#this barely scratches the surface bc it's just a few examples of how our dynamics work but hopefully it is clarifying

[crimeronan]

I feel like I would consider myself polyamory agnostic in a way, like I would maybe like for it to happen but I often fear that I don't have the ability to manage even one partnership, let alone multiple relationships, since I am often. So tired. I often find myself idealizing the "late" stage of a relationship when everyone already has settled into what to expect of each other and knows not to take it personally if someone falls asleep mid movie, for example. All this to say, how do you handle your relationship structure as a disabled/chronically ill person? Do you have any advice/thoughts on how it works for you? (I feel like perhaps you have posted about this before and I am just forgetting...)

oh this is a really good question! i'm not sure how relevant my life experience will be to you, particularly given that i started dating all three of my current partners before becoming disabled/crippled. but i am happy to share!

first off -- i 100% get romanticizing the late stage of relationships, sometimes you just need things to be chill and flexible. but i also don't think that this stage necessarily Needs to be reserved for Late Relationships?

like.... the older i get, the more upfront i've decided to be about my needs, especially with new people. granted, a lot of the people i meet these days are either disabled themselves or Get It -- my social circle is mostly queer spoonies in their 20s and 30s + much much older retirees that i hang out with at the local pool.

some people prefer not to be so open so quickly about their limitations, it is hard and scary to be visibly disabled, harder still to ask for help & admit that you might be inconvenient / a burden / take up extra space. this USED to be me until i said. eh. fuck it. after a certain point, wounded pride is just a mental construct

basically, like. when i'm online these days, you'll see me be clear about my limits with strangers - i'll say that if i stop replying to chats or asks, it's not bc i hate you, it's bc i'm tired or forgetful. that i can't guarantee responses to ppl, even people i'm already friendly with. that if my mood is bad or my pain levels are high, i won't engage in much social interaction at All. that my capabilities fluctuate wildly depending on the day and that i cannot be relied upon for consistent scheduling or posting or creative output

i'm similarly open with people irl. it helps that i'm often using mobility aids when i'm talking to people. the mobility aids sorta strip the possibility of pretending not to be disabled. it's kinda the elephant in the room. but it means that i can be like, "as you can see, i am very crippled. i may need flexibility with any plans that we make. due to being very crippled."

if people get upset by this or simply don't have the capacity to deal with it, that is fine! that's not either of our faults, no one's done anything wrong, we're just not in the right circumstances to mesh. i don't get hurt by that personally. i've honestly found that it saves SO much time and hassle and potential drama/heartache to set expectations right away. the only other option is to exhaust myself and end up failing to meet expectations regardless and losing the friendship after burning up a bunch of energy and social bridges. painful and bad!

so like... i can meet a new person, and if they're cool with My Whole Deal, then there's no waiting period before we're familiar enough for flaky behavior. i can be like, "i'm not sure i'll be able to walk tonight, is there a place to sit down at the event?" or "i'm flaring a little, is it okay for us to be kinda flexible about tomorrow's schedule?" or "hey, i'll get back to you as soon as possible i promise, i'm just fogged TO SHIT today [peace sign]" from day 1. it's great

i'm not saying that you Have to do this; i am aware that it breaches like seventeen laws of general social etiquette. i'm just saying that i have met many people who are totally chill about this! as long as you're chill and respectful of the other person as well, you can do whatever you want forever

that was not even relevant to the initial ask, so. AS FOR MY PARTNERS.

i actually don't find that my illness makes it harder to navigate my relationships at all. like i mentioned, i've been with all three partners for Many Many Years now. we know each other Extremely well, we're all extremely turbo autistic, we all have blunt communication down to a science. so saying "i'm not up for doing [x thing] tonight, can we take a rain check?" is super easy.

in fact, my partners can basically intuit a flare from just my physical movements and tone of voice, even before i say a single word. we are VERY familiar with each other.

.....and, alright. after fighting the urge to longpost i've decided to put the rest under a cut. YOU'RE WELCOME 4 THE RETURN OF YOUR DASHBOARDS. "why didnt you put it under a cut so much earlier" read my posts boy

anyway. click readmore to hear me expand upon just how fucking incredible and awesome and kind and generous and loving my People are

there ARE some ways that the illness has made it more difficult for ME to be the kind of partner that i want to be -- for example, i often lack the energy to provide proper emotional support during stressful situations, i have a shorter threshold for pain/irritation than i used to, i can't give 100% of my energy anymore and there have been times when that has resulted in hurt feelings in my partners.

(there have been far more times, though, when nobody's feelings are hurt and it's literally fine.)

in every case where feelings DID get hurt, we've talked stuff out and fixed it within like an hour. bc we all trust each other and know that we don't WANT to hurt each other's feelings. i never ever Ever say things with the intention of wounding my partners, and they know that. they never say things with the intention of wounding me, either, which is why our very blunt "hey, you need to change something you're doing" convos go so well. there's no need to tiptoe, it doesn't hurt me to know what they're thinking or feeling or needing.

sometimes things are just hard and shitty and we're all doing the best we can. this is just part of adulthood i think. especially adulthood in late stage capitalism, etc. the Biggest key to my polycule is that we are all much happier as a family than we would be without each other. the relationships are about as wholesome and healthy and non-toxic and openly communicative as they can get

the Other key aspect when dealing with my illness is that.... being polyamorous has actually been... SOOOOOO MUCH BETTER than being 1) alone, OR 2) in a monogamous relationship EVER WOULD BE?

it is Extremely Stressful for my family to deal with me being this sick. i am aware of that. but i haven't had to bear the brunt of it. not only do they support me, but they also all communicate with and support each other. so no one person is bearing the entire weight of the stress or pain or fear. and i don't have to comfort people over my own symptoms, which most disabled ppl i think would agree is.... exhausting

when i'm too fucked up to speak aloud, let alone support my partners the way i usually do, they ALWAYS have EACH OTHER as a safety net.

this safety net has been beyond vital for me personally, too. round-the-clock care from a single partner is insane and exhausting and leads to unraveling tempers. but when you live with two partners who can help cover your chores and cook and make sure you don't die of your Symptoms (TM)? that's much more doable.

it's HARD, bc literally everyone in the house is disabled to some degree, but it's doable. (it being hard is part of why my QPR is going to move in with us soon. extra hands!)

a few weeks ago, rafi (partner of 7ish years) went on a short vacation to visit family in california. and justice (QPR of 3ish years, best friend of 8ish years) booked an impromptu next-day plane ticket to come stay with me and vi (partner of 11ish years) while rafi was gone. because i was Very Sick. i was flaring horribly the whole time she was here, and she made meals and cleaned and ran errands and picked up medications and returned phone calls and lay in bed with me watching low-stakes tv shows and made sure i didn't stroke out without anyone there to help.

this meant that i basically got to stay in bed the whole time, which was very very Very needed. and vi -- who has a bad back -- wasn't unduly taxed with Literally All of the household upkeep in rafi's absence.

the same principle has applied when i've needed my partners to help cover my share of bills or my household chores or my errands or whatever. since there are three other people involved, the Immediate Support Net is much wider than in a monogamous relationship. especially bc all three of them have their own familial and friend support networks to reach out to!

having more people around is actually awesome for me. i don't feel like i'm expending a lot more energy than i would in a monogamous relationship, but i AM receiving a TON more support and care and love than would be possible in a monogamous relationship.

i guess the conclusion i'd make is: no man is an island, humans are hardwired to build large social support groups, and in a good relationship, you'll receive At Least as much as you give. right now i'm receiving a SHIT TON MORE than i give, and i do often feel pretty bad about it despite knowing it's not my fault.

but these people have chosen to be my family. and if they ever want to stop choosing me then they absolutely can. and if they need more from me or they need something Different from me, then they'll literally just tell me.

(i know they will literally just tell me because all three of them have literally just told me in the past. they're three people i can implicitly trust to say things like "hey, this thing you said made me sad / was unhelpful" and "hey, i'm really stressed out about [x thing], can we make a plan to deal with it?" and "hey, this situation is pretty serious and i know that you don't want to face it but i really need you to. i will take on whatever i can for you and support you the whole time")

so: yes it has been hard to some extent, managing three relationships while also being sick. but it is also a wonderful setup with a million unthought-of advantages & i am much better cared-for and much better AT caring because of it & i fucking Shudder to think how horrific being sick would be without them.

i love my family so much.

#long post #replies #polyamory #this barely scratches the surface bc it's just a few examples of how our dynamics work but hopefully it is clarifying #polyamory is an advantage that has saved my Entire Ass. my partners are wonderful. #all relationships do take work but my three relationships don't take So Much Work that there's no benefit you know #the work is really easy. it's just. you take care of me when i need it and you can. i take care of you when you need it and i can #that's literally it. it's not a hard symbiosis to maintain #autoimmune tag