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chronicallycouchbound · 9 months

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Most wheelchair users are ambulatory.

Meaning, most of us can walk for short distances. We aren’t faking just because we can walk some of the time.

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crazycatsiren · 1 year

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Spoonies who don't have the spoons to clean, whose homes are messy, I love you and it's not your fault.

#disabled #spoonie #cripple punk #chronic illness warrior #spoonie community

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littlemissomega · 8 months

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How Low Can You Go ?

Diabetic!reader x Stucky

Summary: reader’s blood sugar drops in the middle of the night

Warnings: Dangerously low blood sugar, low blood sugar symptoms (head racing, shaky, brain fog), crying, blood, mention of glucose tablets (which is kinda a medication? It helps get your blood sugar up), orange juice, fluff, pet names (Ladybug, princess, sweetie, honey, etc)

Short and sweet enough to give your hyperglycemia (high blood sugar)

For reference, any blood sugar below 70-80- depending on your dr- is considered low

Masterlist

Why is my heart pounding? Y/N wonders groggily as her eyes flutter open. She can tell something is wrong. Her skin feels clammy and her whole body is shaking. Y/N slowly sits up, looking around confused. Her brain feels foggy and she can’t think straight. Tear well in her eyes from the frustration and she put her face in her hands.

“Are you okay, baby?” Bucky asks, voice thick with sleep.

Y/N bursts out in tears and he shoots up in bed.

“What is it? What’s wrong?” he asks, putting a hand on her cheek. Her skin is cold and sticky under his palm, “Steve, wake up,”

Y/N feels Steve sturs and sits up on her other side.

“Ladybug, what’s wrong?” Steve asks, rubbing her back.

“Don’t kn-know can’t think heart don’t know don’t fee-feel good,” Y/N sniffles.

“What’s your blood sugar?” Bucky asks, turning on the lamp.

Y/N squeezes her eyes shut, nuzzles her face into Steve’s chest in the bright light.

“Huh? Don’t know too dizzy,” she whimpers.

“It’s okay, princess, we’ll make it all better,” Steve soothes, wrapping his arm around her and Bucky grabs her phone off the nightstand.

Bucky goes straight to her Dexcom app.

“Shit,” he mumbles, pushing the blankets off and jumping out of bed.

“What? What is it?” Steve asks, tightening his grip about Y/N

“40.1 (2.2mmol/L) with double arrows down,” Bucky calls as he runs down the hall to the kitchen.

Bucky’s hands tremble as he grabs two bottles of orange juice from the fridge, as well as Y/N’s glucose tablets.

“Let’s manually check, baby,” Steve suggests, gently turning her so her back is against his chest. He grabs her diabetes bag off the nightstand and gets the glucometer (what checks how much sugar is in your blood) out. He quickly puts a strip in before getting the lancet (finger pricker) out. He quickly cleans her shaking index finger with an alcohol swab before pricking this finger.

“Oww Stevie,” Y/N whines.

“I know baby, I’m sorry,” he soothes, wiping the blood up with the strip. Steve lifts her still bleeding finger to his lips and sucks on it gently. 3…2…1…

“39.3, Buck!” Steve calls, releasing her finger with a pop.

“That bad?” Y/N slurs.

“Don’t close your eyes, Ladybug, Bucky will be right back,” Steve tells Y/N, gently tapping her cheek as her eyes start to close.

“Don’t li-like it,” she responds. Steve wipes the tears from her cheeks.

“I know, baby. Here’s Bucky!” Steve points out as Bucky plops down on the bed.

“Here you go, Ladybug,” Bucky voices, opening the orange juice and lifting it to her lips.

Y/N struggles to part her dry lips, still feeling confused. The sugary, tart juice is a shock to her system and she almost chokes on it.

“There you go, baby, think up,” Steve whispers, placing a hand on the back of her head.

“Take this too,” Bucky adds, opening the glucose tablets and getting two out. He gently parts her lips with his thumb and places them on her tongue before lifting the juice back up. She swallows them without hesitating.

“You’re doing so good, honey,” Steve soothes, “Keep drinking it,”

Y/N obeys, swallowing until the last drop is gone.

“Do you think that’s enough?” Steve whispers.

“I think? I don’t wanna overtreat and it goes high. Let’s just wait 15 minutes and recheck,”

“Bucky?”

“Yes, baby,” Bucky responds, putting a hand on his girlfriend’s leg.

“I’m sor…sorry I woke you up,” she stutters.

“It’s okay princess! I’m sorry you’re feeling icky. You’re gonna start feeling better soon, honey,”

Bucky places a hand on Y/N’s cheek and she leans into it.

“I love you,” she mumbles.

“I love you too,” Bucky smiles.

“And I love you,” Y/N repeats, flopping her head back on Steve’s shoulder.

“And I love you too, Ladybug,” Steve chuckles, “You’re our best girl. Always,”

Masterlist

Taglist:

@liidiaaag

@flourishandblotts-inc

@aagn360

@smromanoff

@butyoudontlookdisabled

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adhdstudybitch · 4 months

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Remember that cardiologist I was soooo happy to see, who was so knowledgeable and made me feel so heard? This dude. THIS FUCKING DUDE. Told me like a month ago (maybe like 6 weeks ago) that they've been seeing cases of people developing dysautonomia after getting the covid booster, especially young people with autoimmune issues, right? So today when I bring up how my pcp wants me to get the next shot, he not only says "it won't do anything negative to you, you have nothing to worry about" but also "I don't think it's necessary for you to get the next shot. Maybe at the start with OG covid when even healthy people were getting really sick, but not anymore. Especially since you're a healthy adult with a strong immune system."

My friends. I have been on tacrolimus for 3 YEARS straight because every time I stop taking it my FUCKING KIDNEY DISEASE RELAPES. Immediately! I will be on an immunosuppressant for who knows how long, and I have fucking POTS, and this dude told me I'm a healthy adult and shouldn't get anymore vaccines. Cuz I'll be fine if I get covid.

I didn't even have it in me to argue, I just looked at my wife like o.O and they looked back like O.O and wow. Wow. He was in the room for less than five minutes, and all I got was "dysautonomia usually goes away on its own so wait a few weeks, increase your salt intake, and don't bother protecting yourself against covid." I felt like I was seeing a completely different doctor.

I'm really fighting the petty urge to message my PCP and ask for a "second opinion" since "my cardiologist doesn't think it's worth my time to get it" and just fucking let her at him. Or worse, my Nephrologist. God, that woman would eat him alive. We should all start weaponizing doctors against each other. They won't have time to tell us to lose weight if they're too busy ripping each other's limbs off.

#lex rambles #I'm fucking livid #like maybe he's in holiday mode and worn out but I don't really care #and no he wasn't wearing a mask #dysautonomia #pots #pots syndrome #chronic illness #disabled #spoonie #spoonie community #I hate it here

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puppyvenom · 1 year

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if you are ftm/transmasc and also physically disabled or bonus points if u class urself as cripplepunk pls drop me a message/reply/reblog in tags if it’s ok for me to message you!!

need opinions on the idea of a disabled transmasc zine<3

ableds + non-ftm/transmascs r welcome to rb for reach (it’d b v appreciated<3)

update: hiya!! ur local cripple popping in to say that i appreciate everyone’s comments n messages!!! there’s a lot of u i think i still haven’t got back to but i am plagued with Being Disabled and the project is on pause (in terms of collabing, i’m writing my own pieces until i’m ready to organise things again)!!!

please continue to send messages/drop comments if ur interest i promise i will get back to this<3

#sludge speaks #disability #physically disabled #cripple punk #cpunk #cripplepunk #crippunk #transmasc #trans #ftm #transgender #transman #trans man #chronically ill #chronic illness #spoonie #spoonie community #punk

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chronicallykiki · 2 months

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VOD : February 15th 2024

youtube

Final Fantasy XIV

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plushies-and-petrichor · 5 months

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thefriedbird · 1 year

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Lol just had some “Christians” pray for my disability while I was with my family enjoying Christmas lights.

I hate abled bodied people.

How about… don’t fucking do that 🙂

#chronic illness #fibromyalgia #spoonie #chronic fatigue #chronic pain #ptsd #actually ptsd #chronically ill #fibrolife #spooniepower #spoonie community #disabled #pots #ableism

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torque-witch · 9 months

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Disability Pride Month pill organizer stickers are now available!

Death’s Head Divination

#torquetalks #deaths head divination #disability pride month #disability pride flag #spoonie art #spoonie community #chronic illness #autoimmine disease #pill organizer

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calmmyfears · 1 year

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One of the hardest parts of being chronically ill and disabled is not the constant pain and fatigue for me, it is the choosing. Making the heart wreching decisions over and over in choosing between things that you love to do. Having no choice but to prioritise even when those priorities are all equally important. I can't practise photography this week because there are people who depend on me and I have to get to these appointments. I have to be cautious that I don't burn all my energy at the end of the week and that means giving up on things I enjoy. I want to do it all, I don't want to constantly having to say no to people and activities, but my body is physically not able to do it all. And that still shatters my heart every single day.

#spoonie community #fibromyalgia #chronic fatigue #disabled #chronic pain #living with chronic illness

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chronicallycouchbound · 8 months

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Being disabled is beautiful, but it’s also difficult. Both things can be true.

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crazycatsiren · 1 year

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Fellow spoonies, I'm wishing you all the spoons for February!🥄

#disabled #spoonie #cripple punk #chronic illness warrior #spoonie community

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tears-of-amber · 10 months

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Today I’m struggling from extreme fatigue. Today I will be gentle with myself, and extra patient. If I sleep the whole day, that’s completely fine. I’m not wasting time if it’s rejuvenating me.

#personal stuff #velvet rambles #spoonie community

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exlibrisfangirl · 10 months

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✨️ UPDATE (finally... sorry) ✨️

Hi friends!

First of all, I am now 4 months post-op, and recovery/rehab is still going very well! I am having some testing done in the coming weeks to try to figure out what's causing the nerve damage to my left leg/where the damage is in order to try to fix it, if it's fixable. In the meantime, I'm having a custom AFO brace made to help with my gait issues. My leg/lower back pain has improved by about 80% compared to the week before surgery, which is HUGE. I've been doing aquatic therapy for the past 3 months, which has helped tremendously.

Secondly, I'm DELIGHTED to announce that I have finally landed a job! I will be working remotely - 100% from home - as a Crisis Counselor for my state's Suicide & Crisis youthline. (I will be the person who answers the phone when someone calls the helpline.) I'm relieved to be employed again and so, SO excited about this opportunity! This job is absolutely ideal for me right now - for a number of reasons - and it was more than worth the wait (and the super intense interview process... seriously, PHEW). Training starts in mid-July.

Last, but not least: because I won't start getting paychecks until August, I will need financial help - approximately $800 - to get through July. If y'all can share, I'd REALLY appreciate it!

Venmo: Mellifluity8

CashApp: $mellifluity8

PayPal: link

Thank you SO MUCH to all of you who have unfailingly supported me throughout this difficult process. We're nearly there! 💛🙏🏻

#mutual aid request #mutual aid #crowdfunding #spoonie community #spoonie life #exlibrisfangirl #personal post #okay to reblog #self reblog

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chronicallykiki · 29 days

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VOD : March 16th 2024

youtube

Final Fantasy XIV - Magia

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plushies-and-petrichor · 1 year

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I recently went to FanExpo New Orleans, and I had one of the most liberating and validating experiences I've ever had.

On the very last day of the con I had completely lost my voice..I couldn't even manage a whisper. Even tho I wasn't emotionally or mentally ready to do so, I used my text to speech app on my tablet and communicated via AAC throughout the entire day.

It was the first time I'd EVER done that.

What blew me away was the reaction I got. Every single person that encountered me using my AAC immediately registered what was happening and responded so positively. A few began using sign language with me in addition to verbal speech and one even had a conversation with me about my AAC and being autistic.

That was the first time in my life that I've ever been in public without masking. I felt so safe and seen and validated and I never dreamt I could be somewhere like FanExpo, with literally thousands of people, and still feel comfortable enough to drop my mask and be visibly autistic.

I'm genuinely considering using AAC more after that experience and I'm starting to see jus how much as mask in my day to day life. It was eye opening in a way I didn't expect.

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