wavewavee
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Diagnosed with Ovarian Cancer (Mucinous Ovarian Adenocarcinoma) at the age of 22.
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January 31, 2022
I've already got my Immunohistochemistry report but until now, we don't know the primary source of the cancer cells that was found in my ovarian tumor. Which made me confused and worried.
My Immunohistochemistry report states that the PAX8 is negative, so it is "most likely" to be a metastasis from the gastrointestinal tract. Appendix and stomach need to be investigated for the possible primary site(s).
However, I already did CT Chest, CT Abdomen, Colonoscopy, UGIT Endoscopy, Renal Function Tests, Liver Function Tests, and different Tumor Markers. All of them are NORMAL. In my tumor markers, CA 125 was the only one that was elevated, the rest are normal.
I'm still experiencing severe back pain and drinking panadols and advils doesn't seem to work any longer. I don't know what to feel anymore. I just want to be treated already. It's already been 2 months (almost) since my surgery.
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What’s the difference between adenocarcinoma and carcinoma?
Carcinoma is the most common form of cancer. It starts in the epithelial tissue of your skin or internal organs. Adenocarcinoma is a subtype of carcinoma. It grows in the glands that line the insides of your organs (breast, colon, pancreas, lungs, stomach, and esophagus).
know more at my.clevelandclinic.org/adenocarcinoma-cancers
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Did you know that mucinous ovarian cancer (MOC) can be big? Like 30cm big. It's one way to help tell btwn a primary MOC and metastatic tumour (mets tend to be bilateral and <10cm). This means MOC can be found earlier than other OC - tend to expand rather than infiltrate.
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Taking your own advice can be much harder than giving it out to others. But if you want to get happier, you need to listen to yourself, @arthurbrooks writes in this week’s “How to Build a Life”
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Immunohistochemistry markers are important for the diagnosis of MOC, and my Running aMOC teammate @MeagherNicki published this lovely study showing the utility of SATB2 and CK7 to help distinguish lower GI/appendiceal tumours
https://www.nature.com/articles/s41379-019-0302-0
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Last year I had several informal conversations with women who had been diagnosed with mucinous ovarian cancer (MOC). A common theme was the hard decision on whether to have chemotherapy, and which type to have. Another major theme was the lack of information on their disease.
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Mucinous ovarian cancers (MOC) are a diagnostic challenge, especially high-grade MOC. There has been confusion over whether MOC arise at the ovary, or are only ever metastases from other tissue sites.
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Mucinous ovarian cancer (MOC) is so called because of the gastro-intestinal type mucin the cells produce. It's a very odd morphology for a gynae cancer that has led to a lot of confusion. Metastatic GI tumours got confused with MOC often & this was a big Q in the field.
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Mucinous ovarian cancer (MOC) is so called because of the gastro-intestinal type mucin the cells produce. It's a very odd morphology for a gynae cancer that has led to a lot of confusion. Metastatic GI tumours got confused with MOC often & this was a big Q in the field.
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Mucinous Ovarian Cancer
Mucinous ovarian cancer is a rare subtype of ovarian cancer. About 2-3% of new ovarian cancers are mucinous (cells are large and filled with fluid), meaning that most of the tumor is made up of cells coated in mucus.
A microscopic example of a mucinous tumor showing malignant glands with mucin replacing the normal ovary.
know more about Mucinous Ovarian Cancer at www.uchicagomedicine.org/cancer/types-treatments/ovarian-cancer/mucinous-ovarian-cancers
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January 22, 2022
Today, I did Colonoscopy (again) and the results are ALL NORMAL. Of course it wasn’t painful but I’m definitely experiencing some side effects from the general anesthesia.
Now, I’m just waiting for the results of the Immunohistochemistry markers to know the source of the cancer cells found in my ovary and to be able to start my treatment soon.
I’m in contact with different oncologist right now. One consultant gynaecological oncologist and three consultant oncologist from different hospitals.
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January 20, 2022
I’m experiencing extreme lower back pain that extends to the sides for weeks now. My oncologist told me it’s due to the fluid accumulation in my body that will eventually go away once my treatment starts.
Every night, I do hot showers, apply pain relief rubs, put heat pack, change sleeping position but nothing is working. I only get a maximum of 4 hours of sleep everyday. I only get to sleep once I drink paracetamols, but that’s like my last resort since I know drinking pain relievers every now and then is not good for the body.
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January 13, 2022
First of all, I just wanted to say that drinking castor oil in one go FEELS SO HORRIBLE
They performed Gastroscopy and Colonoscopy to me without anesthesia.
I was able to finish the Gastroscopy, but the Colonoscopy... no
They needed to stop the procedure half way because I wasn’t able to take it anymore. I looked like I was about to faint. WORST FEELING EVER
The results of my Gastroscopy are all NORMAL.
I’m so thankful to the Gastroenterologist and the nurse. Both of them are so kind. They kept talking to me to distract me. They were so patient during the Gastroscopy. I kept on gagging. I looked so wrecked.
The Gastroenterologist suggested to perform the Barium Enema first before requesting for another Colonoscopy (under general anesthesia), if the results of the Barium Enema is good, then I won’t be needing to do Colonoscopy, but if they find something wrong or suspicious with the x-ray, that’s the time I should request a Colonoscopy.
However, after talking to my Oncologist and after careful consideration, we’ve decided to go straight with requesting again for a Colonoscopy (but under general anesthesia this time). Since Colonoscopy is more accurate than Barium Enema in detecting cancers. We don’t want to risk anything.
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January 13, 2022
On January 15, 2022, I will be having my Gastroscopy and Colonoscopy. I was asked to do an almost 2 day fast as a preparation.
Tomorrow, I’m not allowed to eat anything solid. I will just drink water for the rest of the day and drink 60 ml castor oil at 5pm.
8 hours before the procedure, I’m not allowed to eat or drink anything at all.
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January 12, 2022
I’ve got my tumor markers/cancer antigens back. Everything is normal except for the CA 125 (ovary).
Everything used to be elevated, and the CA 125 went from 300 to 49. That is why this is such a great news!
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January 6, 2022
I'm a 22 year old college student. I was diagnosed with Mucinous Ovarian Cancer last December 28th, and here's my story.
Around September 2021, I started feeling full easily whenever I eat something and I feel bloated all the time (I thought, "maybe I was just eating too much"). I also had Loose Bowel Movement and decided to go to an Internal Medicine Doctor. They did few lab tests. After, they gave me medicines, which are effective by the way. I'm feeling normal again.
However, around October 2021. My menstruation started to come twice a month and my stomach hurts a lot (thinking it was just menstrual cramps). My tummy started to become bigger (thinking I was just getting fat ) and I suffer from heartburn all the time.
November 2021, I decided to visit an OB-GYN. After the ultrasound, the doctor immediately advised me to go to a hospital and do CT scan or MRI. She said, she saw multiple large ovarian cysts.
So, I transferred to a hospital and met my new OB-GYN. She performed ultrasound again. She saw a huge mass from my epigastrium till my pelvis. After that, my doctor scheduled me for an MRI (to know the nature of the mass). My MRI results came back, and they’ve found ascites and a 23x20x13cm mass (tumor) occupying my whole stomach. The doctor also ordered different tumor markers (LDH, B HCG, CEA, AFP, CA 125, and CA 15.3). The tumor markers result came back and EVERYTHING was elevated except for the CA 15.3. The doctor told me to find a Gynaecological Oncologist, since a normal OB-GYN won't be able to handle my case.
First week of December 2021, I met my Consultant Gynaecological Oncologist. After seeing my reports from the previous hospital and touching my hard-rock stomach. He immediately scheduled me for an operation.
December 12, 2021. I had my surgery done. The doctors removed my left ovary, left fallopian tube, and tumor (which was 30 cm already by the time of the surgery). At the same time, they also took sample cells and tissue from other parts of my body for the biopsy.
Third week of December 2021, I don’t feel good at all. My incision reopens creating 3 holes. Fortunately, my older brother is a nurse who is really great at cleaning incisions. He cleans the incision site everyday to avoid infections.
December 28, 2021. The biopsy results are out. I was diagnosed with Ovarian Cancer (poorly-differentiated, primary ovarian mucinous adenocarcinoma) with further investigations needed (Gastroscopy, Colonoscopy, different chemical markers, and tumor marker) since the histopathological findings are suggestive and very suspicious of metastatic adenocarcinoma rather than a primary ovarian mucinous adenocarcinoma.
My Consultant Gynaecological Oncologist is actually very kind, always making sure to have that light-hearted atmosphere. He is feeling positive about everything, and so am I.
Now, I'm just waiting for my schedule for the tests needed! Hoping everything goes well.
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