Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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You asked me to teach you chess, and I've done that. It's a useful mental exercise. Through the years, many thinkers have been fascinated by it. But I don't enjoy playing. Do you know why not?
Because it was a game that was born during a brutal age when life counted for little and everyone believed that some people were worth more than others. Kings and pawns.
I don't think that anyone is worth more than anyone else. I don't envy you the decisions you're going to have to make. And one day I'll be gone, and you'll have no one to talk to. But if you remember nothing else, please remember this:
Chess is just a game. Real people aren't pieces. You can't assign more value to some of them than to others. Not to me. Not to anyone. People are not a thing that you can sacrifice.
The lesson is: Anyone who looks on the world as if it were a game of chess deserves to lose.
— Harold Finch, not knowing how to explain to his AI offspring that it should care about people (but doing his best), Person of Interest 4x11 “If-Then-Else”
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The best way to imagine the Wayne clan, at least for me, is like this:
Thomas’ side of the family
Martha’s side:
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so the good place is widely lauded on this site for its takes on morality and capitalism, which i totally agree with
but i think it should get more recognition for the line "all humans are aware of death. so we're all a little bit sad all the time. that's just the deal. we don't get offered any better ones. and if you try and ignore your sadness, it just ends up leaking out of you anyway. i've been there, and everybody's been there. so don't fight it. in the words of a very wise bed bath and beyond employee i once knew - go ahead and cry all you want. but you're gonna have to pay for that toilet plunger."
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No seriously check yourself for ticks. I feel like a make this psa every year but everyone always ignores the fact that they've been hanging around tall grass or bushes. Check your body, check your siblings and kids who won't do it as carefully as they should, and stay safe!!
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