#postural tachycardia syndrome

[thatchronicfeeling]

Reminder that it's less than a month before pharmacies will be closed for end-of-year holidays. Make sure that you will have enough medications to see you into the new year.

#chronic illness #ulcerative colitis #pots #postural orthostatic tachycardia syndrome #postural tachycardia syndrome #disability

[cripplecore]

happy POTS awareness day to those who are very aware already <3 it's a struggle, but you're not alone out there

#disabled #disability #cripple punk #cane user #chronic pain #chronic illness #actually disabled #dysautonomia #dysautonomia awareness #dysautonomia awareness month #pots #pots syndrome #potsie #postural orthostatic tachycardia syndrome #postural tachycardia syndrome #pots awareness #pots awareness day

[i-the-spoonie]

pots be like

#pots #chronic illness #potsie #postural tachycardia syndrome #mecfs #spoonie #disability #temperature dysregulation

[nagichi-boop]

Winter is the season of being able to wrap up warm, wear a hat to cover up the hair that you haven’t had the energy to wash, cover those legs that you haven’t had the energy to shave, put a heat pad on the part of your body causing you pain.

And then there’s summer. /neg

#/lh #tagging stuff that may apply - not necessarily that I have #pots #postural tachycardia syndrome #postural orthostatic tachycardia syndrome #ibs #celiac disease #fibromyalgia #pcos #polycystic ovary syndrome #me/cfs #myalgic encephalomyelitis #chronic fаtiguе ѕуndrоmе #chronic illness #chronic pain #disabled #disability #hidden disability #physically disabled #nagichi talks

[thebeesbox]

Day 48 of Pride Flags Drawn as Foxes: POTS flag

#art #digital art #artist #digital arwork #digital painting #artists on tumblr #painting #fox art #pots #pots syndrome #postural tachycardia syndrome #pots awareness #disabilties #disabled artist #disability pride #disabled #disability #disability pride month #actually disabled

[mischiefmanifold]

Me: stands up

My body: headache, tremors, blurry vision, heart rate shoots up, dizzy, swaying, unbalanced, sweating, and more

#pots #potsie #postural tachycardia syndrome #postural orthostatic tachycardia syndrome #pots syndrome

[fantasy-store]

anemia and pots flags

anemia(left), a condition where the blood cells are low on iron and the person requires iron supplements, low iron can cause dizzy spells, fainting, nausea and even completely passing out or worse depending on how low the iron levels are and for long they've been that low. the flag colours represent red and white blood cells (top) and iron levels (bottom), this flag is exclusive to people with anemia.

pots(right) stands for Postural tachycardia syndrome, a condition related to the heart rate. the symptoms of pots and anemia can overlap quite a lot but both are very different conditions. the flag colours have no particular meaning its just the colours i associate with pots. this flag is exclusive to people with pots

transx/transid ppl do not fucking touch my shit thanks

#anemia #anemic #anemia flag #anemia pride flag #pots #postural tachycardia syndrome #pots flag #pots pride flag #physical disability #chronic disability #disabilties #disability #disability flags #admin kazuha/link #flag design #flag reblog #flag blog #my flags #pride flags #pride flag #flag designs #flags for disabilities #flag coining #flags for physical disabilities

[oddballcobblebot]

its so comforting to me to make headcanons of my favorite characters that are just traits of mine. like yes! oswald cobblepot has POTS!! and as someone who struggles with POTS a lot, its comforting to me to be able to give my own traits to him.

i have chronic painful headaches that are triggered by lights, smells, etc. my heart rate skyrockets when i stand up, i get dizzy and my vision starts going black or atleast blurry. sometimes its incredibly hard to get out of bed. i dont want to stand up. i dont want to be unable to breathe, hoping i wont actually pass out and it'll go away if i just stand and wait.

it gets so hard that i wont eat until i get nauseous from waiting too long, and i keep so many drinks by my bed so i wont have to get up and get anything else. it hurts, my body hurts from barely moving, my head hurts from being unable to take care of myself like i should. i still dont know whats fully wrong with me and what causes me to be that way, just that it hurts and its confusing and scary.

being able to project those types of problems onto such a comforting character like oswald helps me a lot. having someone struggle in that way, exactly like i do, makes me feel better about myself. like im not just begging for sympathy or pity, or wasting my life by never doing anything.

thinking about oswald struggling with all that yet still able to move on with life and go about his day like normal, not worrying about if he'll be able to get up and eat, or worrying about if hes taking too much medicine to make a headache go away. perhaps thinking about him having the proper help/medication/aids helps me a lot despite how stupid and cringe it may sound.

my headcanons about disabilities and health conditions help me a lot, they comfort me and make me feel like i deserve help, and i deserve to feel better as well

#gotham #oswald cobblepot #dc universe #gotham penguin #dc characters #dc penguin #actually pots #postural tachycardia syndrome #disabled #disability #disability positivity #disability month

[eliias-bouchard]

yo whats pots stand for b/c I didn’t know it was all that abnormal to be out of breath after walking up 1 flight of stairs

postural tachycardia syndrome! tl;dr from what i know of it, badically when u stand up all the blood in ur body tries to go down cus gravity. normally your automatic nervous system tightens the blood vessels and slightly increases your heart rate to compensate, no biggie.

in pots, your ANS doesn't know how to do that, so instead your heart has to speed up a /lot/. you're also likely to get dizziness, lighthearted and tunnel vision when standing.

there are other symptoms, like heat intolerance, but also chronic fatigue & exercise intolerance, both of which would factor into being winded after walking upstairs

#not tma #answered asks #pots #postural tachycardia syndrome #lol nobody's gonna follow h tho at #that8 #that* #pots syndrome #physically disabled #physical disability #chronic fatigue

[a-typical]

So why is BHC pushing the clinical education agenda about measuring orthostatic intolerance? Why, as one person asked me, have we “pulled the [10-Min NASA] Lean Test from the dustbin of history” when high-tech options such as Tilt Table Testing (TTT) exist? One reason is that TTT is not available to everyone, and OI is an important presenting aspect of ME/CFS and Long COVID, along with other post-viral syndromes. The NASA Lean Test can be cost-effectively done in a primary care clinic and carried out by trained nurses, physician assistants, or other supervised clinical staff, whereas TTT can only be done by specialists using special equipment. We must empower patients and their primary care providers to identify OI, which responds to treatment support, while the science moves forward to understand the physiologic underpinnings.

#covid #long covid #sars cov 2 #sars covid 2 #covid 19 #health #chronic illness #invisible illness #blood brain barrier #inflammation #chronic fatigue #myalgic encephalomyelitis #POTS #chronic fatigue syndrome #ME/CFS #disability #PEM #graded exercise therapy #postural tachycardia syndrome #post exertional malaise #research

[thatchronicfeeling]

July is Disability Pride Month

Let’s celebrate by keeping disabled people ALIVE and SAFE.

Want to know how you can help?

WEAR A MASK. 

(FFP2/3 or N95 give best protection, especially the ones that fasten behind your head)

#disability #disability pride month #immunocompromised #me/cfs #myalgic encephalomyelitis #chronic fatigue syndrome #ulcerative colitis #ibd #Inflammatory Bowel Disease #pots #Postural Tachycardia Syndrome

[cripplecore]

how ironic is it that october is dysautonomia awareness month when a lot of us are dealing with the october slide. like, yes, be aware of us during the time that our symptoms are flaring the most /lh

#in other words it went from 80°f weather to 50°f weather pretty much overnight and i have a cold now lol. #disabled #disability #cripple punk #chronic illness #chronic pain #chronically ill #dysautonomia #dysautonomia awareness month #pots #postural orthostatic tachycardia syndrome #postural tachycardia syndrome #<- this is obv about other dysautonomia types too btw :) not just pots

[halfbluemoons]

Covid with POTs is no joke, hot damn. Any other potsies gone through this? How did you manage?

#POTS #potsie #postural tachycardia syndrome #postural orthostatic tachycardia syndrome #covid

[nagichi-boop]

What are some good mobility aids/tools that help with POTS? I have a cane (that I’ve not yet used and is more for knee pain) and a knee brace (not used, is for knee pain), but I have a lot of fears about using stuff, especially cuz I’m not yet diagnosed.

If I do get diagnosed, I’d consider getting a rollator so I can sit down when I’m out. Other than that, are there other things I can get now? I’ve heard compression socks are good for making sure your blood doesn’t pool. Idk, I am open to input.

(Also for context, I haven’t been diagnosed, but I did the lay down then stand up test every day for about a week. My heartrate goes from 70bpm laying down to around 120bpm standing. I have an appointment in a few weeks where imma talk to the doc about this and hopefully be tested properly.)

#hopefully this isn’t offensive to ask when I’ve not been dxed #pots #postural tachycardia syndrome #postural orthostatic tachycardia syndrome #chronic illness #chronic pain #disabled #disability #hidden disability #physically disabled #nagichi talks

[my-cages-were-mental]

does anyone here have PoTS? will someone be willing to talk about what it’s like? i’ve been wondering if i have it but i need further explanation of what life is like when you have it, or what some (mostly untalked about) symptoms are. 

#PoTS #Postural tachycardia syndrome #adhd #autism #anxiety

[mischiefmanifold]

fellow people with POTS, I have a question!

if you tried taking salt/electrolyte tablets or upped your salt intake a lot, did you notice any difference in symptoms? and if so, how long did it take for you to notice a difference in symptoms?

#pots syndrome #potsie #postural orthostatic tachycardia syndrome #postural tachycardia syndrome #pots #disabled #disability #actuallydisabled