Oh boy. I guess I can try to sum it up as difficult, tiring, slow going. Should I go through a day in the life?
Wake up (for probably the third or fourth time, since sleep is often disjointed). You’ve got the sweats even though you’ve had a fan on you all night. Sit up very slowly as your joints and head start to ache and your heart starts palpitating. Hopefully have someone waiting to help support you when you first stand up.
You may or may not get to finish breakfast, depending on the nausea and stomach cramps. Spend the day sitting. It’s better if feet are elevated and wrapped in a heating pad. Have a fan nearby. Turn it on. Get chills three minutes later. Turn it off. Get hot flashes. Turn it back on. Off. On. Off. On, all day. The constant noise of the fan will probably give you a headache.
Hydrate with lots of water. Get bloated, have cramps and an upset stomach. Standing up so you can use the bathroom makes your vision go black and your heart start racing, so you’ve probably got to stop and rest a couple times on the walk over there. Rinse and repeat throughout the day. (It takes five times longer for me to walk somewhere than the rest of my family; we’ve timed it)
Wipe yourself down and change clothes because you’ve sweated through them. See if you’re up for any other kind of hygiene. Probably not. You’re already shaking and your feet are burning from standing too long. Get super sluggish and have brain fog from the afternoon to evening.
Take sleep aids for the insomnia, put on a brace so your bones don’t dislocate in your sleep, go to bed with the sweats, turn on the fan, and wait for your heart to stop palpitating so you can sleep again.
There are probably some Potsies out there who are coping a little better or a little worse than I am, but that’s an honest look at how it goes for me. ^^