Tumgik
#but the first place was like “our ASD assessment service is a total cost of around $3000”
Text
i got like 10 people to take the RAADS-R test today
the topic of autism and self diagnosis came up again, and i always go "the first place i went to told me to pay $3000 for the assessment + with a diagnosis there comes a ton of legal barriers such as immigration, so until all of that stops being a thing, self diagnosis is totally okay as long as you're looking at reputable sources for that information"
which became people comparing RAADS-R scores, and then more people started the test as well.
Out of everyone there, one person got below an 80— with a 20. (The threshold for autism is 60+/240, I got a score of 190)
14 notes · View notes
Text
Another year on earth - Hard News - Public Address
Sometimes-- often, even-- grief is an ambush. You do not know what's in there up until you lose something, or someone. You do not know how the experience of loss will make you feel about yourself, or what to do about it.
It was chance that brought me back into the ambit of my old buddy Grant Fell and his wife Rachael at the end of 2017. Formally, Grant was clear of the brain tumours that had been the central reality of his life for three years, and I wanted to do a follow-up on an interview I 'd done with him for a prepared Audioculture post-- which itself had actually taken 2 or 3 efforts to carry out, as he shuttled in and out of healthcare facility. He wasn't addressing his phone or returning messages.
Eventually, I acquired Rachael, who informed me that problems from treatment had actually made Grant really ill, really rapidly. He was back in hospital and it wasn't great. I went and visited him, but we never did the follow-up interview. My old good friend was passing away.
I don't mean to pretend I was among the group of people, led by Rachael herself, who took care of Grant for every single day of those 3 years. I 'd just seen him sometimes. I think I did sense quite rapidly that it was time for me now to step up. One of the very first things I did was break the law.
Grant appeared to have actually benefited earlier in his cancer fight from the modest use of cannabis oil. It can be found in a syringe, handed down from another cancer patient who had passed away, but Rachael's mother had actually mistakenly thrown away the last of it when she cleaned up the fridge. Rachael and I discussed it and I stated I figured I could source some more.
The experience of doing so, and briefly going into the neighborhood where these things are shared, was humbling and interesting. As I composed later in a submission on the federal government's medicinal marijuana expense, it seemed to make a crucial difference to Grant
's final, valuable days. When Grant left us, we were fortunate to have Hilary Ord, a brilliant and knowledgeable celebrant, to lead the small group of pals entrusted with putting together a funeral service. She described to us what a funeral for somebody like Grant indicated-- it would not be a little affair. I was charged with rapidly raising some money. We didn't reveal the names of individuals who helped financially at the time, but I think it's appropriate to tape them here. The New Zealand Music Foundation, Tim Wood, Phantom Billstickers, the Music Managers Federation and Flying Nun Records, thank you.
At Rachael's demand, I likewise delivered the eulogy. That was a deep dig. I believe it was the very first time I've spoken some words of te reo Māori and not been simultaneously conscious that I was doing it: it was as if the words at the end merely streamed up through me. I nearly wasn't sure what had actually happened.
It wasn't practically Grant, however about everybody; the kids who satisfied all those years back, matured and did things. About how typically we did things since Grant decided they might be done and beckoned all of us in to the doing. I discussed it in interviews and in the Audioculture article-- and every time it made me assess the method he 'd altered my life.
It likewise made me think a lot about tribe and identity, about who all of us were and what was important to us. In specific, about my function in our tribe. Outside of the bonds of family, it seemed the most enduring duty I had.
Something it wasn't was a job. After 9 years of a minimum of 20 weeks annually of TELEVISION loan, I was obliged in 2018 to transform the whole thing. It wasn't simple and sometimes I questioned whether it was even possible. I have actually long been comfortable with the dangers of freelance life, but it was getting a lot harder. Each time editors are ordered to cut editorial budgets, the very first and simplest place to do that is self-employed costs. It was hard to get commissions and when I did, the word rate was barely better than it had remained in the 1990s.
We're house owners, so we are not bad. But with 2 adult handicapped children still in your home, we're not an inexpensive home to run. It's not an enjoyable feeling, burning through long-time cost savings just to keep things going. I wasn't depressed, however there was the odd despondent day. You simply keep pitching.
And all the time, things circled around back to Grant. I discussed him at the Taite Music Prize event, then did a little crisis PR the next day. I wrote the medicinal marijuana submission about him, then took a trip to Wellington to make an oral submission to the committee. I do not think I was launched up until the Headless Chickens played that big, psychological set in his name at The Other's Method festival.
There was also Public Address. I've been thinking about how much I utilized to do here and I genuinely don't understand how I had the bandwidth. Writing blog posts most days, moderating the sprawling discussions in the most intensive, in some cases mentally taxing, way. Trying to have brand-new concepts. And due to the fact that it typically wasn't a living, making a living somewhere else.
This is a quieter place than it utilized to be, for a range of factors. A new, more professional generation of digital publishers has emerged. The most immediate argument now occurs on social networks, and Twitter in particular. Likewise, I could not actually do it any more.
I've constantly been great at drawing a crowd; at tossing a celebration. A community had formed around Public Address and it brought me terrific new buddies. However when you're the host, you're accountable when the visitors-- some of whom had actually literally been together under my roofing system at different times-- begin fighting, it's not enjoyable. It feels like there has actually been a new, sharper, more polarised sort of argument abroad in the last few years that the site is ill-equipped to handle. That I am ill-equipped to handle. Perhaps it fits locations where nobody is actually accountable; where there is no host cleaning up the empties. In that sense, this being a quieter location has actually been an option.
I also feel less likely to basic commentary these days. I 'd rather compose about the things I have experience with and insight on. You primarily get drug policy, music, bike-riding, the occasional fact-check. Often this year, I've been too hectic worrying about not having writing work to simply write, and all at once aware that that's a dumb position to be in.
The entry of Press Client and its voluntary subscription platform has come a little late for any big strategies on my part, but I want to reveal my deepest appreciation to those of you who have actually contributed. It's a substantial motivation to keep going with this. I have actually started to treat it as not just support for the website, but support for what I perform in general. The majority of months, the $700 to $800 it generates has actually been an essential part of our household managing.
Happily, things enhanced in the latter part of the year and I'm fairly optimistic that I'll remain in a position to ask CactusLab to do some modest deal with the website. I'm not actually hiring new blog writers, however I want to clean the cruft of years, retire all our inactive individual bloggers to an emeritus section and maybe open a number of new topic blog sites for periodic contributors. I believe Access has been of worth because sense and I'm grateful to Hilary Stace in specific for her care and commitment to impairment concerns.
It hasn't been all bad. I've leared new skills and written some things I'm really pleased with. It was great to be totally vindicated on the "meth contamination" ordeal I blogged about two years earlier. I've really taken pleasure in working a couple of days lately at RNZ and it looks like that will continue in the new year. I'm hugely happy that my older ASD kid is working once again, with excellent people who like and appreciate him, at the excellent Cotto restaurant.
I have actually also been cheered and enriched more than ever by the music made by individuals around me. Blair Parkes, Tom Scott, Julia Deans, Tom Scott, Julian Dyne, Marlon Williams, Sandy Mill, Anthonie Tonnon and others, thank you. You make a distinction to us-- to me. And The Beths: guys, you would not think how lots of dishes and kitchen clean-ups your brilliant, bouyant album has helped with. I'm also personally pleased to have provided on what I composed this year after Golden Dawn closed-- about making your own areas. On Friday night, our final DJ night for the year at Point Chev's Cupid bar was great. It really seemed like we 'd done something. We'll be back there next year. Come see us.
I was happy that you all voted "compassion" as the Public Address Word of the Year. Do respect each other, and believe what kindness means in action. Have a great summertime and take pleasure in people and locations. Swim, ride, stroll. Request for aid if you require it, use assistance when it's needed. Be kind.
And next month, Grant's anniversary will occur, and that will be difficult for Rachael more than anybody else. I'll weep, yet once again, when I think of him. We'll all believe once again about who we are, where we have actually come from and what matters to us. We'll be another year in the world.
0 notes