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#long haul covid
zurko48 · 9 months
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pandemichub · 1 year
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More information about Stanford research goals and the RECOVER Program/Initiative:
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beppilepsy · 2 months
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Official validation for staying inside for two years like I had died at the beginning and was doomed to haunt just this small patch of property. I knew I wasn’t at a greater risk of catching it, but I knew I was in for a bad time if I ever did. (STILL an official Covid virgin btw, 5 vaccinations strong)
All these studies lately are just confirming things I was pretty sure were true, and that’s great and everything cuz it makes me feel smart, but I can’t remember the last time I read a “people with epilepsy are more likely to x” and I was like “well I’ll be god damned, I never thought of that, but sure enough!” I need one of those every once in a while to keep things exciting.
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cacophony-eg · 6 months
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Apologies to my readers and mutuals for not being very active for the last couple of months.
Abridge Summary: Since summer I’ve been dealing with wildfire scares, soon fallowed by personal health struggles, so I haven’t been in the best mental/creative state…
Now that the rain has returned and my health is on the mend, I’m eager to get back into writing my fanfics and drawing fan art again. I’m going to try and get the next part to Moon Knight and Sun King done by the end of the weekend, though it will be shorter than I originally planned I really want to get something posted for my readers, as many of you have been so patient and supportive I really wanna give something back as thanks. =3
If you wish to know more, I’ll put a more detailed explanation under read more:
I’ve touched very briefly on here that I live in BC Canada and the wildfires that swallowed up most of the province during this last summer. (I’m not sure how many people are aware of how bad the fires were here, if interest I’m sure a google search or even a search on Tumblr will give a quick idea of what state of thing here were like.)
First I want to say that I’m lucky and very grateful, I didn’t loose my home during the fires unlike many other people… I know I just said I would go into more detail here but as I was trying to write about my experiences and stresses. It felt hallow compared to people who’ve lost their homes, or work place, or other important close to their heart thing, to the fires. So I’ll just say Rain has returned and the fires are gone now, and even though it doesn’t magically bring back what the fires took, the rain does feel like a welcomed relief.
In regards to my health for the last few months I’ve been struggling with long haul C-19 symptoms. (Sadly around the time I contracted C-19 it overlayed with the fires so the smoke didn’t do my capabilities to breathe any favours). It’s felt like a domino effect as my struggles with breathing, led to me having struggle with sleeping, the lack of sleep then caused my heighten anxieties to be extra sensitive. There were times my mind was in such a fog that I thought of something that trigger me into having an anxiety attack that triggered me to go into a coughing fit and when I was done with the coughing fit, I couldn’t even remember what I was thinking about before the coughing fit! I would like to say this only happened a few times, but sadly for almost two weeks that’s just the vicious cycle my brain and body was in.
But again I’m lucky and I’m grateful, as I have wonderful housemates that helped take care of me, and so glad that my main job has great remote options that allowed me to (somewhat) keep working and more importantly keep getting paid while I was sick. (Though in truth my work days were mostly me working for maybe an hour or two, before crashing and then trying to do more work for a couple more hours before crashing again/getting an aura migraine rendering me unable to work till it passed. Very slowly getting tasks done as I went.)
Basically for the last few months I’ve been struggling to function enough to do what I need to do to survive and had no energy to do much else, but I am getting better, slowly but surely. I’m going to do my best to keep working on my creative projects such as my fanfics and fan art, but it’s going to be slow going as I’ve fallen behind on a lot in my life that needs to be caught up on as well.
For now I just want to say thanks for taking the time to read this and I hope to make more for all of you to enjoy soon. ^-^
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thoughtportal · 10 months
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CHICAGO - Northwestern Medicine is sharing some new findings about the impact of long Covid on patients.
The first of its kind study looked at Covid-19 patients cared for in-person and via telehealth since May 2020.
Over 1,800 patients were seen over 21 months from May 2020 until February 2022.
Researchers at Northwestern Medicine found that among those tested, 85% reported decreased quality of life, 51% said they had cognitive impairment, 45% had altered lung function, 83% had abnormal CT chest scans, and 12% had elevated heart rate on rhythm monitoring.
"You will have many patients come to us still in good numbers to fill up our clinics with maybe the third, fourth, fifth infection, and now having finally developed post-Covid symptoms, not allowing them to fill up hospitals, ICUs and overflow but still with symptoms that are enough to be disabling to their lives as previously known," said Dr. Marc Sala.
Long Covid occurs in about a third of Covid survivors and is now the third leading neurologic disorder in the United States. 
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chelledoggo · 7 months
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question for anyone who's had covid (especially long-haul covid symptoms)
have any of you found yourselves more sensitive to sound after covid?
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bunnyseahorse-blog · 10 months
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Does anyone here have ‘long haul Covid’
I had a really nasty case of Covid in November and December of 2020. I’ll spare most of the TMI and just say that it was a severe gastrointestinal case that left me without any electrolytes and caused me to lose weight quickly. Towards the end my belly felt freezing and they told me my intestines were so inflamed that it was causing the cold sensation. 3 years later I bloat a lot still and never have anything but tummy problems. Again this is TMI but I have to vent because it sucks and despite my dislike of doctors and talking about personal stuff with them I just need to know what kind of damage Covid did to my tummy. My appointment is in a few days and if they don’t know I’m gonna have them refer me to a gut doctor
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POTS, a debilitating heart condition, is linked to Covid and, to a lesser degree, vaccines
Wow, is the medical world finally going to acknowledge POTS? The study mentioned in the article confirms what I already knew Covid can cause POTS and that POTS is a debilitating disease. POTS and other chronic illnesses are real and very serious, I'm sick and tired of getting my symptoms dismissed with the "it's just anxiety" diagnosis. When it most certainly is not...
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travelinglowcarb · 8 months
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I had another great water workout this morning. 😊💦❣️
I struggled Monday: froze up and went into tremors with cognitive impairment, but luckily was near the edge and able to get myself back out after it passed (I'm shaky & weak & have vertigo after those episodes). 😵‍💫
I was in a pretty harsh crash all week but thought the cool water would help with the muscle fatigue & joint pain. 😬🤦‍♀️
I went to acupuncture Thursday and got a great reset 🙌 and was able to enjoy a good half hour of physical therapy / exercise yesterday and today. 💖
I'm so proud of myself for getting back up and trying again, over and over, and doing what I can - when I can. And also knowing when to rest & recover, which is a lot of trial & error: figuring it out as I go. 🙃
I wanted to go swim early this morning at 830am but I had a whole respiratory flare-up that set me back... but once that passed, I still went. ✨️😁✨️
It's been almost 3 years now, but I'm still hopeful for a full recovery, and doing everything I can to be the happiest healthiest version of myself I can be today (every day) - and for my future self.
🎯
Whatever YOUR "hard" is, keep focusing forward while fully living in the NOW - creating your day and your future with mindful intention. "Choose Yourself" in ways that serve you best, that also allow you to better serve others. 💕 xo
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covidlongbrawler · 2 years
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Both my parents just tested positive for COVID-19. And since I've been around them for the past two weeks, I most likely have it too. I have a sore throat already.
I'm trying so damn hard not to panic. What if all my long COVID symptoms come back? I worked so hard to get to this point, where I can walk around and stand unaided and now it might be gone. Even though we're all vaccinated and tested. Even though we've been wearing masks!
And on top of that, I'm going to miss Yom Kippur services. I'm going to have to do the biggest holiday of the year online. I was pretty close to my rabbi who is breast-feeding. If I gave it to her, I'll be heart broken.
I was going to visit my girlfriend this weekend and then go pick out pumpkins next week like a normal couple. I just wanted to do dumb fall things and now I have to be quarantined.
I hate this! I hate all the stupid assholes who won't get vaccinated and won't wear masks! I hate all the politicians who put "opening the country back up" before people's lives. I hate all the people who deny science.
I can't get my heart rate down. I'm going to take some Klonopin and hopefully that'll knock me out enough to sleep.
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zurko48 · 9 months
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I am being so normal about realizing how disabled I truly am (lie)
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pandemichub · 1 year
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Please be aware, data not being collected does not mean there is no data. Reach out to your local representatives to push HARD for continued funding of waste water monitoring. It is the most reliable, and an incredibly vital resource. Without information about viral trends, it becomes quite uncertain how to proceed for the average person and for communities.
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I posted an article awhile back about waste water monitoring finding quite potentially being in a precarious position. Furthermore this would lead to outbreaks and the general public being unawares and run afoul of horrible outcomes.
The work of aggregating and collating of data is being left to individuals, which is not only horrifying, unethical and well out of step with science based methods and guidance, but highly unusual given data is kept and provided for other illnesses, especially ones as severe and concerning as covid-19 (SARs CoV 2).
For the time being, I personally will be assuming transmission is moderate to high in addition to my sources. In the absence or great reduction of data and reports, greater estimations and assessment of made, and when only observations, assumed. Be as safe as you can everyone 💝 - Admin
Please be aware of what may no longer be offered, operating or an out of pocket cost. Masks, tests (all types), vaccines, remote options, COVID-19 tracking apps. Also be mindful of any local or nationwide level policies, proposals, news or trends that cite mask and other NPI removals, bans, stigma or efforts towards criminalization.
For the time being, the following resources remains invaluable:
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https://biobot.io
It has come to my attention the person whose account is Laughter In Light has falsely claimed a prominent disability advocate encouraged or engaged in doxxing and slander with no demonstrable proof which has led to great harm. Laughter in light has provided some very helpful information throughout the pandemic. It is also important to be aware, critical and hold people into account for their actions, ideologies, commentary/statements and or stances. There are many other wonderful sources to inform oneself and stay up to date. - Admin
Provides regular updates on infectious diseases news
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Sadly they don't have a website or any links I know of. Their Twitter is public however and can be viewed even without an account.
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Give incredible analysis and updates on SARS CoV-2! Excellent medical and scientific communicator!
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Stella has been amazing since the beginning and continues to be. Definitely worth following! Check out their link tree! They're also on Tiktok!
If anyone has any international resources for updates and tracking, please add it via reblog and I'll definitely share! - Admin
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spookyradluka · 2 years
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What was your skin town before you got sick? I'm sorry if this is a weird thing to be curious about
No it's an important things people don't usually talk about. I was relatively healthy when it came to getting sick, most of my disability was joint pain and stiffness. I have lung damage due to having double pneumonia a lot in childhood but I was on an almost 3 year streak of not getting any lung related sicknesses. My asthma was at an all time low and i felt comfortable leaving the house and forgetting my inhaler.
until I caught covid in 2021. Ever since then I have been sick almost constantly. I am always out of breath and my anemia went from bad to worse. My mobility has gotten way worse and my pain level is always on the high end. I cannot leave my house without both a steroid inhaler and and my rescue inhaler in my bag. My migraines came back regularly after 4 years.
I was finally getting at my healthiest. Then I caught covid.
Long haul covid is very real, and it is devastating, here's me before and after I caught covid
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(The first one is a little awkward but I had to work with the pictures I have on my phone bc I didn't transfer anything from my old one)
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knitruneatrepeat · 1 year
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Coffee date Wednesday:
- Major major PTSD moments right now. Monday something big happened which triggered PTSD from an incident 3 years ago. Then today another major thing happened triggering my ever so frequent COVID PTSD moments….
- Have a lot of stress and anxiety over work changes. I am trying to survive but we are going through a reorganization and it’s very terrifying what could come down the pipeline.
- Been cranking it the new smoker and getting meal prep done like a pro. Still learning the balance of wood chips.
- Basically every day feels like the day before on repeat. Wake up, shower, makeup, drive to work, work, drive home, maybe dinner, bed. Seriously am just so drained.
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thoughtportal · 10 months
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a-h-87769877 · 2 years
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