#methotrexate

[chronicillnesshumor]

Meth

I found out this week that my daughter told everyone at school that I'm on Meth because that's what I call my Methotrexate. 🤣

#autoimmune #autoimmunedisorder #autoimmunedisease #methotrexate #chronicillness

#autoimmune #autoimmunedisorder #autoimmunedisease #methotrexate #chronicillness

[ineffectualdemon]

Word of advice

If you take a medication like methotrexate which upsets your digestion and you're also lactose intolerant DO NOT eat cheese on the same day you take your medication

#suffering rn #chronic illness #rheumatoid arthritis #methotrexate #lactose intolerance

[mandana-the-service-pup]

Service dogs are not exempt from local dog registration in the United States so we went to our City Hall to pay our annual $10 fee. They were closed for renovations so we had to leave without dropping it off.

We were already prepped for public access training so I took her grocery shopping instead. It was my first time driving since starting Methotrexate and I felt even more dizzy & nauseous than I usually do while driving. There are some driving warnings on the Rx so I’m thinking it’s related. I will have to be extra cautious until I figure out the details.

My main focus was public access training so shopping was slow. It amazes me how she always seems to be improving even when we have to take long breaks from public access. A couple halfhearted sniffing mistakes that were easily redirected and that was it. Her heeling is marvelous imo. She was noticeably slower on her position changes but I know it’s because I swapped out her old shoes for new ones that still need to be broken in. I like the Ruffwear Grip Trex for quick outings but they can be tough to break-in especially in the cold.

She was being super good at ignoring people which I like to reward with occasional breaks to say hi to polite strangers. She prefers kids & elderly people so when I noticed a blind preteen with her grandmother who were talking kindly about us I offered to let her say hi. The child was especially excited to meet Mandana because she is working on getting her own service dog. I described Mandana & her gear and let her feel her ears, head, harness, badge and shoes. I answered questions about training & tasks. She wanted to know what tasks Mandana knows that could help a blind person so I told her about how she’s trained to locate specific objects by name and bring them to me. She was excited to show me her Disney stickers so I gave her one of Mandana’s custom stickers and showed her how she could feel the ears and tail that are cut out. Mandana really enjoyed the attention and we all had a fun conversation.

#belgian malinois #3 years #service dog in training #owner training #public access training #public access #medical alert service dog #positive reinforcement #ruffwear #service dogblr #dogblr #disability awareness #disabled community #blind community #alt text #methotrexate

[dontmeantobepoliticalbut]

The June 24, 2022 Dobbs v. Jackson landmark decision by the United States Supreme Court held that the Constitution of the United States does not confer the right to abortion. This decision returned to individual states the power to regulate any aspect of abortion not protected by federal law. Since this ruling, multiple states have limited or completely banned abortion care for people who are pregnant. In at least nine states, abortion is blocked with no exceptions for rape or incest.

Multiple states have banned abortion after 18, 15, or even 6 weeks gestation. These time restrictions make it impossible for patients to use medical information from ultrasounds and/or genetic testing, available later in pregnancy, to determine if a fetus has an anomaly and/or a life-threatening or lethal condition.

These abortion restrictions and laws permitting any citizen to sue anyone “aiding or abetting” an illegal abortion for up to $10,000 has created uncertainty and fear among health care providers trying to provide medical care to pregnant patients experiencing miscarriage, tubal or ectopic pregnancy (when the embryo implants in the fallopian tube, where it cannot become a full term pregnancy; can be lethal to the mother if not treated promptly and correctly), or those who need prenatal genetic counseling. Clinicians are unclear where the lines stand between providing care and committing a felony that could equal jail time, and this means that pregnant people aren’t getting the appropriate and timely care they need, even outside of a healthy, viable pregnancy.

But did you know that the Dobbs decision has also prevented non-pregnant women from receiving the medications they need to treat lupus, rheumatoid arthritis, and other conditions treated with medications like methotrexate?

Chris Stallman, MLS, MS, is a certified genetic counselor, an expert in medication impact during pregnancy, and a Clinical Instructor of Pharmacy Practice-Science at the University of Arizona R. Ken Coit College of Pharmacy. “Methotrexate is a medication used to treat many conditions, including lupus, rheumatoid arthritis, Crohn’s disease, and other autoimmune diseases. If a person who is pregnant uses methotrexate, it could increase the chance of miscarriage, birth defects, and other issues in pregnancy or after birth.”

For this reason, girls and women of child-bearing age who are taking methotrexate as treatment for their autoimmune or other diseases are not able to take methotrexate – even if they are not pregnant.

This critical problem is not hypothetical – treatment with methotrexate has already been withheld from female, non-pregnant patients with serious medical conditions in multiple states.

A 48-year-old woman in Tellico Plains, TN received an automated call from her CVS Pharmacy in July 2022 indicating that her prescription for methotrexate wouldn’t be refilled. This patient, who has inflammatory arthritis and a neuromuscular disease called myasthenia gravis, stated that methotrexate allowed her to resume simple, yet previously painful tasks like putting on her pants and rolling over in bed.

In June 2022, not 24-hours after the Dobbs ruling, a patient in Maryland who has Crohn’s disease received a call from her insurance company indicating that methotrexate, used to treat the chronic inflammation and pain associated with this condition, would no longer be available to her.

Within a week of the Dobbs ruling, a woman in Virginia who has Lupus received a letter from her doctor’s office indicating that it was pausing all prescriptions and refills of methotrexate because of the Supreme Court decision on abortion. Before taking methotrexate she experienced flares of Lupus so severe that she had trouble walking and needed to use a shower chair to wash.

Another woman from Missouri had been taking methotrexate to treat rheumatoid arthritis. When she went to the pharmacy to pick up her refill she learned from the pharmacist that they needed a specific direction from her doctor that the medication would not be used for an abortion. The pharmacy, Walgreens, confirmed with this customer that they do not require the same procedure from their male clients.

A 14-year old girl in Arizona was denied a refill of methotrexate to treat her debilitating rheumatoid arthritis and osteoporosis. Her angry physician tweeted that her patient was denied this critical medication because she was female. The withholding of life-saving or -altering medications from the women who need them has forced some of them to consider surgical sterilization.

Could denying women of childbearing age (who may or may not be sexually active, fertile, heterosexual, or pregnant) methotrexate be just the beginning of problems for women who need prescription or over-the-counter medications? Stallman says, “This certainly could lead to more medication denials – and not just for people who can get pregnant. If my husband or children need medication that could increase risks to a pregnancy, would they be denied the medication simply because they live with a person who could get pregnant? Will health care providers have to stop handling or dispensing such medications if they or their partner could get pregnant? And before saying ‘that will never happen’, remember that is what people said about the overturning of Dobbs. We don’t know how far this will go.”

Let’s take this thought experiment a step further. Is it possible that young girls will have to present a letter from their pediatricians indicating whether they’ve started having periods before they can receive the medications they need? Will adult women have to present written proof of tubal ligation, menopause, or infertility from their physicians before filling their life-saving medications? Will other medications that can affect the health of a fetus, even the highly regulated acne medication Accutane, require such additional proof? Could pharmacies use the data they have on prior purchases, like tampons and lubricant, to determine if a woman may be of child-bearing age and/or is sexually active?

The Dobbs decision is just the beginning of our government interfering with womens’ bodies, their personal choices, and their medical care. This decision is already impacting health care outside of pregnancy and could force women and their family members to disclose personal information about their fertility, sexuality, sexual and medical history with pharmacists, medical systems, the government, and the databases that all of them use. Our federal government must act swiftly to ensure that this decision doesn’t lead to further government overreach, discrimination, interference in proper medical care, and tragedy.

#us politics #news #forbes #2023 #dobbs v. jackson women’s health organization #us supreme court #abortions #abortion bans #abortion is a human right #abortion is better than negligence #reproductive health #reproductive rights #prenatal genetic counseling #tubal ligation #miscarriages #ectopic pregnancies #lupus #rheumatoid arthritis #methotrexate #Chris Stallman #Crohn’s disease #myasthenia gravis #osteoporosis #surgical sterilization #menopause #infertility #Accutane

[geezerwench]

Mortellus said they live in North Carolina near the state line, where abortion is still legal. Her doctor is in South Carolina, where abortion is now illegal. Healthcare providers there can deny service because they *feel* like it. She said she will be looking for a new doctor.

If you are female and have an immunodeficiency disease, you can be denied drugs that help you live a more normal life and help you function because you MiGhT get pregnant.

One of my children has an immunodeficiency disease and takes some powerful medicines. I thank all the deities she had a hysterectomy.

My husband has Rheumatoid, and takes some wicked shit, too, but he doesn't have to worry about it. But he's an old man.

Those drugs help him, and help thousands of other people, men and women, of all ages, live a better quality of life than they would have without them. Before he saw the Rheumatologist, he barely even moved because of the pain he was in. He couldn't lie down in bed because it hurt so bad. Since he's been on all these drugs, methotrexate being one of them, things are not back to the way they used to be before RA, but they are better. He can sleep in bed. He can function. He can drive the car. He can do some puttering around the house.

I cannot imagine what's gong to happen to the women with RA who have their medicine taken away from them because they are women.

And that's just Rheumatoid Arthritis. How many other immunodeficiency diseases / auto immune disorders are there? How many people have them?

It is my sincere wish and hope that ALL the women RA patients who applauded the striking down of Roe v Wade are also denied the drugs that help them function and lead any sort of "normal" life. May they feel the pain these drugs used to control for them. May they suffer.

#immunodeficiency diseases #auto immune #auto immune disorder #methotrexate #rheumatoid arthritis #teratogenic #teratogenic risks #healthcare #autoimmune disease #autoimmune

[theivorybilledwoodpecker]

"A June 24 tweet from a methotrexate user whose profile lists Michigan as his location: 'Just got off a video visit with [child’s] rheumatologist. Because of today’s ruling, his department is taking all their female patients off any meds with teratogenic risks, because such medicines might result in the miscarriage of any unplanned pregnancies they might incur.'"

Anyone who is antiabortion at this point is a sadist. To maintain this view means at the very least that

You think children should be forced to give birth.

You think rape victims should be forced to give birth.

You think people whose fetus will not survive should be forced to give birth.

You think people denied medical care are just casualties.

Even if you say "I'm prolife, and I don't believe those things," you support people who do and who make the laws that make these things happen. You are not prolife.

#rheumatoid arthritis #Methotrexate #Signal boost #Boost the signal #Abortion #Roe v. Wade

[femmerose98]

I’m not sure what to do at this point anymore. Ever since we moved into this apartment, literally the first night we moved in, we get woken up by three kids stomping, screaming, and jumping in the apartment above. It’s been over half a year now (since February it’s now nearly November), and it’s still the same shit from 8 pm until 10 am, stomping and screaming, sometimes for half an hour or an hour after 11 pm. Seems like they do nothing to take their kids outside, most weekends and weekdays they are inside all hours, and they act like it’s a trampoline or gym in a apartment building. Regularly waking us up anytime from 10 pm onwards til 12 am, 3 am, 6 am, and 8 am regularly. Earplugs do nothing, nor does fans or white noise on louder volumes. I have an app that tracks my sleep because I’m chronically ill and take chemo meds every week, and it tracks decibels going over 100 nearly every night from their kids stomping. I know because I look at my clock at 2 am, etc, when they stomp, and my app records 80-100+ decibel at that time. Occasionally my partner uses a blender for smoothies in the morning and even our blender in our own apartment is not as loud as their kids. What do I do?? They rarely leave the apartment so I can’t even talk to them in person which I would prefer to to. Our windows shake, our bed shakes, our lights in our apartment go super bright, then dim and flashes like a strobe (I’m sensitive to light flashing and can actually faint), our doors unlock from being closed from the force of their stomping, jumping and running. I feel like talking to them will only make it worse but when we talked to our apartment place they said just to call the police which isn’t fucking helpful. I left one note on their door when they were vacuuming at 11:30 at night like a month or two ago. I don’t know what to do but I’m sick of not getting sleep. I get like 6 hours of sleep each night with frickening chemo meds.

#what do i do #disabled #disability #arthritis #chemotherapy #apartment #apartment issues #not aita #aita #methotrexate #Humira #psoriatic arthritis #noisy neighbors

[spooniestrong]

Guys, they’re threatening to restrict methotrexate access.

Because it can cause spontaneous abortion.

This madness has to stop.

Autoimmune disease patients have a hard enough time getting treatment, & they’re trying to take more of our meds away?! We already suffer bc of the ridiculous “opioid epidemic”.

#spooniestrong #spoonie #the war on women #the war on the disabled #methotrexate

[clockcower]

I was scared of immunosuppressants and anything to do with opioid receptors and like, ive been scare shitless of shower products for so long but. I finally caved and risked it for the biscuit with baby conditioner.

And I'm actually holding back tears I had NO reaction besides a little tingle (which was probably anxiety and foreign texture). My hair is soft, I smell nice, and I have 0 burning!!!!! I've not been able to use conditioner for well over a year and before that only sparingly for years, suffering burning so my hair wouldn't be as brittle.

I don't think of myself as very deprived because I'm used to my limitations but being able to use one step, in shower conditioner that smells nice is just. I'm actually crying now goat DAMN

#text #chronic illness #autoimmine disease #mast cell disease #mystery undiagnosed diseases #low dose naltrexone #methotrexate #im not cured or normal person better but i am so much better than where i was #i can smell good and its euphoric

[pscottm]

“14 year old Emma Thompson has debilitating rheumatoid arthritis and osteoporosis which has kept her in and out of the hospital for most of her life. She relies on methotrexate to help tame the effects of the disease.”

“But methotrexate can also be used to end ectopic pregnancies, to induce an abortion and that’s where the problem arises.”

#arizona #abortion #jesus suffering fuck #methotrexate

[ineffectualdemon]

Did you know that if you have a vagina and take methotrexate, a medication used for including rheumatoid arthritis, that it can cause reoccurant thrush?

Meaning yeast infections that keep coming back after being treated?

Do you know how to treat reoccurant thrush?

Pessaries

Medication shoved up your vagina

Every day

FOR SEVEN DAYS

And then once a week

FOR 3 TO 6 MONTHS

CAUSE I SURE AS FUCK DIDN'T

NO ONE THOUGHT TO INFORM ME OF THAT WHEN I SIGNED UP FOR THIS MEDICATION

#tmi #gynecology #gynecological health #methotrexate #rheumatoid arthritis #PSA #yeast infection

[mandana-the-service-pup]

It’s been three days since my second Methotrexate injection and for the first time in way too long I was able to go without ibuprofen. Still feeling sore but I was averaging a 7-7.5 on a 1-10 scale and now I’m sitting at a cozy 6. Being able to come down a full step on my pain scale after only two doses is amazing and I’m sooo looking forward to 2024.

(She’s not missing any teeth. Her two front ones are just super tiny! I had to check 😅)

#health update #good health day #methotrexate #disability blog #inflammatory polyarthritis #postural orthostatic tachycardia syndrome #gastroparesis #ehlers danlos syndrome #hashimoto thyroiditis #rheumatologist #new year #2024

[metrixnos]

How do you pronounce your username? I keep pronouncing it methotrexate but I Know that's not at all right (my apologies)

Im curious how other people say it now that you mentioned this lmao, but the closest way i can explain it is like this:

Meh-trix-nos

If it helps any with pronunciation, a name people on the internet call me is ‘Met’ :) !!

#my asks #methotrexate #like?? as in?? the medicine? #thats so interesting actually #anyways! #hope that helped (?) a little anon :) !! #(and dw anon you’re good)

[duerede]

💌Happy ❤️💉Methotrexate 💊Tuesday❤️ To All Who Observe💌💞💞💞💞

#methotrexate #tuesday

[moonshinemagpie]

I don't know if anyone needs this, but: If you're experiencing nausea or other gastro symptoms on methotrexate and you already take folic acid, buy an OTC bottle of folic acid and take even more.

I went from 2.5 mg/week of folic acid to 7 mg and now 10 mg, and I'm amazed at how it has completely eliminated the constant nausea I've had for two years now—even though my blood test results have always shown that my folic acid levels are normal. The more I take the better I feel.

#rheumatoid arthritis #methotrexate #autoimmune disease #sjogren's syndrome #uveitis #spoonie #chronic illness #folic acid #ankylosing spondylitis #the benefits of a new rheumatologist

[reserwrekt]

Dr: this medication is toxic, but you need to take it to live.

Dr: you might find you get super dizzy, sick, throw up, ect but eventually you'll start to feel better.

Dr: well hopefully.

Dr: I'll see ya in 3 months c:

#spoonie #chemo #methotrexate #disabled #text #behcets disease #behcet's disease #colchicine #embrel #prednisone #how would you rate your visit out of ten