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#neuropathic pain
neuroticboyfriend · 10 months
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there's a lot of talk about joint pain in chronic illness communities which like fair, it hurts like a bitch. but shoutout to my fellow spoonies who are painfully incapacitated by things like muscle spasticity and nerve compression. just because people can't see red, swollen, dislocated, or malformed joints doesn't make your pain not real. and extra shoutout to spoonies who deal with all these types of pain, because i know how hard it makes things.
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gay-jewish-bucky · 11 months
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my only consistent bedtime routine 🤪
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Daily Truths .
“When asked my #pain level on a scale of 1 to 10 I ask, “My scale or yours?” On my scale I can be a 4 today but on a doctor’s—it’s probably closer to an 8… My body is in pain all the time, I have to endure it and it changes my perceptions.”
Chronic pain problems •
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contentment-of-cats · 8 months
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Understanding pain.
Level 0: No pain at all.
This is normal. Normal life means no pain - not that you've adapted. No pain at all.
By the numbers
Level 1: Very mild and intermittent pain, but it can be ignored.
Level 2: Pain is frequent and needs effort to work around.
Level 3: Pain is consistent but flares into stronger spikes.
The first triad of pain can be handled with occasional OTC painkillers, hot/cold therapy, and resting the affected area. It can interfere with some tasks, but overall your life is pretty normal.
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Level 4: Pain can be ignored when you're absorbed in something, but is much more difficult to deal with.
Level 5: Pain interferes substantially with concentration, but you can 'push through.'
Level 6: Pain is impossible to ignore or 'push through.' You can't concentrate on anything but the pain.
Moderate pain means consistent use of painkillers, including narcotics. There are times when you can't do simple things like taking out the trash.
Level 7: You can't concentrate on anything, you can't do anything unless it's with a massive effort. The pain wakes you up or will not let you sleep in the first place.
Level 8: The pain is intense, even to the paint of making it hard to think of speak coherently. You can't move easily, even if it's from the sofa to the bed, or to get something from the kitchen.
Level 9: You can't think. You can't speak. All you can do is cry or moan. Moving is enough to make you scream.
This is heavy meds pain. For me, Level 7 is when I take my top dose of pain meds - 10mg oxycodone + 300mg gabapentin + 800mg extended release Tylenol + 500mg of robaxin. It takes 45 minutes to work. I can only lie there and breathe.
Level 8 and 9 is what I call 'hospital pain.' That's when you take your pain meds, call an Uber, and get your ass to the ER.
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Level 10 is the worst possible pain. You're delirious from it. You're incoherent. It's the closest thing to Hell. You pass out from the pain, then you wake up screaming. You beg to die. It hurts too much for tears.
This is the pain I woke up with after an 8-hour surgery that resectioned my colon, my ureter and bladder, removed 22 lymph nodes and my uterus/tubes/ovaries and gave me an ileostomy. I woke up from the anesthesia screaming in pain. I begged someone to kill me. I'd pass out, wake up and scream some more. They noted it in my record, so I know it was not a nightmare. Other patients were calling their nurses to get me something for the pain. Morphine is your friend after a surgery like that.
You'd think that was the end of it. That I healed up and got better.
That surgery was the middle of November. I could not stand up in the shower until New Year's Eve. I had eight incisions aside from the ostomy opening, and the hysterectomy incision was four inches horizontally at the top of my pubic bone. Coughing was a 6. Sneezing kicked me to an 8. I couldn't lift anything over 10 pounds by doctor's order.
Even though I was and am experiencing pain, learning to understand it is a journey. Pain is a generic word. A patient without the vocabulary can't communicate anything more than, "It hurts. Make it stop." Hospital personnel are also trained to look for 'drug seeking' behavior. There are three types of pain:
Neuropathic pain is nerve pain due to nerve disorders - in my case a tumor pressing on a nerve. Later complications include neuropathy secondary to chemo and radiation and radiation fibrosis. Neuropathy secondary to chemo symptoms include paresthesias, numbness, balance problems, and weakness in the feet in hands. Symptoms of radiation fibrosis are muscle spasm; muscle weakness, atrophy, or tightness; changes in the appearance and texture of the skin, and decreased joint mobility. In my case my fingertips are tingly, and I feel as if I am wearing the thickest possible wool socks. From time to time, I will get jolts of pain in my toes. My hands are stiff, and from time to time I feel as if nails are being driven into my palms. Neuropathic pain feels like burning, or tingling, or sometimes a stabbing or shooting pain that radiates out like ripples, or follows a path like lightning. During chemo I would have an electrical buzzer feel - like someone pushing a buzzer three times. Opioids by themselves do not help much, so a doc will often recommend an antidepressant like Gabapentin, and might also add anticonvulsants or a benzodiazapine like Ativan.
Somatic pain isn't like neuropathic pain. It stays in one place, but that can be a pretty big place. It feels achy, sometimes a throbbing pain. Muscle relaxants like Robaxin help.
Visceral pain is something everyone has had from time to time. Think of the worst case of food poisoning or a stomach bug. It's often experienced by patients after surgery on their stomach, intestines, and/or colon. Opioids are the treatment of choice as they famously slow down peristalsis.
For most people, pain is transient. For others like those with autoimmune issues, it's relapsing and remitting. For others. it's chronic and needs to be managed along with the patient's mental health.
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Breaking the taboo
Pain and pain management is a taboo subject. People with pain are afraid of what people think of them being in pain or that people will look down on them for seeking treatment for pain. Part of this has to do with not wanting to be labeled a junkie and the taboos surrounding opioids and benzodiazpines, and mistaking the anxiety and depression pain can cause as 'drug seeking.' Some of the bullshit people in pain have internalized is below.
Pain is a part of life. Suck it up.
I can't take my pain meds when I'm low on the pain scale or I will build a tolerance.
I don't want to get addicted.
My meds can cause constipation. I shouldn't take it.
I don't want to bother the doctor for a refill. They might think I'm drug-seeking.
My family/friends think I need to stop my pain meds.
Anyone who tells me that [pain is a part of life has never been in chronic pain. One friend was 'concerned' that I am on meds and that I ought to stop and 'get used to' the pain. I could always use cannabis anyway. I can agree about developing a tolerance to the pain. I did not know how much pain I was in until the ER doc ordered a shot of morphine, or how much anxiety I was having until the doc on my floor ordered Ativan. Expecting someone to live with pain, it's side effects both mental and physical is barbaric and sadistic. Telling them to medicate with your personal choice of painkiller is vainglorious and cavalier.
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Adjuvant therapies are self-care
These are the things that have worked for me, and allow me some relatively pain-free days and a lower dose of pain meds. Of course, there are still days when I need the full dose four times per day. Pain is not there or not, it's far from binary, and you can have different levels and types of pain in different areas of your body at the same time. For instance, as I write this, my feet are a Level 1, but my hands are a Level 4, my lower back is a Level 2 - and this is with pain meds, low dose, and an extended release Tylenol.
Tai Chi - I have found these exercises very helpful and the shorts are not distracting, letting me focus on the movements. I do 10-15 minutes morning and evening.
Soft tissue manipulation - massage works for fibrosis, but the best tool I have is... a silicone rolling pin.
Lymphedema self-massage and care - terrific tutorials! 10-15 minutes alternating days with Tai Chi.
Resistance bands and balance - these videos are very helpful not just for seniors, but anyone with muscle weakness and balance issues.
Peddle machine - 30 minutes every day. The movement of my legs helps with lymphedema from those 22 absent lymph nodes.
Warm baths with epsom salts.
A full body ice pack like this one.
TENS unit.
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does anyone have any suggestions to help neuropathic pain/burning/itching in the feet? i’m already on prescription medications, i can’t use anything that has a numbing effect like lidocaine (according to a doctor and a pharmacist) and i’m losing my mind. i don’t have diabetes but it’s the exact same symptom caused by neurological dysfunction/damage.
i get the same symptoms in my hands and face as well but it’s nowhere NEAR the same severity and i’m maxed out on medications until they can get the necessary MRIs to make a diagnosis. the pain and burning i can kind of get through, but the phantom itch is a nightmare!!
thank you and reblogs are appreciated! sorry for posting this in the diabetes tag but i thought some of y’all might be able to help!
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ribbitflings · 11 months
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i feel like i can feel every individual neuron in my entire body firing and it feels like thousands of tiny electric shocks everywhere but not enough to hurt. sometimes it is only in my limbs and body and other times it fills my brain.
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theoatmanite · 2 years
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If you're going to school and you see some kid being picked on don't be a bystander, do something. you don't have to fight the kid, but it's worth getting suspended for standing up for the right things. don't let this violence become normal. we can help change the violence going on in the world, we need to respect the good cops and stop making their jobs even harder. Change might not happen right away but every little bit helps. don't believe everything you hear right away, do research. even just making a few posts helps
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earhartsease · 1 year
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trigeminal neuralgia is so damn weird - like there's a trident nerve runs up through your brain that branches out to your forehead, to your eye socket, nose, and upper jaw, and to your lower jaw - so sometimes half your face just hurts and is tender to the touch and you think "well at least it's just V1 and V2 today" because your lower teeth don't sting - but your eye socket hurts like hell so you can't really read (though you have to) and the bridge of your nose feels like you got punched, and it's like a puppeteer has their hand up your neck and is fucking with you
anyway, we and our puppeteer slow-blink you this afternoon and hope you hurt less than us
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not-straight-cubed · 1 year
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today i'll be celebrating rare disease day by actually tracking the weird neurological symptoms i've been having for a month
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Hypersensitive nerves either got me screaming and crying in burning pain or ascending to the heavens by the lightest touch (AND SOMETIMES BOTH AT THE SAME TIME???)
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coldestclean · 2 years
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Has anyone else been diagnosed with NEUROPATHIC ITCH ?
How do you deal with it as it is very complicated, incurable, and your body reacts in many different ways. Looking for people that experience this as it is very rare and comminly not diagnosed:
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crps-chronicpain-ptsd · 11 months
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Just because I’m smiling it doesn’t mean that I’m not in pain.
Chronic pain problems •
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lelibug · 2 months
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EPIC FLAREUP
BLOG | EPIC FLAREUP | delphinemuusic Major FIBROMYALGIA FLAREUP from HELL… Like I’ve been hit by a train, then a tank, then an Entire PLANET #Fibromyalgia #Autistic #pain
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pharmanucleus1 · 3 months
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Global Neuropathic Pain Market : Unveiling Opportunities,Trends and Treatment Advancements.
Global Neuropathic Pain Market
Global Neuropathic Pain Market, By Type (Spinal Cord Stimulation (SCS) Devices, External Peripheral Nerve Stimulation, Transcutaneous Electrical Nerve Stimulation (Tens) Devices), Product Type (Rechargeable and Non-Rechargeable), Procedure (Invasive and Non-Invasive), Technology (Transcutaneous Electrical Nerve Stimulation, Transcranial Magnetic Stimulation and Respiratory Electrical Stimulation), Modality (Stationary and Portable), Mode of Purchase (Over-the-Counter Devices and Prescription-Based Devices), Pain Type (Peripheral Neuropathy, Entrapment Neuropathy, Phantom Limb Neuropathy, Trigeminal Neuralgia, Post Herpetic Neuralgia (PHN), Post Traumatic Neuropathy, Foot Pain, Coccydynia), Indication (Spinal Stenosis, Chemotherapy-Induced Peripheral Neuropathy, Diabetic Neuropathy, Others), End User (Hospitals, Clinics, Home Healthcare,?Ambulatory Surgical Centers?and Others), Distribution Channel (Direct Tender, Third Party Distributor and Others), Country (U.S., Canada, Mexico, U.K., Germany, France, Spain, Italy, Netherlands, Switzerland, Russia, Belgium, Turkey, Ireland, Rest of Europe, China, South Korea, Japan, India, Australia, Singapore, Malaysia, Indonesia, Thailand, Philippines, Rest of Asia-Pacific, South Africa, Saudi Arabia, U.A.E., Egypt, Israel And Rest Of Middle East And Africa, Brazil, Argentina And Rest of South America) Industry Trends and Forecast to 2030 
Click here for full report:
https://www.pharmanucleus.com/reports/neuropathic-pain
 Market Analysis and Insights: Global Neuropathic Pain Market 
From 2023 to 2030, the worldwide neuropathic pain market is predicted to increase at a CAGR of 9.2%. The market is being pushed by the rising prevalence of chronic pain and neuropathic pain syndromes linked to a variety of illnesses. Neuropathic pain is caused by a somatosensory system lesion or illness and affects 7-10% of the general population. Multiple causes of neuropathic pain have been identified, and its prevalence is expected to rise due to an ageing global population, an increase in diabetes mellitus, and improved cancer survival following treatment. 
The industry is also being pushed by rising R&D expenditures by major market participants in order to develop better goods. However, the market is constrained by limits associated with medical equipment, which limit product application. Furthermore, the usage of traditional medicines in emerging nations due to poor health spending and a disrupted supply chain is projected to provide a hurdle to market expansion. 
The market for neuropathic pain is classified into three categories: kind, end-user, and geography. The market is separated into two segments: peripheral and central neuropathic pain. End-user categories in the market include hospitals, clinics, home healthcare, and ambulatory surgery centres. North America, Europe, Asia Pacific, Latin America, the Middle East, and Africa make up the market. 
The North American market is expected to lead the global neuropathic pain market throughout the projected period. This is due to the high incidence of chronic pain and neuropathic pain disorders in the region. In addition, the existence of a large number of market rivals in the area is expected to boost market growth. 
During the projection period, the Asia Pacific market is predicted to be the fastest expanding. This is related to the region's ageing population, which is increasing the prevalence of chronic pain and neuropathic pain syndromes. Furthermore, increased knowledge regarding neuropathic pain and its treatment alternatives is likely to fuel market expansion in the area. 
Click here for full report:
https://www.pharmanucleus.com/reports/neuropathic-pain
The neuropathic pain market report provides a detailed analysis of the market, including its drivers, restraints, opportunities, and challenges. The report also provides a detailed analysis of the competitive landscape of the market. The report also provides a detailed analysis of the market segments, including their growth prospects. 
The report concludes with a SWOT analysis of the market. The SWOT analysis provides a detailed analysis of the strengths, weaknesses, opportunities, and threats of the market. The report also provides a detailed analysis of the competitive landscape of the market. 
Neuropathic Pain Market Scope and Market Size 
The neuropathic pain market is segmented by type, product type, procedure, technology, modality, mode of purchase, pain type, indication, end-user, and distribution channel. The growth among segments helps you analyze niche pockets of growth and strategies to approach the market and determine your core application areas and the difference in your target markets. 
By type 
The spinal cord stimulation (SCS) devices segment dominated the neuropathic pain market in 2023 due to the vast usage of these devices for various neuropathic pain indications and the wide range of the products available in the market. 
Click here for free sample report:
https://www.pharmanucleus.com/request-sample/1181
By product type 
The rechargeable segment is expected to show significant growth in the neuropathic pain market due to rechargeable devices avoiding the surgical replacement of the discharged battery in traditional devices. 
By procedure 
The invasive segment is expected to dominate the neuropathic pain market in 2023 because these devices available in the market are generally operating by invasive procedures that generally provide better efficiency for neuropathic pain. 
By technology 
The transcutaneous electrical nerve stimulation segment is expected to show significant growth in the neuropathic pain market due to transcutaneous electrical nerve stimulation being a non-invasive, inexpensive, self-administered technique to relieve pain. Due to the growing technological advancement, these devices are increasing their market size. 
By Modality 
The stationary devices segment is expected to show significant growth rate in the neuropathic pain market due to rising incidences of chronic diseases such as cancer, cardiovascular, neurovascular disease, and musculoskeletal diseases which generally include RF generators and other devices which are stationary in nature. 
By mode of purchase 
The prescription-based devices segment is expected to dominate the neuropathic pain market in 2023 due to the wide range of products available as prescription-based devices increase the market share of the segment. 
By pain type 
The peripheral neuropathy segment is expected to show the significant growth in the neuropathic pain market due to the increasing prevalence of peripheral neuropathy across the globe. 
By indication 
The diabetic neuropathy segment is likely to dominate the neuropathic pain market in 2023 due to the changi
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wivbkwjcla · 6 months
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Neuropathic pain is chronic pain that occurs due to tissue injury and is associated with a sensory-motor system. The rising prevalence of Diabetic Neuropathy across the world and increasing healthcare expenditure are the major drivers that are propelling the market growth.
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