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#spoonie love
420spoons · 11 months
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Me every time I do a single thing while my chronic illnesses rip my body to shreds.
Periwinkle and mauve bird painting with the words written above - “The risk I took was calculated, but man, am I bad at math.”
Art by - @mincingmockingbird
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spoonful116 · 10 months
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The most punk thing you can do as a disabled person is love and value yourself and not push yourself past your limits for the sake of other's approval
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cryptcatz · 8 months
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i have GOT to get over my obsessive worry about being a burden on others oh my god. it is okay to inconvenience people! people in your life who really care about you won’t mind being inconvenienced!! it’s literally just the human experience!!! communicate your needs for the love of god it’ll be FINE!!!!!
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send help, romantic orientation crisis /ma
am I lesbian, or am I omni? who fucking knows??? not me! it all hinges on this one trans man, and I don't know if I ever was attracted to him, or if I was attracted to him after he transitioned? if I stopped, I feel like id identify as lesbian, but if I did, im def not be lesbian, he's a guy obvi. but that also makes me confused about all my past crushes? was it romantic or platonic? please send help, and what the difference between romantic and platonic attraction is. also spoons. unrelated but spoons r good and i have none
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800-dick-pics · 3 months
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Support my Service Dog in Training!!!
This is my 10 week old great dane mix SDiT! This big boy has a necessary vet appointment this week and next week for his puppy vaccines. We also need to get him puppy socialization classes, training tools and gear as he grows. Please support us on our journey to becoming a service dog team!
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CA: $sleepyhen
VN: wildwotko
DM 4 P@ypal
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neuroticboyfriend · 4 months
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hi disabled friends. here's list of minimal things you can do to increase your hygiene & comfort today, if possible ♡
put on at least 1 clean(er) article of clothing (ex: underwear)
brush your hair
rub your teeth with a towel
rinse your mouth with water
splash your face with water
grab a clean(er) blanket
flip your pillowcase to the side you haven't been using
change your posture, stretch
put on a gentle light, or draw the curtains
allow yourself at least a few minutes in a quiet environment
put on some soft background noise (ex: ambient sound, lofi)
try to pick out some pleasant sensory input (ex: birds chirping, how soft your clothes/blanket is)
and if you cant do any of these, dont guilt yourself. disability isnt a failing, and you're doing the best you can!
(yes, this post includes chronically ill and neurodivergent people! you're disabled too!)
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alex2xander · 1 month
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Shout out to all the tumblr users dealing with daily fatigue and severe depression.
Respect to those who have medium and high support needs who need assistance with bodily functions.
Love to those who cannot safely leave their bedrooms or home due to the pandemic and lack of societal support.
Care to those who spend the majority of their life online because this is the only way they can socialize with the outside world
There are so many of us trying to make it day to day. I love you and you're not alone in this.
I love you people who have to be carried, lifted, or escorted in mobility aids to do daily living tasks
I love you people who depend entirely on your cariers and personal aids for every function
I love you people who haven't been able to shower in over a week and therefore have tangled or matted hair and body odour
I love you people who have been wearing the same clothes for over a week
I love you people who dont have the energy to get out of bed to use the bathroom and need to use diapers or a bed pan
I love you people who havent been able to cook their own meal in months
I love you people who have piles of dirty clothes and trash scattered around their room
I love you people who uncontrollably drool on yourself and your property
I love you people who have slowly lost mobility and function over time and are adjusting to their new life
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vintage-tigre · 9 months
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wizario11 · 1 year
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Disabled people are not burdens to their relationships.
Non disabled partners aren't saviors.
They all add something to their relationships
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clownrecess · 11 months
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You are not gross, or bad, if you struggle with hygenine. Its okay! Last night I brushed my teeth, which was a big achievement for me! Whatever achievement you made, I'm proud of you. And if you didnt make an achievement, I'm still proud of you. I love you so much, and your ability to take care of yourself is irrelevant to that love. /p
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disability-can-be · 5 months
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Heya everybody! Time to check in.
How's your body feel? Do you need to move, stretch, stop clenching, or change positions? Have you fed and hydrated yourself? Taken care of your bathroom needs? Cleaned up, showered, or changed your clothes as you're able? Taken any applicable medications?
How does your mind feel? Are you stuck? Do you need to change activities, talk (or stop talking) to a particular person, or listen to a different playlist? Have you done something to nurture peace in your heart? Have you seen the sky and breathed some fresh air (even through a door or window)?
I love you, and I hope you have a better day tomorrow!
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walterfartzroy · 9 months
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i love you diabetics.
i love you type 1s, i love you type 1.5s, i love you type 2s, i love you prediabetics, i love you gestational diabetics, i love you diabetics who don't fit into a single type/have a specific type not mentioned here, i love you recently diagnosed diabetics, i love you diagnosed years ago diabetics, i love you diabetics who use CGMs, i love you diabetics who prick their fingers, i love you diabetics who do MDIs and fight with needles, i love you diabetics who use pods/pumps/infusion sets, i love you diabetics who use insulin inhalers, i love you diabetics who are sick and tired, i love you diabetics who went into DKA, i love you diabetics who have "bad" a1c, i love you diabetics that are struggling to stay motivated to care care of yourselves. i love you diabetics!!!!!!!!!
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audhd-space · 3 months
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ID :
“I remember you said that thing has caused you so much discomfort/pain, so I actually take note of it and after much careful consideration and hundreds of researches I actually decided to buy/build this for you.”
underneath it there are 14 green flags to emphasize the importance
THIS IS IT FOLKS.
THIS IS MY LOVE LANGUAGE.
THIS IS HOW I WOULD WANT TO BE LOVED AS WELL.
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ironwoodcollective · 9 months
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🌳 For any spoonies for whom trauma and/or abuse are a contributing factor in your physical disability or physical chronic illness, we see you and we love you.
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neuroticboyfriend · 1 year
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hi you! here's your daily/nightly reminder that:
your voice should be heard.
your health is important.
your pain is not insignificant or lesser than others'.
you are not on this earth to be "productive."
you are the only one who can define your experiences.
you are cared for, even if only by strangers. we care.
now go stretch, hydrate, nourish, and lay down (if you can). just do your best, and don't worry if other's think it isn't enough. it is, and im proud of you.
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thedisablednaturalist · 2 months
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Tw for weight loss mention
The whole exercise will cure your disability thing is a fucking joke. Yes exercise is beneficial for your health, but only if you aren't already on shaky foundations. You need to be on a treatment plan that WORKS before going into the maintenance phase. You wouldn't do regular maintenance on a broken item, you'd work on getting it up and running first. And maybe it would even need specialized maintenance afterwards if it's especially fragile.
I have fibromyalgia and acute degenerative disc disease. My immune system attacks my nerves and discs in my spine are slowly calcifying and causing the bones to constrict and damage my nerves (i think thats how it works). I have days where it feels like my body is on fire from nerve pain and days where it feels like my spine is about to rip from my back. And days where I have both (like today!). I get numbness in my hands and feet. I have horrible migraines. I can no longer walk unaided more than maybe 5 minutes without severe pain. I have something wrong with my knees and hips but the doctors don't know what yet.
You'd think I live an obviously seditary lifestyle correct?
Hell no.
I walk aided on average 6 miles a day over difficult terrain OUTSIDE of regular activity almost everyday. My legs are muscular and strong. I get my heart rate up and a good sweat, like all the gym rats swear on. I am often doing physical labor such as weeding, digging, sample collecting, pruning trees etc.
I'm not saying this to make other disabled people feel bad or prove that they can do anything if they just tried harder. This is an extremely painful lifestyle I've chosen that takes a lot of lifestyle management AND BOUNDARIES to keep up with the work. I also have an extremely forgiving boss who is also physically disabled and knows what I'm going through (deciding between your passion and your health and having to do so each and every day) No one should ever be expected to do what I do. I'm not even sure if I should be doing this myself.
This is to prove that exercise? Has not cured me. My muscles are strong but still hurt as if they're broken and I have to take more breaks than my coworker. I am constantly getting out of breath and I flare up regularly if I'm not careful. I am in excellent physical condition outside of my disabilities. I go to different doctors several times a month to get checked out.
I previously went through a diet program and lost a lot of weight (basically starving myself and got off my depression meds which cause weight gain but are also the only ones that work) and guess what? That didn't do shit either!!! I still felt horrible!!! I've since gained back the weight anyway after switching to focusing on adding more nutrient dense foods than taking stuff away from my diet (also muscle weighs more than fat, and fat helps cushion my aching joints and spine).
The muscle doesn't do shit for my disabilities outside of maybe some stability. Exercising everyday doesn't make the pain go away. Without my medications and aids and nutrition plans and steroid injections and spinal adjustments and physical therapy (that takes my fibro and spine into account) and alternative work methods I WOULD NOT BE ABLE TO DO WHAT I DO. Exercise alone is like trying to make a car run with no oil. Yes it'll go but it'll get more and more damaged till it can't and will need its entire engine replaced!
And yet I see new doctors and they look at me and the first thing out of their mouths is do I exercise? I should try doing a little every day :) and then i fucking blow their minds when I tell them about my job. No longer can they use that fucking cop out on me. I've been through this rodeo. Ive tried their suggestions. If you are in pain and nothing is helping? Exercise ain't going to do SHIT. You need to get to a point where you can move without severe pain first (if that's even possible). Then and only then should you consider implementing regular exercise if you can. Also weight loss talk is a red flag and a cop out. They made me lose 50+ lbs before they would look into the reasons behind my pain. Weight loss did nothing for me and exacerbated my pain.
I am living proof that all that shit is a lie and a cop out. That is the point of this post. I cannot believe people with serious medical conditions are being forced to put their bodies through extreme duress just to be believed. You are not disabled because of laziness or because you sit a lot. Plenty of people live seditary lifestyles and do not live in constant excruciating pain (they may develop disabilities later in life due to this however, and should be doing preventative exercises to maintain their health)
Please, share my story with doctors. Use me as an example. I am proof that "exercise first treat later" does not work. I should not have had to wait years to have my pain validated. I'd rather hundreds of fakers get (what? A blood test? An MRI?) than one chronically ill person get told to try yoga and go away by a doctor.
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