#spoonies family

[deliciousbelieverobject]

I'm begging you, pleeeaaase if you live with a physically disabled person and they tell you what would make the living space more accessible, DO NOT SAY "just ask me for help." I don't want to have to ask for your help dumping out yesterday's coffee grounds in the french press.. I want to be able to make coffee without having to ask for help every. single. fucking. day.. Like, why don't able bodied people not understand that asking for help to do every little thing fucking SUCKS?? Also, when I'm upset because my own home isn't accessible, don't get mad at me as if it's something personal towards you.. It has absolutely nothing to do with you. I'm allowed to be mad at the lack of accessibility my disability creates... Don't make it about you.

#disability #chronic illness #spoonie #disabled #chronic pain #disability rights #disabilties #ableism #family

[youngchronicpain]

Having to ask for help from someone when they are the reason you are flaring is so frustrating. Like! You pushed me to do something I told you I could not do! You put me in a position that I felt like I had no choice! And now I have to ask for your help because I'm hurting so bad. It is unfair. I don't want to have to ask anyone for anything ever again.

#this was in my drafts but is very much a mood #I'm lucky that I am not often in this position anymore #but it is something I used to experience with family a lot #chronic pain #spoonie #disability #disabled

[chronicsymptomsyndrome]

As a kid my family used to make fun of me for stuff that is apparently exclusively reserved for “old people” like rolling across the room in a rolly chair to grab something (instead of getting up and taking three steps) or sitting down at a table to do quick food prep like cut fruit or scramble an egg (instead of just standing at the counter for 90 seconds) TURNS OUT what they called laziness was just disability all along haha TURNS OUT I just needed a mobility aid yet here I am today still without one because they gaslit me into believing I was “just lazy” and it took me decades to finally understand that’s not true. haha who knew

#I used to think everyone was just way stronger than me like I was the human version of the runt of the litter or something #please ​take kids seriously about things #fucking hell I hate this world #disability advocacy #physical disability #undiagnosed disability #late diagnosis #autistic trauma #spoonie #pots #dysautonomia #ehlers danlos #ehlers danlos syndrome #low energy #disability accommodations #disability representation #laziness does not exist #fuck ableists #family trauma #disability trauma #fuck ableism #anti fakeclaiming #fuck fakeclaimers #invisible disability #invisible illness #mobility aid #mobility aid user #disability pride

[voidxbrat]

It's honestly depressing how quickly and easily your (abled) family and friends will leave you behind and forget about you when you can no longer push yourself to try to keep up with them. I hate how focused everything is on going out and doing things when it comes to hanging out with so many people. It's sad how many people would rather just continue on with their busy, typical/abled life and forget about the disabled people in their life, rather than stop and slow down with them once in a while.

#personal vent blah #disabled #physically disabled #chronically ill #chronic disability #chronic illness #disabilities #mentally disabled #mental disability #spoonie #I've lost so many people to this #or feel like might as well have #the family i have left went off and got closer and moved in together and continued on without us #literally #already nearly had but during the pandemic #and since #since we've taken covid horribly strictly serious since day 1 #and they all just continued on together #basically just got busy and stopped talking for almost 2 years #and after a brief change it’s right back to it #this is part of other issues also #but this is a big factor here #that applies to most people we have known

[lost-in-azalea-forest]

💊 Hi fellow disabled self shippers 💊

My spoons are a bit low and if yours are too, imagine your f/o being there by your side. They will help you take care of yourself and help you save some energy. They notice if you need water and bring it to you. Their gestures show care, but no pity. They just see you have a worse day and they want to take some weight off your shoulders.

They would make dinner for you (are they a great cook? or are you a bit worried if your kitchen can survive it?) and they would gladly eat it with you. They will spend this day beside you, they want to be there for you, during your highs and lows. Afterwards they remind you to take your meds and help you get to bed. If you want to, they will take a nap with you.

Prosh//ippers plz do not interact PLZ

#f/o #f/o imagine #self ship #selfship #selfshipping #imagine your f/o #romantic f/o #platonic f/o #qpp f/o #familial f/o #i mean its not that bad since i got new meds but i am feeling terrible today and i just like to imagine having someone not judge me for it #and having my f/o help me deal with reality and taking care of my body would be great #also!! naps together!! guys!! do you hear me!! its a great imagine no matter if youre spoonie or not #lying together on one bed holding hands and tangled legs and when they wake up first they are a blushing mess seeing this-- #sleepy f/o imagines are just perfect

[spoonie-selfships]

imagine your f/o helping you through an apathy/depression episode !

do they just sit with you and hold you close , maybe rubbing your back with their lips pressed against the top of your head ?

do they grab you all sorts of comfort items they know you like ?

do they act all goofy to try and get even the smallest smile to crack on your face or maybe because they don't fully understand whats going on but still want to help ?

do they let you vent to them and truly Listen to what you say ? do they give advice ?

do they look up ways they can help in any way possible ?

do they give you space for whatever reason you may have ?

whatever they do , they do it because they Truly Love you. whether that be romantically , platonically , queerplatonically , familially , in whatever way they love you

they want you to know that shits really fucking rough right now , but they'll brave the storm with you , every second of it

-🐱

#-🐱 #spoonie selfships #f/o imagines #f/o imagine #f/o community #f/o #selfshipping #self ship #imagine your f/o #selfship #disability #actually disabled #mental illness #romantic f/o #platonic f/o #queerplatonic f/o #familial f/o #actually mentally ill

[hellyeahsickaf]

Not to keep reminiscing about when I was more abled but man what I'd give to be thinly slicing garlic, onion, tomatoes, throw them in a pot with ghee on medium-high until the onions are translucent and yellowed but not caramelized, and chop some carrots, cauliflower, potatoes, mushrooms, throw them in with some peas and corn and let those cook, mince a green chili pepper, cilantro, and ginger and lime zest, add bit of tomato sauce, then about 4 cups of stock and simmer it on low adding lime juice, a couple of prunes (trust me on this), seasoning it with cumin, cardamom, salt, cinnamon, clove, turmeric, curry powder (most of these spices are in curry powder it's more of a ratio thing), and peppercorn, and then let that bitch simmer for an hour or two until I have curry and throw some naan in a pan with butter, maybe pan fry some okra and make a side of chana masala or dal. No pre packaged meal beats that yknow?

#I'm not even fucking hungry I just want to cook #the reason indian food is so great from a culinary standpoint is that it tends to contain all of the basic flavors #like a perfect combination. salty sweet sour spicy. #also butter. ghee and butter and garlic and love #this and pasta are equally my favorite things to make #chronic pain #cfs #actually disabled #chronic fаtiguе ѕуndrоmе #chronic illness #cfs/me #fibromyalgia #disability #spoonie #me/cfs #pots #postural orthostatic tachycardia syndrome #long covid #eggplant goes well in there but I'm allergic to plants in the nightshade family. salicylate allergy #same reason I'm allergic to NSAIDs #I still eat some of those veggies. for whatever reason bodies react different when it's in like food bc it won't kill me to eat eggplant #but boy will it tear up my GI tract! used to be one of my favorites tho so its sad #no more ratatouille for me :/

[something-existing-somewhere]

It always feels nice to go to my sister in-law's house because I can finally be the favorite uncle haha. At least I can finally be someone's favorite 🥲

#major depressive disorder #chronic pain #fibromyalgia #actually mentally ill #chronic illness #aroace agender #spoonie #chronic fatigue #disability #actually disabled #chronic disability #i just want to be loved #finally #i am loved #in laws #family

[s0fter-sin]

@ my homies with pain disorders, if i described a pain as hollow and feels the way metal tastes, do you know what i mean?

#its my main type of pain other than just a basic ache but my family thinks im nuts (lovingly) #my dad and my sister both have chronic pain and my sister kind of gets it but no really #it feels exactly like a hollow metal bar inside my body that youve licked #but Painful #i had a pain flare today #all in my back and ribs #it came on so damn sudden i got up to make dinner and within five minutes i didnt want to move so it wouldnt get worse #i had my compression belt on so thought that might be making it worse so i took it off #turns out that was definitely the wrong choice and i immediately tanked even harder #i woke up way to early and spent the day on the couch so im not surprised #and its also march and i always flare in march #any other potsies or dysautonomias get march flares? #i know the october slide is a thing and its Very real #but i flare every march like clockwork too #coming out of my cage and ive been doing just fine.txt #spoonie #pots #chronic pain #dysautonomia

[thedisablednaturalist]

You know maybe all this pain is worth it, just to be in his arms for even a moment

#wrenfea.exe #its disabled love hours everyone #went to my favorite fast food place (hangry joes) and then went to the movies to watch the boy and the heron #Then we came back and cuddled and other “things” till he had to leave #my cats also love him and will go up to him for pats #he really tries to be respectful of my disabilities and when he messes up he learns from it #he helps me apply my pain cream and makes sure i drink lots of water #i cant wait to live with this man #and just be one happy family (me and him and my cats and maybe a dog) #i was so stressed about the insurance stuff but spending time with him made me feel all better #its worth it to keep living to keep moving forward #because I have him #chronic disability #chronic pain #spoonie #disability #chronic illness

[humanlyimprobable]

Heyy shh shshshshsh don't cry, buy a bulk pack of pierogies (any flavour you like), bake until golden brown, top with sour cream, great value chipotle & ancho hotsauce, honey, and salt and pepper to taste.

Use a spare piece of bread to soak up any sauce left behind.

Ok?

#important #struggle recipes #spoonie food #recipe #struggle food #low spoons #it will all be ok. love and peace on planet earth. #pierogi #it was so fucking good #it was an experiment and it paid off SO WELL #needed to add more honey though or mix it better. should've done the sauce and stuff before I put the pierogies in my bowl. #but holy fuck I am definitely doing that again #oh my god it was so good #SO SIMPLE TOO #I love pierogies so much #pierogies my absolute beloved. #I need to buy more. I hope my roommates will buy more #they're almost always used as a family meal here which is super nice. #the great value ones are dirt cheap thank gods #I hate walmart but I am also reliant on them right now. #but mmmmmmmm pierogiesssss #I will need to invest in more easy filling food now that I'm in school again

[basicallyahedgehog]

Currently visiting my brother who lives interstate. In the last 2-3 years we’ve both been diagnosed with various chronic illnesses, and while I wish he didn’t have to deal with the things that he does, it is so nice to spend time with someone who knows.

To be able to be completely honest with him, but also to have him trust me to listen to my own body and to be telling the truth when I say I’m up for some adventure or other.

To be able to go our separate ways at 6pm because we’re both exhausted and we understand what that means.

#hedgehog muses #I love my able bodied family so so much and I’m glad they are #but there’s something about having someone who gets it #spoonie #chronic fatigue #fibromyalgia #narcolepsy

[chronicallyillrenegade]

I love my friends so much... I lost my sleeping meds in the trash heap that is the area around my desk, and one of my friends helped me find them without even a lick of judgement of all the garbage and months old food that'd been left to rot.

#chronically ill #chronic fatigue #me/cfs #cfs #spoonie #something my family always fails to do...

[crybaby-writings]

i love you children's shows that include people that use mobility aids, d/Deaf people with AND without any kind of hearing devices, people who veil/wear hijab/turbans/headscarves, people who are jewish, people who speak different languages, people with limb differences, neurodivergent people, people with food allergies, people with service dogs, people with blended families, people who are blind and people who are different weights/body builds

#i love childrens shows that include what my family and friends look like! #it's so important for children to understand their differences and to see their similarities #♤— ash tries #disabled #spoonie #d/Deaf #deaf #hard of hearing

[by-georgie-wood]

repost maybe if you'd like 👀👀

#I HATE KJ APPA #LIKE WHO TOLD HIM HE WAS ALLOWED TO SING #SHUT THE FUCK UP #anyway #polls #spoonies #massachusetts #utah #dead poets society #megalophobia #ehlers danlos syndrome #the partridge family #i know too much about the silly little music family

[ehlers-danloscircus]

Does anyone else have the family member who tries to make conversation by chronically asking why about all your health issues?

Why does your head hurt?

Why do you think you have a backache?

Why do you think that food bothers your stomach so much?

Why do you think you xyz lab result is that way?

TF if I know, if I knew then it probably wouldn't be an issue that I'm dealing with!

#spoonie #ehlers danlos syndrome #chronic illness #chronically ill #ehlers danlos problems #chronically ill problems #strangling my family #I've said so many times how much I hate this #now my only option is to just walk away