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We’re back bitches
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need to follow more spoonies! reblog if you have EDS, scoliosis, POTS, MCAD or raynauds syndrome💫
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Learn to be strong. Learn to be fierce. Learn self care. Learn to love. #chronicillness #pots #potsie #eds #mcas #spoonie #picc #centralline
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I’d like to say, as a chronically ill person… I’m not brave. I’m not strong. I’m not an inspiration.
I’m just stubborn as fuck.
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Let's get real. Chronic illness is a beast. There's no glitz. Not usually glam. It's another allergic reaction. Another epi pen. It's another pill combo to try. It's another test result skewed. It's constantly prepping pills and supplies. It's not giving up. It's putting one foot in front of the other and making the best of it. It's not just existing, it's learning to LIVE. Learn to love the body you have, flaws and all. Learn to appreciate the medication you take to have quality of life. Learn to kick ass. Learn to be YOU, unapologetically. To my fellow spoonies, keep fighting, be strong, be fierce. #Spoonies #spoonie #potssyndrome #pots #posturalorthoststictachycardia #EDS #EhlersDanlos #EhlersDanlosSyndrome #MCAS #mastocytosis #mastcellactivation #mastcell
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Prednisone Problems
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stomach: hey im going to overreact to harmless foods
me: why
stomach: i gotta
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Hour three with this damn monitor and I'm already reacting and want to rip my fucking skin off.... Only 29 days and 21 hours to go #potssyndrome #potsie #pots #mcas #mastcell #cardio #cards #cardiology #holtermonitor #holter #30days
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Me all the time while watching The OA: The fuck?? Which drugs these writers use?? The fuck?? Which drugs... -(neverending loop)-
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I’ve read every med side effects paper for all the tablets I take, and I’ve never gone “not worth it, don’t wanna risk being drowsy” it’s always been “into the mouth of the pain goblin you go my pretties!” because I’m willing to try anything to help
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standing up? more like lack of vision for 30 seconds and falling over a little bit
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Shoutout to all the people who grew up dreaming big only to have chronic illness take your dreams away
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anyone else casually joke about their illness because it’s just normal to them now, but it worries others?
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