well, friends. i’m sure a good lot of you have seen this post. i was denied today. i have to contact a lawyer and i don't even know how to begin advocating for myself outside of simply contacting the firm an ex-friend of mine used to obtain disability.
if you would rather not read the whole vent, i completely understand. but if you would still like to provide answers or support to me, here are my main issues.
i need advice from others who have been denied disability and have gone through a lawyer to obtain it. i need advice on what to do about getting started with victim advocacy. that's about it, i reckon. i love you all. my dm's are open. you will be blocked if you clown.
and yes, i realize my stim blog is not the place to talk about this. i understand, but this is my largest audience and i feel i would be a fool to not post this somewhere it may be actually received.
tw for mental health talk / long vent under the cut, particularly of the despairing kind, and also mentions of CSA / CSAM, psychosis, and my general disabilities. if this post needs more trigger tags, please let me know and i'll add them.
my whole life i have been treated as if i am not struggling because i can do the bare minimum to keep myself alive. i can survive, but never thrive, and even surviving now has become difficult. i can't feed myself regularly, my guardians do that for me. i can't stand for longer than a few minutes at a time without extreme duress and pain, which makes cleaning, showering, and going out super difficult and beyond draining. i can understand abstract concepts and certain ideas and am emotionally intelligent, but i struggle heavily with understanding money or how government works, particularly when it comes to laws and loopholes. i don't know when i'm "being had", as it were, and others have pointed this out to me throughout my adulthood. it feels as though this entire disability journey has been me "being had". they gave me something to cling on to, the possibility i may be able to receive real help, and it seems as though they basically knew the whole time they were going to deny me again. for the fourth time. i know that is unrealistic but, it does feel that way.
i wrote several full length books when i was a child / young teenager, and had two published. i won't share the titles because i have outgrown what i wrote and find them childish and frankly embarrassing, but everyone upon learning that i have written and had novels published, immediately jumps to the conclusion that i am some kind of self-sufficient, incredibly intelligent and capable person. i have never once been able to effectively take care of myself. without my guardians, i wouldn't be able to manage money, insurance, bills, cars, groceries, among other things. i don't even halfway understand how insurance on anything even works despite having been shown how it works.
i can see something, be "taught" to the best of someone's ability, and i will still not be able to learn. this has been a constant issue throughout my life, and the american public school system has continually helped these issues perpetuate. all schooling has done is teach me how to parrot back concepts and ideas, remember them for a limited amount of time before losing them to the void, and not how to fundamentally understand and learn them or utilize them in daily life. even higher education was like this, and i was not able to thrive throughout my experience with college despite making mostly okay grades (i cheated and lied a lot, okay. i'm not proud of it but i felt i had to get through or i would be severely punished). i had to a sign an agreement that i personally still do not fully understand to "obtain" my associate's degree, and i do not know why despite the fact it was explained to me, in detail. the information has not registered, and i now no longer have anyone that was involved in said agreement to explain it to me. everyone i say this to is like, "what? that doesn't make any sense." and i'm like. yeah. it doesn't, and i have zero ability to explain it to them in a way that makes sense.
i mention my associate's degree because i am sure in some form or fashion it was used against me in the disability process, since i was "able to complete higher education". also it should be noted i did an early college program. also probably has been used against me. also cheated through most of it.
people have always considered my kind of autism to be hyper competent, since it appeared that way when i was a child, despite showing several signs that i was struggling with a math-centric learning disability, called dyscalculia. i have since deteriorated to the point of barely having the knowledge a young adult should have, about how life works financially and honestly in general.
i have extreme fear about what may happen to me without proper assistance. my guardians will be able to take care of me for some time, but after that? that feels like a black hole to me. it doesn't exist nor will it while i am under-assisted, and this black hole fills me with utter despair. i try not to let it permeate my daily life, so as to not dwell in a future that doesn't exist yet and has the possibility for change. but god. it fills me with literal existential dread, and it is becoming so much more difficult to ignore the older i get.
a lot of factors have been used against me my entire life to deny me assistance, and these reasons being yet another factor has really dredged up a lot of shit from my past.
this is besides the point, but i also learned recently that CSAM was made and distributed of me when i was a child and wow. that has hit me in ways i cannot even describe. part of me is like, why was i not allowed to know after the fact, even when i became an adult? i was directly involved. why did no one tell me my abuser was convicted for counts of spreading CSAM, and that they lied directly to the court system about their inappropriate actions with me? i was disenfranchised in more ways than one by more than one person on allowance of my abuser, and i am just now hearing about it. i don't know how to deal and i don't know how to get started with victim advocacy in my area.
but at the same time, whilst being treated as severely more competent than i am, i have also been infantilized relentlessly, by nearly everyone around me. how does this make any sense. i feel incredibly stupid and uninformed and at the same time privy to things about my disabilities others are not, while not being able to effectively communicate it. i feel i am screaming and begging for help, nearly at my wits end with a lot of things, and all of it is reading as "owie booboo" to anyone who could do anything to help. i feel i am falling through the cracks, and i fear having to crawl back up through them. i fear i won't make the trek. i fear i will lose motivation and let myself rot. it feels like no one in a position of power has taken a true effort to really help me and i cannot help or advocate for myself. i am very scared.
on top of all of that stuff, i am withdrawing pretty heavily from cymbalta, experiencing heightened panic attacks every day, PNES (psychogenic non-epileptic seizures), more episodes of psychosis and hallucinating than i'm used to, all of my mental and physical issues are out of control, and now this disability stuff. i also won't be able to see a psychiatrist for...maybe a week or so more, so no bridge meds till then.
these last couple weeks have just really kicked me down. thank you for reading if you got this far. i appreciate you more than you know and i have no idea where i would be without y'all and this blog. i love you all so very much.
-ish
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idk, i feel like it can’t be overstated that satine kryze /would/ be so proud of bo-katan especially right now. she’s unifying the people, she’s gaining respect and loyalty beyond that which lies with the darksaber, and she’s doing everything in her power to keep her people safe and well.
she even gave up and surrendered everything, taking huge risks to ensure the safety of her people, and while it backfired her intent was so good and pure. she’s come so incredibly far from when she was in death watch, she’s living with kindness instead of hate, and i think that’s everything satine would have wanted for her.
i see people say that satine would blame bo-katan for what became of mandalore but i couldn’t disagree more. satine knew how hard ruling mandalore was. she’d never hold it against bo now, especially with everything bo did to save it, and with everything she’s doing now to get it back.
satine would be so incredibly proud of her and i won’t hear any different.
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On activism and health (and learning from my mistakes, please...)
There is. Oh my goodness, there really is, a happy medium between "positive vibes only" ignoring other people's suffering, and "never look away, this *should* be swallowing your life and health, be willing to sacrifice everything about yourself for this issue".
Here is one way to tell if you've fallen on the wrong side: when you look back at the past two months and your health (which was already very poor, like, "nowhere near well enough to work, needs a full-time carer" poor) has deteriorated absolutely terrifyingly for reasons completely and blatantly connected to not-looking-away and trying-to-do-all-you-can, and in the end all you have to show for it is a few posts boosted here and on Instagram and a few petitions signed. I mean, useful, better than nothing, goodness knows we need people doing those things, but hardly world-changing on its own. And not worth destroying a body and brain for.
Sometimes self-sacrifice is a thing that a person is called to do, but a) not many people are and that's as it should be, and b) the whole point of self-sacrifice is that you don't do it for less than making a huge, huge difference for good. Throwing yourself away for nothing or a few scraps of small internet activism isn't self-sacrifice, it's self-negation, and it helps nobody. (Except, possibly, those powers of oppression and injustice, because then that's one fewer person to trouble them in the future, or at least for a long while to come.)
And unless you're called on to do that kind of sacrifice? Aim to still be able to do activism (at whatever level you can do it) in ten years time. Twenty. Thirty.
Don't be callous, don't stop caring, don't treat climate change or what's happening in Gaza or anything else like that as normal. We're all needed, over time, to do what we sustainably can. But my Gods, sustainably. That means taking meaningful breaks. It means both self-care and (where relevant) group-care. That means choosing what forms and level of activism you can do without harming yourself. That means noticing how you're doing, and not going "well it's fine that I'm suffering, [x group of people] are suffering worse". Because that is not how solidarity works.
(I think of myself as pretty sensible and pretty invested in self-care and pacing and stuff, and I still fell dramatically down that hole because yes, this post is absolutely about me over the last two months. But I'm posting here even though it's hard to talk about, because I'd be astonished if I'm the only chronically ill person who gives a lot of a shit about things who hasn't been making some very unwise choices, especially lately, that ultimately aren't good.)
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Who do you think of the group feels the worst about what they did when they were Ultimate Despair? I know all of them most definitely feel horrible about everything they did under Junko's influence, but who do you think is/are the one who feel the WORST about what they did?
Considering Mahiru and her stance on murder (well she was vocal about it anyway), I bet she feels pretty awful. Guilty by lack of action, like she didnt kill anyone (in my world) but she stood by and happily watched. Also she's an extra ironic twist on her mom the photographer inspo.
Ryota we already know is a ball of guilt about running away so like canon
Souda pumped up global warming and caused worldwide possibly irreversible damage, is reminded every night that he cant see the stars, oof
I dont think Teru is necessarily /guilty/ any more than the others, but his speculated actions are just, WOW levels of gruesome, how do you come back from that
The idea of Sonia personally denting a whole country's population is also a big ouch probably. Like her actions might have had some of the highest casualty numbers even if she was probably very hands-off about it
And on a smaller scope, if Nekomaru wakes up bigger and buffer than ever and finds out Akane was emaciated, there's like a personal pain in him letting his friend-protege that he's very protective of and who has a history of food problems starve halfway to death while he was clearly taking great care of himself.
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