#not looking for sympathy or anything btw I've already talked about this stuff it's just My Reality but it blows my mind people still ask me

[vtforpedro]

me, answering someone when they ask how my life has been impacted by poor health: yeah I can't bend over, I can't lie flat, I have a hard time washing my hair b/c of the movement of my arms, can't put dishes away, can't clean my cats' litter box, going over a bump while a passenger in a car physically pains me, I can't walk for very long because it irritates my head, I have to sit in total silence and with as minimal light possible and with an ice pack when numerous times daily sometimes, I can't watch movies or tv cause iih affects eyesight it's like it's #1 major symptom and the pressure on my optic nerves is exacerbated by my eyes trying to follow rapid movements, sometimes turning my head too far will cause an episode, oh yeah with the shower thing thinkin about getting a shower chair cause when I wash my hair I want to scream and cry by the time I'm done it exhausts me and is so painful, just general noise hurts A Lot I can only listen to music sparingly, the amount of medication I'm on causes fatigue on top of fatigue on top of fatigue, I tried physical therapy before we knew what this was and it made everything 10x worse so I had to stop haha yeah!!!! there's more but this has drastically changed my life and what I'm capable of, which is not a lot, and I can only do so much before I'm in agony. as a chronic pain sufferer, sometimes just surviving each day without going to the ER is my main victory. it's pretty awful all doctors/nurses/therapists/people in general, immediately after hearing this: so what about exercise? I hate them all

#tw medical #tw chronic illness #tw doctors #vtforpedro personal #is it because i'm 'young'? I genuinely think it is I think they hear all this and STILL don't believe me or think I'm exaggerating #because I'm young in their eyes so I should still be capable of exercise no matter what #i swear i'd have to be comatose before they'd be like 'oh ya I can see why you can't exercise' #hate them #haaaaaate them #my neuro is like doing everything he needs to do but he asked me that yesterday and i wanted to be like my dude are you fucking kidding me #you speak very good v intellectual u know what's going on with ur health huh haha yeah i fucking have to so you dweebs can't dismiss me #literally two years now of WHAT ABOUT EXERCISE I'm so so so over it #not looking for sympathy or anything btw I've already talked about this stuff it's just My Reality but it blows my mind people still ask me #about exercise #let’s not forget my balance issues and fearing falling sometimes too those are big ones