#no support

[themaskedlady]

#not for you #autistic life #autistic problems #autism memes #autistic adult #late diagnosed autistics #autistic people #autism community #autism #autism spectrum #actuallyautistic #actually autistic #autism world #neurodiversity #asd #neurospicey #neurodivergencies #its the neurodivergency #autism problems #autism pride #actually autism #autistic #autism things #autismmeme #autistic feels #autism support #no support #autism and society #autistic females

[synsick]

It's so sad that I post original photography and can't get a fuckin' like or reblog but I post someone else's work or some damn memes and MFers go wild with it. This happens on every damn platform I'm on. Wtf?!

#reblog #post #memes #memes daily #photography #photography memes #artists #artist struggles #like #likes #shares #cmon bro #cmon guys #support #no support #dank

[fortunatelev]

haha omg wow I was instantly reminded as to why I never vent to my mom about anything. She always victim blames and even when I am there bawling my fucking eyes out, she has the gall to tell me that I need to get over my problems because it's been months. Wow I forgot there was a time limit to pain and trauma.. So I have to just get over it??? Wow that's all I need to do? Who knew?? 😲 It's not like I haven't fucking tried that shit or anything already. So apparently you can just leave something that caused your trauma and you can instantly forget about it (y'know because that is how trauma works) and suppress your trauma because that's evidently good advice for someone with BPD and PTSD. It's so great having such a wonderful support system. 😅🤡

#bpd #ptsd #trauma #people suck #im so done #whatever #parents suck #no support #toxic positivity #bad advice #toxic people #toxic family #toxic parents

[howifeltabouthim]

You must remember that most people don't like to hear when bad things happen. They can tolerate only a little here and there. The bad things must be comestible. If there are too many bad things, they plug their ears and vilify the victim. But a hundred very bad things happened to me. Am I supposed to be quiet? Bear my pain like a good girl? Or shall I be very bad and take it out on the world? Either way I won't be loved.

Lisa Taddeo, from Animal

#victim blaming #silenced #lack of support #turn a blind eye #social commentary #trauma #victim #revictimization #no support #suffer in silence #hurt people hurt people #revenge #unloved #no good choices #between a rock and a hard place #quotes #lit #words #excerpts #quote #literature #my favorite quote #all timer #just like me for real #lisa taddeo #animal

[carrickbender]

TT:

Halloween was great, sans having a sick Henry, so no sallying forth and getting candy for him. But he did use his toy front end loader as a candy distributor, so he's still getting the job done.

Ran into a coworker from my old job today who is now in a custody fight with his ex-gf. Makes me sad for their son. He also said that he too hates his current job, but that at a private function he talked to the new owner of where we used to work and he's just working on timing for calling us back.

Which honestly can't be too soon. I really don't want to perfect my ability to talk to kids during a DVA crisis. Heart Attack? Ok. Stroke? Already done it. But kids... yeah, no. I'll do it, but... plus, I can't afford much more of this job $$$ wise.

My mom had to put one of her pups down after a freak accident, and we are all heart broken. He was 4 years old. RIP Charlie the Chucklebunny. You weren't the brightest crayon, but you were a glowing light.

Still working hard, still giving it my all, still tired, and still out at sea, not giving up.

"The truth comes out as the fire burns low

It comes to light as only embers glow

The whiskey talks, the west wind moans in the night

The deadfall's gathered and the branches are cut

Kindling crackles and the smoke curls up

The small sticks catch then the bigger stuff will burn

Chinook dies down as the dark descends

Pine has burned, the ash has cleansed

The message smolders, is lost, but finally sent"- Corb Lund

#me #this is my life #exhausted #singer/songwriter #henry adam #in repair #dadlife #no support #im more alone than ever #corb lund

[always90sbaby]

.

Writing on wattpad isn't an easy journey when you care so much about your work? I might sound like complain about that app but know anymore...

#no support #wattpad #black reader

[meadowsystem]

💙 my heart is heavy with this one 💙

I have consistent nervous breakdowns over knowing this is my life. But yet I know many have no idea about the things I'm about to tell you.

Cyclic vomiting syndrome itself is not truely life-threatening but the complications that it creates can be.

I'M BEGGING FOR HELP!!

They do not provide enough accessible treatment. For complications I face from this rare disease.

I am unable to keep a job as I cannot work during vomiting episodes. Lasting anywhere between hours to days. Not including the recovery time needed after the episode is finished.

IT IS DEBILITATING.

Workplaces refuse to hire me when accomodations are asked due to this disability making me "unreliable". If you don't tell your employer and you miss too much work, your let go for being "unreliable". Finding a workplace who will accommodate you and provide consistent wages ... is unobtainable.

Accessing proper insurance coverage needed to make this rare disease manageable is unobtainable due to the plethora of needs we require to have met. Even when on welfare or disability.

Those who are not able to manage the triggers are pushed out of the workforce and forced to fight to get disability. Often unable to obtain federal disability as it isn't "as bad as cancer" as I was told... even with my other plethora of diagnoses that made my doctor feel it was my best course of action.

Not only dose this rare disease have complications of dehydration, damage to the esophagus and tooth decay. Most with this disease also suffer from other conditions (comorbidities), particularly other functional issues. Some of the common functional comorbidities to CVS include migraine headache, chronic fatigue, irritable bowel, gastroparesis, depression, anxiety, POTS and/or other forms of dysautonomia as well as neuromuscular disease include intellectual disabilities, autism, seizures, and/or hypotonia. As well as mitochondria dysfunctions

Incase you don't know mitochondria dysfunctions means your body cannot efficiently turn sugar and oxygen into energy, so the cells do not work correctly. This can affect different parts of the body: the brain, kidneys, muscles, heart, eyes, ears, and others. Organ dysfunction can be a very real possibility. Organ failure is organ dysfunction to such a degree that normal homeostasis cannot be maintained without external clinical intervention.

I have been diagnosed with 8 and counting of the comorbidities. These comorbidities have their own comorbidities that have also been added to my list.

Many doctors are under educated on CVS. Often those with CVS are not properly diagnosed, even with symptoms at a young age.

Many doctors tell us to figure out our CVS triggers to manage the disease. In my case I have so many triggers due to my plethora of diagnoses/comorbidities that my CVS is incredibly difficult, even unrealistic to manage even with proper medical support. (So many overlapping, environmental, situational, medical, life triggers... so many triggers not on this list and still more unknown triggers)

THIS IS MY LIFE! THERE IS NO CURE.

They're are only underfunded small individual research/studies. They have not found a cure. We don't have proper support and thus we suffer. Look at this link ... the lack of information

https://rarediseases.info.nih.gov/diseases/6230/cyclic-vomiting-syndrome

I SUFFER.

My disadvantages have been continually coming to light. My realization I likely won't be able to achieve basic life milestones has been heartbreaking.

Medically assisted suicide is easily achievable even in even minor cases of CVS. While there is little to no support and even less accessibility.

What options do those with this disease have?

Suffer or give up ...

I'd also like to finally note the journey to diagnosis is horrendous. Doctors diagnose cyclic vomiting syndrome based on family and medical history, a physical exam, pattern of symptoms, and medical tests. Your doctor should perform medical tests to rule out other diseases and conditions that may cause nausea and vomiting.

-add on the factors of age, ethnicity, gender, life style, fashion choices, preconceived assumptions ... the list goes on ... the journey to diagnosis often feels unbearable-

If you have read this please comment, I need some validation.

💙

#mental health advocate #mental illness #touch of the tism #equity #chronic illness #fibrowarrior #ptsdlife #no support #cyclic vomiting syndrome #arthritis #comorbidities #adhd brain #irritable bowel syndrome #chronic pain #asthma #allergies #living with borderline #this is depressing #anxitey #panic disorder #tmj syndrome #dyslalia #pots syndrome #scoliosis #sleep apnea #medication side effects #no proper testing #lack of social programs #eating disorders #lack of funding

[sp00kysk3lly]

I don’t mind sleep, it’s waking up I can’t stand.

#mental health #mental health awareness #all alone #no one wants me #no one likes me #fake friends #fake people #blog #death anxiety #scared to die #don’t want to be alive #zero friends #no support #no friends #no family #nothing #I hate myself #I hurt myself today #johnny cash #hurt #you destroyed me #you broke me #so called best friend #so called friends #only want to be known when it’s convenient #fuck you all #go fuck yourself

[sillyminikitty]

I kinda hate how everything became easy. Human relationships ,to start with, are so effortelessly fast and easy to forget. On social media we are like barbie dolls on shelves. Everything about ourselfs are shown. Someone goes to our profile see if we are fitting for them before we meet. They dont make the effort to get to know you. They just look at your packacing, price, quality but not the actual you. They see what series, movies you like without having 'the getting to know eachother part'. But i dont think this is how its suppose to be. Lets say you go around my profile and see me wearing a pink dress. But i wish u would take me out dinner to see me wearing that dress. Like ykwim? Since its easy to have a relationship its also easy to break one off no one takes time to heal what in hand and just goes for a brand new person.

#girlblogger #human connection #relationship #radblr #radical feminist safe #capitalism #social media #no support #there is absolutely nothing lonelier #girlhood #lone girl

[elceeu2morrow]

"That’s where I feel incredibly blessed for the fanbase that I’ve got because in terms of that side of my job and how much support I’ve had, there’s not been a ton of it, to be fair. The reason I’ve sold my tour, it’s not thanks to Spotify, Apple Music, radio stations, or a record label. It’s just down to my fans. It’s as simple as that."

"I want to keep the momentum going. My solo career since the band has been a bit stop-start, some for personal reasons, some for professional reasons. Now, I’m finally feeling comfortable where I am. I just want to keep it rolling."

Louis via Euphoria Magazine, 9.1.22

#just wanted these together #fan support #professional reasons #lt quote #lt interview #euphoria 2022 #9.1.22 #fitf press #my repost #mine #no support #no radio

[brilletmonte]

I've realized that no one cares about you. I have to go on this journey on my own.

#adulthood #soul #my personal #no support #it's not as simple as just eating #self healing #healing #emotional support #no one by my side

[sunshinesjouney]

I know I’m not the “center of the universe” but I am apart of it and I’m here too. Goddamn it. I exist too.

#epilepsy #no support #stress #disabilties

[howifeltabouthim]

No one had ever supported her—not in any meaningful way. She felt sad for the sweet child she had been, always trying to help others and be kind to them, yet constantly scorned and derided.

Anna Biller, from Bluebeard's Castle

#neglect #you're on your own kid #abuse #childhood trauma #looking back with regret #they mistook my kindness for weakness #bullied #sad #kindhearted #helpful #no support #heartbreaking #this hits hard #personal #quotes #lit #words #excerpts #quote #literature #anna biller #bluebeard's castle

[stormr]

I had my appointment (phone call phew) with my hematologist, for my bone marrow puncture/biopsy results. Her answer? I don't have cancer. For the rest? She notices that my bone marrow is functioning abnormally slowed down. So she confirms that something is wrong, but she can't explain it and closes the file. wow.

#personnal #results #hematologist #hospital #bone marrow #biopsy #punction #doctors #tired #seriously #something is wrong #no help #no support

[overworkedunderwhelmed]

Exhausted while my husband is off skiing with friends all week.

Heaven forbid he could bother to have a 5 minute conversation with me when back at the hotel...

#so tired #no support #my in laws carted him to the airport #on their way out of town #gone to bed at 9 pm each night #but it is not enough