leighnetwork

[leighnetwork]

Please nominate us, they start the nominations fresh in January and they’ll be opportunities for us to win throughout the year, if you could take a minute we’d be very grateful 🙌🏻❤️ 💚

https://movementforgood.com/#nominateACharity

#mito #MitochondrialDisease #LeighSyndrome #MitoSupport

[leighnetwork]

At Leigh Network we understand what an emotional time Christmas can be, so we'd like to say:

To our mito warriors showing mitochondrial disease who's boss, keep fighting, you're doing amazing! 🤩 We hope you enjoy making precious memories ❤

To those unwell, either at home or in hospital, we send you positive energy and prayers of strength 💪 🙏 💚

To those facing a Christmas missing a super special angel, whether its your first or 30th, we understand how hard this time of celebration can be and know we are thinking of you 🙏 Your angel will guide you through, so talk of your Christmas memories.

Wishing you all a peaceful Christmas, love from Faye and the Leigh Network Team xxx

Image with Christmas images around the edges, lights, candy canes, bows, Santa, baubles, snowman, Christmas tree, stockings, all against a teal background. Text at the centre reads as above.

#MitochondrialDisease #Mito #MitoWarriors #MitoSupport #MitoAngels #LeighSyndrome #StrongerTogether

[leighnetwork]

On Saturday 14th of October 2023, we were honoured to be asked to join the mitochondrial patient day, hosted by the Newcastle Mito team. We listened to Professor Grainne Gorman who updated us on the clinical trials (now in double figures), had an update on the Leigh Syndrome research project that Leigh Network supported. This was from Dr Albert Lim and Bobby McFarland. As Leigh Network is such a small charity, run entirely by volunteers for our community, it really was a big deal to be asked. We were delighted to meet familiar faces and new ones too!! 😀

Image: picture collage, Doctors presenting on stage and Liz Twist MP, Faye sat at the Leigh network table with promotional material. Text reads Mitochondrial Patient Day Newcastle. All on bright green background.

[leighnetwork]

💚🕯 Will you be lighting up for Mito? Today all over the world buildings and monuments will be bathed in green light to show support for World Mitochondrial Disease Week and to remember those who have gone to soon 🕯💚

#WMDW #LightUpForMito #Mito #MitochondrialDisease #LeighSyndrome #FindACure #ResearchIsVital

Image: White Background with green details in the corners dots, stripes and waves. In the centre reads Light up for Mito, surrounded by images of monuments/buildings lit up on green.

[leighnetwork]

Mito Fact: Mito is not new! Understanding and knowledge has improved since the first diagnosis, but there is so much more to do! This is why it is so important to raise awareness about mitochondrial diseases. Awareness means more research and more research is the only way to find treatments and a cure. Please share and help the global mitochondrial community spread the word. 🙌🏻💚

Image: White square with green edges. Inside text reads, in green Mito Fact, below in black it reads, It has been 61 years since the first diagnosis of mitochondrial disease (Mito) was made in 1962.

#MitoAware #MitochondrialDisease #Mito

#MitochondrialDiseaseWeek #FindACure #ResearchIsVital #LeighSyndrome

[leighnetwork]

Please share our posts to raise awareness during World Mitochondrial Disease Awareness Week 🙌🏻💚

Image: Green edged square, white centre. Top in green writing reads Mito Fact, below in black writing reads 1 in 5,000 children will be born with a severe or life-threatening form of mitochondrial disease (Mito). Underneath is the green & black world mitochondrial disease week logo.

#MitochondrialDiseaseAwarenessWeek #Mito #MitoAware #MitochondrialDisease #FindACure #ResearchIsVital #LeighSyndrome

[leighnetwork]

Mito Flash Fact: Mitochondrial Disease is often shortened to Mito.

#MitochondrialDiseaseAwarenessWeek #Mito #MitoAware #MitochondrialDisease #FindACure #ResearchIsVital #LeighSyndrome

Image: white background with green details on the corners, stripes and dots, top in black reads Mito Flash Fact, underneath in green reads Mitochondrial Disease is often shortened to: Mito. Underneath is a green wavy shape.

[leighnetwork]

Today marks the start of World Mitochondrial Disease Week!!! Sharing is caring, so if you could share our posts across the week we will be forever grateful 😊

#MitochondrialDiseaseAwarenessWeek #Mito #MitoAware #ResearchIsKey #FindACure

Image: world mitochondrial disease week logo and writing underneath saying World Mitochondrial Disease Week, all on white background in green and black.

[leighnetwork]

All next week, its Mitochondrial Disease Awareness Week. So please share our posts and let's get the word out about Mito! Organisations across the globe will be coming together to raise awareness about the importance of understanding mitochondrial diseases 💚 Share, share and share some more 🙌🏻

#mito #mitochondrialDisease #leighSyndrome #mitochondrialDiseaseAwarenessWeek2023 #MitoAware #FindACure #ResearchIsKey

Image: Huge smiling yellow emoji face with big blue eyes and huge shiny white teeth.

[leighnetwork]

We had a fabulous time on Saturday at our Leigh Network Family Day at the Newcastle Life Science Centre. Thank you to everyone who came along and to Dr Lyndsey Butterworth and Dr Albert Lim from Mitochondrial Research for an insightful talk together with a Q&A session and activities. As always it was a fantastic opportunity to get together with others going through similar experiences, together we are stronger 💚

#MitochondrialDisease #MitoAware #Mito #ResearchIsVital #FindACure #MitoSupport #StrongerTogether #FamilyDay #LeighSyndrome #MitochondrialDiseaseAwareness

Image: purple background, top left corner in black writing reads Leigh Network Family Day Newcastle Life Science Centre. Selection of photos of happy smiling faces listening to talks, taking part in activities, exploring the life science centre, sitting together talking, having pictures taken with Mito Aware billboards, a snapshot of the day.

[leighnetwork]

It’s Father’s Day in the U.K. so we want to wish all the dads out there a very happy Father’s Day, have a wonderful day ❤️ We are especially thinking of, and sending lots of love and hugs to those dads of angels and those whose dads are no longer with us, we are by your side 🤗 xxx

“Dads are most ordinary men turned by love into heroes, adventurers, storytellers and singers of song.” Author unknown.

#FathersDay #AlwaysADad #Mito #MitoSupport #MitochondrialDisease #Dads #DadsOfAngels

Image: white background, black floaty writing that reads Happy Fathers Day encircled by black swirls and two red hearts.

[leighnetwork]

Leigh Network is about bringing people together as we know how lonely things can feel at times. This week is loneliness awareness week which is a campaign run by the fantastic Marmalade Trust You can visit their website and also their specific loneliness awareness week website to find out more about the campaign and also about how we can a support each other through feeling lonely. You are not alone 🤗

Leigh Network has a closed facebook group for those affected by mitochondrial disease, please message us if you would like to join. We also hold monthly zoom meetings and annual family days, please get in touch if you would like to come along or share this post for others to see.

https://www.lonelinessawarenessweek.org

#LonelinessAwarenessWeek #MarmaladeTrust #Mito #MitochondrialDisease #LeighSyndrome #MitoSupport #StrongerTogether

Image description: blurred green tone background with two peoples hands clasped together around the wrists as if one person is helping the other up.

[leighnetwork]

Happy National Best Friend Day! 👩🏻‍🤝‍👩🏼👨🏼‍🤝‍👨🏿👩🏾‍🤝‍👨🏼To celebrate this day, we want to hear from you! Do you have a special message for your best friends? Why not let them know how much you appreciate them by leaving a comment below, even better share a fab pic of you together! 💚❤️ 💙 💖 Friendship really is the most powerful thing ❤️

#NationalBestFriendDay #Friendship #Friends #MitochondrialDisease #Mito #StrongerTogether

Image: two tone faded colour of yellow tones to grey/purple with floaty writing on back that reads One Friend Can Change your whole life

[leighnetwork]

Our friends from the Cure MITO Foundation (based in the USA) have launched a fantastic new website 🙌🏻👏🏻💚 Take a look and share where you can.

#CureMitoFoundation #LeighSyndrome #MitoAware #MitochondrialDisease #FindACure #StrongerTogether #ResearchIsVital

https://www.facebook.com/100077484197369/posts/271230262136445/?app=fbl

[leighnetwork]

We are so excited that we are having our next fab family day (all ages welcome) on Saturday 15th July at the Newcastle Life Science Centre. If you are affected by mitochondrial disease then we'd love for you to come along. It's a fun day out with a chance to meet others on the Mito journey. Leigh Network will fund the entrance tickets and tea/coffee when we get together to chat and to hear from fantastic researchers from the Newcastle Wellcome Trust. If you would like to come please message the page or email [email protected] by Friday 30th June. Hope to see you there 💚

Image: brightly multicoloured writing which reads Lets Get Together surrounded by multi coloured stars, flowers, hearts, dots, swirls, all around the wording like confetti sprinkled. Against a white background.

#Mito #MitochondrialDisease #LeighSyndrome #MitoSupport #StrongerTogether #MitoFamily

[leighnetwork]

This week is National Epilepsy Week. This video is a fantastic resource to show you what to do if someone has a seizure.

Those affected by mitochondrial disease may also suffer seizures, research also shows that epilepsy is another condition that could benefit from understanding impaired mitochondria. Together we are stronger. 💚🤗

Please share and help raise awareness during National Epilepsy Week.

www.epilepsy.org.uk

https://youtu.be/MgpkYo1jNWw

#NationalEpilepsyWeek2023 #EpilepsyMatters #Mito #MitoAware #ResearchIsVital #TogetherWeAreStronger

[leighnetwork]

🤩 Fantastic news from our superstar Mandy! She will tell you all about it 💚 You can still sponsor Mandy through the Go Fund me link and you can read about why she is completing this epic challenge 💚

#mito #MitochondrialDisease #MitoAware #1000WalkingChallenge #SmallCharity #LeighSyndrome #FindACure

https://gofund.me/386fe940