#support for the disabled

[thedisablednaturalist]

In case the esim process confuses you or you aren't able to buy them yourself for any other reason, crips for esims for Gaza is collecting donations, they've almost met their goal of $150,000 raised. Donating allows them to buy esims in bulk which allows them to obtain more than individuals would be able to. I just donated and it was super easy as you can use paypal.

#wrenfea.exe #gaza #palestine #esims #from the river to the sea palestine will be free #cripplepunk #cpunk #lets support our disabled siblings!

[sayruq]

#yemen #jerusalem #tel aviv #current events #palestine #free palestine #gaza #free gaza #news on gaza #palestine news #news update #war news #war on gaza #children of gaza #disabilities #disability #disability rights #disability justice #support palestine

[lightning-system]

As a medium/lower support needs autistic who works with young higher support needs autistic:

We all matter. We all have the same diagnosis. We all deserve to be treated with dignity and respect.

But we are not the same.

I can mask and might be seen as 'odd' or 'weird' in public. The students I work with are seen as 'dangerous' and 'practically little kids'.

I can go to university and work with accommodations. The students I work with likely will never live independently and a few might find jobs that support them but still pay them less than an abled worker.

I have full control of my finances. The students I work with aren't allowed to make independent financial decisions, even if capable.

If I say 'no,' I'm making a choice. The students I work with can't say 'no' without being labeled as defiant and difficult.

I can feed myself, bathe myself, and take care of myself with extreme challenges. The students I work with are unable to take care of themselves without high levels of support/one on one support.

I had an IEP in high school but was mainstreamed in classes. The students I work with take separate classes and some rarely get to interact with their abled peers.

Our experiences are fundamentally different. Higher support needs autistics will experience a specific type of ableism I never will, and can never fully understand.

Lower support needs autistics need to stop saying we understand what higher support needs autistics are going through and then present autism as only being disabling because of society/lack of acceptance because that is dangerous. We need to stop saying every autistic person is capable of everything if given the right support because that leaves out huge parts of our community who will never be able to do certain things, regardless of support.

We are worthy of existence regardless of our abilities.

Autism is a spectrum. It is not the same for every autistic person. Autism acceptance and advocacy has to come with accepting, acknowledging, and listening to our higher support needs peers.

#disabled #disability #actually autistic #autism #low support needs #medium support needs #high support needs #autistic pride #advocacy #acceptance #lightning rambles #important

[andthebeanstalk]

Today my therapist introduced me to a concept surrounding disability that she called "hLep".

Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"

And my therapist pointed out that this is not "help", it's "hLep".

Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.

At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.

So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!

Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!

Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!

Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.

#hlep #original #mental health #my sympathies and empathies to anyone who has to rely on this kind of hlep to get what they need. #the people in my life who most need to see this post are my family but even if they did I sincerely doubt they would internalize it #i've tried to break thru to them so many times it makes my head hurt. so i am focusing on boundaries and on finding other forms of support #and this thing i learned today helps me validate those boundaries. the example with the milk was from my therapist. #the example with the towing company was a real thing that happened with my parents a few months ago while I was age 28. 28! #a full adult age! it is so infantilizing as a disabled adult to seek assistance and support from ableist parents. #they were real mad i was mad tho. and the spoons i spent trying to explain it were only the latest in a long line of #huge family-related spoon expenditures. distance and the ability to enforce boundaries helps. haven't talked to sisters for literally the #longest period of my whole life. people really believe that if they love you and try to help you they can do no wrong. #and those people are NOT great allies to the chronically sick folks in their lives. #you can adore someone and still fuck up and hurt them so bad. will your pride refuse to accept what you've done and lash out instead? #or will you have courage and be kind? will you learn and grow? all of us have prejudices and practices we are not yet aware of. #no one is pure. but will you be kind? will you be a good friend? will you grow? i hope i grow. i hope i always make the choice to grow. #i hope with every year i age i get better and better at making people feel the opposite of how my family's ableism has made me feel #i will see them seen and hear them heard and smile at their smiles. make them feel smart and held and strong. #just like i do now but even better! i am always learning better ways to be kind so i don't see why i would stop

[neuroticboyfriend]

it's never too late to start brushing your teeth again. i basically never brushed my teeth for a whole 10 years. a decade. A DECADE. i still struggle to brush my teeth once a week, but it all started with brushing my teeth once every few months. so i mean it when i say brushing your teeth once a week, a month, a year, or even a decade, is better than nothing.

and still, nothing is not shameful. it is not immoral to struggle with self care. and it is also not pointless to keep trying. anything you can do, even if its wiping plaque off with a towel, is enough. it is good to take care of yourself however you can, even if it's just trying to muster the will to. reading this post is good, too.

i believe in you and i am proud of you, even in the smallest of steps. it's okay. you can give yourself grace.

#softspoonie #disabled #disability #schizophrenic #schizophrenia #schizoaffective #depression #depressed #severe depression #self care #hygiene #self love #self help #mentally ill #mental health #physical health #chronic illness #chronically ill #mental illness #mental health support #spoonie #spoonie positivity #disability positivity #neurodivergent #adhd #neurodivergent positivity #disabled positivity

[chronicbitchsyndrome]

so: masking: good, unequivocally. please mask and please educate others on why they should mask to make the world safer for immune compromised people to participate in.

however: masking is not my policy focus and it shouldn't be yours, either. masking is a very good mitigation against droplet-born illnesses and a slightly less effective (but still very good) mitigation against airborne illnesses, but its place in the pyramid of mitigation demands is pretty low, for several reasons:

it's an individual mitigation, not a systemic one. the best mitigations to make public life more accessible affect everyone without distributing the majority of the effort among individuals (who may not be able to comply, may not have access to education on how to comply, or may be actively malicious).

it's a post-hoc mitigation, or to put it another way, it's a band-aid over the underlying problem. even if it was possible to enforce, universal masking still wouldn't address the underlying problem that it is dangerous for sick people and immune compromised people to be in the same public locations to begin with. this is a solvable problem! we have created the societal conditions for this problem!

here are my policy focuses:

upgraded air filtration and ventilation systems for all public buildings. appropriate ventilation should be just as bog-standard as appropriately clean running water. an indoor venue without a ventilation system capable of performing 5 complete air changes per hour should be like encountering a public restroom without any sinks or hand sanitizer stations whatsoever.

enforced paid sick leave for all employees until 3-5 days without symptoms. the vast majority of respiratory and food-borne illnesses circulate through industry sectors where employees come into work while experiencing symptoms. a taco bell worker should never be making food while experiencing strep throat symptoms, even without a strep diagnosis.

enforced virtual schooling options for sick students. the other vast majority of respiratory and food-borne illnesses circulate through schools. the proximity of so many kids and teenagers together indoors (with little to no proper ventilation and high levels of physical activity) means that if even one person comes to school sick, hundreds will be infected in the following few days. those students will most likely infect their parents as well. allowing students to complete all readings and coursework through sites like blackboard or compass while sick will cut down massively on disease transmission.

accessible testing for everyone. not just for COVID; if there's a test for any contagious illness capable of being performed outside of lab conditions, there should be a regulated option for performing that test at home (similar to COVID rapid tests). if a test can only be performed under lab conditions, there should be a government-subsidized program to provide free of charge testing to anyone who needs it, through urgent cares and pharmacies.

the last thing to note is that these things stack; upgraded ventilation systems in all public buildings mean that students and employees get sick less often to begin with, making it less burdensome for students and employees to be absent due to sickness, and making it more likely that sick individuals will choose to stay home themselves (since it's not so costly for them).

masking is great! keep masking! please use masking as a rhetorical "this is what we can do as individuals to make public life safer while we're pushing for drastic policy changes," and don't get complacent in either direction--don't assume that masking is all you need to do or an acceptable forever-solution, and equally, don't fall prey to thinking that pushing for policy change "makes up" for not masking in public. it's not a game with scores and sides; masking is a material thing you can do to help the individual people you interact with one by one, and policy changes are what's going to make the entirety of public life safer for all immune compromised people.

#dyspunktional #cripple punk #actually disabled #cripplepunk #a lot of these are major concessions for me personally as i'm an anarchist and loathe to support further concentrations of state power #but if you're gonna be operating within the structure of the system. here you go. handing you a cheat sheet for what you should demand.

[artistmarchalius]

Give Floyd a service bat/emotional support bat!

#trolls band together #dreamworks trolls #trolls Floyd #barb trolls #trolls fanart #trolls comic #trolls 3 #tbt #Floyd trolls #trolls barb #trolls world tour #disabled floyd #dumb trolls thought of the day: give Floyd a service bat/emotional support bat #haven’t decided on a name yet

[mariposas8494]

Fuck yeah it has

#actually bipolar #bipolar disorder #bipolar mania #mental heath support #bipolar depression #disabled #mental health #bipolar1 #mental health matters #infp

[varian-ross-horror-author]

"Disabled people should be allowed to be as independent as we can be" and "disabled people should not be pressured to be hyper-independent in order to not wind up in nursing homes against our will" are two thoughts that can, and should, exist at the same time.

#physically disabled #cripplepunk #disability #original post #the number of people who assume I'm from an assisted living facility stuns me #I can do most things on my own #as far as I know I don't fall under 'high support' needs #yet I've had people ask about my caretaker and I'm like 'my what' #I have someone drive me and need help shopping #but that's about all

[meowtismz]

Remember that if talk or type weird all ok

Remember that if not low support need all ok

Remember that if not level 1 autism all ok

Remember that if nonverbal or semiverbal all ok

Remember that if cognitive function low all ok

Remember thay if dysfunctional all ok

Remember that if "more debilitating autism" all ok

Remember that disability ALWAYS debilitate one thing or another, if have "less accepted" autism still valid and deserving of love respect help

#disabled #actually autistic #neurodivergent #autistic #autism #autistic things #actually disabled #actually neurodivergent #semiverbal #autism level 2 #level 2 autism #unreliable speech #autism community #high support needs #mid support needs

[radiostatic166]

Please stop infantlizing autistic people

Stop being weirded out when we cuss. Stop being weirded out when we talk about nsfw topics. Stop being weirded out when we are semiverbal or nonverbal.

We can smoke too, we can drink, vape, and cuss and do anything normal people can do. We can have (concented) sexual relationships. We can kiss people. We can have kinks. We can like BDSM or have fetishes. We are not innocent little kids.

Just because we have a disability doesn't mean we aren't people.

Just because we sometimes need to live with someone else doesn't mean we aren't people.

Just because we don't pick up on social clues doesn't mean we aren't people.

STOP INFANTILIZING US. STOP CALLING US INNOCENT. STOP THINKING YOU NEED TO PROTECT US. WE ARE REGULAR PEOPLE TOO.

#actually autistic #autism #autism awareness #disabled #nerodivergent #autistic things #autistic adult #autistic community #autistic #actually disabled #actually neurodivergent #high support needs #mid support needs #low support needs #autism thoughts #level 2 autism #level 2 autistic #autism level 2

[inkskinned]

love when men cry about body hair bc "it's hygiene" and yet 15% of cis men leave the bathroom without washing their hands at all and an additional 35% only just wet their hands without using soap. that is nearly half of all men. that means statistically you have probably shaken hands with or been in direct contact with one of these people.

love when men say that women "only want money" when it turns out that even in equal-earning homes, women are actually adding caregiver burdens and housework from previous years, whereas men have been expanding leisure time and hobbies. in equal-earning households, men spend an average of 3.5 hours extra in leisure time per week, which is 182 hours per year - a little over a week of paid vacation time that the other partner does not receive. kinda sounds like he wants her money.

love that men have decided women are frail and weak and annoying when we scream in surprise but it turns out it's actually women who are more reliable in an emergency because men need to be convinced to actually take action and respond to the threat. like, actually, for-real: men experience such a strong sense of pride about their pre-supposed abilities that it gets them and their families killed. they are so used to dismissing women that it literally kills them.

love it. told my father this and he said there's lies, damned lies, and statistics. a year ago i tried to get him to evacuate the house during a flash flood. he ignored me and got injured. he has told me, laughing, that he never washes his hands. he has said in the last week that women are just happier when we're cooking or cleaning.

maybe i'm overly nostalgic. but it didn't used to feel so fucking bleak. it used to feel like at least a little shameful to consider women to be sheep. it just feels like the earth is round and we are still having conversations about it being flat - except these conversations are about the most obvious forms of patriarchy. like, we know about this stuff. we've known since well before the 50's.

recently andrew tate tried to justify cheating on his partner as being the "male prerogative." i don't know what the prerogative for the rest of us would be. just sitting at home, watching the slow erosion of our humanity.

#writeblr #warm up #ps edited so it is more clear where “half” of men is coming from: #15% literally don't even touch water #an ADDITIONAL 35% ''wash'' by just running their hands under water WITHOUT SOAP #15+35 =50% #like that is not washing ur hands. go back and use soap #btw the numbers for women are 4% never washing and 15% ''just water'' #which is still gross but like. sooo much better yikes #ps i know we're all gay on this site but watching ppl ''correct'' my math on this has been wild #i have a learning disability im genuinely bad at math so i check EVERY time someone corrects me #but no they're just confidently wrong..... #182 hours is a week babes. 182/24 (number of hours in a day) is ~7.6 #that's where i got that number from. also from rent we know there's 168 hours in a week. #ALSO btw if u read this and ur response is ''men are also struggling rn tho'' like babe you missed the point of it tho #this doesn't even make fun of men it's legit just pointing out that bigotry against women isn't founded #in anything men actually CARE about . like they don't actually CARE about ''being clean'' when they make fun of armpit hair #or they would be WASHING THEIR HANDS. #men pretend to be rollin' in cash and Apex Predators and instead they are trained to be lazy and unwilling to act in emergencies #i have never and will never make fun of men for asking for more support on important topics like DV and mental health. #this is so clearly not about men; it's about how common just being plainly misogynistic has become. #like they don't try to hide it anymore.

[sayruq]

#yemen #jerusalem #tel aviv #current events #palestine #free palestine #gaza #free gaza #news on gaza #palestine news #news update #war news #war on gaza #support palestine #disability #disabilities #disability awareness

[threadbareturnbacks]

You know what? Happy Disability Month to those who were disabled by accident. Cars, skis, ice, sand, rocks, horses, just plain bad luck. Broken bones and backs that never heal. Shoulders that can't lift or move right. Wrists that don't turn. Hands that can't grasp. Brains that don't work right anymore. Legs that don't move anymore and eyes that won't recover.

The shame, the blame, the frustration, the wishful thinking that tears you apart. The beauty of small victories and simple kindness. The community you build. Reshaping a life with no warning. Mourning for the person you once were. Joyfully embracing the person you now are. Happy Disability Month to you too (even if you aren't ready to use that word yet)

#disability #disability month #i love that we celebrate disability month but i never see anything about actually physical accident disabilities on here #and irl most disabled ppl i know were hurt in an accident or event #it's most of the population tbh and thats why weve got to stand up for each other #bc we all end up here one way or another #community support #disability community

[spectrumgarden]

I know I'm shouting into the void with this one but like. Genuinely so many low support needs people dont understand what it's like having even medium support needs. Like I am entirely dependent on other people for many of my needs. I can not see a doctor without someone else scheduling the appointment, taking me there and doing a large amount of the communication for me.

If my caretaker had not been accepting of me being trans and invested hundreds of hours into psych appointments and taking me to my endocrinologist and doing all the paperwork involved with my name change and literally taking a week off work to stay with me in the hospital for surgery etc i would have just like. Never transitioned. My ability to transition was entirely dependent on a singular person and that's what a lot of other parts of my life are like as well. and that's fucking terrifying and a great way to be neglected and abused in ways that are horribly hard to get away from.

I dont drive, I dont work, I struggle to leave the house at all, I dont fucking communicate with people majority of the time. The things that are hard for you? I probably can not do them to begin with. No one in my family lives even close to a comparable life to me. None of my irl friends do. I'm incredibly isolated.

And then I go online and see people rant about how easy MSN and HSN people have it because we just get everything we need and how because people can tell we are disabled everything is so easy because none of you even manage to listen to us talk about the neglect and abuse and trauma we face/d. I see people angry at their (more) disabled siblings for getting care they need to survive instead of mad at society for creating a system where its incredibly hard for families to take care of both a higher support needs child and another child.

And I see people who live completely independent lives who work and drive and make their own doctors appointments and grocery shop and travel by themselves call themselves MSN (I could go on a rant about how that's also often the fault of LSN influencers for not leaving a lot of room in their own community for legitimate struggle but that's for another day).

I just want my needs met. I want to be able to decide where I live. I want choice in my care. I want to be able to have community with those like me. I want others to realize I exist and leave the words i have to describe my existence alone. I want others to listen to what I have to say about what my life is like.

#autistic adult #actually autistic #autistic community #medium support needs #actually disabled #semiverbal autistic #semi verbal #support needs

[cookinguptales]

You know... I had an experience about two months ago that I didn't talk about publicly, but I've been turning it over and over in my mind lately and I guess I'm finally able to put my unease into words.

So there's a podcast I'd been enjoying and right after I got caught up, they announced that they were planning on doing a live show. It's gonna be near me and on the day before my birthday and I thought -- hey, it's fate.

But... as many of you know, I'm disabled. For me, getting to a show like that has a lot of steps. One of those steps involved emailing the podcasters to ask about accessibility for the venue.

The response I got back was very quick and very brief. Essentially, it told me to contact the venue because they had no idea if it was accessible or not.

It was a bucket of cold water, and I had a hard time articulating at the time quite why it was so disheartening, but... I think I get it a little more now.

This is a podcast that has loudly spoken about inclusivity and diversity and all that jazz, but... I mean, it's easy to say that, isn't it? But just talking the talk without walking the walk isn't enough. That's like saying "sure, we will happily welcome you in our house -- if you can figure out how to unlock the door."

And friends, my lock-picking set is pretty good by this point. I've been scouting out locations for decades. I've had to research every goddamn classroom, field trip, and assigned bookstore that I've ever had in an academic setting. I've had to research every movie theater, theme park, and menu for every outing with friends or dates. I spend a long time painstakingly charting out accessible public transportation and potential places to sit down every time I leave the house.

Because when I was in college, my professors never made sure their lesson plans were accessible. (And I often had to argue with them to get the subpar accommodations I got.) Because my friends don't always know to get movie tickets for the accessible rows. Because my dates sometimes leave me on fucking read when I ask if we can go to a restaurant that doesn't keep its restrooms down a flight of stairs.

I had one professor who ever did research to see if I could do all the coursework she had planned, and who came up with alternate plans when she realized that I could not. Only one. It was a medical history and ethics class, and my professor sounded bewildered as she realized how difficult it is to plan your life when you're disabled.

This woman was straight-up one of the most thoughtful, philosophical, and ethical professors I've ever had, one who was incredibly devoted to diversity and inclusion -- and she'd never thought about it before, that the hospital archives she wanted us to visit were up a flight of stairs. That the medical museum full of disabled bodies she wanted us to visit only had a code-locked back entrance and an old freight elevator for their disabled guests who were still breathing.

And that's the crux of it, isn't it? It's easy to theoretically accept the existence of people who aren't like you. It's a lot harder to actively create a space in which they can exist by your side.

Because here's what I did before I contacted the podcasters. I googled the venue. I researched the neighborhood and contacted a friend who lives in the area to help me figure out if there were any accessible public transportation routes near there. (There aren't.) I planned for over an hour to figure out how close I could get before I had to shell out for an uber for the last leg of the trip.

Then I read through the venue's website. I looked through their main pages, through their FAQs to see if there was any mention of accessibility. No dice. I download their packet for clients and find out that, while the base building is accessible, the way that chairs/tables are set up for individual functions can make it inaccessible. So it's really up to who's hosting the show there.

So then and only then I contacted the podcasters. I asked if the floor plan was accessible. I asked if all the seats were accessible, or only some, and whether it was open seating or not. Would I need to show up early to get an accessible seat, or maybe make a reservation?

And... well, I got the one-sentence reply back that I described above. And that... god, it was really disheartening. I realized that they never even asked if their venues were accessible when they were booking the shows. I realized that they were unwilling to put in the work to learn the answers to questions that disabled attendees might have. I realized that they didn't care to find out if the building was accessible.

They didn't know and they didn't care. That, I think, is what took the wind out of my sails when they emailed me back. It's what made me decide that... yeah, I didn't really want to go through the trouble of finding an accessible route to the venue. I didn't want to have to pay an arm and a leg to hire a car to take me the last part of the journey. I didn't want to make myself frantic trying to figure out if I could do all that and still make the last train home.

If they didn't care, I guess I didn't either.

If they'd apologized and said that the only venue they could get was inaccessible, I actually would have understood. I know that small shows don't always get their pick of venues. I get it. I even would have understood if they'd been like "oh dang, I actually don't know -- but I'll find out."

But to be told that they didn't know and didn't intend to find out... oof. That one stung.

Because.... this is the thing. This is the thing. I may be good at it by now, but I'm so tired of picking locks. I'm tired of doing all the legwork because no one ever thinks to help me. I'm tired of feeling like an afterthought at best, or at worst utterly unwelcome.

If you truly want to be inclusive, you need to stop telling people that you're happy to have them -- if they can manage to unlock the door. You need to fucking open it yourself and welcome them in.

What brought all this back to me now, you may be asking? Well... I guess it's just what I was thinking to myself as I was tidying up my phone.

Today I'm deleting podcasts.

#I guess it did save me a lot of money #I'll still probably go up to nyc to visit with friends for my bday but I won't go all the way out to brooklyn for the show #and I probably won't need to get the hotel room #and I DEFINITELY won't be supporting their patreon like I was planning lmao #I'll buy myself a new tarot deck for my birthday instead #cw: #disability #ableism