#I’ve had a migrain and anxiety burps all day. | Explore Tumblr Posts and Blogs

rhodanum · 4 years

Text

COVID-19 roller-coaster

Despite its personal nature, I'm making this entry public, since it may be of aid to others as well, in these circumstances. Particularly for people who might end up having highly atypical symptoms like I did.

Long story short, I've been scarce from most forms of social-media for over a month because I caught COVID-19 some time before my country instituted lockdown measures. I was in hospital from the start to the middle of April (roughly two weeks) and started showing symptoms as early as March 18 (runny nose, sneezing, that I ascribed to a common cold, since at that time they weren't considered something that could present in the case of COVID-19). It took me well over a week and a half of battling symptoms at home and calling four ambulances in that time-frame, always getting dismissed on account of my symptoms not matching up with the standards presentation (aside for the runny nose and sneezing, the vast majority of my symptoms have been gastrointestinal, neurological and renal in nature, not pulmonary) before I was finally tested (on April 1st) and admitted to hospital the following day, when the test came back positive.

My timeline of events has been the following (and I'm still currently symptomatic + showed one new COVID-specific symptom even after two negative tests and discharge from hospital):

March 18 - March 23 -- constantly runny nose, post-nasal drip, sneezing all the time, a light cough. Nothing too bothersome, I dismissed it as a seasonal cold. At this point I started burping heavily, out of nowhere, for seemingly no reason.

March 24 -- woke up with a terrible back-pain, roughly in the area of both kidneys. The pain lessened as the day went on. In the evening, I had my first very clear neurological symptom -- my eyesight filled with a sort of black static (like a TV without cable signal), to the point where I could no longer read letters, discern my own features in the mirror or tell how many fingers my father was holding up. Thinking I was having a stroke or hell knows what else, I called an ambulance. The static-like effect lasted around 20 minutes and was completely gone by the time an ambulance crew arrived. They checked my blood-pressure and it was high due to the panic (174/109), so they dismissed the static as a result of the high BP and gave me an ACE-inhibitor pill to lower it.

March 25 -- started feeling kind of grotty around lunch-time. At around five in the afternoon, I vomited up all of my lunch completely undigested. An hour later, the true wave arrived. I went to the toilet with explosive, orange-colored, watery diarrhea, massive urination (wasn't drinking more fluids than usual) and vomiting, all at the exact same time. I'm not joking in the slightest when I say that I had my head in the sink, to puke and my ass in the toilet, to pee and shit out orange water, all three at the same time. The puking subsided, but the diarrhea and the urination kept up and, for the next two hours, I went to the toilet to shit and pee every fifteen minutes. By this point I was getting dangerously dehydrated, so we called our GP. She, suspecting it might be Norovirus, told me that the diarrhea needs to be stopped ASAP and my father went to buy me the necessary medicine.

March 26 -- the diarrhea was relatively under control due to the medication, but I was still pissing buckets and having to constantly drink tea to stay hydrated, with how fast my kidneys were clearing fluids. The light cough that started on March 18 got a bit worse, but not by much. I had no appetite whatsoever and attempted to eat a little at lunch, but only ended up puking again. I was worried enough about the whole thing that I called an ambulance again. The doctors claimed it couldn't be COVID-19 (by this point I was reading reports of diarrhea as a common early symptom). He listened to my lungs and said they're clear. Then he gave me an anti-emetic shot in the bum (so I wouldn't keep throwing up) and tapped my kidneys a few times. When I flinched, he said it might be a urinary tract infection and prescribed me a list of medication, with the antibiotic Ciprofloxacin at the front of it (keep this one in mind, it's very relevant for what happened next). I didn't actually have any pain when I urinated and the urine itself wasn't dark, but rather almost as colorless as water. I was just peeing far too much and the area round my kidneys was tender.

March 27 -- woke up with a persistent cough early in the morning and a sensation of tickling in the throat, which made the cough worse. This morphed into a very specific kind of migraine, starting from the very back of the skull and radiating to the front, to the point where the backs of my eyes hurt terribly as well. Still peeing a ton and drinking tea and water to stay hydrated. General state of malaise, as if there was something terribly toxic in my body, leeching all the strength and vitality out of it. Started taking the UTI antibiotic (Ciprofloxacin). My eyelids were twitching involuntarily and I had an up-and-down sensation, with some parts of the day being slightly better (able to sit at my desk and watch an episode of a show) and others, just one or two hours later, making me feel so horrid that all I could do was lie motionless in bed. Still had no appetite and force myself to eat a bit of vegetable broth Dad made for me.

March 28 -- horrendous night between the 27th and the 28th. A sensation like a knot developed in my throat and got worse and worse. To the point where, at around three in the morning, I could no longer swallow my own saliva. I could still breathe perfectly fine, no shortness of breath of anything else like that, but the feeling was as if my esophagus went and swelled shut. I had to gather up a large quantity of saliva in my mouth, tip my head back and struggle for several dozen seconds, to be able to swallow. I very nearly choked when trying to take my medication in the morning, after a sleepless night. The inability to swallow subsided, but the sensation of a knot in the throat remained. Feeling of malaise and weakness grew worse. A sensation of brain-fog came on and I could no longer focus on anything. I attempted to read fic on my phone and just ended up reading the same chapter three dozen times, because my brain could no longer process the words. Difficulty speaking and articulating my thoughts. I could still think well enough, but translating said thoughts to words or writing was incredibly difficult. I spent a whole minute just trying to get the word 'insulin' out through my mouth. I knew it, I remembered it, I just couldn't transform it from a thought into a word without a great deal of effort.

March 29 -- another nightmarish night. Not due to problems swallowing, but inability to actually fall asleep. All attempts went the exact same way:

closed eyes and attempted to fall asleep

started hearing a loud, constant and almost nonsensical monologue in my head, in my own voice, often jumping from one language to the other (English, Romanian, Italian, etc all languages I knew). It's difficult for me to describe the contents now, since they barely made any sense, but they were almost everything from a recitation of a shopping list all the way to narratives that didn't make any sense ("and then, get this, the clock bashed his face in!")

started seeing images behind my eyelids, almost as nonsensical as the words -- parades of wild color, me falling through Salvador Dali-like landscapes, images shifting hundreds of times per minute

None of these were dreams, everything was happening while I was still awake and struggling to fall asleep. I'd close my eyes, struggle mightily to empty my head and go the fuck to sleep... and within seconds, the cavalcade of words and disjointed images would erupt again, with me having almost no control over it. After a few minutes I always found the strength to jerk up and open my eyes, which silenced the voice and ended the images... but then I'd have to try closing my eyes again and the circus would repeat again. This happened hundreds of times over the entire night, before I was finally able to fall asleep for a few hours, at six on the morning.

Woke up absolutely soaked in incredibly foul-smelling sweat. So much of it that my bedsheets were wet as well, not just my pajamas.Used what little strength I had to strip the bed, take a shower and change my pajamas. By lunch I was feeling the worst I'd ever felt, shaking convulsively without having any kind of fever and begging 112 (our emergency number) for help. Several friends were worried I might be going into some kind of shock. Our ambulance service was swamped and Dad used his connections to get a hazmat-equipped team to come home and test me for COVID-19. The hazmat team claimed, like the previous ambulance crew, that I couldn't have COVID-19 since I didn't have a fever and wasn't coughing my head off. I pressed to get taken to the hospital and tested, but between them berating me for taking the risk and Dad looking petrified at the idea of me going to a hospital (and getting exposed, at this time he was still convinced I just had a strange flu), I caved and remained home. They said I was probably having an anxiety attack and left.

March 30 -- yet another sleepless night with visual and auditory hallucinations whenever I attempted to fall asleep. Utterly desperate and frantic, I spent the night scouring the Internet for links between COVID-19 and other viral illnesses and hallucinations. In the end, while reading the prospects for all the pills I was taking, I found the culprit -- the goddamn Ciprofloxacin, the antibiotic for the presumed UTI (the area around my kidneys still kept hurting, but the urination continued to be painless, clear and frequent). Hallucinations and psychotic episodes were listed as one of its 'rare side-effects'. Not so rare in my case and other researchers are now taking a hard look at it and other antibiotics in its family, since the numbers of people who end up hallucinating while on the things is apparently larger than previously suspected.

I immediately contacted my GP, who was shocked at what reaction my body ended up having to Cipro. Nevertheless, she immediately switched me over to another antibiotic we had in the house -- Augmentin, a more broad-spectrum one, but one I'd taken in the past for bacterial infections and responded well to. Urinating slightly less and able to eat a bit more, but the pain in the kidney area was getting worse.

March 31 -- night hallucinations continued, but at a slightly reduced intensity, once off Cipro. Woke up completely covered in horrible-smelling sweat once again. Left arm numb and then painful, a reaction I was left with after a long bout of the monster-flu two years ago left me with peripheral nerve-damage due to the immune system going completely bonkers and attacking the nerves. This symptom appearing again made it clear that I was experiencing autoimmune issues once again, as a result of my immune system fighting against the SARS-CoV2 virus.

The pain in the kidney-area was growing worse and worse, even with the Augmentin treatment. By evening, I'd called a fourth ambulance in roughly seven days. The paramedics were even more dismissive than the last crew, said I just had some sand or maybe a small kidney-stone and to wait it out at home. They completely refused to take me to the hospital, claiming that I ran the risk of a COVID-19 infection over a small issue.

April 1 -- a slightly better night of sleep, the hallucinations reduced to 10% of their previous intensity, so clearly an effect of the Cipro. The brain-fog was still presence and further research pointed to it as a possible effect of COVID-19, rather than the antibiotic. Woke up drenched in sweat once again, with my cervical area hurting horribly, my kidneys in pain as well and my left arm numb once more. Completely furious and utterly fed-up, I said "fuck the ambulance service!" and begged Dad to take me to the nearest ER by car. By this point I was fearing for my kidneys and feeling so horrid that I was 100% willing to take the chance of COVID-19 infection, if I didn't have it, just to figure out what the bleeding fuck what happening to my body. He refused initially, fearing I would be infected, but was left with no choice in the matter when I threatened to walk to the hospital by myself if he wasn't willing to help.

At the ER closest to our apartment, a hazmat-equipped doctor working triage had me sit down and fill up a questionnaire of symptoms. Even without fever or difficulty breathing or persistent cough (my cough came only in the morning and lasted just a few minutes each day), everything else was enough to make him note "possible COVID-19" and give me a paper to present to our national institute of infectious diseases, so I could get tested. So Dad and me left the ER and drove to Matei Bals Institute, where the doctors were rather puzzled by me, coming in without a fever and not coughing my lungs out. The chest x-ray turning out perfect (nothing in the lungs) only seemed to increase their skepticism, but they nevertheless tested me, before sending me home and telling me I'd receive the result in 24 hours. Their only recommendation was to talk to a nephrologist on the phone, re: the kidneys.

April 2 -- felt slightly better, though still under heavy malaise and the kidneys were more painful than ever. At about nine in the evening I got a phone call from our local public health authorities, who told me that my RT-PCR test for COVID-19 was positive. Honestly? Instead of being frightened, I was relieved. After almost two weeks of the strangest collection of symptoms I'd ever had, I finally had an explanation as to what on earth was causing them and was vindicated re: the four ambulance crews that dismissed me. The authorities sent an ambulance that picked me up, right along with Dad (quite unwillingly in his case, he only had some sniffles and a minor indigestion, despite having nursed me for well over a week). We got taken back to Matei Bals Institute, where Dad was tested and sent back home (since he didn't have much in the way of symptoms and they had no reason to keep him) and I was admitted into one of the wards. The time was roughly two in the morning.

April 3 -- barely slept due to the noise and light in the ward. Had blood drawn, for blood-work. Malaise as terrible as ever. Started treatment with HCQ (Plaquenil), the anti-malaria drug. The rest of my ward-mates were absolute sweethearts, but I was much too weak to do much other than get out of bed to trudge to the communal bathroom down the hall. Urination (which had slowly reduced in frequency from March 25) still a bit more frequent than usual. Begged the doctor for something to let me sleep and was given a few metallic-tasting, oily drops to drink in the evening. Had the first good night of sleep in well over a week.

April 4 -- at this point, the kidney pain got so bad that I could barely walk to the bathroom and would grit my teeth in pain whenever I sat down in the bed. Asked one of the nurses for help, with no visible result. The pain was getting worse and I could no longer get out of bed, just lying there in a listless lump. Several of the other people in the beds next to me went to pound on the door separating the 'red zone' from the 'green zone' and demanded that the nurses or doctor see to me. In the end, a young nurse came and struggled for almost thirty minutes to get an IV in me. She was inexperienced and, coupled with having to wear three pairs of gloves and a visor on her face, she could barely see or feel my veins. The result was that she ended up blowing thee of my veins (two on the right hand, one on the left) before she finally managed to get the IV needle in and secured it. Then I got put on a heavy-duty regimen of IV Ceftriaxone (antibiotic), hydration fluids and painkillers, for the next few days.

April 5 - 7 -- slowly got better on the IV regimen. Gained a bit more strength, the pain in the kidney area subsided and I could walk again. Gave urine samples twice and they came back clean (no bacterial infection in the kidneys or urinary tract). On April 6 we were told that the whole lot of us (the seven of us crowded in that ward and everyone else in the same wing of the Institute) would be transferred the next day to Colentina Hospital, just a stone's throw away, which had been officially designated as a COVID-19 support unit. The reasoning was that we'd be placed in smaller wards and the Matei Bals Institute could focus on the critical and very difficult cases, that required everything from oxygen support to full intubation. My IV needle was removed on April 7 and we, dragging our luggage after us, walked from our wing at Matei Bals to the entrance to Colentina, just two hundred meters away. We were dispersed all over the Internal Medicine wing and I got lucky enough to be placed in a room with just two beds, sharing with a lovely 81 year-old lady, who was COVID-19 positive, but utterly asymptomatic. Got blood drawn again and also had an EKG done (no cardiac abnormalities). Also had another x-ray, lungs still entirely clear. Got tested for COVID-19 once again, but the result came back 'inconclusive' the next day. The treatment with Plaquenil was ceased and I received no further medication, save for what I requested to handle inconsistent stools.

April 8 - 9 -- kept getting stronger and stronger, able to sit out of bed and walk for extensive periods of time. Bowels still somewhat disturbed and shifting between constipation and diarrhea and then back again,with the stool always being a bright, sun-yellow. Otherwise no pains or other malaise present. Got tested for COVID-19 once more on April 9.

April 10 -- some of the first ever symptoms I had, in middle March (runny nose, sneezing, stomach constantly full of air and always burping) came back at this point, along with noticeable muscle soreness in my upper arms and shoulders, even though I'd never made any great physical effort. The test taken on April 9 came back 'negative', so the doctors ignored me when I told them that I was having old symptoms come in for an encore. Tested once again.

April 11 -- the burping and stomach-distention due to air grew worse. The 'knot in throat' symptom returned. The test from April 10 came back 'negative' as well and since I fulfilled the criteria of two negatives in 24 hours, I was discharged and had Dad come and pick me up. The Colentina doctors, completely inexperienced re: COVID-19, claimed that my gastro symptoms were likely caused by something else.

April 12 - 16 -- uncertain period, with the typical 'up and down' pattern making a return. One day I was feeling fine and had energy, the other way I was wiped out and could barely get out of bed. Frequent urination (once every twenty minutes) decided to make a return as well and I broke down in tears. Also got a brand-new symptom -- pink-eye straight out of nowhere, which has also been associated with COVID-19 infection.

April 17 -- worst day since the first ones in hospital. Completely exhausted and dealing with a horrible pain at the base of my skull, that was pulsing slowly, radiating down the spinal column and up into the skull. Doesn't respond to Paracetamol and I didn't want to risk taking Ibuprofen. Getting dehydrated due to the constant urination once more, so I started drinking water with electrolytes whenever I could. Fell down on my way to the bathroom, when a veil of darkness passed over my eyes for a few seconds. Everything was spinning and I felt as if I was disassociating and floating away from my own body. Felt better only after more water with electrolytes.

April 18 - 20 -- still felt crappy, but marginally better than on the 17th. Pumped myself full of vitamin C, vitamin D (have a long-standing deficiency there), magnesium and potassium from bananas, kale, spinach, probiotics from yogurt with live cultures in it, to re-balance my likely ravaged gut flora. My appetite, decent in the hospital and shot to pieces again on the 17th, was slowly making a comeback once more. Still burping and full of air no matter what I ate, still pissing frequently. One of the things with COVID-19 was that it made my GERD flare up about ten times worse than usual. Started treating it with a proton-pump inhibitor (Omez) which handled the extra acidity and the heartburn, but not the burping and trapped air. Kidney region started hurting again and at this point I didn't know if it even was the kidneys themselves (both urine samples and blood-work in the hospital showed no problem whatsoever with the kidney function, in spite of the weird symptoms) or just nerve-pain in the area of the kidneys.

April 21 - 23 -- slowly gained strength once more, able to get out of bed and work at my PC. Pain in the kidney region came and went, urination slowly started to reduce in frequency once again. Still drinking water with electrolytes, taking vitamins, eating as varied as I can.

April 24 -- best day so far today (hope I don't bloody jinx it). Energy levels almost back to my baseline, though still left with burping, constant air in stomach and general laziness in digestion. Stool of normal frequency, color and texture after the probiotic regimen. Left with lingering nerve-pain in the cervical area, the shoulders, the lower left ribs in the front and the lower back. Urination frequency reducing to more normal levels once again, feeling less like a constantly dehydrated prune.

It's been... almost five weeks since the first symptoms. A long and exhausting ride and I still don't know what might pop up again. But still far preferable to those poor souls who end up unable to breathe and in full-blown ARDS, needing to be sent straight into the ICU.

Why did I have another flare-up, after two negative tests? Your guess is as good as mine, right now. I have a few theories:

consistent with those articles coming out of South Korea, false negative results might be more widespread than we suspect, in some cases. Either because the virus might be able to hide in the central nervous system and pop back up again for another tangle with one's immunity or because the immune response can lower viral concentration in the body enough for a test to come back negative, without the virus actually being defeated for good.

the test results are correct, the virus is gone from my body and all of what I'm still dealing with are a the result of post-viral systemic inflammation. Not an unlikely thing, since I have a short history of dealing with autoimmune bullshit after that flu two years ago left me with enough nerve-damage that I was unable to walk for a whole month and took six months to recover fully + still wake up with the left side of the body temporarily numb and huge pain in the spinal column if I ever sleep on a shitty mattress, that doesn't offer decent back support.

I want to do more blood-work, see if markers for autoimmune activity show up, but unfortunately, that's pretty difficult to do now, with most hospitals up to their eyeballs in COVID-19 and private clinics charging an eye-watering price for such tests. Dad is almost broke until pay-day, due to how much money he spent in the last month on medicine for me, so it will have to wait or we'll figure something out if my situation worsens again and it becomes imperative to get treatment against autoimmune response. Taking this thing one day at a time.

An overview of my COVID-19 symptoms, good to keep an eye out for:

Gastrointestinal:

explosive, orange, foul-smelling diarrhea

excessive flatulence

vomiting

aggressive flare-up of GERD

excessive burping

swollen, painful stomach due to constantly trapped air

difficulty swallowing

feeling of knot stuck in throat

lack of appetite

Neurological:

temporarily failing vision due to static-like images over the eye's perception

twitching eyelids

nerve-pain in the cervical area

migraine starting at the back of the head and radiating to the backs of the eyes

nerve-pain in all sorts of odd places, coming and going (the left ankle, the left front rib, the right back rib, the kidney area)

dizziness

brain-fog and temporary difficulty with focusing / with coherent speech

Renal:

very frequent urination, though blood-work indicated no disfunctionality with the kidneys

Upper respiratory:

runny nose, post-nasal drip

sneezing

light cough, early in the morning, accompanied by a ticking in the throat sensation that set it off

Unsure how to categorize:

foul-smelling night-sweats, intense enough to soak through clothes and sheets

pink-eye

No shortness of breath, no fever, no lung involvement in my case. This is a virus that the human body responds to in ridiculously varied ways, from that cute little old lady at Colentina, who was totally asymptomatic, to me, where it manifested almost like bloody cholera (the violent diarrhea, vomiting and pissing at the same time, like something was trying to squeeze all of the water out of my body), to one of my ward-mates at Matei Bals, who had developed pneumonia and required moderate oxygen support and was well on the mend when we got dispersed, to the unfortunate souls who end up in ICU with ARDS.

Take care of yourselves, be vigilant and stay safe.

#rho rambles #covid #covid19

19 notes · View notes