caught my younger sibling walking around with numb hands for weeks like that was normal so PSA theres some weak evidence that the following are common in POTS:
B12 Deficiency
- characterized by numb (pins and needles) hands and feet, which is persistent for days no matter what position your limbs are in
- take dissolvable B12 tablets once daily by holding them under the tongue for a couple minutes
- ideally those should be the like 2000000% DV ones, since B12 is water-soluble and near impossible to take too much of
- B12 shots can be prescribed for very severe deficiencies
- if this doesn't go away in like a week, See Your Doctor! these are peripheral neuropathy symptoms and that's something 1000% worth checking out ASAP
Magnesium Deficiency
- characterized by a tight kind of muscle soreness (for some reason always in my calves) that doesn't go away with rest
- others report tremors or being unable to keep the legs still
- either take a supplement daily or epsom salt baths
- be warned that oral magnesium works as a laxative, so start low and work your way up
Vitamin D Deficiency
- can cause fatigue and the "seasonal depression" kind of mood
- this is just really common in the general population, not just in people with POTS
- oral supplementation works fine, most daily vitamins have it
- in more severe cases your doctor can prescribe higher dose supplements
Also if you keep getting these symptoms all the time or it doesn't go away within a couple days of supplements, you probably need to see a doctor
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My favourite ninjago Jay hc is that hes actually like almost 6foot but his posture is so bad it turns into like 5'6
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any ideas for hobbies (besides electronics) when you
can't stand longer than ~30 seconds
can't sit longer than half an hour
can't do repetitive hand movements (writing this on my phone hurts)
have hand tremors
can't do exercise due to PEM
can't be outside for too long due to light/noise sensitivity and temperature sensitivity
don't have a lot of money to spend
probably more but i can't think of them cause cognitive impairment shit
i have a few ideas but i have to work out how to do them
EDIT: Gonna leave this for anyone else that wants ideas, but I have found some that I think will work so I won't be responding
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I hate you refilling meds at the end of the week I hate you higher doses I hate you new symptoms I hate you comorbidities I hate you degenerative diseases I hate you chronic pain I hate you constant doctor appointments I hate you hospital trips I hate you blood tests I hate you mri scans I hate you ultra sounds I hate you physio I hate you invasive procedures I hate you surgeries I hate you gaslighting doctors I hate you snobby consultants I hate you “I know more than your lived experience”.
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went to the store for depression snacks and then got a stomachache before i could even eat them. total bullshit. if i'm going to feel shitty at least let me taste some junk food first. at least let me feel like i am part of the great web of cause and effect instead of this pathetic ant that things just happen to. is that so much to ask.
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