#need a caregiver | Explore Tumblr Posts and Blogs

white-fledermaus4 · 6 months

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Sag mir, wo geht man hin wenn man nirgends zuhause ist?

Wohin flieht man, wenn man sich nirgends mehr so geborgen oder frei fühlt?

Was tut man, wenn man nicht mehr kann und trotzdem muss?

Wenn man nur noch am verzweifeln ist?

021123

#verzweifelt #where is my safe place #take care of me #need a caregiver #einsam #angst #gedankenkotze #ich kann nicht mehr #hilfe #not of this world #wo ist mein zuhause

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darlingvanii · 9 months

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꒰ა VESPER ໒꒱

ves for short ᵔᴗᵔ ⭑ he / xe ・🪽 ・

↦︎ AGERE , BOYRE , SOME PETRE

.ᐟ only sfw !! weirdos will b blocked .ᐟ

\(^ヮ^)/~~~ tkn ,, poly ,, lookin 4 cg ^_^

#age regression #looking for a caregiver #need a caregiver #agere little #agere blog #agere post #agere boy #boy regressor #boyre #boy regression #trans agere #agerespace

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skeetedwards · 1 year

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#BigDaddy #bwc bull #need a caregiver

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puppyboylove · 9 months

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i really need a caregiver:( i want someone to take care of me when im regressed it’s so hard on my own

#age regressor #agere community #safe agere #agere little #age re safe space #age regression #age re blog #need a caregiver

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sleepyriot999 · 1 year

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Hiiii this is my little space blog! Here's a lil intro

💗Dollie

💗 Unlabeled

💗He/they/she, it/its, candy/candyself

💗13

💗1-6

💗Lil goofball, bunny, little baby,little one

💗movies,stuffies,dolls,Disney,cuddles,the park

💗 Meanies, liars

💗 Whatever timezone az is

💗I'm a little slow and sensitive and I absolutely love cuddles I have a typing quirk: hez not nice zhez mean. (I replace s with z) and I honestly struggle to not use this outside of little space

#agere little #cute #need a caregiver #kawaii #pastel #glitter

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emiislilsecretshhhh · 8 months

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*sighs n thinks about the meanest scariest person having a soft spot for me n bein a good caregiver*

#okay you cant convince me most mean people wouldnt jus be so amazing at bein a cg #need a caregiver #maybeee #thats kinda scary tho #oh welll #safe agere #agere blog #agere community #sfw agere #age regressor #age regression #age dreaming #sfw regression

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n0oaa · 1 year

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Very bad day today. Drinking from my baba tonite n using my paci to feel better n fall asleep :((( wish I had a mommi or daddy to hold me n say it’s all ok 💔

#noa babbles #vent #big feelings #sfw agere #need a caregiver #caregiver sfw #jus wanna b held

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chronicallycouchbound · 8 months

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I feel like people often don’t talk about the experiences of disabled people who have caretakers because so much of the conversation is about us—not including us.

I receive in home care for 30 hours a week (+ 4 hours/week for respite). This is paid for by Medicaid (state insurance). Outside of paid hours, my primary caretakers care for me unpaid and assist me most of the time. I’m very rarely left alone due to my high support needs. Often, when I am left alone, I am completely bedridden or at minimum housebound. I have frequent emergency life threatening health problems, falls, and serious injuries even with support in place, and these things significantly increase when I’m on my own.

I’m extremely lucky that my paid caretakers are my partner, my sister (the only family member I have regular contact with, I’m estranged from the rest of my immediate family and most of my extended family) and my best friend.

I used to have agency staffing which was horrible for me and borderline traumatic. At several points, before doing the self directed care option (which allows me to choose my own staff, hire and train them myself and dictate hours for them), I opted to not have any staffing. I was regularly in the emergency room. I can’t drive, so I was having to walk and if I was lucky enough to be able to take the bus on occasion or get a ride from a Facebook acquaintance, they were few and far in between. I don’t have family support, and even my sister who is supportive wasn’t living in the state at the time and doesn’t have a car most of the time.

And before I could even choose which staffing option, even though medically it had been deemed essential for me to have in home care, even though my insurance covered it, I had to wait several years (I was 18 when I was approved) until I was 21 to qualify to start. The reason why: I was legally an “adult disabled child” because of my high support needs (which is funny because I STILL don’t have SSI at age 24) and thus legally unable to consent to my own care plan. I needed a blood relative to consent, and that same blood relative (who had to have proof of such!) couldn’t care for me. At the time, my sister was the only person who could’ve been my caregiver and also she is the only verifiable blood relative I have contact with for safety reasons, and my only relative on this side of the USA.

The first business day after my 21st birthday I immediately got things set up to get in home care.

This is out of date, I get assistance with more than just these highlighted ADL (activities of daily living) tasks now.

In short: my day-to-day life is entirely dependent on others.

And there’s power imbalances that exist between me and my caregivers, even with my current caregivers being amazing and anti-ableist. They will always exist. We talk about the power dynamics of me being dependent on them for my survival, and how heavy that weight can be for each of us.

Having caregivers often means that accessibility is extra difficult— I’ve been told straight up multiple times that I can’t have assistance from my caregivers to help me change in a changing room when we’re out shopping. That they can’t go into the bathroom with me, that they can’t help me get un/dressed during appointments, that they can’t come into spaces with me.

I’ve been denied access to psychiatric care because I can’t do my daily living tasks (ADLs- the highlighted items) independently. And when I’m in a hospital or emergency room, I can’t have my in home workers be paid to care for me, there’s an expectation that the nursing staff at the hospital will do it. Even though my caregivers were specifically trained to learn my body and needs for weeks and have been working with me for years. I have severe cPTSD and showering in front of a stranger is something I cannot do. I would rather fall or faint or get injured or just not shower than deal with that. But I’m expected to just let anyone have access to my body just because I’m physically disabled and need support.

When I faint/fall/get injured/have life threatening health issues arise while I’m not clothed, or when I’m otherwise vulnerable, I’m supposed to let strangers just touch me however they want to. I have to show them my chest (for my cardiac care) and let them poke and examine me. I can’t object without losing access to vital care.

I have agency. I have rights. I have autonomy. I deserve to be able to exercise these things.

#chronically couchbound #disability #disabled #disabled pride #cripple punk #cripplepunk #disability pride #high support needs #ableism #professional caregiver #activities of daily living #ADL #medicaid #healthcare #in home care #home care #home care aids #nothing about us without us

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niyana-the-ambiguous-mobian · 1 year

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I don't think this was a intentional detail, but seeing these little moments where Luigi is making sure that Mario is eating something just warms my heart, like at the beginning when he brings him the dinner to their room after he didn’t eat,

Or at the very end when he's bringing him some coffee when they both wake up in the morning,

Hmm, kinda makes me wonder where he might have picked that up from....

Basically, M&L's mama had influence on her boys, and it shows big time and I love it so much.

#loving these little family moments shown throughout the movie #once you see it you can see the whole history behind the idea of him being like this all the time #Mario is more of the protector of the bros but Luigi is more of a caregiver of sorts #cause sometimes protectors need someone to care for them also #mario and luigi #movie mario #movie luigi #mario movie spoilers #mario movie 2023 #the super mario bros movie

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inkskinned · 1 year

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this is sort of pathetic, but when you were younger, you were sort of puzzled by the cartoon representations of fathers: how a kid would be outside with a mitt, waiting to play catch.

it's not that your father never played catch with you, but you also didn't like when he did. something about a hard ball coming quickly towards your face doesn't seem exciting. not that you'd ever say you don't trust him. you trust him, right?

it's not like he never tried to teach you anything. or never tried to parent. on rare days, a strange person would walk in your father's skin. bright, happy, magnificent. this version of your father was so cheerful and charismatic that you would do anything to keep him. and this is the version of your father that would laugh and gently coax you try again. this is the version of your father that would break down the small elements of a problem and point them out so you have an easier time with them.

as a kid, those days happened more often. but somewhere around 11, you started being too much of a person, and he was often cross about it. when he'd try to sit you down to learn something, you spent the whole time with your shoulders around your ears, nervous, uncertain. terrified because you didn't immediately understand how to navigate something. worried you will run out of his goodwill and then you will have the Other Father back, and you will have ruined a good day for your entire family. something about you being visibly afraid - it just made him angry. he would accuse you of not wanting to learn and storm away.

on tv, it's not like there's a lot of versions of men-who-are-mostly-fathers. they can be good dads, but usually their stories are not told in the household. so it's normal that your father is there, but he's never around. you know he was in the house, somewhere, it's just not that you guys ever... "hung out". he just seemed to get kind of bored of you, annoyed you weren't made in his perfect image. frustrated with how much energy it took to raise a kid. over time, you kind of adopt a bittersweet band around your throat - he knows nothing about me. he says at least i never abandoned my family.

and it's technically - technically - true. he was there for you. sometimes he even made an effort and made it to the big moments; the graduations and the dance recitals. he grins and tells everyone that he taught you. it almost erases the days in between, where he complains because you need a ride to school. the weeks that go by where he doesn't actually ever speak to you. the times you say i am struggling and he says figure it out on your own. i can't help you.

and that's fine! that's all fine. you can call him if you are having a problem with your car. or if you need a ride to the hospital. he loves playing hero, he just doesn't like the actual work that comes with being a father. and you've kind of made your peace with that; because you had to, because you don't want to live your life like he does; the whole world at a managed distance, a little rotating and controlled orb he can witness and take credit for but never truly love.

as an adult, you are rewatching some dumb cartoon - and again, the child standing in the rain, with a mitt, waiting for their father to come play catch. as an adult, there's this strange creeping dread - this little thing? this little thing, and their dad can't even show up for that? oh god, holyshit, it's not about the mitt, is it. oh god, holyshit, your father spent most of your life leaving you hanging.

#spilled ink #writeblr #:) lol . anybody notice how i write about dads in second person exclusively #me: haha silly cartoon #also me: ): this child is not getting what they need #also btw this is about a father but it might apply to any parent or caregiver #there's a really weird space of like #''this person was technically around me but either ignored me or was actively harmful to me''#and like u learn this very strange ritual of like... this person is my parent/caregiver on a technicality #that you almost spend all ur time with them like... tiptoeing and acting as THEIR parent so u don't upset them.#like you're 17 and ur mom is suddenly hit by a wave of wanting to talk to you so she's like :) lets make breakfast together :) and ur like #uhhhhhh okay?? bc you feel like this is absolutely going to go wrong and is why u usually make breakfast alone #and she starts being like: THIS is called a TEASPOON ... & u know all this stuff but you also know to just be very quiet #bc if you say like ''mom ive been making this breakfast every day since i was 13'' she would FREAK OUT and be like #DONT ACT LIKE I NEVER DO ANYTHING FOR YOU DONT ACT LIKE I DONT CARE ABOUT YOU. FUCKING DISRESPECTFUL .#so u have to smile like ur a preschool teacher and be like. OH COOL! i didn't know A CUP existed! tell me MORE! :)

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white-fledermaus4 · 20 days

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Du warst alles was ich hatte.

Du warst meine Welt.

Du warst meine Therapie.

Du warst mein Ort der Ruhe.

Du warst mein abenteuer.

Du warst mein sportpartner.

Du warst meine Verpflichtung.

Du warst mein Zuhörer.

Du warst mein Spiegel meiner Seele.

Du warst immer ehrlich

Du warst treu

Du warst direkt und klar

Du warst immer da

Du warst meine beste Freundin.

Du warst mein seelenpferd.

Du warst meine Herausforderung.

Du warst mein Physiotherapeut.

Du warst mein fitnessstudio.

Du warst mein rettungsboot in stürmischer See.

Du warst meine Zuflucht.

Du warst die die mich zum lachen bringt.

Du warst die die mich zur Ruhe bringt.

Du warst die die mich ermahnt hat wenn es nötig war.

Du warst die die einfach IMMER da war.

Du warst die die zugehört hat.

Du warst mein Leben.

Du warst alles was ich hatte.

Du warst so so so so so viel mehr als nur ein Pferd.

Kitana - seit du gingst, ist nichts mehr wie es mal war.

Und ich komm nicht klar, verdammt!

04042024

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clownrecess · 1 year

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I can not currently, nor will I ever, be able to live alone.

I have mid-high support needs, and they have lately been becoming higher and higher. I can not take care of myself. I can not make myself food. I can not do laundry. I can very rarely take care of my hygienic needs without lots of reminders. When I have meltdowns I am a risk to myself. I have put a small hole in my wall from a meltdown. I have severe sensory issues. I don't think I'll be able to hold most jobs.

I can not currently, nor will I ever, be able to live alone.

This is okay. There is nothing bad, or wrong, or shameful, or childish about this.

Everyone has different support needs, and if you need a caretaker or to live with people as a support, that is okay.

#high support needs #mid support needs #mid high support needs #actually autistic #neurodivergent #aac user #nonspeaking autistic #autism #nonspeaking #aac device #aac users #situationally nonspeaking #disabled #disability #caregiver

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ohshinytrinketsmine · 3 months

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