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#pyoderma gangrenosum
batwynn · 3 months
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My dermatologist laughing when I told him taking a simple shower triggered my autoimmune disease to the point where I had 20+ blisters/potential wounds pop up and telling me to “be more careful” was my last fucking straw after years of his mistreatment and refusing to classify my disabling and chronic disease as a fucking disability.
Letter to the office sent with file request. Official complaint to the medical board drafted and ready to go.
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sodaacrush · 1 month
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URGENT!! PLEASE READ/SHARE 🚑‼️📢
My parents have started a GoFundMe for my mothers medical expenses because insurance doesn't cover all of her medicines, supplies to wrap her deep wounds, or hospital bills anymore. My mother is disabled and requires constant medical care. I'm begging you to spread this as far as you can!! Even just sharing the link helps! https://www.gofundme.com/f/4hu3ma-uncovered-medical-costs?utm_campaign=p_lico+share-sheet&utm_medium=copy_link&utm_source=customer
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chronically-crying · 11 months
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One time before I even got sick I said (mostly joking) to my mom and sister that the American healthcare system has a personal vendetta against me (I have now been cucked by blue cross blue shield, COBRA, PrefferedOne, and for both lifesaving and not strictly necessary medical things) and my sister's response was "IDK the American healthcare system hasn't been particularly kind to me either" (she had a broken leg that needed surgery but she had to come home and wait several days before she actually went back and got the metal screws in her leg that she needed for the bones to heal properly)
but joke's on her because no I have been 1) in preauthorization hell for HRT for 3 full months (my gender care doc had never seen it takes that long) 2) I had a full psych eval scheduled bc I suspect I have ADHD and a psychiatrist I saw was like "yeah you should probably get the whole deal" and it was cancelled the day before, 3) I got diagnosed with IBD, given 2 months worth of Prednisone and told "you'll see someone in 6 weeks" only for the appointment to cancel the day of bc I was 17 and they weren't licensed for peds, 4) I've been on 3 different biologics now for IBD, Remicade which barely worked, Entyvio which did not work, and now Stelara which is great. IF ONLY MY INSURANCE LET ME HAVE IT because reauthorization came around in March and it got denied and ever since I have been living on the edge of a Crohn's flare
BONUS: this isn't insurance related but I got a fancy rare skin condition called pyoderma gangrenosum (DONT GOOGLE THIS ITS HORROR MOVIE SHIT) which is heavily related to Crohn's but because of how it presents it doesn't totally seem like an autoimmune condition and I was treated for the wrong thing from mid-May to the end of July before someone went "have you seen a dermatologist yet? Bc this is definitely not an infection" and I basically suffered for 7 weeks for no reason
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fantailandfern · 6 months
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I don't mean to gloat, but I walked for 10 minutes today. Without crutches.
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badjokesonme · 2 years
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due to recent events:
Just calling someone with significant scars on their face "shitface" and laughing about it like you just delivered a great punch line is not an appropriate joke. Not even if that person is a good friend.
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qqhakusho · 2 years
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Chronic illness and constant pain. Depression, anxiety, self-loathing, and isolation. Wounds that won’t heal and scars that make me feel like I’m not human. No cure and treatments losing effectiveness. Stage 3, so nothing I do is helping. I’m very tired, it’s been 10+ years.
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bluesidedown · 5 months
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gotta say it's a bit weird to have a chunk of skin about an inch square on ur shoulder where all the nerves are apparently dead
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delveinsight12 · 9 days
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Psoriatic Arthritis Clinical Trials, Emerging Therapies, Key Companies | A Drug Pipeline Analysis Report 2024 | DelveInsight
DelveInsight’s 'Psoriatic Arthritis Pipeline Insight 2024' report provides comprehensive global coverage of available, marketed, and pipeline Psoriatic Arthritis therapies in various stages of clinical development, major pharmaceutical companies are working to advance the pipeline space and future growth potential of the Psoriatic Arthritis pipeline domain.
Key Takeaways from the Psoriatic Arthritis Pipeline Report
Over 50+ Psoriatic Arthritis pipeline therapies are in various stages of development, and their anticipated acceptance in the Psoriatic Arthritis market would significantly increase market revenue. 
Leading Psoriatic Arthritis companies developing novel drug candidates to improve the Psoriatic Arthritis treatment landscape include AbbVie, and others.
Promising Psoriatic Arthritis pipeline therapies in various stages of development include ABT-494, Risankizumab, and others.
Psoriatic Arthritis Overview
Psoriatic Arthritis is a chronic inflammatory disease of the joints that can be associated with the psoriasis. It can affect both peripheral joints and axial skeleton causing pain, stiffness, swelling and joint destruction. This joint pathology develops gradually and cause more nuisance than disabling. 
Psoriatic arthritis is considered as seronegative spondyloarthropathies. The fact that it is Seronegative is that the blood tests negative for some factors that is present in rheumatoid arthritis. 
Spondyloarthropathy describes a group of conditions that all share common characteristics. First, there is a presence of arthritis that affects the spine. Second, inflammation occurs in ligaments, tendons and sometimes in other organs such as the eye.
Request for a sample report to know more about Psoriatic arthritis treatment algorithm and diagnosis.
Psoriatic Arthritis Pipeline Analysis: Drug Profile
Risankizumab: Abbvie
Risankizumab is an interleukin-23 (IL-23) inhibitor that selectively blocks IL-23 by binding to its p19 subunit. IL-23, a cytokine involved in inflammatory processes, is thought to be linked to a number of chronic immune-mediated diseases, including psoriasis.
Discover more about the emerging Psoriatic Arthritis drugs @ Psoriatic Arthritis Treatment Drugs
Psoriatic Arthritis Key Companies
AbbVie
Psoriatic Arthritis Pipeline Therapies
ABT-494
Risankizumab
Psoriatic Arthritis Pipeline Therapeutics Assessment
By development stage
By product type
By route of administration
By molecule type
By MOA type 
Scope of the Psoriatic Arthritis Pipeline Report 
Coverage: Global 
Key Psoriatic Arthritis Companies: AbbVie, and others
Key Psoriatic Arthritis Pipeline Therapies: ABT-494, Risankizumab, and others
Find out more about the Psoriatic Arthritis treatment options in development @ Psoriatic Arthritis Clinical Trials
Table of Contents
1. Introduction
2. Executive Summary
3. Overview
4. Pipeline Therapeutics
5. Late-Stage Products (Phase III)
6. Mid-Stage Products (Phase  II)
7. Early Stage Products (Phase  I/II)
8. Preclinical Stage Products
9. Discovery Stage Products
10. Therapeutic Assessment
11. Inactive Products
12. Collaborations Assessment- Licensing / Partnering / Funding
13. Unmet Needs
14. Market Drivers and Barriers
15. Appendix
16. About DelveInsight
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desmoinesnewsdesk · 5 months
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Pyoderma Gangrenosum Market to Show Incremental Growth During the Forecast Period 2032, Asserts DelveInsight | Companies – Johnson & Johnson, AbbVie, Amgen, Novartis, Eli Lilly and Company, Genentech
http://dlvr.it/SzB20d
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columbianewsupdates · 5 months
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Pyoderma Gangrenosum Market to Show Incremental Growth During the Forecast Period 2032, Asserts DelveInsight | Companies – Johnson & Johnson, AbbVie, Amgen, Novartis, Eli Lilly and Company, Genentech
http://dlvr.it/SzB1zD
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thealphareporter · 5 months
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Pyoderma Gangrenosum Market to Show Incremental Growth During the Forecast Period 2032, Asserts DelveInsight | Companies – Johnson & Johnson, AbbVie, Amgen, Novartis, Eli Lilly and Company, Genentech
http://dlvr.it/SzB1TM
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batwynn · 5 months
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Autoimmune Antagonist
There’s something catastrophic In me that wants a new tattoo. Something eating from the inside out That remembers the million bee stings. That knows it would continue eating until limbs were lost Until the body was wholly gone. That creature begs for each scar to be eviscerated by needles. Branded by images over broken flesh. Fuck the consequences. Let my blood bleed with ink And the black and blue birds skitter across my stained bones.
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thesunshinereporter · 5 months
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Pyoderma Gangrenosum Market to Show Incremental Growth During the Forecast Period 2032, Asserts DelveInsight | Companies – Johnson & Johnson, AbbVie, Amgen, Novartis, Eli Lilly and Company, Genentech
http://dlvr.it/SzB1NH
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chronically-crying · 2 years
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December 2020: gets sick, doesn't think it's a big deal
April 2021: very sick, hospitalized for 5 days. IBD diagnosis, 60mg prednisone
June 2021: 20mg prednisone, get sick again from untreated IBD, hospitalized for 8 days, starts remicade
August 2021: remicade not effective enough, double frequency
September 2021: no prednisone, flare, back to 60mg of prednisone
January 2022: remicade not effective enough, starts entyvio
February 2022: starts getting sick again
March 2022: colonoscopy, back on 60mg prednisone
May 2022: dermatosis starts, hospitalized 4 days, 3 days/week wound care, extreme pain causes inability to move comfortably
June 2022: off prednisone, dermatosis worsens, hospitalized 11 days, can only take narcotics for pain but cannot get prescription
July 2022: goes to dermatologist, gets pyoderma gangrenosum diagnosis, starts on cyclosporine and clobetasol, gets substantial oxycodone prescription
August 2022: starts stelara, PG improves, pain greatly improves
September 2022: gets COVID, pain worsens
So how's your past 2 years been?
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grimnir-hexx · 8 months
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Growing up with Chronic illness
I grew up with chronic illness, a rare hereditary condition called pyogenic arthritis and pyoderma-gangrenosum or PAPA syndrome. I grew up in hospitals, almost died a bunch, and had many surgeries. I guess this is as good a place a as any to write about it, since I don't give a shit if this is seen or not.
I guess I'll just post about my life, chronic pain, mental health- all the stuff I have experience in that might help others if they happen to ever see this. If not, great place to collect thoughts for a book at some point.
Next post-how to have fun in waiting rooms!
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Pyoderma Gangrenosum in a Patient With Dubowitz Syndrome
http://dlvr.it/SnqhbP
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