Aura migraines are such bastards. I don’t get auras too often as part of my warning prodrome, but when I do it’s a toss up if the migraine is going to be silent (migraine without pain) or if I’m going to be in excruciating agony in a couple of hours.
Either way I went blind for thirty minutes as my entire field of vision became a ragged spiral of oscillating rainbows and now I’m just lying here in the dark, warily waiting to see if the pain hits.
Holly Mop is clinging to me like a koala which doesn’t bode well.
God fucking dammit I had shit to do tomorrow.
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Hi, I can’t sleep because of pain currently and I think if someone removed each of my muscles and did something to loosen them up that would be greeeeaaaat
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// serious post
here’s the thing i don’t get: people tell you to communicate your feelings, and then react negatively when you feel something they don’t think you should.
i’m ill in six different directions: my feelings are mostly negative and generally illogical. i get upset for reasons that i know don’t matter in the bigger scheme of things. but i can’t express that anger or hurt, because then people think that i am selfish, and entitled, and a bad friend. on the other hand, though, i’m also bad at hiding my feelings, and saying you’re okay when you clearly aren’t is also rude. so it’s just a constant struggle between “how much can i say to make this person feel that i’m answering truthfully, without them deciding i’m a selfish asshole.”
people tell me that you can’t rationalize away your emotions, and then react with disgust when i can’t do that for “the things that matter.” i’m upset. i know i shouldn’t be, i’m upset that i’m upset, but you sitting there judging me isn’t exactly going to help the situation. i know that whatever’s going on with my friends is more important than how it affects me. but then what does selflessness look like? is it not being upset in the first place, or is it just hiding your expression of your hurt? am i incapable of being a good friend because i can’t keep myself from feeling things i shouldn’t?
i just don’t get people sometimes. it’s like everyone has a rulebook for what’s allowed, and they just forgot to give me a copy. i get told communicate, communicate, communicate, over and over, and everyone forgets to mention what i’m meant to be conveying. because sometimes it really seems that what they want isn’t the truth.
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im gonna go take a nap and you can have whatever this is
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I was supposed to be exceptional and I can't even hold down a job.
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~ Headdache ~
A personal illustration featuring my OC Myliah. With things that have been happening recently I wanted to draw something more focused on myself.
Hope you like this illustration ♥
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sometimes i wonder if i’ll ever come to terms with being disabled. i guess i’m still holding out hope that i can get better, at least for now. but it’s hard when you’re literally just standing there, holding a camera, and your hands are shaking and your head is swimming and you feel like if you don’t sit down right now you’re going to die. it’s really hard when i eat a regular meal and have weird coughing fits after that always bring me to the verge of throwing up. it’s so fucking hard when you’re just sitting down and you’re out of breath and you have a migraine from moving around just a little too much. and it’s so fucking frustrating because it wasn’t always like this. it’s only been a year since i’ve shown symptoms of dysautonomia and it’s been two since i got my worst case of covid. i’m so fucking sick of living like this. i want to go back.
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aaaugh my pain is so bad with this weather that even an old surgery site from literally YEARS AGO is hurting again???
like the whole area outside and inside where the work was done hurts, does this happen to anyone else or is there something wrong and maybe it’s not the weather????? :(((
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Wow the medical field has come so far in the treatment of migraines 😀
(I say as I'm lying in bed for the 9th day with no vision, light and sound physically hurt, and one side of my face is in complete excruciating pain)
Some things about me (context)
I've had a migraine for 2 years and I've tried and failed all the things the doctors have wanted me to and so now I'm just here with a constant migraine for an indefinite amount of time with no pain relief (so I'm a little aggravated at the medical community at, well, for a lack of better words, failing me.) Thank you for coming to my Ted Talk 😌
-Jamie (Joe/Noah)
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currently feeling like I’m caught in the middle of a three-way battle between my finals season workload, my personal expectations for myself and desire to make art that I’m genuinely proud of, and the physical limitations of my body which is still in spoon debt from being sick for like three weeks and then spending spring break doing makeup work. I’ve been feeling like this a lot in the last several weeks and every time I’ve managed to find a burst of energy or the willingness to cut some corners and rest or some other way to compromise, but god i am so ready to stop having to deal with all of this at once
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hi glitter bombs if you're reading this and your mental health did a cha cha slide like mine today know that you are not alone and i love you so much ♡
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Sometimes I think “wow I really miss being able to do XYZ thing” and then I start thinking about everything else I can’t do/have to be careful if I do now. I’ve obviously had these conditions for years longer than I even knew they were a thing that existed but they’ve all gotten so much worse as I’ve come into my early twenties. I already didn’t really lead a “normal” life beforehand but now that feels completely out of reach. I get so mad sometimes, if I think about it for too long. It feels like I can’t have a fun, carefree experience at any point in my life. Usually it doesn’t bother me because I’m not even naturally a carefree person but not even really having the option… It just makes me wanna have a fit. But what does that help? So I just shove it down and try to move on and enjoy the things I can still do.
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I always feel bad because I feel like people think I'm lying about my constant headaches and migraines or they think it's an excuse to not hang out with them, but it's not. And they really do stop me from doing what I want or need do. Would I like to go to a museum for 5+ hours? YES. Can my headache go away for a half hour? NO it apparently cannot. Do I need a shower? YES. Can I get out of bed to take one? NO, because the light and noise makes my head pound. I've taken so much medication the past eight years, I have a fucking ulcer in my stomach.
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Aw geez, Depression Hell has absolutely chewed through my ability to write for more than 2 years and counting, but the reviews I've gotten since I began posting Your Head Will Lie in Dust have been reminding me of why I write fanfiction at all: wrecking absolute havoc on the mindscapes of total strangers I will never meet and at best will exchange a truly delightful comment thread or two with
Thank you all for every view and kudos and bookmark and comment and everything else
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Knowing deep down that you aren’t and most likely will never be anyone’s first choice when the people you love mean so much to you is devastating. Finding out that the people you hold closest call and text each-other all the time but not you? That makes me want to shatter into a thousand pieces. I feel as if I will never be truly *special* to someone in the ways I’ve seen the people around me be special to each-other. I’m the guy with the camera who can take nice pictures of the group. Never be in them. I’ll invite people over. But never be asked to hang out otherwise.
I don’t know if this is just me struggling with chronic illness related isolation or not but god damn it’s tearing me up inside today.
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i always forget i have Healthcare System Anxiety until i have to interact with The Healthcare System and immediately just start screaming internally for days
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