#medical ableism

[spooniestrong]

This ABSOLUTELY works.

I have used this for many years. Definitely do it.

#spooniestrong #spoonie #disability #chronic illness #chronic pain #medical ableism #doctors

[smoov-criminal]

i just rbed a post about something similar but. i need my white disabled to folks to be more aware of the privileges they have when navigating the healthcare system. every bit of medical ableism one can experience can be made even worse by being a poc. some of us can't threaten to report a doctor to the ethics board, or refuse care from healthcare workers who aren't masking, without jeopardizing our access to care in general or even our physical safety. we are more likely to be seen as drug seeking, or marked as noncompliant, or experience medical abuse and neglect. that's not to say these things don't happen to white disabled people, but i just think it's important to recognize how dangerous receiving medical care can be for disabled poc specifically. please keep this in mind when giving advice on navigating healthcare.

#mj.txt #disabled #disabled poc #black history month #cripple punk #medical ableism #medical racism #medical abuse #lots of tags sorry

[accessories-not-included]

#disability advocacy #disabled people #wheelchair #ableism #disabilities #disability #cpunk #medical ableism #physically disabled #fibro #chronic illness #chronic disability #chronically ill #chronic pain

[hellyeahsickaf]

The way addicts and chronically ill people are dehumanized is so exhausting

The normalization of this shit in medical and casual settings is genuinely mind boggling. Addicts and disabled people go through so much bullshit. I've dealt with many fucked up doctors when I just needed help

I had a kidney infection, some months back. This is always extremely medically urgent, and I was likely only hours from sepsis. I went to the hospital reporting my pain to be a 9/10. 9 because my 10 was gallstones. I experienced severe malpractice at the hospital and the doctor reported exams that never occured and false information while making me wait with nothing more than tylenol to hold me over (didn't touch the pain) and bring my fever down but that's a whole other story

They did however, deny me the pain medication I needed until it was time to go home. I'm deathly allergic to NSAIDS, but that's something an addict might say so they witheld pain relief because they'd rather me suffer just in case I'm a different kind of sick. An entire night, maybe 6 hours in the ER and they couldn't give me anything, not a small dose of morphine or one norco even a few hours prior to take the edge off of the pain while I was curled up shaking and crying. Just in case I was an addict looking for my fix, and my suffering was just withdrawals and good acting. In that case maybe I deserved it and should be denied my humanity. God forbid in that case I'm so desperate to alleviate unbearable withdrawals that I spend all night in the ER crying. Not the first time I've experienced red tape just to get relief from excruciating pain

But whatever. As per protocol I was asked to follow up with my pcp. So a few days later I called to set an appointment, but I'd also run out of norco and desperate to relieve the pain I asked if I could be filled even enough for a few days, until the pain was bearable. I had difficulty walking, laying down, and I again, can't take most pain relievers. The receptionist was nice and understanding, actually got me in touch with the doctor because she wanted me to be able to get my refill. Probably heard the pain in my voice even. She believed me

She transfers me over to the doctor and I tell him I'd like a follow up and ask if he could fill my painkillers. I would've acceped a no from him, I just needed my follow up. He asked about my condition, I told him my diagnosis and how much pain I was in

And he laughed.

Got a real hoot out of it, like he had me all figured out. Like he caught me trying to cheat the system. I must be trying to get high or make some money with a few days worth of norco as i'm nearly in tears from the pain even while calling

He tells me through his laughter "I don't prescribe painkillers for 'kidney infections'" saying it with a mocking emphasis on those words, as if I'd said "stubbed toe". Follows with "Yeah haha, bye." and hangs up on me. No follow up like I called for. Needless to say I no longer have a pcp but truly if he thought I was an addict trying to take advantage of him he should have still treated me professionally. Maybe not cackled when I said my pain was excruciating for a start

I just don't understand why the hell so many doctors can be so apathetic to people's suffering. Addicts deserve better and so do disabled people- whether you think they're addicts or not. The assumption that we're lying, trying to trick them and are feigning pain to do it is disgusting, listening to your patients is so important. And if that were the case they could have some sympathy and ask themselves what it would take for someone to go those lengths, take such drastic measures and go through that trouble to obtain those substances.

Addiction is not a moral failing. Many disabled and chronically ill people unfortunately rely on medications that have addictive properties. About 80% of heroin addicts first misused prescription drugs. However only about 4-6% of those addicted to prescription drugs switch to things like heroin. And instead of help or compassion for people who just need help (addicts or not), they just figure we're one in the same and treat us like subhuman degenerates, leeches on society. And I think people need to change how they view addiction. Doctors need to change how they view addiction

#cfs #chronic pain #chronic fаtiguе ѕуndrоmе #chronic illness #fibromyalgia #disability #actually disabled #spoonie #me/cfs #cfs/me #ableism #ableism tw #medical ableism #addiction #ok to reblog #medical stuff #tw drugs

[neuroticboyfriend]

honestly you probably shouldn't go into the medical profession if you aren't prepared to treat patients with dignity and respect - even if your job exploits you, even if your bosses suck, even if you're exhausted.

yes, you are allowed to have feelings and be tired. but you have to be willing and able to either admit when you can't do something (and take the consequences), or put how you feel aside and do your job. for the sake of your patient.

you and your job may be harmed by the medical industrial complex's wrongness, but to your patients, you are part of the complex that is also gravely failing them. you have the power to be a force of goodwill and care, or an instrument of oppression.

that is what you're signing up for when you become a medical professional. don't like it? don't become a medical professional.

#softspoonie #medical industry #medical professionals #medical #medical system #medical ableism #medical abuse #medical trauma #disability advocacy #health #health advocacy #ableism #systemic ableism #systemic oppression #nurses #doctors #medical neglect #medblr #medical student #medical studies #medical malpractice

[flowercrowncrip]

I think for a lot of non disabled people, when they read stories about a someone mistreating a disabled person who relies on them, it seems so much easier for them to relate to the non disabled person than the disabled victim. It’s like they ask themselves what it would take for them to treat someone like that and stop there.

You see it when someone talks about their experiences with abuse/ negligence from a doctor and people immediately start talking about how hard it is to be a doctor right now.

Or when someone kills their disabled child and everyone talks about how impossible it must be to be your child’s carer and how understandable it is that they resorted to murder, or how the perpetrator must have acted out of “kindness”

I wish that non disabled people would also stop and ask “what would it be like for someone I rely on completely to treat me in that way” and extend some of that sympathy to the disabled people being mistreated

#disability #physical disability #neurodivergent #ableism #ableist filicide #medical ableism

[tieflingkisser]

Thousands of disabled people died after ‘covid treatment withheld’, inquiry to probe

Thousands of disabled people who died from Covid in the early weeks of the pandemic may have been denied intensive care treatment in NHS hospitals that could have saved them, campaigners and bereaved families believe. The Covid inquiry has been handed evidence from charities and bereaved family groups showing that Do Not Resuscitate notices (DNARs) were placed on the medical files of many people with Down’s Syndrome, autism and other learning disabilities who were otherwise healthy before contracting the virus. These notices, often placed without the patients’ understanding or consent, say charities, were due to those with learning disabilities being wrongly classed as “clinically frail” in the NHS in the initial weeks of the pandemic in March 2020. Lady Hallett’s inquiry is expected to investigate whether so-called “ward-based ceilings of care” – meaning a patient was kept on a general ward rather than admitted to ICU, even if their condition deteriorated – were applied arbitrarily to the disabled, as well as older patients, in a bid to ease pressure on the NHS. The evidence is likely to form a key part of Module 3 of the inquiry, which focuses on the healthcare response to the pandemic and is being held in public this autumn. The Department of Health and NHS England have long denied there were blanket protocols in place for DNARs for groups of people, and have said these policies should not be used by trusts.

[keep reading]

#covid #ableism #medical ableism #uk #news

[magnetothemagnificent]

So, a few years ago I started developing random, uncontrollable muscle jerks and spasms, and they've been getting increasingly more frequently. Usually they're small and unnoticeable, like a sudden jerk in the knee or hand, but sometimes they're more severe and disruptive, like the one time I had a muscle jerk in my arm while cracking eggs for breakfast and accidentally slammed the egg into my thigh and made a huge mess.

Anyway, last year I went to a neurologist (only because my uro-gynecologist referred me, to this day she's been the only doctor to take me seriously), and he gave me an MRI and an EEG. As part of the EEG, he triggered a photosensitive seizure. It was horribly painful and uncomfortable, and my mom, who was in the room with me for the support, saw it too. But afterwards, he said he didn't pick up any abnormal electric activities on the machine, and so I didn't have a seizure and he dismissed me and told me all my problems were psychological, and refused to run more tests.

So the other day I mentioned this to my uncle, who is a neurologist who actually has a neurological disorder, and he was like "oh yeah you did have a seizure, not all seizures are epileptic." Like? Nobody told me this?? I've been having seizures this whole time and no doctor ever told me that there's such a thing as non-epileptic seizures???

I obvious don't have a diagnosis yet but god I've been told I was crazy by so many doctors and to hear that I'm actually not y'know imagining my very real physical symptoms......

#actually disabled #chronic illness #non epileptic seizures #medical ableism #disabled #personal

[satansfavoritedyke]

Not to disability post on main or anything but I'm just about sick and fucking tired of so-called "medical professionals" who are supposedly "specialists" (i.e. rheumatologists, for example), thinking they can slap me with a myofascial pain syndrome/fibromyalgia/chronic fatigue/hypermobility diagnosis, tell me to stop eating gluten, and call that a done and dusted day on the job when those diagnoses don't even BEGIN to explain the majority of my symptoms.

What about the fact that I randomly run low-grade fevers with no evidence of other infections (flu/COVID/RSV), what about my positive ANA factor, what about my low igA levels, what about my chronic iron deficiency anemia, what about my MULTIPLE documented activated EBV infections that have damaged my spleen, what about the fact that I have no reflexes in my knees, I could literally keep fucking going.

I'm so fucking sorry that I'm a fat AFAB trans person with the kind of disabilities that land me in medical appointments multiple times a week, but a doctor who hasn't cracked a fucking textbook since 1997 does not know more about my condition than me, the person living with my symptoms 24/7. And quite frankly I'm not going to be jammed into a diagnosis like fibromyalgia which is the clinical equivalent of "fuck off and die" disorder and a classic excuse to just categorize and disregard patients with complex symptoms when doctors don't want to do their JOBS to figure out what's actually wrong. There is something wrong with my immune system and I need TREATMENT, not a convenient label to send me to my grave with. I refuse to be a docile "ideal patient" and I am not afraid to be a "doctor shopper" either, because what I think medical professionals forget is that Y'ALL work for ME and I CAN and WILL fire you if you're fucking useless.

DO. FUCKING. BETTER.

#cripplepunk #cripple punk #cripple problems #disabled vent #disability vent #disabled dyke #medical malpractice #medical maltreatment #ableism #medical ableism #medical fatphobia #medical rant #disabled liberation #immunocompromised #physically disabled #chronic illness #spoonie #you can call me al

[panicismydefaultstate]

Being disabled/having a chronic illness and having to go to the ER is the worst. The drs don’t believe you or think you are being overdramatic, drug seeking even, and will straight up say things to you that if an able bodied person encountered they would be outraged and appalled. But somehow awful treatment to chronic illness patients is so normalised and excused. People think we are some kind of burden on the healthcare system, which clearly means we should be okay with drs not believing us or refusing to help us every now and then because we already ask so much of them.

#i’m sick of this shit #mini rant #disability #chronic illness #chronic pain #i’m so done #my illnesses take everything from me #chronic fatigue #chronically ill #fibromyalgia #i hate being sick #dysautonomia #medical ableism #tired of this bs #medical gaslighting #i’m screaming into my pillow

[spooniestrong]

#spooniestrong #spoonie #disability #chronic illness #chronic pain #medical ableism #medical gaslighting

[smoov-criminal]

rare nurse W, at the er and the nurse taking my vitals actually asked to move my rollator and didn't touch it until i said ok. she told me exactly where she was moving it and moved it back as soon as she was done. in case you're wondering, that's how you handle having to move a mobility aid (compared to the doctor who just leaned on it while talking to me. don't do that shit)

#mj.txt #was a pleasant surprise #but tbh that should be the average experience not an outlier #disabled #cripple punk #cpunk #medical ableism #im ok btw! had a spinal tap this week and probably having a csf leak causing back and head pain

[accessories-not-included]

A person in a wheelchair waiting in front of elevator doors that read "Today is the day we take the stairs" in bold yellow and white letters. In the upper right-hand corner of the elevator doors are the hospital and medical symbols.

#wheelchair #disability #disability advocacy #disabled people #ableism #cpunk #disabilities #medical ableism #physically disabled #disabled #chronically ill #chronic disability #chronic illness #chronic pain

[hellyeahsickaf]

I get disability memes on my Pinterest feed but after getting one for ER Drs/nurses that I found concerning, I kept seeing more and more like it and I went down a rabbit hole. I know it's one of the most stressful jobs someone can have and I really appreciate the medical staff that have been kind to me. These things are definitely made by the types of people who haven't been.

I think it's important because memes are kind of a way to let off steam but they mean what they're saying. They're not just jokes but they're framed in a way that they can say it more comfortably. Sometimes they're just straight up admitting to crimes and malpractice. It's like when someone says something that crosses a line in a joking tone so that if you feel attacked they insist it's just a joke and you're taking it too seriously. But my life is constantly in the hands of these people and I've been mistreated time and time again by medical personnel

I'm gonna go through them because honestly I hate them and there are a lot of repeating themes

These are extremely common. The focus of the meme being that a whiny patient is asking for pain medication that they clearly don't need. Something commonly mentioned in these is disbelief that the patient has an allergy because it's common for someone trying to get drugs to claim they have an allergy.

Also the Confucius one is both ableist and racist so double whammy I guess!

I've dealt with people I know are silently assuming this of me. I'm allergic to NSAIDs- deathly allergic and at risk for asphyxiation or anaphylactic shock. Medical staff sometimes have this attitude of "we know when you're faking your pain" (no really I had one say this shit on my post about this) and that has traumatized me immeasurably because they'd rather me wait for 4+ hours in some of the worst pain of my life than risk the possibility of me being an awful scheming mustache twirling addict.

This category is just as common. "I don't like you so I'm going to drug you". That's more fucked up than they seem to think it is.

Then there's the category of "you're a whiny little bitch and I don't believe a word out of your mouth". Which contributes heavily to medical malpractice and abuse

Again these are doctors and nurses making these, people responsible for treating patients with care and dignity and respect. Especially if they want any in return

Aaaaand this one is just a crime. One that's happened to me actually- reporting examinations that never happened to get rid of me because I was such a nuisance (crying, hardly coherent, drenched in sweat, 9/10 pain on arrival)

And then there are the ones like "don't mess with me because i handle your treatment/meds 💕". Things like "the way you treat me is the deciding factor for how fast I'm going to get your painkillers 😊". Which to me is just... evil?

I've never in my life mistreated medical staff but people in a lot of pain get mean sometimes. It's a survival instinct actually- for aggression to accompany pain or panic. Not that it's ever okay but it isn't personal

These are just a few examples really, there are so fucking many of these with this awful, cruel, cynical tone. There are some funny ones that aren't mean or degrading towards patients but so many of them are and in nearly every one I see a mean spirited healthcare worker that I've encountered at some point who damaged me in ways I will never psychologically recover from

#chronic illness #chronic pain #disability #actually disabled #cfs #chronic fаtiguе ѕуndrоmе #spoonie #fibromyalgia #me/cfs #cfs/me #cripplepunk #cpunk #long covid #medical ableism #ableism

[eldrai]

Love looking up IBS because it's just like may cause [symptom doctors never mentioned was related] [symptom doctors never mentioned was related] [symptom doctors never mentioned was related] [symptom doctors never mentioned was related] and abdominal pain!

Like wow. Thanks. Glad I spent so much time as a literal child worrying there was something seriously wrong with me because I had other symptoms.

Anyway, here's a few symptoms in case it is ever useful to someone:

The ones you probably know

Constipation

Diarrhoea (including mucus)

Bloating

Abdominal pain/cramping

The ones you might know

Bloating

Nausea

Indigestion

The ones you probably don't

Headaches

Fatigue

Dysmenorrhoea (heavy periods)

Pelvic pain

Back pain

Interstitial cystitis + other bladder problems

Sleep disturbances

Joint pain

#ibs #chronic illness #chronic pain #disability #ableism #medical ableism #irritable bowel syndrome #gi disorders #gastrointestinal disorders #2023 is the year i say fuck being ashamed of it #it is just a medical condition #and a shitty (pun not intended) one a lot of people don't know much about

[nightmaretour]

Why is it that paramedics and other emergency staff are really nice and caring and friendly and actually worry about you, but when you actually get to hospital the nurses are all that mean girl from school, and the doctors and specialists are like "Hmm, looks like you've got 'I don't care' disorder and the cure is to stop making me do my job"

#Im not in hospital don't worry I just got reminded of every hospital experience I've had ever #actually disabled #chronically ill #chronic illness #medical ableism #1k