#punks supporting punks

[chronicbitchsyndrome]

so: masking: good, unequivocally. please mask and please educate others on why they should mask to make the world safer for immune compromised people to participate in.

however: masking is not my policy focus and it shouldn't be yours, either. masking is a very good mitigation against droplet-born illnesses and a slightly less effective (but still very good) mitigation against airborne illnesses, but its place in the pyramid of mitigation demands is pretty low, for several reasons:

it's an individual mitigation, not a systemic one. the best mitigations to make public life more accessible affect everyone without distributing the majority of the effort among individuals (who may not be able to comply, may not have access to education on how to comply, or may be actively malicious).

it's a post-hoc mitigation, or to put it another way, it's a band-aid over the underlying problem. even if it was possible to enforce, universal masking still wouldn't address the underlying problem that it is dangerous for sick people and immune compromised people to be in the same public locations to begin with. this is a solvable problem! we have created the societal conditions for this problem!

here are my policy focuses:

upgraded air filtration and ventilation systems for all public buildings. appropriate ventilation should be just as bog-standard as appropriately clean running water. an indoor venue without a ventilation system capable of performing 5 complete air changes per hour should be like encountering a public restroom without any sinks or hand sanitizer stations whatsoever.

enforced paid sick leave for all employees until 3-5 days without symptoms. the vast majority of respiratory and food-borne illnesses circulate through industry sectors where employees come into work while experiencing symptoms. a taco bell worker should never be making food while experiencing strep throat symptoms, even without a strep diagnosis.

enforced virtual schooling options for sick students. the other vast majority of respiratory and food-borne illnesses circulate through schools. the proximity of so many kids and teenagers together indoors (with little to no proper ventilation and high levels of physical activity) means that if even one person comes to school sick, hundreds will be infected in the following few days. those students will most likely infect their parents as well. allowing students to complete all readings and coursework through sites like blackboard or compass while sick will cut down massively on disease transmission.

accessible testing for everyone. not just for COVID; if there's a test for any contagious illness capable of being performed outside of lab conditions, there should be a regulated option for performing that test at home (similar to COVID rapid tests). if a test can only be performed under lab conditions, there should be a government-subsidized program to provide free of charge testing to anyone who needs it, through urgent cares and pharmacies.

the last thing to note is that these things stack; upgraded ventilation systems in all public buildings mean that students and employees get sick less often to begin with, making it less burdensome for students and employees to be absent due to sickness, and making it more likely that sick individuals will choose to stay home themselves (since it's not so costly for them).

masking is great! keep masking! please use masking as a rhetorical "this is what we can do as individuals to make public life safer while we're pushing for drastic policy changes," and don't get complacent in either direction--don't assume that masking is all you need to do or an acceptable forever-solution, and equally, don't fall prey to thinking that pushing for policy change "makes up" for not masking in public. it's not a game with scores and sides; masking is a material thing you can do to help the individual people you interact with one by one, and policy changes are what's going to make the entirety of public life safer for all immune compromised people.

#dyspunktional #cripple punk #actually disabled #cripplepunk #a lot of these are major concessions for me personally as i'm an anarchist and loathe to support further concentrations of state power #but if you're gonna be operating within the structure of the system. here you go. handing you a cheat sheet for what you should demand.

[hell-on-sticks]

I think maybe not enough people in disability spaces think about what it's like to need the assistance of a carer.

It's a different experience for different levels of need. Some of us might need only low support, or support with specific tasks. Others need higher support, and there are many disabled people who need assistance with most or all daily tasks.

Dependence is a scary thought for some people, but for many it's a part of everyday life. Some level of dependence is common for disabled people, and needing carers or support workers is not as uncommon as people think.

Disability conversations often don't discuss carers, or don't allow people to bring their carers into the conversation. Some people may need assistance from carers or support workers to be in a physical place for community. Some might need help using online spaces like tumblr. Some might need help communicating. Carers are a part of life for many and talking about carers is important.

Carers can be positive, supportive and good relationships. But can also be stifling or even abusive. Care is complicated, and people should be able to talk about it.

I can only talk about my experience of lower level care. I invite people with formal support workers and full time care to share.

#disability #disabled #carer #support worker #cpunk #cripplepunk #cripple punk #stick talk

[crazycatsiren]

There are disabled people who can't brush their teeth, wash their faces, brush their hair everyday. Who can't shower often. Who don't always have clean clothes to wear because they can't keep up with laundry. They deserve respect and support.

#disabled #spoonie #cripple punk #disability support #disabled community #chronic illness warrior

[lemonouiiid]

REUPLOAD BC I MAY BE STUPID 🔥

flawless, lawless

(sketch version below)

(my ass is NOT studying + bonus hobie)

#across the spiderverse #across the spider verse fanart #atsv #atsv fanart #hobie brown #miles morales #punkflower #spiderman #spider punk #SORRY ESTOY STUPIDO #but yeah like i said i like the sketch version more bc ofc …. #but i had to redraw it into my sketchbook even tho my blue marker is unwillingly being held on life support #broke? make it work #trust me it looks better irl

[chronicallycouchbound]

I feel like people often don’t talk about the experiences of disabled people who have caretakers because so much of the conversation is about us—not including us.

I receive in home care for 30 hours a week (+ 4 hours/week for respite). This is paid for by Medicaid (state insurance). Outside of paid hours, my primary caretakers care for me unpaid and assist me most of the time. I’m very rarely left alone due to my high support needs. Often, when I am left alone, I am completely bedridden or at minimum housebound. I have frequent emergency life threatening health problems, falls, and serious injuries even with support in place, and these things significantly increase when I’m on my own.

I’m extremely lucky that my paid caretakers are my partner, my sister (the only family member I have regular contact with, I’m estranged from the rest of my immediate family and most of my extended family) and my best friend.

I used to have agency staffing which was horrible for me and borderline traumatic. At several points, before doing the self directed care option (which allows me to choose my own staff, hire and train them myself and dictate hours for them), I opted to not have any staffing. I was regularly in the emergency room. I can’t drive, so I was having to walk and if I was lucky enough to be able to take the bus on occasion or get a ride from a Facebook acquaintance, they were few and far in between. I don’t have family support, and even my sister who is supportive wasn’t living in the state at the time and doesn’t have a car most of the time.

And before I could even choose which staffing option, even though medically it had been deemed essential for me to have in home care, even though my insurance covered it, I had to wait several years (I was 18 when I was approved) until I was 21 to qualify to start. The reason why: I was legally an “adult disabled child” because of my high support needs (which is funny because I STILL don’t have SSI at age 24) and thus legally unable to consent to my own care plan. I needed a blood relative to consent, and that same blood relative (who had to have proof of such!) couldn’t care for me. At the time, my sister was the only person who could’ve been my caregiver and also she is the only verifiable blood relative I have contact with for safety reasons, and my only relative on this side of the USA.

The first business day after my 21st birthday I immediately got things set up to get in home care.

This is out of date, I get assistance with more than just these highlighted ADL (activities of daily living) tasks now.

In short: my day-to-day life is entirely dependent on others.

And there’s power imbalances that exist between me and my caregivers, even with my current caregivers being amazing and anti-ableist. They will always exist. We talk about the power dynamics of me being dependent on them for my survival, and how heavy that weight can be for each of us.

Having caregivers often means that accessibility is extra difficult— I’ve been told straight up multiple times that I can’t have assistance from my caregivers to help me change in a changing room when we’re out shopping. That they can’t go into the bathroom with me, that they can’t help me get un/dressed during appointments, that they can’t come into spaces with me.

I’ve been denied access to psychiatric care because I can’t do my daily living tasks (ADLs- the highlighted items) independently. And when I’m in a hospital or emergency room, I can’t have my in home workers be paid to care for me, there’s an expectation that the nursing staff at the hospital will do it. Even though my caregivers were specifically trained to learn my body and needs for weeks and have been working with me for years. I have severe cPTSD and showering in front of a stranger is something I cannot do. I would rather fall or faint or get injured or just not shower than deal with that. But I’m expected to just let anyone have access to my body just because I’m physically disabled and need support.

When I faint/fall/get injured/have life threatening health issues arise while I’m not clothed, or when I’m otherwise vulnerable, I’m supposed to let strangers just touch me however they want to. I have to show them my chest (for my cardiac care) and let them poke and examine me. I can’t object without losing access to vital care.

I have agency. I have rights. I have autonomy. I deserve to be able to exercise these things.

#chronically couchbound #disability #disabled #disabled pride #cripple punk #cripplepunk #disability pride #high support needs #ableism #professional caregiver #activities of daily living #ADL #medicaid #healthcare #in home care #home care #home care aids #nothing about us without us

[p1xelpc]

Why Life is a Tragedy

[ Plain text: Why Life is a Tragedy ]

My daily routine is usually very empty. Most days it goes like this:

My mother brings me my breakfast at 8. That consists of yogurt with berries and granola, protein shake, and a cup of strawberry milk (a small cup, so I don’t upset my stomach).

She says good morning and helps me rearrange myself if I’m awake. If I’m not, she goes to her office across the hall.

I take about 15 minutes to actually work up the energy to eat and take my meds. I play Wordle while I wait.

If I feel up to it, I go to the bathroom, change my diaper, use hand sanitizer, and wash my face. Some days I may brush my teeth with a toothbrush and water. Those are rare days.

After I finish, I stay in my bathroom chair for 5-10 minutes while I work up the energy to get back to bed.

When I do get back to bed, I decide what activities I will do that day.

If I feel up to it, I set up my activities around my legs so that I can do it when I’m ready. If I don’t, I ask mama if she can set up when she gets the chance.

I play on my phone and socialize on Tumblr and Discord. I try to do my activity.

I do that until lunch. Taking breaks every 5-30 minutes depending on the activity.

Lunch is around 12. It has been hard boiled egg whites, cucumber slices, and a small cheese recently. Soon it may change to a prepackaged lunch with crackers, ham, cheese, and mini cookies. I get another (small) cup of something other than water. 

After I eat, I decide what activity I will do for the rest of the day and try to set it up. I usually do not succeed and need mama to come help.

I play on my phone and socialize on Tumblr and Discord. I try to do my activity.

I do that until mama finishes work. She comes in to take my dirty dishes and she asks what I want for dinner. I want pasta please. She goes to make pasta.

I continue my activity.

She brings me my pasta and another (small) cup of something other than water.

I eat.

I do not do an activity. I may watch TV. I play on my phone and socialize on Tumblr and Discord.

At 8:00 mama comes to help me to the bathroom. After I finish, she comes in to help me wash my hands, wash my face, brush my teeth, and put on my Testosterone gel. We talk the whole time.

I go to bed. Mama helps get me situated. She helps me take my meds.

After mama closes the curtain, I play on my phone until around 10.

I go to sleep.

On weekends my days are different. Mama has to help me shower at least once (usually Sunday). That takes about 1-2 hours total. I need a lot of help.

Some days I have doctor appointments. I take around 45 minutes to get ready. It usually takes 15 minutes to get to the office. The appointments usually last an hour, not including wait time. After I get home, I lay in bed for the rest of the day and do not use the bathroom that night (I am too tired).

I cannot leave the house most days. There are many days I can barely leave my bed. Some days I cannot leave my bed at all. My usual pain level is at minimum a 6. I cannot speak, only make funny sounds. I require at least 2 forearm crutches to walk safely. I usually need a wheelchair to move. I cannot leave the house without my ear defenders on. I take a fully packed backpack everywhere I go. I need support to sit up and to stay sitting.

My hobbies include coloring, playing video games, making disability aid designs, writing, reading, and baking. My favorite animal is a Triceratops, though I only like the cartoonish designs. I like fluffy animals. I love Bluey. I enjoy learning about disability related topics. I read children’s novels because they are what I understand. I love going to the zoo. I love going to the library. I enjoy warm weather with light wind. I enjoy dressing up and doing makeup. I love ice cream cake. On days with nice weather and good health, I like to go outside and just sit. 

I have 2 stuffed animals that I take everywhere (Jameson and Gerald). I have 1 that I take lots of places (Fred). I have 2 that usually stay on my bed, but travel if I’ll be gone for a while (Kougie and Melon). My favorite colors are yellow, pink, and green (no particular order). I use a light Bluey blanket, a light dino blanket, and a weighted blanket every night. I use at least Little Pillow every night (it has smiley faces). I have a cat shaped pillow for my neck. 

Did you decide if my life is worth living? Do you need more information? Do you think I’m tragic? Do you need to give your sympathy to my carer as if I don’t exist? Do you know my sense of humor? Do you know why I am loved? Do you know my limits? Do you know what I am capable of? Do you know what brings me joy? Do you know if I’m a person? Do you know my identity? Do you know who I am?

Do you know if I am happy? 

Do you care? 

This inspired by Unspeakable Conversations by Harriet McBride Johnson

#not know if people will understand #this the one that not know where going with #this the one that made cry #pix writing #disability #visible disability #high support needs #medium support needs #autism #nonverbal #physical disability #nonspeaking #wheelchair user #cripple punk #c punk #disabled #actually disabled #actually autistic #disability visibility

[crybabyboyscout]

#novseyeview #black tumblr #punk #afropunk #lesbian #black lesbian #grunge #goth #mall goth #handmade #wearable art #evil eye #evil eye protection #spirituality #black spirituality #black artists #artist support #trans artist #trans art #two spirit #2 spirit #indigenous art #indigenous #glitter #tripp pants #tripp nyc #pharaoh

[4r14nn3]

#punk #anarchopunk #anarchy #anarquia #anarquía #anarchism #anarquismo #anarquista #anarchist #punketo #punketa #punks #punketos #punketas #comunidad #community #union #unity #support #change #competition #apoyo #apoyo mutuo #mutual support #politic #politics #política #politica #social change #social justice

[yellowyarn]

i love you autistics who don't have special interests

I love you autistics without sensory issues

i love you autistics who are hyposenstive

i love you autistics who are both hypo- and hypersensitive

I love you autistics who hate routine

i love you low empathy autistics

i love you high empathy autistics

I love you autistics with lots of freinds

I love you autistics who are hyper verbal

i love you autistics who make lots of eye contact

i love you autistics who can't mask

i love you autistics who dont know who they aren't behind their mask

i love autistics who are "childish"

i love autistics that have never had a meltdown

i love autistics with catatonia

i love autistics with intellectual disabilities

i love autistics with Anxiety and/or Depression

i love autistics with Psychotic Disorders

i love autistics with Bipolar Disorders

i love autistics with Obsessive-Compulsive Disorders

i love autistics with truma Disorders

i love autistics with Dissociative Disorders

i love autistics with Eating Disorders

i love autistics with Somatic symptoms Disorders

i love autistics with Sleep Disorders

i love autistics with addictions

i love autistics with Personality Disorders

i loved autistic systems

i love autistics with multiple disabilities

i love autistics that can't work

i love autistics that cant leave their house

I love autistics who can't live alone

i love autistics who use AAC

i love poc autistics

i love people with autism who prefer person first language

i love autistics who use function labels

i love autistics with outdated diagnoses

i love autistics who were/are misdignosied

i love self diagnosed autistics

i love all autistic people

#autism #disability #mental disabilities #nuero punk #auti punk #asd #autipunk #nueropunk #level 2 autism #level 1 autism #level 3 autism #low support needs #medium support needs #high support needs #auti #autistic #autism acceptance #nuerodiversity #mad punk #mad pride #actually autistic #autistic spectrum #autistic things #autistic adult #autism pride #autistic pride #disability pride #autism spectrum #autistic community

[the-swift-tricker]

hey friendly reminder cause it's always good to remember to support jewish people, protect jewish people, call out antisemitism wherever and whenever you see it, encourage jewish voices, and stand up for the jewish community

#support jewish people #jewish #antisemitism #politics #punk #goth #swift-tricker's posts

[car-toons]

My favorite part about reverse Adrien is that he still gives off prep energy, most likely because of his father. He rebels, but the rebellion is small, in the haircut and eyeliner. But when he transforms in the Claw Noir, his rebellion is free and he goes FULL PUNK! I love my son so freaken much!

#miraculous ladybug #miraculous #mlb #miraculous tales of ladybug and chat noir #miraculous world #ml paris special #ml paris spoilers #ml spoilers #adrien agreste #claw noir #griffe noire #reverse special #he is so cringe I love him just the way he is #my baby #my son #he wants to be punk so bad #I support this rebellion

[moonliiteallniite]

Another patch design for my fellow queer rage enjoyers

#patches #patch designs #battle jacket #punk diy #punk fashion #my art #trans rights babey #i support gay wrongs

[crazycatsiren]

Supporting disabled people includes not being fatphobic toward disabled people who are fat, in case you're wondering.

#disabled #cripple punk #disabled community #fatphobia #ableism #disability support

[gregrulzok]

Look, I get it, Punk has a very vast culture of music and fashion and really anyone who identifies as Punk would be smart to delve into those things and at least research them, if not adopt them to a certain degree (Punk fashion especially as it's mostly based on reducing consumption and upcycling, which any self-respecting Punk should try to do)

But at the end of the day if there were two rooms full of self-identifying Punks, who'd you rather spend time with?

The ones dressed in Khakis and Button-Ups that listen to indie or pop or whatever, but would gladly break a chair over a Nazi's skull and rip Bezos' nails out one by one

Or the ones dressed in Spikes and Leather that listen to the Clash and Sex Pistols, but think trans people are pedophiles in disguise and homeless people don't deserve human rights

By using "Music Based Subculture" as the End-All-Be-All of what Punk is, you're literally holding the door wide open for a bunch of mouth-breathing capitalist republican conservative Nazi assholes who just happen to like loud music to invade our space. I don't give a flying fuck what someone wears or what they listen to cause at the end of the day it literally doesn't affect me even a tiny little bit. Their ideology and worldview, on the other hand, does.

#punk #discource #alt #punk culture #i don't even get what the issue is #oh no they dont listen to the bands i like #who cares #who actually gives a shit #are they a good person #do they got your back #do they support minorities and fight against discrimination #do they hate capitalism with a burning passion #lets focus on the real shit here for a second

[lazylittledragon]

i'm just going to say it, i think that billionaires who actively choose not to use their hoards of wealth for good and then die horrifically in circumstances entirely of their own selfish creation is EXTREMELY funny.

#ramble #don't say eat the rich unless you fucking mean it #being sad about this wouldn't be very punk of me #if you could end world hunger and every day decide not to i support your brutal death #“it's a horrible way to die” so is starving. PERISH

[jodjuya]

#punk #support #Anarchy #anarchism #anarchist #mutual aid #blogging