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#wheelchair user
flowercrowncrip · 22 hours
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My wheelchair has given up the ghost (again) so I’m in an ancient borrowed wheelchair that doesn’t fit anywhere and is really quite painful to be in. Hopefully I won’t be in it for too long, but it could be until I get my new wheelchair around May time.
We’ve had to be creative to try and solve the most immediate causes of pain and pressure, and I would like to introduce you to my snail friends
I’m really enjoying people’s reaction to them – old people in particular seem to love them and I love making people smile!
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ID: a photo of Echo’s legs in a beaten up looking powered wheelchair. The footplates are sloping inwards causing the angles in Echo’s legs and ankles to be completely wrong. Holding Echo’s legs in a slightly better position and protecting them from the metal bars of the footplates are two large snail shaped cuddly toys which have purple shells and are smiling. /end ID
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cripple-punk-dad · 1 day
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do people understand how isolating being a wheelchair user is. can you imagine just for a second, just a second, how it feels to be told over and over and over again that, sorry, we just aren't looking for a candidate with your skillset right now when you know damn well that they hire able-bodied 16 year olds with no experience. How it feels to say "No no you guys go on without me" every time you come across stairs in public. Literally every time. Because the alternative is what, exactly? Make a scene, have a stranger record you and put it online and suddenly you have a stalker and zero privacy. Or make a scene and then have nothing change? do you get it yet? The sheer anxiety of existing in a public space while in a wheelchair? Knowing that if somebody decided to move you or kidnap you or damage your wheelchair you would be fucked. Knowing that, as much as you want to tell yourself nobody is looking at you, you can literally see them staring? I don't know how to explain the feeling of watching conversations happen, watching friendships develop and missing connections just because you can't physically get to them.
But it's not anybody's fault, right? It would be totally unreasonable of me to ask my friends or coworkers to please stay where I can hear them. It would be unreasonable for me to get angry at an employee for the inaccessibility of a store because it's not their fault. It's not anybody's fault. It's just how the world is, I guess. And I have no right to be upset about it because God forbid I ask to be treated like an equal human being
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also. figured out (part of*) issue of why lean forward like shrimp in wheelchair despite very leaned back backrest
(* part where wheelchair mechanical issue anyway, imagine there body issue component too but no idea why body do it)
is because dump issue!!!!
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[id: simple drawing of 3 wheelchairs. wheelchair 1 has straight back n straight seat & form 90 degree angle. wheelchair 2 have leaned back backrest which make back rest to seat angle more than 90 degree but back of seat is also lower than front of seat (has lots of dump). wheelchair 3 have bigger wheels represent by two circles instead of one, back rest is leaned back n angle more than 90 degree but no dump. end id]
so. standard is chair 1 right. everything straight & perpendicular & 90 degree. this make body sit like shrimp because need use core to make sure body stay up and well
so lean backrest back, make angle more than 90 degrees. then soon after, make dump bigger, so back of seat lower than front of seat. figure 2 exaggerated but something like that. this work because dump make sure gravity -> body actually lean back (i think)
but then got bigger wheels (like. still same 24 rim size, just wheels bigger bc have anti pop technology). erased much of dump. think body don’t naturally tolerate angle??
don’t know how explain. but is dump issue
but already at greatest dump current chair can naturally do. just erased by wheel
so thinking abt other ways to increase dump… or increase difference between front seat height vs back seat higher
maybe put in foam wedge under cushion?? but custom cut expensive
don’t recommend do this if you have other options lol imagine this create more issues but can’t really … get another chair
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wheelie-sick · 12 hours
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I was in the grocery store, minding my own business in my wheelchair, and this woman starts shouting to her kids "CAREFUL CAREFUL MOVE OUT THE WAY BE CAREFUL" because I was vaguely near them. that was uncomfortable....
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Shout out to the ten year old who just got diagnosed. Shout out to the housebound fourteen year old. Shout out to the eighteen year old who can’t go to the university they wanted. Shout out to the twenty two year old who can’t get a job. Shout out to the twenty six year old with a caretaker. Shout out to the thirty year old who can’t buy their own house.
Shout out to young disabled people. We exist.
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cr-pplepunx · 4 months
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if youre considering using a mobility aid, youre probably thinking about getting a cane. even if it seems like youre issues arent bad enough, you should probably still consider other mobility aids. please look into the pros and cons of several different mobility aids, especially in conjunction with your specific disability/diagnosis/needs.
i got a cane at first because i thought my issues were "mild" and therefore i needed a "mild" mobility aid. but canes are moreso for stability than support. i damaged my wrist and worsened my scoliosis by deciding to use a cane without an educated opinion.
i now use forearm crutches primarily, a rollator for longer outings, and a wheelchair for worse days and longer events. dont make the same mistake as 16-year-old me. dont choose your mobility aid based on palatability, consider your needs and address your internalized ableism if need be.
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fallenstarcat · 6 months
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sure there’s a ramp, but is it steep? is there a curb at the top? is the ground uneven? do i need a key for the elevator? are the aisles and doorways wide enough? do i have room to turn? is there furniture and clutter in my way? is the carpet difficult to wheel on? can i open the doors myself?
accessibility to wheelchairs is more than just a ramp.
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hate-kill-repeat · 1 year
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revamped design with all of my disabled keith haring style dancin' guys all together, updated to include the yellow power chair user ~
ID in alt text
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plague-parade · 9 months
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today for disability pride month, i’d like to discuss something not many able-bodied people know about: ambulatory wheelchair users!
first, “what is an ambulatory wheelchair user?”
it’s a term used to describe people who use wheelchairs that can stand and or walk in some capacity. the amount a person can walk can vary greatly between ambulatory wheelchair users, some may need their wheelchair 60% of the time, some may need theirs 90% of the time.
“why would someone use a wheelchair if they can walk?”
there are tons of reasons someone who can walk might use a wheelchair, such as fatigue, balance, heart problems, pain, fainting, and many, many more. it could be dangerous for them to walk.
“isn’t that being lazy?”
nope! take shoes, for example. you *could* walk without them, but it would be painful, and could give you cuts or blisters. would you consider wearing shoes to be lazy? also, many disabilities and conditions are progressive, using a wheelchair can help slow progression and damage to your body.
so next time you see a wheelchair user move their leg, remember that ambulatory wheelchair users exist!
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jemineye · 1 year
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i cant stress this enough, disabled people know their own limits. i fucking promise you. we are not being lazy or jerks because we won't do something YOU want us to do or something YOU THINK will make us feel better. it wont. stop.
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youngchronicpain · 8 months
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Whenever a person walks out of the accessible bathroom stall and sees me, a wheelchair user, sitting outside waiting for the stall, they often apologize.
In the beginning, I said, "No worries!" Because I was too scared to be confrontational.
Then I started saying nothing.
But after a while, I realized that some disabled people may be a portion of the people that apologize. And I never want to make an invisibly disabled person feel bad for using accommodations that they need. There are many different reasons a disabled person would need the stall!
(It is tiring waiting for ages while someone uses the stall to change, or do their makeup. It is not annoying for anyone who needs the stall to use it.)
So, I've decided to start saying, "That's okay! I believe every disabled person should be able to use the accessible stall!"
Because then, if they are invisibly disabled, hopefully that will put them at ease.
And if the person isn't disabled, it will remind them that the accessible stall is not just "the big stall."
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flowercrowncrip · 2 days
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I just had to ask my carer to position me in bed. Usually I can do it myself with aids but tonight I just couldn’t do it.
I’m hoping it’s a one off but it feels pretty crap. I hate it when I find new things I can no longer do. Especially things like this where it has potentially serious implications (in this case changes to my pressure sore risk and overnight care need)
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cripple-punk-dad · 22 hours
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fuck small businesses and thrift stores that cram their locations so full of shit that they are fire hazard and are completely inaccessible. If you cannot fucking afford to make your store accessible, YOU SHOULDN'T HAVE THE FUCKING STORE. I don't actually care any more. I don't fucking care. Call me bitter but I'm so fucking sick of small businesses hiding behind the "owo we're just scraping by :( we don't have enough money to add a teeny little ramp to our store because wood is too expensive and our store is too small and cramped for a wheelchair user anyways :( or we have two floors and more space than God but elevators are so spency :( and they really don't match the vintage/modern/art deco/whatever fucking aesthetic vibe we're going for. Also our store is listed as accessible because we have dim lights, but the lip of our door is almost 6 inches high and you won't know whether or not you can come in until you get here." Fuck off. You pay your employees minimum wage and blame it on bad business because you're just so small :( well guess what. If you can't afford to pay your employees properly, you don't deserve employees. "I'll shoplift at a department store but NEVER at a small business!" Cool. I will probably. Depending on the specific store and the circumstances. Literally the most inaccessible stores I have ever been in are small businesses in houses and/or strip malls. It's literally so easy to not have an inaccessible building. It's so easy.
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tho in other news. insurance approved headrest & better cushion for manual chair n deliver in half a month maybe help with neck instability 🎉
haha though when body get tired slump forward like shrimp spine slump forward neck slump forward don’t have ability keep body up even if backrest really leaned back so idk if will actually lean on headrest
maybe make self chest strap time… with pretty fabric
how to attach to chair though is. question
and. headrest going to be idk. probably another 5-10 lb weight? putting “ultra light” manual chair 50+ lb total.
they should make these shit lighter
one reason hesitant for joy stick based power assist like e fix is because add 50+lb weight (another is insurance prob won’t cover nor have enough time until lose insurance but whatever). at this point 50 more lb not matter if can’t propel current chair weight anyway
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crippledpastrycryptid · 4 months
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It's properly snow season again, so here's a
friendly psa
from your neighborhood wheelchair user.
If your sidewalk is not completely shoveled, it isn't usable.
If you can leave footprints in the snow, the snow is too deep. A wheelchair can't get through
If its a narrow pathway people can 'squeeze through', a wheelchair can't get through
If your sidewalk is pristine but the curb cuts are full of snow, a wheelchair cannot get through.
If wheelchairs can't use the sidewalk, our only option is to use the road, and we don't like that any more than you do.
Sincerely, a wheelchair user in the north who would prefer not to be trapped in my apartment for months on end
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Something that really sucks about being disabled is places say that they’re accessible but they aren’t.
I’ve been to places that claim to be accessible where
the ramp’s too steep
there are steps they didn’t mention because “it’s only two or three”
the doorways are too small
there aren’t any elevators to the top floor
the floor is too rough to easily push on
exhibits are displayed in ways that are impossible to see from a wheelchair
the doors don’t have a push button
tables/exhibits are put way too close together
the surrounding paths have no curbs
Without those things, it isn’t accessible. You can’t put a sloped piece of metal on your doorway and call that wheelchair friendly.
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