Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
16K notes
·
View notes
you have to go to work so you can pay for your doctor, who is not taking your insurance right now, and if you say i can't afford the doctor's you are told - get a better job. it is very sad that you are unwell, yes, but maybe you should have thought about that before not having a better job.
(where is the better job? who is giving out these better jobs? you are sick, you are hurting - how the hell are you supposed to be well enough for this better job?)
but you go to the doctor because you had the nerve to be hurt or sick or whatever else. and they tell you that it is because you have anxiety. you try your best. you are a self-advocate. you've done the reading (which sometimes pisses them off worse, honestly). you say it is actually adding to my anxiety, it is effecting my quality of life. so they say that you are fat. they say that all young people have this happen to them, isn't it a medical marvel! they say that you should eat more vegetables. they say that you probably just need to lose a little more weight, and that you are faking it for attention.
(what attention could this doctor possibly give? what validation? that's their fucking job, isn't it?)
there is always a hypochondriac, right. someone always tells you about a hypochondriac. or someone who is unnecessarily aggressive during the worst days of their life. or someone looking "for a quick fix". or some idiot who wasn't educated about how to properly care for themselves who just abandons their treatment. and again, the hypochondriac, the overly-cautious hysteric. these people don't deserve to be treated like humans (right), and since you might be one of these people, you also don't get treated like a human. because those people can really fuck with the system, you now have to pay for it. and besides. you're actually probably faking it.
(more often than not, you find a 2:1 ratio of these stories. for every "hypochondriac", there are 2 people who knew something was wrong, and yet nobody could fucking find it. the story often ends with pointless suffering. the story often ends with and now it's too late, and it's going to kill me.)
you are actually just making excuses. someone else got that procedure or that diagnosis and he's fine, you should be fine too. someone else said they watched a documentary about other inspirational people with your exact same condition, maybe you should be inspirational, too. you're just too morbid. your pain and your experience is probably just not statistically concerning. it is all self-reported anyway, and you're just being a baby.
(once, while sitting down in the middle of making coffee, you had the sudden, horrible thought - i could kill myself to make the pain stop. you had to call your best friend after that. had to pet your dog. had to cry about it in the shower. you won't, but that moment - god, fuck. the pain just goes on and on.)
you know someone who went in for routine surgery and said i still feel everything. they told her to just relax. it took her kicking and screaming before they figured out she wasn't lying - the anesthetic drip hadn't been working. you know someone who went in for severe migraines who was told drink water and lose weight. you know someone who was actively bleeding out and throwing up in the ER and was told you're just having a bad period.
in the ER there are always these little posters saying things like "don't wait! get checked today!" and you think about how often you do wait. how often the days spool out. you once waited a full week before seeing the doctor for what you thought was a sprained wrist. it had actually been broken - they had to rebreak it to set it.
but you go into the doctor. the problem you're having is immediate. the person behind the counter frowns and says we're not taking your insurance. you will be paying for this out-of-pocket.
they send you home with tylenol and a little health packet about weight loss or anxiety or attention deficit. on the front it has your birthday and diagnosis. you think about crying, and the words swim. it might as well say go fuck yourself. it might as well say you're a fucking idiot. it might as well say light your money on fire and lie down in it. and the entire fucking time - the problem persists.
it's okay. it's okay, it's just another thing, you think. it's just another thing i have to learn to live with.
2K notes
·
View notes
disciple luo binghe, running errands for his shizun one day, somehow manages to be in the exact wrong (right) place at the exact wrong (right) time and catches shang qinghua meeting with mobei jun
in order to keep luo binghe from tattling right away, shang qinghua dissembles in a panic and claims that his clandestine meetings with mobei jun are happening because they're lovers and definitely not because shang qinghua is betraying the sect and handing their secrets over to demons in order to save his own hide. when that almost doesn't work, he also tells luo binghe that he knows he's part demon, and that if luo binghe rats him out then shang qinghua will take him down with him. mutually assured destruction
it works, and even though luo binghe threatens him quite a bit (jeez kid calm down, you might be the almighty protagonist but also you're like sixteen) he agrees to keep shang qinghua's fraternizing a secret. but if ANYTHING BAD should happen to the sect or especially to luo binghe's shizun because of this, luo binghe will take shang qinghua down even if it does ruin his life too
shang qinghua, now sweating even more bullets about the impending immortal alliance conference: cool! cool cool cool sounds great cool yeah
so shang qinghua can add "being blackmailed by the punk ass brat I sort of created" to his list of stress-inducing woes. which gets even worse when luo binghe keeps somehow sensing if mobei jun is around for more than a couple hours and showing up, and picking fights with him?? kind of??
wtf has the protagonist been taking tips from liu qingge or something...?
shang qinghua feels like he's gonna have a heart attack when mobei jun just snorts and tosses luo binghe by the scruff like he's an annoying yappy dog
mobei jun actually knows what's up though. teenage half-demon who has never been around his own kind has become spoiled by the lack of competition on this front, and now his hackles are all up because he wants to claim the whole mountain range as his territory, and his instincts are screaming at him to challenge mobei jun about it so that they can decide who is actually top dog. since mobei jun could easily kill him, especially with his blood sealed, and has been clawing rocks and pissing on trees along the borders of an ding peak since before luo binghe was born, he's clearly got seniority here
and since qinghua doesn't want mobei jun to just kill the little shit (fair enough -- that sealed bloodline does look kind of interesting) that means it's up to mobei jun to teach him how to do things like interact with other demons without making a complete fool of himself. lesson one: what to do when you challenge someone out of your league and they win, assuming they don't just kill you
so luo binghe reluctantly gains another demon tutor
meng mo actually approves. he's been out of the loop on demon high society for a long time, and has lacked a body for long enough too that he's forgotten a lot of the particulars of socializing. it'll be good for luo binghe to pick up some manners that aren't just silly human tea ceremonies and things. maybe he'll start addressing meng mo more respectfully for a change!
(lol no)
luo binghe is partly like "I don't need to learn demon social skills since I'm spending the rest of my life as a disciple of qing jing peak" but partly like, well, if shizun knew about this and didn't freak out about it, he'd probably say that knowledge is power and learning how to handle politics and diplomacy of all kinds is important. and despite himself luo binghe is also interested, because this is a whole perspective on his own nature that he's never really gotten advice about
also, mobei jun is the lover of shang qinghua? mobei jun is a demon who successfully seduced a cang qiong peak lord? does he have any advice about that?
(he does -- all of it very bad)
anyway all of this sort of fucks up the immortal alliance conference developments really good, so the system kind of gives up and settles on some other big transformative achievements that luo binghe has to complete in order to be suitably heroic
but shen qingqiu has no idea and so the reprieve just seems to come out of nowhere until several years later, when he walks in on luo binghe with his claws out and huadian gleaming in the company the demon king of the northern desert, the two of them playing weiqi or something while they wait for shang qinghua to get back from some random logistics crisis he had to rush off to
shen qingqiu: ...?!?
luo binghe, panicking: wait shizun I can explain it's not what it looks like SHIZUN I SWEAR I WAS GOING TO TELL YOU PLEASE DON'T BE MAD--!
shen qingqiu: all this time I thought you were sneaking out to meet a girl, and this was what you were doing instead?!
luo binghe: WHAT?? shizun no I'd never do that I swear I don't even like girls!
shen qingqiu: that's not -- wait what do you mean you don't even like girls?!
mobei jun, unperturbed and still focused on the weiqi board: he's gay
2K notes
·
View notes
Sorry, but I will not be listening to any slander regarding the Owl House finale.
If you didn’t like the ending then fist fight Mikey Mouse, I don’t want to hear your BS.
“It feels rushed”, “This character should have been developed more”, “Why didn’t they revisit this plot point?”
I’m sorry, did you NOT know that this show was cancelled???? I’m so tired of fake fans who don’t actually care about the crew behind the media they consume. Dana and the team worked hard on this considering what Disney did to them. If you’re disappointed them take it up with the mouse.
You guys are the same people who still crap on Rebecca Sugar after Cartoon Network CANCELLED Steven Universe because of the gay wedding and call Legend of Korra bad queer rep. I’m so tired of y’all. I didn’t realize Dana was supposed to create a cinematic masterpiece with absolutely NO SUPPORT from the company she worked for.
3K notes
·
View notes