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kidneystories2013 · 5 years

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National Kidney Foundation @nkf Dr. @priyagoose , pediatric nephrologist and medical director of the Pediatric Transplant at @UMNHealth , sat down with us to discuss pediatric transplants for children. (at Hammond, Indiana) https://www.instagram.com/p/B14H3i1AWkI/?igshid=69bnnt2s0znx

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jonfoss · 5 years

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@thecwtc is partnering with @1029thewolfmn 2 support @umnhealth music heals therapy program with STARS & GUITARS 2/27 at @mysticlakecasino showroom! @mandyjonair @paulthomasshow #GregThunder (at The CW Twin Cities) https://www.instagram.com/p/Bt1Xmd2FRhF/?utm_source=ig_tumblr_share&igshid=1bm05xwl7y3fj

#gregthunder

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phawareglobal · 5 years

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Tiffany Olka, RN - phaware® interview 255

Tiffany Olka, RN gives an overview of the University of Minnesota Medical Center's Center for Pulmonary Vascular Disease and Right Heart Failure.

My name is Tiffany Olka, and I'm a pulmonary hypertension nurse. I work out of the University of Minnesota Cardiology Clinic. We have both inpatient and outpatient teams, and I'm on the outpatient side in the clinical setting.

I'm what is considered a nurse coordinator, and we're in the clinic with the patients during their visits. So, after the provider goes in, talks to them, comes up with that care plan, then we follow in afterwards, talk to them about the new medications, talk to them about testing that's going on. Or, if they are that new diagnosed patient, reassuring them, talking to them a little bit more about the diagnosis, and answering any questions they have. Then, on days that we aren't in clinic, we're talking to them about their medications, how they're doing during the titrations, getting those medications approved for them, and when they can't get funding, helping them get the funding.

So, we're kind of that bridge between the patient and the provider and helping be that full circle of care. We're their first point of contact. So, when they are calling in with those issues, whether it be weight gain or side effects from the medications, we're that patient's first point of contact. And then, we can vet their problems, see what's going on, and then make that bridge to the provider.

I think the best win is those newly diagnosed patients. They're scared. You go into the room and you can just see them hanging from the rafters, just because they don't quite know everything yet, and they just got a diagnosis that's pretty serious. So, being able to go in there and talk to these patients, and follow up with them, and see them be more at ease with what their new normal is going to be is one of the best things.

One thing that I think is so special to our clinic is, we have a clinical administrative assistant who is very connected with those patients during that prior authorization process. So, he gets those prior authorizations approved. As soon as they're approved, once it goes to pharmacy, he is kind of that bridge of getting that medication approved, making sure that copay isn't too high. And if it is, going out and finding that funding for the patient and letting them know, "Okay, this assistance program is open. Call them right now." Or, just helping those patients navigate through that system, because it can be so confusing.

We have a very active social worker in our team who can help coordinate the rides, or making sure that if they are going home, that they have those medications already set up for shipment. Or, if they're getting sent to a TCU [Transitional Care Unit], making sure that they're getting sent to an appropriate TCU that will have those medications available to the patients. So, that's one thing that is fantastic.

Another thing that we do is, we create our pamphlets and handouts for the patients so that when they are first coming in, we're not handing them a huge book at them. Throw the book at them, per se. But giving them those smaller materials first to kind of get their feet wet, and then move on to more complex information. We're also very active with our support groups in our community. So, I think that's really nice, too.

We have a huge clinical trial department where the research team as well as the clinical team work very closely together. They go through the lists of each patient that's coming in that week. And if they look like they would be a good candidate, then it's my job to make that bridge to those patients so we can get them in those clinical trials when they're interested. This community's fantastic. These patients are absolute fighters, and I've never seen somebody put up a battle better than they do.

I'm Tiffany Olka, and I know that you are rare.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me @UMNHealth

Listen and View more on the official phaware™ podcast site

#pulmonary hypertension #phaware #rare disease #lung disease #clinical trials #podcast #PH #asthma

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megamemeslol-blog · 7 years

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@kylerudolph82's #MyCauseMyCleats to support @umnhealth....

(source: http://www.megamemes.lol/memes/72601)

#viral, #amazing, #awesome, #MegaMemesLOL

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localmn · 6 years

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One Year Ago Today - Be Quiet and Drive

One year ago today, I thought I was having a belly ache. Night passed by, pain got worse and by 5:15am August 1st 2017 I called 911 in the worst pain I could imagine, and literally crying yelling “please make the pain go away!” on the way to the UofM ER.

First, I obviously made it and am still improving every day or I wouldn’t be writing this.

Right away, I remember them putting me through a CT scan and told me that I had a perforated bowel. I still call it “big holes in tubes”, but I digress. One option was a risky 50/50 surgery and the other was to give me enough pain meds to last me ‘‘til life ends”. When asked how long that is, the nurse at about 4:00 from me shrugged her shoulders and said something like “Not sure. A week, 3 months?” Fuck! It’s safe to say I chose the surgery. I did ask if I could get a 2nd opinion, and they did say “sure” but I would most likely be dead in 3 hours.

My options were limited. While getting wheeled to the OR, I texted my stepmom Jean saying something like “in hozpatal”. Her and my Dad were there from Wabasha within 2 hours.

They tore me up pretty well and wound up with a stomach wound the diameter of... well, a stomach, almost saw Jesus twice, and lost almost all muscle, everywhere.

The low point was a few days after I had a really positive dream, or a Fentanyl-administered hallucination (not sure). I woke up cold, alone, nurses not answering to my red button, and in just horrible pain.

For the first and hopefully only time in my life, I thought if this is going to be my quality of life, just pull me under and throw my fucking ashes in the Puget Sound. Of course, some weird adrenaline kicked in after an oxy dose a half hour later. I don’t know if I was thinking about localmn, a girl, Mpls, Seattle? I really dunno, but at least I felt alive.

With that, all I wanted then was someone to come get me, throw me in their car, and just fucking be quiet and drive. I don’t care where (yes, this is a Deftones reference).

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I had 6 surgeries total in those 27 days and do feel grateful, “alive and happy” as I have often said, and eventually enough leg strength to pull off an occasional 10-12 mile walk. I even got a forearm tattoo to have a timeline of my 27-day stay there. I always wanted one, but didn’t want yer standard fire/dragon/rose/crossbones ink. I guess I now had a reason.

The ink is really therapeutic for me. And, that heart? It’s not a broken heart. It’s a dead heart. That’s much better, right?

There are a few of you that have followed my journey in this last year and well beyond. Huge loves go to all, but especially you few. Alls y’alls know who you are. Big, long and awkward hugs go out to you.

#Sorrynotsorry for the blatant self-promotion.

Outside of that, still rebranding Localmn and doing more volunteering for pedestrian and bike safety. Minneapolis is too awesome of a city to let auto drivers from suburbia determine our infrastructure. If you’re offended by this, I’m not talking about you, you, you or you. :) It’s time to build for all. Drivers, bicyclists, pedestrians and transit users.</endrant>...

...and Local Search.

#namastebitches #umnhealth #physical rehabilitation

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bseedot · 6 years

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#umnpics #masonicchildrenshospital #trees #siding #childrenshospital #umnhealth #mpls #minneapolis #mn #minnesota #branches #ingress (at University of Minnesota Masonic Children's Hospital)

#childrenshospital #masonicchildrenshospital #umnhealth #branches #mpls #siding #ingress #mn #umnpics #minneapolis #trees #minnesota

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phawareglobal · 5 years

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Episode 255 - Tiffany Olka, RN

Tiffany Olka, RN gives an overview of the University of Minnesota Medical Center's Center for Pulmonary Vascular Disease and Right Heart Failure.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me @UMNHealth

Listen and View more on the official phaware™ podcast site

#pulmonary hypertension #phaware #rare disease #lung disease #clinical trials #podcast #PH #asthma

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missamericamn · 6 years

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We are so thankful for all who have recently donated to support Brenna! Thank you to the following: Mary Jagim, Laurie Stromsodt, Julie and Maddie David, Laura Hahn and family, Lauren Percy and the Miss New Hampshire Organization, Michele and Jerry and Rachel Weyandt, the Drevlow family, and Kathy Shellum! Your love and encouragement is beyond incredible! . A special shoutout to our newest team members: Kate Smith - Miss Central Minnesota, Alyssa Crum - Miss Northwest, Zoe Cervantes - Northern Lights Princess, Michelle Bergh - Miss St. Croix Valley, Kali Berlinger - Miss Morris Area, and Annika Stotts - supporter! You are helping us to reach our goals, THANK YOU! . Donate to our March 3rd event here: https://events.arthritis.org/index.cfm?fuseaction=donorDrive.participant&participantID=1115 . #missminnesota2017 #missamericamn #missmnattitudeofgratitude #brennasbrigade #juvenilearthritis #arthritis #pediatrics #doctors #umn #grateful #umnhealth #wellnesswednesday #mpls #mn #minnesota #jawarriors #kidsgetarthritistoo #championsofyes #purpose #passion #family #familyfirst #donate #give #joinourteam #riseup #leadership #service #platform #mao #briannadrevlow (at Minnesota)

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megamemeslol-blog · 7 years

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Sam Bradford and @kylerudolph82 stopped by @umnhealth to vis...

(source: http://www.megamemes.lol/memes/50610)

#viral, #amazing, #awesome, #MegaMemesLOL

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