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elviraaxen · 9 months

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I made this a long time ago but for some reason never posted! It is my quick guide to protecting yourself against burnout as a person with ADHD and ASD.

Of course it is all about meeting your support needs at the end of the day, which are completely individual and may vary over time, but this could function as a guide if you have a hard time figuring out where to start! 🫶🏻 💙💙💙

#my art #long post #autism #asd #adhd #self help

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yellowyarn · 7 months

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i always see sensory avoidant autistic people talking about how their favourite foods are all plain carbs but where are the sensory seeking autistics who live on garlic and spicy foods? the ones who will eat a straight lemon and hate buttered noodles.

#garlic my beloved #autism #disability #nuero punk #mental disabilities #autipunk #auti punk #nueropunk #asd #level 2 autism #autistic #level 3 autism #level 1 autism #sensory issues #autistic spectrum #the tism #tism posting #auti #sensory seeking

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vi-visected · 1 year

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my therapist: how are you feeling in the wake of your (autism spectrum disorder) diagnosis?

me: well it makes sense doesn’t it? i was the one who requested testing. like on some level i kind of figured.

my therapist: yes, i’m personally glad we pursued it because it helps me better understand parts of your behavior and how to accommodate you. but how do you feel about it? you said before that you were in heavy denial about the possibility when you were younger.

me: well yeah, i had a preconceived idea of what autism was that i know now wasn’t true. but at the time it was distressing and i didn’t want to think about it too hard.

my therapist: how was it different then? what was your idea of autism then?

me: it was, you know, severe developmental delay. i never thought i had developed abnormally at all, so to try and match up the severity i associated with autism and the way i viewed myself, i just couldn’t.

my therapist: but you did.

me: sorry?

my therapist: you did develop abnormally. both socially and academically.

me: socially yes, but i had no problems with academics. i always especially excelled at reading comprehension, more so than anyone else in my grade. i started lagging in high school but i think that was a lot of burnout and depression and ptsd, probably. i was incredibly smart. hell, i spoke in full sentences earlier than most of my peers.

my therapist: violette, that’s still abnormal development.

me: …huh?

my therapist: developing abnormally fast is still developing abnormally.

me:

me: oh.

#nothing in our sessions has ever hit me as hard as that #it was almost a year ago now and i still think about it #i’ve never had one of those ‘moments of clarity’ in therapy outside of this #but god damn did i have to sit with it for a bit #developing abnormally fast is still developing abnormally #jesus Christ ellen #actually autistic #actually asd #hashtag autism posting #autism #autistic adult #autistic feels

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thatkinkyautistic · 3 days

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Autism acceptance includes accepting all autistic manners of communication.

That means supporting autistic people who talk in a "very childish" way. (I do this a lot irl)

Autistic people who do "TV talking" (this means talking like a character from your favorite media,basically talking in quotes and copying their speech patterns,as far as I know)

Autistic people who use echolia.

Autistic people who are very awkward/quirky when they communicate.

Autistic people who are overly technical,or have very sophisticated and articulate speech.

Autistic people who mumble.

Autistic people who talk really fast.

Autistic people who can't control their tone of voice/inflection.

Autistic people who talk in a monotone voice.

Autistic people who use different kind of sounds,or body language to communicate.

Autistic people who talk slowly and draw out their syllables.

Autistic people who use a lot of sentance fillers.

Autistic people who use Aac devices,communication cards,etc etc.

Edit: acceptance of nonverbal autistics is also necessary. Nonverbal people deserve love,respect,acceptance,accommodation and support.

#text #autismposting #asd #actually autistic #autism acceptence month #actuallyautistic #autism #long post

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five-thousand-loaves-of-bread · 1 year

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my frustration with “going nonverbal/nonspeaking” (as a fully nonverbal person)

transcript: my frustration with “going nonverbal/nonspeaking” (as a fully nonverbal person)

this written for instagram because of this post. but thought tumblr may like it too. “you” means general you, no one specific.

the instagram post and this on wordpress

this disclaimer is for instagram but also for anyone new to this discussion:

in full honestly, don’t know how to write this. am tired, language and complex ideas too much at time of writing, and general exhaust at having to argue same thing over and over again and justify own existence. tired of being minority within minority, wish there are others to do these work for me so i don’t have to do it all by self, singlehandedly advocate for everyone (not to mention problem with that—i can’t speak for everyone).

so honestly, if you don’t have anything nice to say, especially if you speaking (yes, even if you lose speech. include you), just don't say anything at all. move on.

online actually autistic community (AAut) dominated by white, lower support needs. level 1, speaking, late diagnosed, high masking autistics. find people like you is great, what not great is you treat your very narrow community as “voice of all autistic” and your experience as ultimate autistic experience. i write plenty about that, many more elaborate than this, if you not familiar with this concept.

many people in this community experience times when cannot speak, sometimes because overwhelm, shutdown, dissociate, or anxiety (situational mutism), but do not struggle with act of speaking rest of time (some struggle with speech all the time but still can speak - more on that later). the community call “going nonverbal/nonspeaking,” or even “when i am nonverbal nonspeaking” (not talking about those nonverbal as child and verbal now older), after clinical term “nonverbal” (nonverbal autism) and term coined by apraxic nonspeaking autistics “nonspeaking.”

both of which talk about it as an “all the time” experience.

when i search nonverbal or nonspeaking because i want community too, want see people like me too, two category i see: 1) parents of nonverbal nonspeaking children, whom can’t relate to because age, who can’t write own experience because their age and developmental ability. and 2) overwhelming amount of speaking autistic talk about going nonverbal going nonspeaking.

and the very very few fully nonverbal nonspeaking voices. drowned out. cannot find anyone.

nonverbal used to be term to describe us, people who can’t speak or cannot functionally speak beyond few words. medical term, alright, so some of us don’t like. so some of us reject that and create term all of our own, called nonspeaking. created by nonspeaking autistics with severe apraxia and brain body disconnect, describe their own experience of able to think in words able to spell out words (with great dedication and work and support), just cannot do that with mouth. their term. they create.

and you take it? without knowing context? without reading anything by those same nonspeaking coiners?

when is last time you purposely seek out nonverbal nonspeaking voices? when is last time you accidentally came across us? can you name any nonverbal nonspeaking advocate that talk about their experiences? one? two? three? a BIPOC person, a (specifically) Black person? a Black woman? a trans person? a physically disabled person? a person not from western world?

same narrative over and over. “i can speak for nonverbal autistic i understand their experience because i am autistic i can’t talk sometimes” no you cannot. as someone who was able to speak when young who lose speech (”go nonverbal”) but now have no speech to lose because full time nonverbal. no the experience not the same. not comparable. you gain it back. i don’t. you can explain with mouth words what happen when you get out. i can’t, i only have AAC. countless nonverbal nonspeaking people without AAC or sign cannot, at all. you never experience daily small and big struggle of casually being nonverbal all the time.

your experience of lose speech unique from my nonverbal. but if you so insist to compare and equate, you only guest to my experience, my daily life.

“when i go nonverbal and no one understand so have to force to speak” i cannot force words out. know you don’t mean to say this, and not saying you at fault for this, but nevertheless accidental perpetuate and reinforce idea that anyone who don’t speak can just be forced to speak if try hard enough. but often not how it works. and this exact harmful rhetoric devoid and delays nonverbal nonspeaking people given access to AAC, because “need try to force words out first, AAC unnatural so last resort.”

this may be new concept for you. new concept to instagram, to tiktok. to other places. it may seem i only one with this problem, “i once saw a nonspeaking person’s account and they don’t have problem.”

yeah, because we are not monolith. some nonverbal nonspeaking people don’t care. some nonverbal nonspeaking people may even welcome “go nonverbal nonspeaking” or “when i am nonverbal nonspeaking.”

but don’t be fooled into believe i only one. have many nonverbal/nonspeaking and/or higher support needs friends on tumblr, who talk about this who have been saying this for years. *years*. years before i joined. i am not creator, i only bring message here, because many of us are too high support needs too disabled to do anything else. many of us only stay on our small corner of tumblr because it most peaceful, because at least some listen, because least hostile, because need to defend our experience against our own community the least. (but it happens less doesn’t mean it doesn’t happen, we still exhausted.) many of us only stay on our small corner of tumblr because that all we can handle, or because we not allowed or shouldn’t be on other social media because age or abilities or both.

i cannot handle conflict i do not do well and i shouldn’t be here. but if not me, who else? if i don’t do it, who else is going to?

some nonverbal nonspeaking people and parents of them may question, why you start debate about useless term when so many nonverbal nonspeaking people don’t even have access to communicate, real problems. to that i say i do those work too. and to that i say this is real problem too, because am autistic so online actually autistic community should also be my space too but it not. but it hostile. because am lonely because seeing yourself so crucial because don’t know anyone in person like me don’t have any friends in person like me, so i go online to find people like me and i cannot because no own term to search and what used to be term many people without similar experience insist they understand and can speak for me because they say we have similar experience. because this aloneness and the unique difficulty from being full time nonverbal and the struggle of future and the unique mistreatment from both outside but also inside community have drove me over edge many times and it is presence and knowing their presence of my tumblr nonverbal nonspeaking / higher support needs friends that gave me hope to stay. because so many people don’t listen and instead speak over. terminology only a symptom of problem. address roots, sure, but part of address roots is address symptoms.

‘well nonverbal people are never around” maybe it because you don’t make it welcome for us to join.

“fully nonverbal rare anyway” estimated 30% of us nonverbal nonspeaking, which this statistic probably only count those nonverbal since birth. even more are minimally speaking or without full functional communication, abilities limited to requests. sure, 30% still not majority. but significant amount never the less. speaking lower support needs autistic without intellectual disability not majority anyway too but your experience still deserve heard. ours too.

“see less nonverbal people because they don't have ability to communicate and use social media” yes, many nonverbal nonspeaking people not given access to communication (like AAC), forced to live in silence (because body language communication not enough alone!). silence from birth to teenage years, to adulthood, even until they die. some cannot understand social media or AAC because intellectual disability or cognitive ability. some not allowed on there because safety, some not allowed on because presumed incompetent and abused. all true. do you advocate for them too? or is it just talking point against me, pretend you care?

but not all of us, we exist. some of us thankfully supportive parents all along, parents given resources, us given resources, so we access to AAC since beginning. some of us became nonverbal later in life (which not same experience as those early in life, i acknowledge). some of us after years of forced silence, finally given access to AAC and can now communicate and advocate! some of us on social media - do you listen?

but you see none of us in your community anyway. maybe one token person.

you can go nonverbal. i cannot go verbal. see difference? you can come close to my experience, but i never will have (future) ability to go to yours.

it frustrate that have to specify am nonverbal **all the time** when write this, because if don’t do that will be assumed otherwise. frustrate that when in neurodivergent space stranger see me AAC they assume i can speak because they only know part time users (know part time users frustrate too because people assume they cannot speak and get surprised when they do. me being assumed automatic part time is not fault of part time AAC users.)

even been told am privileged to be nonverbal nonspeaking, privilege over speaking autistic who lose speech because in their mind it mean i get all support i need i get all recognition get all the representation. which. couldn’t be farther from truth.

all that. is fraction of reason i frustrate at “going nonverbal nonspeaking” and “when i was nonverbal nonspeaking.”

so many other words. lose speech. intermittent speech.

just want have own sub community where can find people similar experience.

#actually autistic #actuallyautistic #autism #nonverbal #nonspeaking #actually nonverbal #actually nonspeaking #nd #asd #loaf screm #long post

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clown-around-and-find-out · 8 months

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what i've learned thus far in my life is if a neurodivergent person has a personality they're annoying. but also if a neurodivergent person doesnt have a personality they're annoying. if a neurodivergent person acts how people want them to they're annoying. and if a neurodivergent person doesnt act how people want them to... they're annoying. basically, i've learned that as long as you're neurodivergent somebody will take issue with you, find you annoying, say you're too much or not enough.

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autisticdreamdrop · 2 months

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autism is not a boy disorder. girls having autism is not “atypical” autism. it's just autism. nonbinary people can have autism. autism is a spectrum.

#blurry #group post #autism #autistic #actually autistic #actually autism #asd #autie #autism spectrum disorder

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sicksadstar · 1 year

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Needing to stim is NOT bad.

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chroniccoolness · 8 months

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I need fellow LSN autistics specifically to understand that "low support needs" + "high masking" are not the same and that "high support needs" + "low masking" are not the same

I've seen multiple people now act like they are interchangeable. while yes you're not likely to see a high masking HSN autistic, masking is not the be all end all of support needs. for instance, i am a LSN person who also masks very poorly. i am still LSN. it hurts me to see fellow LSN autistics act like if youre LSN you must be great at masking. I get that expectation from allistics all the time, I don't need it from my community, too.

but even more importantly imo, it also hurts the medium and high support community a lot. the difference between a LSN autistic and a HSN autistic is NOT just how well they mask. that has to be understood. and if you cannot even imagine any way support needs would differ BESIDES amount of masking, you need to listen to more high (and medium!! medium exists too!!!) support autistics. there's tons of factors in support needs (+ autism presentation in general) besides "how good am I at disguising my traits".

[ORIGINAL POST EDIT: reblogs turned off because any of my posts getting over 300 notes causes me immense anxiety over the potential of being harassed/is major ocd fodder, especially due to past experiences. sorry if you wanted to rb this. have a nice day /gen]

#autism #actuallyautistic #support needs #autistic #neurodivergent #asd #my post

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raynedayys2 · 9 months

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Neurodivergence doesn't have a look.

Black people can be neurodivergent.

Latine people can be neurodivergent.

Women can be neurodivergent.

Gay people can be neurodivergent.

Trans people can be neurodivergent.

Physically disabled people can be neurodivergent.

Anyone can be neurodivergent.

#text post #neurodivergent #neurodivergence #autism #autistic #asd #adhd #dyslexia #diversity #get rid of stereotypes & bias

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dragonpyre · 1 year

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Me: *makes someone laugh*

Me: this is good. I’m getting a good grade in neurotypical. Something that is both normal to want and possible to achieve

#text post #asd #adhd #add #autism #neurodivergent

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mommy-dust · 3 months

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This. Isnt. Fucking. Cringe.

If you’ve ever judged someone for using a pacifier, aac device, their special interests, the way they talk, using fidgets when they’re “not trendy”, using noise canceling headphones, stimming, making “random” noises, if you’ve ever called them cringe, used autism as in insult, bullied an autistic person, made fun of someone for struggling socially or being nonverbal, even having verbal shutdowns, FUCK YOU! Ableism towards neurodivergent people (and ableism in general) is only getting worse, because these fucking middle school boys think that its funny, you can’t call someone or something sped, retarded, cringe, etc. (keep in mind that it’s completely okay to reclaim these words AS A NEURODIVERGENT/DISABLED PERSON)

And a friendly reminder that nonverbal autistic people have said that they don’t like people saying they “went nonverbal” because it invalidates their experience as a nonverbal person. There are many other things you can say instead of this, and these people need to be taken seriously.

Fellow autistics, feel free to add to this in the reblogs :) I LOVE YOU

#autism #asd #autism spectrum #cringe culture is dead #awareness #disabilties #disability #invisible disability #special interest #rant post #ableism #ableist language cw #cw swearing #tw swearing #swearing cw #swearing//#swearing

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autibear · 2 months

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stop calling other autistics ableist for treating their autism like a disorder

I don't care if your autism doesn't make you feel disabled you're a minority and you don't get to call the terminology other autistic people use ableist. Especially terms that are useful for level 3/high support needs autistics

If you don't like the levelling system or support labels and think it's the same as functioning labels don't use them on yourself. Stop calling them useless ableist and harmful

People are pretending this doesn't happen anymore but there are still posts and articles and videos everywhere trying to erase terminology useful to many mid-high support needs

If you think it's bad to talk about our differences you're wrong. We can both be a diverse community and have differences that we label. If you want to pretend we're all the same just because we're autistic you've only spent time with autistic people like you

Some autistic people need levels to understand their own needs or find other autistic people they can relate to

Some people call themselves a person with autism instead because that's what they're comfortable with

Some autistic people don't like that they're autistic and find it hugely disabling and struggle to find positives in it

Some autistic people say they are severely autistic because of how disabling their autism is

Some autistic people look autistic and cant mask

Some autistic people still use functioning labels on themselves because it's familiar and helps them and it's what they're comfortable with

Some autistic people say they have a disorder condition disability or ASD because that's what they're comfortable with

If you want to treat your autism like just a difference we're not stopping you. If you want to treat everyone's autism like just a difference then we have problems

If a label doesn't help you that's fine. Don't speak on how helpful labels that never even applied to you are. If you think all autistics with higher support needs are incapable of knowing what's ableist so you have to talk over them you are wrong.

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