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#piawareness
I dunno what OS your server runs but I have a lil headless Debian server (old Lenovo Thinkcentre) which runs PiAware, Pihole, and an Eco game server. Thinking about a minecraft server too. PiAware's an ADS-B receiver (receives signals from aircraft transponders). requires moderately expensive kit ($70 for the radio and antenna) but it does run on a normal x86 machine not just a Raspberry Pi. Pihole is a network wide DNS sinkhole so you can do adblocking on every device on your network, it can also do DHCP.
i am running dedicated linux distros, and it's docker container only (i could spend days talking about it, but i won't elaborate here)
Lenovo ThinkCentre is nice, i am currently looking at some to expand my setup (currently only have HP mini PCs)
PiAware sounds cool, i love planes so i should really do this at some point. do you know if i need like an open rooftop for the antenna, or could i also host this from an apartment?
pihole had some bad latency the last time i installed it, but that is a good reminder to try it again :3
maybe also an alternative, i want something with a declarative config hehe (i am terminally infrastructure as code addicted)
network adblocking will be my next project now (after figuring out the loadbalancer for that, i don't want a public dns server lol)
thanks a lot for the ask, these are some cool suggestions! :3
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stacyspoonley · 5 years
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Routine blood drawing #rheumatology labs with Mini @tztheidfzebra Be careful today! The #heat is dangerous! Don't skip wearing your #braces ♿🥄❤🥄💛🥄💚🥄💙🥄💜🥄♿ #mycrazylife #myEDS #riseup #adapt #ableism #togetherwedazzle #fragilebutunbreakable #primaryimmunodeficiency #PIAwareness #raredisease #zebrastrong #anaphylaxis #systemicmastocytosis #EHLERSDANLOS #gastroparesis #ShineLikeShanann #sjögrens #Dysautonomia #wearejaquiestrong #myedschallenge #chronicillness #EDS #MCTD #CIDP #POTS #crps #zebrafashion #DisabledJoy #DISABLEDAF #disability (at Vascular Associates Of Long Island) https://www.instagram.com/p/B0jDfR1Agsi/?igshid=155rao4p1j8vi
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korumedical · 2 years
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Louis’ PI Story
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From infancy, Louis struggled with infections. From six months on he was sick all the time. His older brother was also getting sick often. Louis was about 1 year old when we had his older brother tested for allergy/immunity to see if that was the root cause of his illnesses. Allergies were not the cause, but it turned out that he had very little to no pneumococcal antibodies. The immunologist recommended a vaccine challenge, so we did it. He produced antibodies and with that, he stopped getting sick so frequently.
Fast forward about 2 years to Louis who was not quite 3 years old. We were one ear infection away from needing tubes when he was tested just as his brother was. We thought it would be the same story, he would make the antibodies and then the frequency of illnesses would decrease. He did not make antibodies with his vaccine challenge and was diagnosed with Specific Antibody Deficiency at the time. He did eventually need to get tubes placed, but that only helped with ear infections. He kept getting other infections, fortunately not too severe, but consistently needed to be put on antibiotics.
His illnesses were managed for about two years and then he became allergic to Augmentin. He was on and off antibiotics at least 6-7 times in a four-month period just as he was turning 5. His stomach was a mess, and he was missing out on so many activities and pre-k because he was sick so often.
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We finally decided that we needed to start treatment. We chose to do subcutaneous infusions for him because his levels would stay more stable through the month and there would be fewer side effects. He started just after he turned 5 years old, and we have not looked back since. When he was around 7 years old, he was diagnosed with CVID (Common Variable Immune Deficiency).
He is now 10 years old and is in the healthiest stretch of his life these past two years during a global pandemic. He truly amazes us every day. He does not let anything stop him from doing the things that he loves to do. He is a very active and athletic boy who is growing like crazy. He loves all sports from playing to statistics, but his true love is lacrosse. He plays very competitively and thanks to his treatments he is healthy enough to do it. He is either at practices, training or out playing with his brother almost every day. He has recently been accepted to a National Team and we are beyond proud. His treatments were a game-changer for him, no pun intended! We are so thankful for our team of doctors and nurses. 
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- Gina G. 
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akabrat · 4 years
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Well my kids are turning out just like me!!! Lots of medications & spending time at doctors... Midas ears are getting better, scar is doing better but got more medication, bow needs better ear cleaning first time sick, knuckles has a war wound from trying to bounce off some rocks... he’s got a stitch. On the autoimmune side... my lichen planus has finally stopped spreading. I don’t know about anyone else subq I can tell when I’m due for my next infusion. I really can’t focus, headaches, issues sleeping, sweats and just feel yucky! They say subq is supposed to level you off. I don’t quite agree. Anyway that’s my update. Been busy keeping up with medication for seniors heart.. every 8 hour & 12 hour pills. Plus pain mediations, plus cbd.... now my heat and service dog knuckles... antibiotics but been sleeping all day... then all dogs ear mediation and cleaning every 12 hours and senior eye drops at least has gone down to once a day... phew I’m tired writing all that out... mine have mostly gotten to just at night.... #spooniegirl #dogmom #doglover #lovebigdogs #petinsurancerocks #petinsurance @thefarmersdog we love you! #zebrastrong #cvd #piawareness #autoimmunedisease #imafighter #mycvidlife #hypogammaglobulinemia #lichenplanus #sjogrens #eds #ehlersdanlossyndrome I’m sure I left something out https://www.instagram.com/p/B59dMJ0g44f/?igshid=gugvas3c9bfv
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basementghostli · 5 years
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Major updates coming soon! For now make sure you’re feeling your best with @erbaessentials #CBD! Being a #MedicalMarijuanaPatient I’m the state of New York - I’ve tried every legitimate CBD company there is, and this is the ONLY CBD I will ever buy again. Find out why for yourself with a discount from me! Before checking out use code “BXB” for 10% off! If you buy, tag me and @erbaessentials in your post! I trust this company with my life and I encourage you to do the same 🙏🏽 ——————————————————————— #bxb #thebxb #brittanybrutality #medicalmarijuana #bodybybrutality #cvid #hypogammaglobulinemia #immunedeficiency #rarediseaseawareness #zebratales #zebra #pi #piawareness #primaryimmunodeficiency #teambrutality (at Long Beach, New York) https://www.instagram.com/p/Bwwf81VF6fk/?igshid=ywwy4jxhbxvy
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crowbear · 7 years
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F is For Foundation
F is For Foundation
While I’m floundering about being fatigued, i’m also working part time for the Immune Deficiencies Foundation Australia. If anyone knows what its like to be fatigued, its our members. Our members have Primary Immune Deficiencies. Their immune systems are buggered from birth and they face life fighting constant infections. My sister has one. I have CFS/ME – I am finding the more people I meet with…
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scrapkode · 3 years
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It’s a good feeling to print a track. #dnb #producer #neurofunk #edm #dancemusic #bassmusic #dj #cvid #piawareness https://www.instagram.com/p/CP-96-ihs5O/?utm_medium=tumblr
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pickett007 · 6 years
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Infusion time!!!!! Let's get 'er done! @iamcardib 🎶🎶🎶Knock me down 9 times and I get up 10🎶🎶🎶🎶 #okrttttt 💪💪💪💯💯💯😍😍😍AYEEEEEE! #chronicillness #chronicillnesswarrior #cvidlife #cvid #commonvariableimmunodeficiency #primaryimmunodeficiency #piawareness #igG #iggtherapy #ivig #liquidgold #zebrastrong
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allnewlashes-blog · 6 years
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What you don't know about me... 👉You probably wouldn't know it to look at me... because it appears invisible. 👉You will ask me how I feel and I will probably say "I'm fine"... because my list of struggles is too much to say. 👉You may say that I'm always sick... because I am. 👉You may try to offer me products that you think will help me... because you may think I CAN "get over it". 👉You may tell me to get well soon... because you don't know that there is no cure. * What you don't know is... 💛 I am a fighter, I never give up! 💛 I may be sick all the time, but it does not keep me down. 💛 I am stronger than you know! #zebrastrong 💛 My #raredisease does not define me. * * * #rarediseaseday #cvidawareness #piawareness #pidd #cvid #CVID #primaryimmunedeficiency #immunedeficiency
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jon71dee · 3 years
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Resultado do jogo São Paulo e Inter e a tabela do Brasileirão
Resultado dos jogos da serie a ontem - :: Tudo sobre futebol
Leia mais sobre o mesmo tema de Russel:. Felipe Cherque Video Maker. Este artigo foi analisado e verificado por. Marcelo Rio. For further details, please read our seris policy. If you continue browsing by accessing another area of the site or selecting, for example, an image or a link, you express your consent to resultado dos jogos da serie a ontem use of cookies and other profiling technologies used by the site.
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CAMPEONATO BRASILEIRO DE FUTEBOL – SÉRIE A – JOGOS DE ONTEM(20/01/2021), RESULTADOS:
Gold Cup Elim. JO Fem. Sudamericano U20 Fem. Sudamericano U17 Fem. Africano Fem. Mundial U20 Fem. Mundial U17 Fem. Liga Inglesa. Copa do Mundo. Chuteira de Ouro. Estatísticas Completas 84 Competições.
Destaques do Mercado. Futebol Nacional.
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stacyspoonley · 5 years
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Hope everyone is enjoying the @ehlers.danlos talent show I will never be able to afford a ticket, so I'm really grateful for the live stream ♿🥄❤🥄💛🥄💚🥄💙🥄💜🥄♿ ♿🥄❤🥄💛🥄💚🥄💙🥄💜🥄♿ #mycrazylife #myEDS #riseup #adapt #ableism #togetherwedazzle #fragilebutunbreakable #primaryimmunodeficiency #PIAwareness #raredisease #zebrastrong #anaphylaxis #systemicmastocytosis #EHLERSDANLOS #gastroparesis #ShineLikeShanann #sjögrens #Dysautonomia #wearejaquiestrong #myedschallenge #chronicillness #EDS #MCTD #CIDP #POTS #crps #zebrafashion #DisabledJoy #DISABLEDAF @ehlers.danlos @idfcommunity @tztheidfzebra @dysautonomiaintl @themightysite @genesight (at Stacy Face's) https://www.instagram.com/p/B0pL0iWAy3b/?igshid=1mepbq1pipcft
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korumedical · 2 years
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Susan’s PI Story
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I was diagnosed November 1, 2017 by my son's asthma doctor, who also specializes in allergies and immunology. I had quite literally drug myself out of bed that afternoon to take my son to his appointment. It wasn't until I mentioned something about myself (I don't remember exactly what) in an attempt to help the doctor treat my son, that the doctor froze, turned and looked directly into my eyes and started firing questions one after another at me.
Then, an army of nurses entered the room at his beckoning and began drawing blood, taking vitals and writing furiously fast. Soon, the doctor began telling me what he thought the blood test would prove I had - a Primary Immunodeficiency called Common Variable Immunodeficiency (CVID). I began IVIG immediately and unfortunately suffered from numerous side effects.
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After three years, I was stable enough to try SCIg. Of course, it was intimidating at first, but I immediately knew it would be a better treatment option for me with less side effects and the freedom to receive my medicine in smaller doses each week at home. I even crafted a zebra-themed rolling cart that houses all my SCIg supplies, including my Koru Freedom Pump! One tip: I use a lidocaine patch to numb my infusion area before inserting the needles. Lidocaine cream also works well!
- Susan D.
Follow Susan for more great CVID and infusion tips on her blog, CVIDiva!
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akabrat · 5 years
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Rare moment with a rare disease. Thankfully with the infusions I was able to join my mom & sister out to eat. A picture is worth 1,000 words & if you see in the other photo we got my sister to be quiet for that moment... inside joke. My sister talks very fast & quite a bit. Thankfully I had my infusion next day. Although infusions don’t keep us from getting sick they sure help from us getting sick for as long. I usually sit in a place where not many people, wipe the silverware down & if the wait staff looks sick have my family place my order. Just a few #primaryimmunedeficiency #piawareness #tipsforautoimmune #mytip #mycvidlife #family #alsawareness https://www.instagram.com/p/B5hP9ragAPL/?igshid=jzht6rz9w4sz
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kotonoha-diary · 4 years
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johndball · 5 years
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The PiAware device has a Skyview dashboard that is GREAT for seeing what your PiAware device is receiving. The device is pretty basic in web delivery and not something that you would want to make publicly accessible without some form of protection.
Seeing very few discussions about security but a lot of talk about how to get the PiAware device “online” so friends can view it over the internet, I quickly put together this conceptual connection document with four options to get the PiAware device protected. IPs and port numbers have been changed and generalized.
Please note that I quickly put this document together. There may be grammatical errors or networking typos. Let me know if you come across any.
I’ve included a Visio and PDF document to allow for note taking and redesigning with ease based on your setup. PDF: PiAware WAN Concept Visio (in .zip format): PiAware WAN Concept
This slideshow requires JavaScript.
  Securing the FlightAware PiAware Device Dashboard The PiAware device has a Skyview dashboard that is GREAT for seeing what your PiAware device is receiving.
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riichardwilson · 4 years
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It’s Good To Talk: Thoughts And Feelings On Creative Wellness
About The Author
Jhey makes awesome things for awesome people! He’s a web developer with almost 10 years of experience. Working with and for names such as Eurostar, Uber, … More about Jhey …
With so much pressure to be our best selves and use every waking moment to develop skills, it’s easy to lose track of our own wellbeing. Self-improvement and commitment to your craft are great — but only if you find the right balance.
In fields as fast-paced and technical as web design and development, it’s easy to lose sight of our own wellbeing. For many, there’s a constant sense of trying to keep up or ahead. We may not even realize we’re doing it.
Ask yourself, when was the last time you stepped away for a day and didn’t think about coding or design for a day? For me, that’s very hard to answer. For many, it’s a vocation that we can’t switch on and off. We can’t turn it off at 5 or 6 PM. Let’s talk about that and ways we can deal with it.
It’s important to start right off the bat by saying this article isn’t a dictation. The aim here is to spark interest, engagement, and discussion. These are things that sometimes get lost in the whirlwind industry we are a part of. Different things work for different people, and these words are written with the best intentions.
Why now? I’d planned to write something about this topic at the tail end of last year. I was making my way back from my first NodeConfEU and feeling inspired by a talk I attended, “Building Open Source Communities with Tierney Cyren”.
I made a bunch of notes, then life and other commitments cropped up and the article made its way to the backburner. But, that’s OK. And that’s kind of where this post leads us to. It’s OK if you didn’t write that post, work on that side project this weekend, and so on.
Pressure Culture
If you’re reading this, odds are you’ve seen or experienced pressure culture — that constant, nagging expectation to dedicate every waking hour to skills development and side projects, even if your heart might not be in it. This pressure can be self-imposed, and whether we like it or not social media also plays a big part. If we aren’t careful, it can eat away at us.
Pressure culture isn’t something that’s popped up recently. It’s been around a long time, a constant looming external force. Left unchecked it can fill you with guilt, anxiety, and other feelings we aren’t fond of.
Work/Play balance by The Awkward Yeti. (Image source: theawkwardyeti.com) (Large preview)
This is a common result of the idea of ‘The ideal worker,’ with pressure coming from those higher up in workplace hierarchies. These ‘Never say no’ employees feel obliged to wear themselves thin in order to progress in their careers. There’s a great Harvard Business Review article called “Managing the High-Intensity Workplace” that explores this mindset.
Social media pressure is also very real. The tendency to idealize our online lives is well documented. We often forget that we are likely only looking at someone else’s highlight reel. That is true of work as well as play. If we forget that and spend a lot of time-consuming content from those we idolize, that pressure creeps in. We want to be as awesome as the people on our feed, but at what cost?
There was a period a little while back where tweets like this were quite frequent:
Get home.
Watch Netflix or do more coding learning?
Seems like a small decision.
For one night it is.
But multiplied over a year, this decision defines your future.
— 𝗪𝗲𝗹𝗹 𝗣𝗮𝗶𝗱 𝗚𝗲𝗲𝗸 (@WellPaidGeek) November 6, 2019
The message is completely understandable. Time is valuable. The hard truth is that if you want to get far in your career, prepare to put in the hours. Nothing gets handed out. Self-improvement and commitment to your craft are great, but only if you find the right balance.
Messages like those above put you under an enormous amount of pressure. That pressure isn’t healthy, and can actually hamper your development. It can lead to things like burnout and potentially, even depression. What is burnout? This study phrases it quite well:
“Burnout is a psychological syndrome characterized by emotional exhaustion, feelings of cynicism and reduced personal accomplishment.”
It’s not a nice place to be. I can speak from experience here. Feeling as if things are bearing down on you and you need to keep up. “I need to make that new thing or learn that new framework to keep up with my peers.” I remember seeing tweets from people. They’d say things like, “I missed a day of my bootcamp course. I’d better do double tonight.” This makes for sad reading. You don’t want to end up resenting what you do for a job.
Burnout cannot only impact your personal wellbeing, but can also affect other areas of your life. Does your work suffer as a result? Do you still have the energy to give it your full attention? How about that creative spark? Is it gone? We’ve all heard of writer’s block. Well, creative’s block is a thing too!
The above tweet was a great example of how social media can influence us. Read the responses and engagement. There’s an almost 50⁄50 split on how it’s perceived. This response from Chris Coyler was great:
I don’t mind the sentiment here, but don’t burn out!https://t.co/Ho7CPcamEb
Just last night I had some stuff in mind I really wanted to get done on the ol laptop but I was just too tired after putting the kid down so I literally watched Netflix and everything will be ok
— Chris Coyier (@chriscoyier) November 6, 2019
And it’s so true. It’s OK to sit back and not force yourself to work on things. It’s fine to take the night off, the week off, and so on. Those projects will still be there for you. They’re not going anywhere. You might even decide you don’t want to return to them at all, and that’s fine too! It’s all about balance.
With the pandemic and many of us in lockdown, this trend has reared its head again. I’ve seen my fair share of messages implying if you haven’t picked up new skills with your new free time, you’ve wasted it. As if it’s some kind of opportunity. Not that a global pandemic is exhausting enough right?
Hopes and Dreams by The Awkward Yeti. (Image source: theawkwardyeti.com) (Large preview)
Even now, pressure culture is not black and white. The free time gained where we had other commitments is an opportunity. An opportunity to try something new or do something we haven’t had the time for. It might be that that thing is ‘rest’. For me, my weekend commitments halted, so I decided to finally start streaming. And, I’ve loved it! Still, I try not to let it take up more time than my other commitments would. If it gets too much, I take a break and step away.
Handling Pressure Culture
Getting AFK (Away from keyboard)
How can we combat these feelings of pressure? It sounds like the opposite of what our minds tell us, but one way is to get away from that keyboard. Disconnect and go do something else. I’m not saying lock up your laptop for a week and go cold turkey, but a break does you good.
Go for a walk, read a book, do nothing! We already saw that Chris enjoys a night with Netflix! I myself recently picked up a stylus for the iPad so I can go chill out on a bean bag and sketch doodles. There’s also a 1000 piece puzzle laid out on a table downstairs that’s quite good to sit next to zone out with.
Yes, it’s difficult at the moment. We can’t make a trip to the theme park or the cinema or even hit the gym. But, we can still get AFK. Even sporadic breaks throughout the day can do you wonders. I often get up every once in a while and do a few handstands!
This is true even when the world isn’t in crisis. Getting away from things can be great for you. It’s not healthy to tie yourself to the same thing 24 hours a day. Step back, broaden your scope, and appreciate that there’s so much more on offer for you. Close this tab and get away now if you’d like. I’d prefer it if you stuck around until the end, though.
Getting AFK pic.twitter.com/tXSxB52gLk
— Jhey (@jh3yy) June 14, 2020
It might not even be a case of getting physically AFK either. There’s a Slack community I’m in that has this notion of ‘fun laptop time’ which is an interesting idea. Have a separate machine that you can unwind on or do other things on. One that isn’t logged in to social media perhaps? One that you can do ‘fun’ things on. Maybe that is still coding something or creative writing or watching a live stream. The possibilities are endless.
Give yourself space to live away from your work. This article on Lifehacker cites the case that taking up something new can help with burnout. I can relate to that too. Scheduling something completely unrelated to work is quite good at this. For me, I know when the season is in full swing, I’ll be spending some of my Saturdays AFK running around a field.
Footballlll! 🥳 pic.twitter.com/0c1XEIQMBu
— Jhey (@jh3yy) July 14, 2020
With AFK, we’re mainly referring to sitting at a desk with a physical keyboard. Odds are, if you have a smartphone, the little digital one on that isn’t far away. A FOMO tip that might seem counterintuitive is to share being AFK. Share what you’re up to with people. It might surprise you how much people appreciate seeing others getting AFK. Rachel’s been plane spotting for example!
Just picked this up on my PiAware tracker and watched it go overhead. https://t.co/MHPoXlPzmZ
— Rachel Andrew (@rachelandrew) May 28, 2020
Please Talk
And that leads us to the title of this post. It’s good to talk. Is there a stigma attached to talking about our feelings and struggles? Yes. Should there be? Hell no!
FOMO, burnout, depression, anxiety, and so on. They’re all real things and likely touch more of us than we know. I listen to various podcasts. I remember one in which the speaker and guest spoke about almost an obsession with chasing goals. When you reach that goal, you hit a low. Maybe it didn’t fill that void you were hoping for? But, although I wasn’t having a conversation with them, hearing that did me some good. It was relatable.
I’d had this feeling inside, never expressing it. Now I knew it wasn’t uncommon. So I spoke about it with other people, and they could relate too. One big example for me was buying my house. It had been a goal for a year or so to get on the property ladder. Once I got the keys, it was a bit deflating. But, I should’ve been super happy about it.
Return of Me by The Awkward Yeti. (Image source: theawkwardyeti.com) (Large preview)
We could all bottle those things up. But, speaking about things and getting your thoughts out can go some way in taking the pressure off. Another perspective can really help you out! It might be hearing something as little as ‘I do that too’ or ‘Don’t be so hard on yourself, you’re doing great!’ that can go a long way. It’s not that you’re fishing for compliments, but it sometimes takes that other perspective to bring you back to reality.
Now don’t get me wrong. Talking about things is easier said than done, but the results might surprise you. Based on my own experience and others I’ve spoken to, here are some things you can do to combat those negative feelings.
Be willing to take the first step. Interaction doesn’t have to be a dying art. It won’t work for everyone and you can’t force others to embrace it. There will be those who do, though, people who feel exactly the same and were looking for someone to talk to.
Speak more openly. I’ve personally been terrible at this and I don’t mind admitting it. I’m getting better though. I speak more openly with those I engage with both on and offline and I’m happier for it. The takeaway being that there’s no shame in being yourself and doing what you want to do. If you’re being made to feel that way, it could be a good time to shift your circle or change up those you engage with. One nifty tip if you work remotely and feel isolated during the day is to set a reminder for yourself. For example, set a reminder every day at noon to reach out to people. This is quite effective. Most IM services can do this. For example, with Slack: /remind me "Reach out to people!" every weekday at 12:00 pm
If it can’t be offline, take it online. You don’t have to speak to people in person. Hop on a call with someone. Or even a video call. There are also so many online communities out there now too. If you don’t want to talk about how you feel, it’s great to even talk about what you’re up to or hear what others are up to. You soon realize people aren’t churning 24 hours a day like social media might have you think. I’ve recently joined an online community of creatives on Discord. I must say, it’s been brilliant. The Party Corgi network has been a game changer for me.
Broaden your scope. It’s so easy to lose track and become so focussed on your own little circle. I ended up randomly hopping around Twitch the other day. And I sat there and thought to myself, “This is brilliant”. There are so many creatives out there doing fantastic things, things I wasn’t even aware of. Why do I get so fixated on my own little bubble?
One tip that trumps all others? Be humble. You gain more from being positive. Good vibes breed good vibes. Plus, no one likes a hater.
To Conclude
It’s completely normal to feel a sense of pressure or get that horrible ‘imposter syndrome.’ But, don’t let it get to you. Do what you can and what you want to. Don’t sacrifice your health to get ahead. It’s OK to step away sometimes.
The next time you feel a little overwhelmed with things and feel that pressure coming for you. Have a chat with a family member, reach out to a colleague, even an online acquaintance. Maybe share it with folks at Smashing? I love seeing what people get up to.
If this is a career you plan on sticking with, what’s the rush? You might be doing this for tens of years. Embrace your journey. It’s not a race. For one thing, you might not even be on the same road.
Further Reading on SmashingMag:
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source http://www.scpie.org/its-good-to-talk-thoughts-and-feelings-on-creative-wellness/ source https://scpie.tumblr.com/post/623913046870507520
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