom is such a fucking trip. Swear to god if I see L&I described again as lesbians I'm just going to start blocking. It's all plausible deniability and bad faith with y'all and I'm tired of it. People just keep moving the goalposts. Yes comphet is real, no you can't throw it out there for every situation involving two women forever because "you can't prove any previous encounter was real." We have canon crushes and an active attempt at a date with a guy and it's not enough. Don't think I didn't notice also how our Faun druid was allowed and welcomed into the dynamic until she wanted to fuck that old man and didn't say sike and now there's next to nothing about her. Forget ace L, because we are far, far away from the time where anyone is going to respect a physically...uninterested character not wired for sex saying "I turned that part of my brain off a long time ago" - this is still just straight up erasure of a stated canon intrigue and no it's "they're definitely lesbians, I can tell, why are you calling me biphobic/you sound like a t*rf/lesbophobe yourself" (what a hilariously bad faith reading of literally anything I've said as a demigray lesbian, but even if I wasn't, come the fuck on.)
I have watched y'all be fucking shitty to Caleb in real time in the name of your mollys and your drow war criminals and "will he shut up so we can get back to the lesbians," I watched people make the VERY reasonable hc that c2's barbarian was bi before it was "confirmed" otherwise in episode 90-something by her saying "not my thing" and they got ass blasted, I watched the be*ujes ship turn into a seething hotbed of t*rf rot that permeates this ship a campaign later, and I watched people crow about how Liam "finally" played a "real" queer character when our resident halfling said he was only into dudes. Get better soon.
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Expanding on something I’ve said before about Jerma. Like I have stupid bad Adhd and developmental issues and I’ve never seen someone online share so many of my in person mannerisms as him. Which yknow double whammy when he also has Adhd. But then seeing the trends of jokes towards him about being some Fake human, animal guy, shapeshifter who can’t think coherently and seems to stumble any basic movement is mental cause that’s all the exact shit people bullied me with and still say to me as an adult. I don’t think anyone irl thinks they’re being mean saying I’m stupid or like an animal or infant constantly but they Do think the way I exist is funny, they do think the way I move is funny, stammering and struggling to open packets is funny, processing issues and slowness is funny. Maybe I’m being overly personal, I also find the jokes and jerma’s stuff entertaining but there’s some kinda bitter irony in seeing a dude who I act so much like in terms of mannerisms getting the same jokes made at him that I do.
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