For anyone who is semi verbal, nonverbal, or otherwise struggles with speech, please know that there are people who will accept your methods of communication. There are people who won't infantilize you for using AAC, communication cards, making noises instead of words, etc. There are people who won't expect you to pick the mask up again when you stop being so 'talkative'. There are people who don't mind waiting for you to sort your thoughts, and are happy to include you in the conversation.
There are people who accept you as yourself, and I don't just mean toleration.
What are resources for doing things that usually require verbal phone calls for nonverbal/deaf/HOH/etc ppl?
Cus I regularly run into problems where I have like, phone calls for making appointments with doctors, or I have to call my bank to fix something regarding my card or account, and I'm forced to ask for help from a family member where they speak for me, or have to pretend to BE me (which is it's own problem!!! That can be very legally sketchy!!!) In order to get things done, and I want to become more independent in being able to do those things myself in the future...
So... What are ways you can work with/around things where you would typically need to speak over a phone to accomplish? I know there has to be SOME way, I just... Have no idea what.
Sometimes terms mean certain things and belong to certain groups of people and are not meant to apply to people outside that group. And that is on purpose and valid. You can make your own terms to describe your own experiences, you don't get to take terms from other people, especially people more vulnerable/less privileged than you. If multiple people tell you that the term is not for you, respect that.
When terms get used for many different situations they get diluted and trivialized. Remember "trigger"? It was a specific medical term and is now used to mean "something that pissed or upset someone". Brain fog is now turning into abled people just being a little sleepy or out of it, not literally a clinical term for brains not functioning correctly due to various illnesses. I tell someone I have brain fog and they say lol me too XD no you fucking don't. "Spirit animal" was taken from indigenous peoples so white people could make funny haha relatable t-shirts. Two spirit almost got taken by queer white people as well (although I think most people have backed off on that hopefully).
Not everything needs to apply to as many people as possible. You don't need to and can't relate to everyone. We can still support each other while respecting differences.
Things you can’t do when you’re mute (partially for the pnf community partially cause i was just thinkin about it):
- Phone calls (yes they have TTS apps that can do this but a) they cost money to remove ads that physically interrupt you and b) people are stupid sometimes and constantly ask if you’re still there even when you introduce with the fact that you’re mute and to give you time to type)
- Fast food drive throughs
- Communicating while carrying things
- Communicating while driving (unless you are with someone who can understand sign/one handed sign)
- Asking people if they need help quickly without stopping them and having them wait for you to type
BONUS, doable things that are just kind of annoying:
- Paying for gas with cash
- Buying things at a register instead of self checkout
- Really just paying for anything in cash
- People acting like I am deaf when I am actively listening to music with large over the ear headphones loudly and having to point to my ears and do a thumbs up (this usually get the point across)
BONUS TWO, things that are cool that have happened to me:
- A hispanic guy (this is relevant) came up to me at a gas station who had seen me paying for gas inside and I guess heard me blasting my music and started speaking to me in spanish. I understand enough spanish that i was able to get that he was asking if i was mute, then he asked if i understood spanish and i shook my head, and he switched to english and started telling me about a seminar he went to on mutism. He was very sweet and it made my day
- The woman who is always working at the panda express I frequent at my school learned how to say a few things in sign presumably because I go there a LOT
- A little girl at the summer camp I went to who connected with me heard another kid ask me why I was using my phone to speak and said loudly “Some people can’t hear and some people can’t speak its a disability”
- Another little girl at the same camp kept running out into the hallway and the teacher was older and worried more about keeping an eye on everyone than her comfort so I offered to watch her in the hall. I sat down with her and asked her if she was overstimulated (in a way a small child would understand) and she nodded. I don’t remember what I said next but she signed me too. I signed asking if she signed and she signed back “a little”. I explained why I couldn’t speak and she said she was the same. I nearly burst into tears for this child and the connection we had. I spent the rest of the day with her. She spoke quietly to other kids but with me she would just smile big and point to things she wanted to show me. We read some of her favorite books quietly sitting next to each other.
- Teaching kids the ASL alphabet, they are always so eager to learn
If anyone is mute or has recently gone mute or has non verbal episodes I am here with you. There’s nothing wrong with us. I love you.
I'm quite sick of people saying that it can't be 'selective mutism' because "it's due to autistic symptoms and selective mutism is a separate anxiety disorder on its own". Yeah, I know it is.
But you know what's very popular with autism? Comorbid disorders.