#living with a disability

[spooniepositivity]

You are not a burden if your condition makes you dependent. You are not a burden if you cannot work. You are not a burden if others have to go out of their way to accommodate you.

Living with a disability is exhausting, and I'm proud of you, even if all you did today was stay alive.

#disability positivity #chronic disability #spoonie #actually disabled #living with a disability #disability awareness

[a-little-revolution]

being disabled really do be like i have a day where i'm busy and then a day of rest. i have a day where i accomplish one task and then a day of rest. i have a day, and then i have a day of rest.

#disabled #living with a disability #chronic pain #dwarfism #arthritis #spoon theory

[barnabytremayne]

Living with Imposter Syndrome

Living with imposter syndrome is like constantly feeling like a fraud in your own skin. It's a constant nagging voice that tells you that you're not good enough, that you don't belong and that you will be exposed as a fraud.

I remember the first time I shared my work online, I felt like I didn't belong and that my art wasn't good enough. But that feeling never really went away. It's been with me through every new project, every performance, and every time someone compliments my work.

It's not just my art, it's everything. I doubt my abilities in every aspect of my life. It's been hard, it's affected my relationships, my work, everything. I've been afraid to share my work, to take on new projects, because I was convinced I would fail.

But you know what? I've come to realize that I'm not alone in feeling this way. A lot of people struggle with imposter syndrome. It's not something that can be cured, but it can be managed. I'm learning to be kinder to myself. I remind myself that mistakes are a part of the creative process, and that I'm not alone in feeling this way.

I've also learned to surround myself with people who support me and believe in me. And I try to focus on my accomplishments, rather than my shortcomings. I remind myself of the times when my art has been positively received, and the times when I've overcome obstacles. It's not easy, but it's worth it.

So, if you're reading this and you feel like a fraud, just know that you're not alone. We all feel like that sometimes. But we can learn to manage it, and that's what really matters.

#imposter syndrome #mental health issues #self worth #therapy #living with mental illness #depression recovery #self esteem #artist problems #motivation #support artists #artists on tumblr #neurodiverse artist #independent music #musician on tumblr #essay writing #living with a disability #essays #thoughts of mine #writing #self improvement #self healing #personal ramblings #low self worth #faking it

[the-re-farmer]

Still not done yet, and I have awesome friends!

My husband had his medical appointment this morning, so we got to give the truck its first real test. I did end up having to fold up both bench seats in the back to fit his walker. With just the seat behind the passenger seat folded up, the walker fits at a angle, which makes one wheel just an inch or two too far for the door to close. The part of the bench seat behind the driver’s seat that…

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#Critters #dealing with vehicles #fixing things up #I have the best friends #kittens #living with a disability #Medical #postaday #roof

[onlytiktoks]

#tiktok #blind #visually impaired #braille #mona lisa #inclusion #inclusivity #accessibility #disabled lives matter #disabled life #disabled #louvre #art museum #museum #louvre museum

[butchfalin]

the funniest meltdown ive ever had was in college when i got so overstimulated that i could Not speak, including over text. one of my friends was trying to talk me through it but i was solely using emojis because they were easier than trying to come up with words so he started using primarily emojis as well just to make things feel balanced. this was not the Most effective strategy... until. he tried to ask me "you okay?" but the way he chose to do that was by sending "👉🏼👌🏼❓" and i was so shocked by suddenly being asked if i was dtf that i was like WHAT???? WHAT DID YOU JUST SAY TO ME?????????? and thus was verbal again

#yeehaw #1k #5k #10k #posts that got cursed. blasted. im making these tag updates after... 19 hours? #also i have been told it should say speech loss bc nonverbal specifically refers to the permanent state. did not know that! #unfortunately i fear it is so far past containment that even if i edited it now it would do very little. but noted for future reference #edit 2: nvm enough ppl have come to rb it from me directly that i changed the wording a bit. hopefully this makes sense #also. in case anyone is curious. though i doubt anyone who is commenting these things will check the original tags #1) my friend did not do this on purpose in any way. it was not intended to distract me or to hit on me. im a lesbian hes a gay man. cmon now #he felt very bad about it afterwards. i thought it was hilarious but it was very embarrassed and apologetic #2) “why didn't he use 🫵🏼?” didn't exist yet. “why didn't he use 🆗?” dunno! we'd been using a lot of hand emojis. 👌🏼 is an ok sign #like it makes sense. it was just a silly mixup. also No i did not invent 👉🏼👌🏼 as a gesture meaning sex. do you live under a rock #3) nonspeaking episodes are a recurring thing in my life and have been since i was born. this is not a quirky one-time thing #it is a pervasive issue that is very frustrating to both myself and the people i am trying to communicate with. in which trying to speak is #extremely distressing and causes very genuine anguish. this post is not me making light of it it's just a funny thing that happened once #it's no different than if i post about a funny thing that happened in conjunction w a physical disability. it's just me talking abt my life #i don't mind character tags tho. those can be entertaining. i don't know what any of you are talking about #Except the ppl who have said this is pego/ryu or wang/xian. those people i understand and respect #if you use it as a writing prompt that's fine but send it to me. i want to see it #aaaand i think that's it. everyday im tempted to turn off rbs on it. it hasn't even been a week

[bellqmione]

wheelchairs and canes and glasses and hearing aids and every single other disability aid should be free btw and if you disagree i hate you

#disability #wheelchair #cane #hearing aids #disability pride #🕸️ #elbow/knee/etc. braces included #contact lenses #and i'm not talking cheap shit #i'm talking FITTED WHEELCHAIRS and HIGH QUALITY HEARING AIDS #and glasses with the perfect prescription #HOW is is that we have to PAY to live fairly

[avidabsurdist]

maybe this is a hot take but you cannot demand that disabled people take care of themselves without extra labor from abled people and then turn around and belittle them for using paper plates, disposable utensils, eating poorly, and food going bad in their fridge.

Part of our obligation as human beings is that we will take on the responsibility of and care for the people around us, and if we cannot, we give them grace and space and understanding when they struggle.

#disability #living with a disability #is hard enough #much love

[millionmovieproject]

It's a holiday. For children. Give them the candy, or fuck off.

#halloween #trick or treat #autism #developmental delay #sensory disorders #disability #disability awareness #nonverbal #fuck capitalism #capitalism kills #we live in hell #socialism now #abolish capitalism #peoples union

[spooniepositivity]

Shoutout to people who require noise cancelling headphones everywhere they go. Shoutout to people who cannot listen to certain music, or music period. Shoutout to people who cannot use headphones for sensory reasons. Shoutout to people who can't eat certain foods because of textures. Shoutout to people who can't wear certain clothes or fabrics because of textures. Shoutout to people who can't use certain items, such as blankets, pillows, etc, due to textures. Shoutout to people who can't use certain mugs, cutlery, plates, etc, for sensory reasons. I see you. You are valid. You are not overreacting.

#actually disabled #disability awareness #disability positivity #living with a disability #disabled #spoonie #spoonie positivity #sensory overload #sensory issues #reminder

[disabilityhorizons]

Now available on Disability Horizons Shop!

#poor grip #disability gadgets #access all areas #disability #living with disability #disabilitylife #new ideas

[andthebeanstalk]

Today my therapist introduced me to a concept surrounding disability that she called "hLep".

Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"

And my therapist pointed out that this is not "help", it's "hLep".

Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.

At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.

So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!

Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!

Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!

Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.

#hlep #original #mental health #my sympathies and empathies to anyone who has to rely on this kind of hlep to get what they need. #the people in my life who most need to see this post are my family but even if they did I sincerely doubt they would internalize it #i've tried to break thru to them so many times it makes my head hurt. so i am focusing on boundaries and on finding other forms of support #and this thing i learned today helps me validate those boundaries. the example with the milk was from my therapist. #the example with the towing company was a real thing that happened with my parents a few months ago while I was age 28. 28! #a full adult age! it is so infantilizing as a disabled adult to seek assistance and support from ableist parents. #they were real mad i was mad tho. and the spoons i spent trying to explain it were only the latest in a long line of #huge family-related spoon expenditures. distance and the ability to enforce boundaries helps. haven't talked to sisters for literally the #longest period of my whole life. people really believe that if they love you and try to help you they can do no wrong. #and those people are NOT great allies to the chronically sick folks in their lives. #you can adore someone and still fuck up and hurt them so bad. will your pride refuse to accept what you've done and lash out instead? #or will you have courage and be kind? will you learn and grow? all of us have prejudices and practices we are not yet aware of. #no one is pure. but will you be kind? will you be a good friend? will you grow? i hope i grow. i hope i always make the choice to grow. #i hope with every year i age i get better and better at making people feel the opposite of how my family's ableism has made me feel #i will see them seen and hear them heard and smile at their smiles. make them feel smart and held and strong. #just like i do now but even better! i am always learning better ways to be kind so i don't see why i would stop

[the-re-farmer]

Should be easy, and kitty problems

First, the cuteness! Brussel is such a gorgeous cat! I want to snuggle her!!! Alas, she still won’t allow us to get close. This afternoon, I was planning to head into town to cancel the insurance on my mother’s car, until we can get it taken in. My husband was going to come with me, to finally get his photo ID. Unfortunately, the change in his medication is still causing intense intestinal…

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#Critters #identification #insurance #living with a disability #outside cats #postaday

[brightlotusmoon]

#vaccines save lives #covid 19 #long covid #yup #welp #welcome to the disability club #anyone can become disabled #mask up

[varian-ross-horror-author]

"Disabled people should be allowed to be as independent as we can be" and "disabled people should not be pressured to be hyper-independent in order to not wind up in nursing homes against our will" are two thoughts that can, and should, exist at the same time.

#physically disabled #cripplepunk #disability #original post #the number of people who assume I'm from an assisted living facility stuns me #I can do most things on my own #as far as I know I don't fall under 'high support' needs #yet I've had people ask about my caretaker and I'm like 'my what' #I have someone drive me and need help shopping #but that's about all

[flowercrowncrip]

I wish that instead of talking about “independent living” as disabled people we talked more about “autonomous living”.

I think when a lot of people see “independent” they assume it means living alone without other people. And some people assume that independent living services aren’t for them because they need 24/7 care. Or non disabled people think it’s pointless because many disabled people can’t live on their own.

But what we call independent living often includes having access to carers/ PAs/ support workers. It’s about having freedom to make all the meaningful choices we can, having the support and equipment we need to live comfortably and safely and to access the community and other activities. And I feel like “autonomous living” describes that better.

#independent living #autonomous living #disability #actually disabled #autonomy