y'know I think the name "restless leg syndrome" does a really bad job of conveying how the disorder actually feels and it's increasingly pissing me off that when I try to look for information about relieving it, almost nothing mentions how painful it can get.
everything makes it sound like it's vaguely uncomfortable but no it feels like my blood is carbonated and there's something crawling around and buzzing under my skin and it's agonisingly painful and the only thing that relieves it is shaking my legs as much as possibly except we're in the middle of a fatigue flare so I don't have the energy for that
edit: the name also makes people think it's just bouncing your legs a lot or whatever. I've seen people thinking it's just another name for stimming by bouncing your legs
do you have any tips for restless leg syndrome. it seems to get worse when i'm tired or it's close to medication time (i take oxxycodone for chronic pain)
I myself don't have RLS, so I can't give any advice. But if anyone with RLS would like to reply to this post, I'll gladly repost this as a thread. 💙🥄
My restless leg syndrome took the "keep moving to prevent blood clots" advice that the nurse gave me at discharge yesterday and went "on it boss! 🫡" and I have not had a moment of peace since
One of my only cons of the 2023s is the stretches aren’t always bilateral (on both sides) BUT there’s more than enough time inbetween commands to even it out.
this is your daily reminder you can't just ask someone w/ tourettes/RLS/autism to "just stop" when their ticks are happening.
i promise it's not hard to not be a dick to neurodivergent people bc they annoy you with their whole existing with a disability thing you can just have basic respect it's easy