#phantomface pain | Explore Tumblr Posts and Blogs

phantomfacestuff · 4 years

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Why are people penalised for not showing the pain they have every second of the day?

If you show your pain people get fed up with you, if you don’t show your pain people don’t believe you!

We’re stuffed whichever way you look at it!

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phantomfacestuff · 4 years

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Thought this was definitely worth a share!

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phantomfacestuff · 4 years

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When chilling out in the sun is the best feeling in the World! The heat on the bits that hurt and the happy feeling from sunlight, what can be better!

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phantomfacestuff · 4 years

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People who abuse chronically sick people because they think they are ‘making it up’ because the chronically sick person has an invisible illness are no better than the cowards that bully in the school playground! They are ignorant and sad and if they put themselves in the shoes of the person who is actually ill they probably wouldn’t have the strength or courage to deal with a fraction of what that person deals with everyday! My advice to those ‘people’ is to grow up and grow a pair! Be someone other than an ignorant bully! Use Google if need be and find out what the persons condition actually is before putting them down and calling them a fraud!

#chronicdisorders #invisibledisability #ehlers danlos life #trigeminalneuralgia #anaesthesia dolorosa #neurological pain #phantomface pain #ehlers danlos syndrome #phantom pain #spoonies #spoonie #invisiblepain #invisibleillnesses #chronicfacepain #chronic pain #chronic illness

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phantomfacestuff · 4 years

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You know, I never knew that disabled people had to be unkempt, with dirty hair and dirty clothes until I got my PIP assessment back which actually penalised me for being clean and not looking like I’d been wearing the same clothes for months! I think the Government is completely out of touch and will do anything not to look after people! I am so disgusted with the people who try to make disabled people conform to the way they think they should be! Ableism at it’s very worst!

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phantomfacestuff · 4 years

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Why is it when my body is so desperate for sleep that it hurts to move my brain says ‘Yay! Wake up, let’s party’ and won’t stop talking to give me just one hour of precious healing sleep time! 😫

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phantomfacestuff · 4 years

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You know it’s time to stop saying ‘yes’ to people when the productive hours in your day are spent doing things for other people who rarely, if ever, say thank you! Remember ‘me time’ is important for wellbeing take time for yourself!

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phantomfacestuff · 5 years

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When tiredness becomes the ‘norm’ it makes you realise how much you long for the ‘unusual’

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phantomfacestuff · 6 years

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Quote of the day!

Whilst waiting in A&E for IV pain meds the nurse says:

‘We don’t need patients like you cramming up A&E, they should see you in Outpatients’

That would all be good if:-

There was an outpatient clinic that gave IV pain meds to neurology patients.

There was a neurology outpatients clinic!!!

The Outpatients department was open on the weekend!!

The Outpatients department was open 24/7!!

As none of the above apply at our local hospital it makes it difficult to get treatment! If I had Cancer, MS, Diabetes, cardiac problems or needed dialysis it would but unfortunately, I only have a condition that causes intense, severe pain and none of my drugs come even close to helping so when I say I need a certain drug IV and I give a letter from my Neurologist saying so then it means that that is what I need and I need it now not in 5 hours time because you can bet your bottom dollar that I’ve already left it too long because I didn’t want to wait 5 hours in A&E!!!

#tnauk #trigeminalneuralgia #anaesthesiadolorosa #ad #phantomfacepain #phantomlimbpain #phantomface #phantompain #neurologicalfacepain #neuropathicfacialpain #neurologicalpain #neurologicaldisorder #multiplesclerosis #pain #painfulnumbness #chronicpain #chronicillness #fatigue #chronicfatigue

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phantomfacestuff · 6 years

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Fun Fact!

Did you know that horses can get Trigeminal Neuralgia too!

Unfortunately, you can’t explain TN to a horse and their pain is so severe that they have to be put down.

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phantomfacestuff · 6 years

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Natures way of saying ‘ I love you! Hang in there!’ ❤️

#trigeminalneuralgia #anaesthesiadolorosa #neuropathicfacialpain #neurologicalfacepain #neurologicalpain #neurologicaldisorder #phantomlimbpain #phantomfacepain #phantomface #phantompain #multiplesclerosis #painfulnumbness #pain #chronicillness #chronicpain #chronic fatigue

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phantomfacestuff · 4 years

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So, like, when my joints etc... are really bad all I want to do is sleep in the quiet as my pain meds make me even more tired. We moved somewhere quiet so that this wouldn’t be such a problem. Our neighbours decided to rent their house out to a young family which was fine until the Dad decided he wanted to buy a really expensive sporty car that has to be revved up for 5 minutes on the drive before he can drive it off. It is NOT a quiet car. We asked if there was anyway he could park it so it wasn’t aimed at our bedroom! He was really nice and said of course but then the neighbours the other side would complain. He said he would park it so the noise was concentrated out towards the road instead. That lasted for all of a week! This morning it sounded like a jumbo jet was taking off again outside my bedroom! Aaaarrrrrggggg!

#inconsiderate neighbours #anaesthesia dolorosa #spoons #chronicfatigue #ehlers danlos life #neurologicalfacepain #fatigue #spoonie #chronic pain #invisible illness #invisibledisability #chronic disability #phantomface pain #phantom limb pain #pain #noise #need quiet

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