#type one diabetes

[ayeforscotland]

Holy shit.

Researchers at the University of Chicago have been able to create an ‘inverse vaccine’ that can remove the immune systems memory of specific molecules.

Reading that, sounds like a horrendous bio weapon in the making. But the plan is for it to be used to treat autoimmune diseases like multiple sclerosis, type one diabetes and rheumatoid arthritis.

This was already proven to be able to prevent autoimmunity but the new work shows it can be used to treat ongoing autoimmune issues.

Source.

#ayeforscotland #autoimmune #multiple sclerosis #type one diabetes #rheumatoid arthritis #science

[zurko48]

#chronic illness #actually chronically ill #chronic illness memes #chronic fatigue #chronic pain #health issues #long haul covid #long covid #covid19 #type one diabetes #type one diabetic #actually diabetic #I AM TIRED OF BEING SICK AND TIRED!! #dysautonomia

[lem0nademouth]

idk who needs to hear this but diabetics can have sugar. they can have as much sugar as they want as long as they take the appropriate amount of insulin. the only reason diabetics are ever told to lower their sugar intake is to reduce the amount of insulin they use. and almost every sugar free alternative sweetener is either a literal carcinogen or insanely expensive. not to mention the fact that sugar is naturally occurring in every. single. thing. you. eat.

#leave diabetics alone challenge #write ur diabetic characters eating whatever they want and bolusing accordingly #and stop denying children halloween candy and birthday cake because you’ve convinced yourself sugar will kill them #t1d #type 1 diabetes #t2d #type 2 diabetes #type 3 diabetes #type one diabetes #weird and niche rant

[moonagedaydreamsofrhiannon]

yeah, diabetes sucks sometimes, but every once in a while I see someone in public with a dexcom or pump, and I point to my own, and despite being total strangers we have this mutual shared understanding that no one else gets, and it feels like a secret club that we’re in that no one else gets to be a part of

#There’s literally nothing more exciting than seeing a Dexcom out in the wild #Like there’s this whole community out there that has this shared experience that no one else will ever understand #And we can see/recognize each other out in public and it’s like: instant connection #I see you and you see me and we instantly *get it* #Who else gets to have an experience like that? #And don’t even get me started on diabetes camp #Literally my favorite thing in the world #diabetes #type 1 diabetes #t1d #t1diabetes #type one diabetes

[haydenthewitch]

The worst thing about having a chronic pain that isn't visible to others is feeling like your whining when you say, "i'm in pain right now."

i don't ever want the pain in my knees to be categorized as the same kind of complaint as "i don't want to go to work" or "its monday." I say "my knees and joints are hurting" every day because 1. my knees and joints do hurt everyday, and it fucking sucks and 2. i want to be heard by the pepole around me saying that i'm in pain so i can never be gaslit by myself, my family, or my doctor that i'm "not in enough pain".

but when i say "i'm in a lot of pain right now" and then continue to live my life (becuse i can't sit around all day, as much as i want to) pepole assume that i'm okay enough, so therfore it's not that bad. "i'm in a lot of pain" becomes just another mundane complaint.

the thing is; my pain tollerance is HIGH. i don't talk about it much on here, But i'm a type one diabetic and i have been that way since i was SIX YEARS OLD. i've been sticking myself with needles, pricking my fingers to draw blood, dealing with insulin and medical supplies since i was six. i know my body better than most 18 year olds do, so when i say that recently i've been a 9 on the 1-10 pain scale evry day for the past couple of months I KNOW WHAT I'M TALKING ABOUT.

When i say "my joints hurt", i mean that i can FEEL bones grinding and clicking against one another. When i say "i've been sitting for too long and now my hips are fucked" i mean that walking becomes diffucuclt for me and sometimes i have to hobble down the school halways like how my grandmother walks. when i say "my knees are in pain" i mean that it feels like a liquid hot, searing pain in my joints that feels like a poker melting my skin off. WHEN I SAY I'M IN PAIN, IT'S NOT A MUNDANITY, ITS EXCUTRIATING AND I WISH I WOULD BE TAKEN SEROUISLY.

I cant stand for a 10 minute conversation, my knees would buckle. I might need a bench in my shower, becuse for the past few weeks i've been sitting in my shower floor to shampoo and conditon my hair. I can't sit criss-cross anymore or it will fuck up my entire day. I've resorted to taking a bathroom break in every single class every day so i can stand up becuse if i sit for longer than 30 minutes in one of those school desks every joint in my lower back and spine and legs starts screaming at me. i only feel comfortable laying down, fully stretched out, on my back. If i sleep wrong, i'm in pain from the molment i wake up.

ITS NOT A FUCKING COMPLAINT OR EXCUSE WHEN I SAY I'M IN PAIN. ITS MY LIFE.

#type one diabetic #type one diabetes #cronic pain #chronic pain #chronic illness #chronic fatigue #chronically ill #joint pain #i'm fucking 18 i shouldn't have to feel this #i'm so tired of this #hayden speaks #rant #rant post #medical rant

[horsetailcurlers2]

as a diabetic nothing is as humiliating as being in a social setting, and everyone is having a good time, and then your CGM alert goes off INSANELY loud like a gong going off in church. it feels like a medieval shame bell fr. and i’m like, okay thanks for not letting me die, dexcom, but do you have to be so fucking dramatic about it?? honestly i’d rather just quietly have a hypoglycemic episode thanks

#mine went off the other week at a family dinner and everyone immediately went silent #“is someone at the door ?“ #type one diabetic #type one diabetes #t1d #t1d problems

[demiboydemon]

Affirmations:

I am the hottest person in this emergency room.

All the nurses think I’m awesome.

All the other patients wish they were as cool as me.

#/silly #chronically ill #chronic fatigue #chronic illness #chronic pain #fibromyalgia #EDS #elhers danlos syndrome #disabled #disability #hypermobile eds #type one diabetes #type one diabetic #type 1 diabetes

[trek-tracks]

hello! I am also diabetic (type one). I’m curious if when you think of star trek or yourself in Star Trek if you imagine having diabetes still? I think either way is valid, just curious. I go back and forth trying to figure out if they would have cured it or just advanced insulin pumps to the point of being practically seamless with day to day life. For me being diabetic is so integral to my personality I kind of don’t know if I would like to think of it as being cured? It’s cool if you don’t want to answer too! Just thought I’d ask :)

This is an interesting question.

I've always thought about my type one diabetes as being solidly on the second end of the disability "spectrum," so to speak, where the first end is "this is integral to my personality and who I am, accommodate but do not 'cure' me," and the second is "this brings nothing but pain to my life, please cure me immediately."

The only accommodation that would fully make my life better, in my opinion, (which is only my opinion about my own disability), is either a functional cure (artificial pancreas) or actual cure (no machinery necessary), the latter of which I would prefer, because frankly I'm sick of wearing a pump and a cgm 24/7 and the sheer amount of waste it produces, which is not my fault because I need to live, but still weighs heavily on me (and takes up a large amount of space in my apartment). Not to mention the scheduling--this message brought to you by me being woken up at 5am by an empty insulin pump and realizing that, no, I don't seem to have any unused cartridges left, so I have to use an old one and pray that the pump accepts it while waiting for the delivery of the supplies I just now ordered, which cost $750.

When I think about a life in the Star Trek universe, I can really only think about being transferred there now, as I am, with the life I have led, and I think that's what also shapes my decision. If I had been born into the Star Trek universe, there are so many aspects of my personality that might have been different, considering I wouldn't have to worry about scarcity and affordability of, for example, housing. Instead of being a theatre critic as a second job that feeds my soul but doesn't pay the bills, I'd probably be a playwright/dramaturg/critic full time. However, I might find not having a job outside of the theatre world to be detrimental, because when people don't have lives outside of theatre, their writing tends to get smaller and more insular.

This is a digression, but what I mean is: I can only see me as I am now joining a Starfleet world, rather than trying to envision the person I would be if I'd begun my life there. I mean, I certainly wouldn't be known for making memes about Star Trek, the TV show, if Star Trek were reality instead of entertainment, so things would be different in a number of ways. I can't even think about all the ways my life could have been different in this reality without getting a headache.

In that case, I have learned a lot from being diabetic, including patience and empathy for other people, and a strong sense of social justice. I've learned a lot about food and exercise and how they affect the body. I've learned responsibility and self-management. I've made more peace with aging than many of my friends, because I've felt prematurely "old" (aches, pains, contemplation of mortality) since I was a preteen. I think I would have some form of these things without diabetes, but my worldview would likely be different. In a way, I'm grateful for these lessons, and I don't know if born-into-Star-Trek me would be insufferable.

That being said, I firmly believe that having diabetes for more than 25 years means that diabetes has taught me all about life it's going to teach me. I'm done. If I were to wake up tomorrow without it, I'd, in the words of Beyond McCoy, "throw a party." A party with plenty of cake. Or, to misquote The Voyage Home, "The doctor gave me a pill, and I grew a new pancreas!"

Now that it's part of me, its absence might leave me somewhat adrift, but I think of all the time I've lost to it where I could have been enjoying life and been allowed to be the unfettered me I desired to be, and I say, good riddance.

#star trek #star trek tos #leonard mccoy #star trek aos #diabetes #type one diabetes #this is only my opinion about myself #i can't decide for anyone else #but honestly fuck diabetes it can be gone yesterday

[theblackqueen-ofmyheart]

You know what we need @fiery-red-kryptonite? We need a diabetic convention.

A few days long where diabetics of all ages could all get together and just talk, share things. both type 1 and type 2 diabetics. I know where I live there were diabetes camps but like…those were for kids and that’s great but so many people who are older need the support.

Because honestly no one understands a diabetic like another diabetic, doctors don’t get me the way you do. Other friends may try to help (and they do an amazing job when I need them to help) but I can just message you and go “holy shit the low I had today” and you understand and share what helps you. I can say “my lord the dream I had today” and you respond with “how was your blood sugar?”.

Plus I know way too many type 2 diabetics who are sorely uneducated on type 1 diabetes and I feel like they would learn better in an open, friendly environment rather than a doctors office where the doctor might not even fully know.

New diabetics who are scared and worried being able to talk face to face with elder diabetics who’ve been dealing with this Illness for most of their lives and hearing from some who knows first hand how they handle it. Being able to go back to their doctors with informed ideas on how to better manage their diabetes.

Panels set up by diabetics for diabetics (and their families because let’s be honest families need more education than they get too)

Little sales booths where diabetics can sell little trinkets to decorate pump or pen pouches. Little bears to help little kids with diabetes brave the injections (I had one his name was poke, he was my second favourite bear)

Just something for diabetics to get together in person and be able to share. Make connections with each other and finally feel a little bit less alone.

I don’t know this idea struck me while I was changing my sensor and I felt like a post that other diabetics may see and share etc would be nice……at least we can have a diabetic Tumblr group or something 😂

Edit: the post has been reblogged and liked a few times so I went ahead and made a discord so diabetics can connect in some way at the very least. The invite shouldn’t expire but if it does please let me know and I’ll put a new one or invite you personally.

#diabetics #diabetes #type one diabetic #type one diabetes #type two diabetes #type two diabetic #type 2 diabetes #type 1 diabetic #type 1 diabetes #type 2 diabetic #I’m actually considering blazing the post so more diabetics can see it…..

[arionawrites]

actually wait i can just make a post about this lmao

diabetics who may struggle to get the insulin they need, read below the cut 👇

hi! i’m ariona and i’m a type one diabetic and have been since i was 14! i struggled a lot to get the insulin i needed for a long time, but now, closing in on a decade since my diagnosis (nine years in february!) i and my fellow diabetic family members (an aunt and two cousins) have become fortunate enough to wind up in a place in life where we altogether have a LOT of extra insulin, thanks to being lucky enough to have decent insurance either through our state (washington) or through our jobs, and also thanks to my badass endocrinologist who is ALSO t1d who writes my prescriptions specifically to get me as much insulin as my insurance will allow every month.

basically: we have a lot of insulin, more than what we need for an emergency backup stock, and we’re at a point where we’re worried that it might start to expire before it can be used and have been looking into places we could take it to help people who need it more than we do, that way this literal life saving hormone can help keep people alive.

we have:

mostly novolog (mostly vials, but i believe some pens as well)

humalog (not much, but some)

some lantus pens

i currently take fiasp but have no negative reactions to novolog or humalog, so i can use either of them in place of fiasp as well

my insulin gets delivered so we have easy access to like little coolers and ice packs that can be used to ship insulin, and i’m not super well off financially but i will happily pay shipping if i can afford it to send this insulin to anyone who needs it!

i don’t want money, i don’t want anything in return. when i was first diagnosed we struggled a LOT with getting the insulin i needed, especially since i struggle badly with insulin resistance and it took a few years before i was being given the amount i needed to not constantly battle super high blood sugar, and thankfully i had a pharmacist at the time who was willing to bend the rules for us in order to save me multiple hospital trips, and now that i’m in a place capable of doing the same for others, i want to

my dm’s are open, my ask box is open, if anyone is in need of insulin or even just wants to take a couple vials for backups just in case, please reach out!!

EDITING TO ADD:

we also have extra supplies in general! i used to have a medtronic pump and have a lot of extra supplies from that, and we have a shit ton of syringes and stuff. idk how shipping syringes would work ?? but i can look into it and see what we can do!! basically if you need something, there’s a chance we have it, so reach out!! if we don’t have it then i can also do some research to see if there’s anywhere i can point you to instead to help you out!!

#diabetes #actually diabetic #type one diabetes #t1d #insulin #novolog #humalog #fiasp #lantus #diabetic

[couchcandy]

Self portrait 🤗🙃

#type 1 diabetes #type 1 diabetic #type one diabetes #type one diabetic #t1d #t1diabetes #t1diabetic

[theotherpl4ce]

I think all cgm apps should have a little 'perfect parry' sign to pop up every time time you have a Special Treat but dose your insulin perfectly & your blood sugar doesn't spike up

#t1d #type 1 diabetes #type one diabetes #actually diabetic

[zurko48]

extremely selfish of you to be born needing help, maybe try killing yourself instead?

#this is what it feels like to be disabled KFKFKDKFKF #actually autistic #autistic #autism #type one diabetes #type one diabetic #actually diabetic #t1d #diabetes #diabetic #actually chronically ill #disability #disabled #actually disabled #ocd #actually ocd #actuallychronicallyill #actually mentally ill

[izz83]

Has anyone else had problems with their Dexcom G7? Recently, they've been worse than Dexcom G6 is They have a really bad inaccurate readings they disconnect so easily along with other things I want to know if I'm the only ones struggling with this?



#t1d #t1d problems #type one diabetes #t1diabetes #t1diabetic #type one diabetic

[chronic-harmonic]

My favorite brand of diabetic tumblr is when someone is posting low blood sugar memes while they’re clearly fighting for their life

#actuallydiabetic #t1d #type one diabetes #type 1 diabetes #chronic illness #insulin #actually diabetic #blood sugar #diabetic #t1diabetic #type 1 diabetic #glucose #hypoglycemia

[type1diabetesinfandom]

Hello all!

Many, manymanymany apologies for the unannounced hiatus. (Still ongoing. Not enough spoons. D: ) I will be back at some point, I promise.

I've been thinking of this blog a lot, what it means to me, and what I want it to be, especially when I don't have the energy to maintain it. Obviously, collecting all the t1d rep I can find in one place is a huge goal! And I think I've made a pretty good start on that. There's over one thousand posts on this blog and several hundred fics in the AO3 collection. That's a lot of search and save.

That's not all I want to do, though. Fandom, to me, is about the things we love. Reading them, writing them, gushing about them in the middle of the night. Throwing your pencil at the wall because you can't get the angle of that epically-sexy jawline just right. And most of all, sharing it all.

I don't think I'm alone when I say community is HUGE for both people with type one diabetes and folks in fandom.

I think we all know exactly how niche the concept of a character with T1D is. Sure, we can make (and have made!) fics and fan art with T1D rep, but then what? Is there somewhere we can talk about it with fandom friends and have them really get it, or do they just nod mutely and change the subject? Where can you headcanon a character as diabetic without it turning into an educational post?

Or, if you're interested in learning more about life with T1D, whether you don't have it at all or maybe you do but you're on MDI and don't know how to write pumps, who can you ask about it?

And on the flipside: have you ever tried talking fandom at diabetes camp? Because I have.

If any of this feels familiar to you, I've got something awesome to tell you!

Introducing...the Type 1 Diabetes in Fandom Discord Server—a virtual haven where diabetes doesn't define us, but our love for fandoms and creativity certainly does! Whether you're crafting intricate AUs or just can't get the next chapter fast enough, this is YOUR community to thrive, connect, and share ideas or experiences.

What's in it for You?

A safe and supportive space to chat about your fave fics, share recs, and maybe even create some epic friendships

A chance to join discussions on realistic representation and the magical realm of diabetic fan theories

Swap prompts to spark your imagination and fuel your creative prowess

A place to discuss the highs and lows (literally!) of managing Type 1 Diabetes while pursuing your passion for everything fannish

...and all without worry that people won't understand why it's so frustrating when a character fixes their low BG with a timely insulin bolus!

*tip for writers: please google how insulin works before hitting post, please. I beg you.

So if you're up for mingling with like-minded fans or gaining a better understanding of diabetes, this is your opportunity!

Whether you're making a Hogwarts AU or need to cry about your Dexcom readings, we're ready and waiting to meet you. Excited to embark on this epic adventure and make some new friends? Click that join button, and come join the party!

*The Join Button*

#type 1 diabetes #t1diabetes #t1d #diabetes #type one diabetes #type 1 diabetes in fandom #fandom #i'm sorry for the hiatus please accept this offering instead #also wow that is a LOT of exclamation points