#long covid research

[pandemic-info]

https://twitter.com/coffeeteanxiety/status/1736750299551826127 I’ll stop masking when the world’s leading researchers on Long C0vid do. Prof. Akiko Iwasaki: "I'm still wearing my 😷 everywhere." Michael Peluso, MD: "I'm very strict, actually, about 😷." Ziyad Ai-Aly, MD: "Yes, primarily because of Long C0vid. I don't want Long C0vid."

+

https://twitter.com/sri_srikrishna/status/1736460422499459115 Full of DEEP INSIGHTS ABOUT LONG COVID. At 1:01:15, panelists were asked if they continue to be covid-cautious by wearing masks 😷(even though many at infectious disease conferences no longer do), all three nodded yes with a smile 😃 and they MASK TO AVOID LONG COVID

#covid #long covid #twitter #commentary/opinion #long covid research #science #akiko iwasaki #ziyad al-aly #michael peluso #masking #winter 2023-24

[lcacommunuty]

Join the Best Long COVID Community Online: LCA Community Unveiled! 

Are you one of the individuals who just recovered from Long COVID using Apheresis treatment or some healthcare professional treating Long COVID patients? Then, you’re eligible to join the best Long COVID community – LCA Community. We are a group of health enthusiasts aiming to draft a comprehensive study on the effectiveness of each form of Apheresis treatment. You can join your reports or research findings to help us. Visit our website to contact us now! 

#help apheresis updates #long covid research #long covid update

[pandemichub]

Take action on RECOVER and NIH below

#Long covid #Long haul covid #Long Covid Research #National Institute of Health #NIH #Disease Research #RECOVER INITIATIVE #RECOVER Program #RECOVER #Stat News #Jaimie Seltzer #ME Action Network #Public Health

[nowstomorrow]

"As part of the study , the researchers - led by Dr Nick Reynolds from the Institute for Molecular Science at Melbourne's La Trobe University - used computer algorithms to identify small fragments of proteins ( called peptides ) in SARS - CoV - 2 .

Reynolds and his colleagues could then study these peptides in the lab , observing they had formed clumps , mirroring amyloid plaques found in the brain in the early stages of neurodegenerative diseases like Alzheimer's and dementia . "

What we saw is that they formed very similar amyloid clumps , which are basically just ordered assemblies of protein that are stuck together and considered ' molecular hallmarks ' of the early stages of neurodegenerative disease , " he said .

" To cut a long story short , these amyloid plaques are very toxic to the brain cells and we hypothesise that aggregates of SARS - CoV - 2 proteins may trigger neurological symptoms in COVID - 19 that many of us call brain fog . "

If this is confirmed in future studies , Reynolds believes drugs developed to combat Alzheimer's and Parkinson's could be repurposed to revolutionise treatment for the debilitating neurological symptoms of long COVID."

#Covid #Covid 19 #Covid research #Long covid #Long covid research #Covid brain fog

[puppyeared]

Why are ppl scared to call it what it is and say we’re still going thru covid on top of seasonal illness. Like. That’s pretty important right. I was watching the news and they were like oh yeah we have an unprecedented number of flu cases “as well as other sicknesses” without actually saying Covid. No announcement abt vaccinations or masking or anything. Also if I hear someone joking abt “war flashbacks” for mentioning covid I fucking hate u

#source: most of my family members are nurses and it was so bad for one of them they had to be put on a ventilator. in the hospital they #worked at. looking back I think I had a reason to feel a little offput by the shows of support early pandemic #with people tying blue ribbons around trees and lighting signs blue to support healthcare workers #I get that it was supposed to be moral support when we couldn’t do anything but follow health advisories #and it did matter to make them feel uplifted and do something than nothing. im not gonna deny that #but. you can still help now. u know that right. you still have a responsibility here #u can still mask up. u can still get vaxxed and call in sick to avoid infecting others #don’t leave it on healthcare workers to pick up the pieces just because they were doing it before. do u think they had a choice? #nobody likes picking up the slack for someone else and now that we have more tools to do smth couldn’t we just. do it???? #im not a virologist but i also feel like continuing to let it get worse by letting more mutations develop #could continue to set us back since this virus is pretty good at fucking us up long term and finding new ways to do that #while there are ppl still researching covid which is STILL A RELATIVELY NEW VIRUS. and studying possible treatment and cures #yapping #vent

[flango87]

I’m looking to compile current resources (studies and such) on Covid and long covid, so they’re all in one place and I can have the information on hand when ppl argue that covid isn’t a thing anymore, or that it’s just a flu. If you have any good resources pls send them my way!!! Ill create a master doc or something with everything so other ppl can have it too

#Covid #long covid #wear a mask #covid conscious #covid isnt over #covid studies #long Covid resources #covid resources #covid research #covid recovery

[snzluv3r]

i actually feel so incredibly uncomfortable and isolated in this space right now and i know that’s silly because of how many people there are just like me who share the same feelings but idk…the fact that people even think this is defensible behavior is making me feel sick

#nothing quite like being reminded how disposable you are #during the pandemic that set the stage for everyone to show exactly how much they don’t care about disabled people #i’m tired of people not taking this shit seriously and i’m incredibly angry about it #because i know y’all who are reckless and ignorant and think you’re invincible are going to be the same ones begging to be let in #when they ultimately become disabled too. #and you know what? i’m not ready to give those people grace yet #been screaming it for years but nobody listens until it’s too late #have already had people with obvious long covid who spouted ableist rhetoric this entire pandemic #come to me asking for advice #and honestly? i don’t think you deserve advice #i have so much empathy but i’m TIRED #i don’t fucking care anymore i get that we’ve been lied to this entire time but if you actually wanted to do the research you would #and since i know nobody cares about protecting others #i think you would at least care about protecting yourself considering how selfish you’ve proven yourselves to be #this is at the entire world and everyone who refuses to wake up to the fact that we are screwed #disabled people have been telling you this entire time and it’s still a fuckimg joke #and it will only become serious when it affects them directly #i’m so angry right now #and honestly? if you feel like this is about you at all? in any way? that’s your sign #do fucking better. TEST WHEN YOURE SIXK #stop fucking going out when you’re sick unless it’s necessary #i’m so so tired

[theculturedmarxist]

#covid #long covid #disability #disability research

[thatdiabolicalfeminist]

If you haven't been keeping up with all the latest long covid research, it's neatly summarised and sourced here.

#long covid #dysautonomia #covid #research #covid19 #thatdiabolicalfeminist

[palms-upturned]

.

#meg talks #feeling really down and frustrated #ever since i caught covid over the new year ive just been doing so badly #it’s now halfway through may and not only am i having all sorts of weird new pain problems #to the point where i dragged myself to the er yesterday bc my usual meds didn’t do shit for me and i spent seven hours writhing in pain #but also mentally im just. constantly tapped out #before covid i was able to keep up w news and work on research projects and write multiple image descriptions every day and read books #and keep up w friends all while working full time #like even if i was in bed p much whenever i wasn’t at work i could still read and write and carry conversations #now it’s like i can only handle all of these things in small doses before my brain just shuts off #im still keeping up w news and describing what i can and working on my research projects and trying to make connections #but i feel so slow abt everything i do #it’s driving me up the wall #ive been trying for days to get through this one academic paper that’s rlly not even that long #and i just can’t do it. not for long anyway i have to read in small bursts #and then having to take muscle relaxants for these fucking spasms that make me really drowsy and sleep the whole day away… #idk. it might not even be abt covid i might be reading too much into it but it’s just pissing me off. thinking abt how nobody masks anymore #and how every time there’s a covid outbreak i won’t be able to properly protect myself or my brothers from it #bc of this fuckass job #idk im just tired and upset

[pandemic-info]

Summary:

Leaky blood vessels and overactive immune response.

#covid #long covid #brain fog #leaking blood vessels sounds so much worse and more disgusting than a wee bit of “brain fog” ffs #research #study #trinity

[rhube]

I just completed the Patient-Led Research COVID-19 Patient Experience Survey.

Be warned, it took a *lot* longer for me to complete than they advised, I guess because I had a lot to say in the free-text fields, but I imagine we all would. You can stop and start at any time as long as you finish in 2 weeks, though.

Towards the end I found some of the questions enraging, but that's the norm when they talk about mental health.

If you're anything like me you'll probably find it fairly triggering in places, but that's par for the course. At the end of the day they can't act on our evidence if we don't tell them, so if you are able to do so, it's valuable, and I generally respect the work Patient-Led Research are doing in this area.

#covid #covid 19 #long covid #patient-led research

[pandemichub]

More information about Stanford research goals and the RECOVER Program/Initiative:

#covid-19 #covid 19 #sars cov 2 #covid #long covid #long haul covid #Stanford #Clinical Trials #Paxlovid #Antivirals #Research #RECOVER #RECOVER Program #National Institute of Health #NIH #Institutonal Review Board #IRB

[churchofthecomet]

random question unrelated to the rest of my blog:

I've never had a symptomatic COVID infection. Over the entire course of the pandemic, I've had two or three mild colds and tested negative each time. I haven't been extremely cautious either, I just seem to have some resistance to the virus. (I have taken all available vaccines but haven't been masking lately, which I know is a bad idea -- I will probably start tomorrow.)

Since like 99%+ of Americans have tested positive at least once, I think that there might be something interesting going on with my physiology, and I'd love to participate in a study about it. Are there any labs trying to find COVID-free volunteers for medical research right now? I could be a control-group patient in a study about Long COVID, or it could be something more direct about immune resistance. Bonus points for research in Illinois.

#covid19 #covid #covid research #long covid #medical research

[kp777]

#long covid #anthony fauci #medical research #covid 19 pandemic

[particularj]

Key findings:

There are key blood differences in those with long COVID, primarily with cortisol (replacing or alternatively boosting cortisol is not recommended at this time).

There are also key differences in T and B cell activities (key in immune system functions).

There may be re-activation of other viruses occurring with COVID, including Epstein-Barr, the virus that causes mono.

Additional research and of course treatments are needed, but there is definitive, biological proof of long COVID.

#long COVID #research #science #chronic illness #chronic fatigue #news