sedandme

[sedandme]

Sometimes I lose my appetite for days or weeks - even the foods I normally crave become as appealing as eating paper towels. It normally goes hand in hand with sensory issues with the food. These are some of the tricks I’ve learned to make sure I get enough nutrition anyway

The first and most important thing is you need to remember that eating anything is better than eating nothing. You may need to suspend your normal standards or rules - eating foods that are less “healthy” than normal, eating the same thing over and over again, or just not enjoying your food as much.

Energy (calorie) dense foods like nuts or energy bars are really helpful, especially if the actual process of eating is unpleasant. Sometimes its really nice to be able to eat a meals worth of energy in under a minute

Chewing gum helps me get my appetite going - If I am trying to get myself hungry for a meal I will often start with gum 30-40 minutes before.

I rely a lot on eating a little of something I’m comfortable with to pique my appetite and moving to a different food group afterwards. Eating the first thing is always the hardest - I find after I start my brain realizes that food is ok and I can move onto larger portions or a different food.

When I eat something sweet I tend to crave more sugar later. So I use this to my advantage and have a small portion of something with some sugar in it and then wait to be hungry for more. Sometimes I will try to eat something a little more nutritious the second time, others I just have more of whatever was finally able to pique my interest

For the same reason consider other foods you find hard to put down. I’ve heard that things with both carbs and fat in them are the most “addictive” and I use that when I’m struggling to get enough to eat. It’s ok if this is a “junk” food - remember eating anything is better than eating nothing

Ginger tea or ginger chews make my stomach feel better

Keep track of your food. It can be really informal, like making sure you don’t skip meals, or it can be some other strategy of keeping a food journal or counting calories. You don’t need to be super precise, it just helps remind you to eat when your body isn’t sending the right signals

Look at “food porn.” Scrolling through a food blog you love on tumblr or watching a cooking show can be a good way to get your appetite going

Have a nutritional drink like an ensure can help you make sure you are getting all the nutrients you need without much thought. I find ensure is best very cold or on ice.

Look for foods or categories of foods that seem easier to tolerate than the others. This might be something you know is easy on your stomach, something of a certain texture, something hot/cold, or just a favorite food. 

If there is a food that you find less unappealing than the others, or feels “safe” to you go for it, even if you’ve eaten it many times in the last few days. I even find having eaten a food or meal in recent memory helps convince my body its not gonna be harmful

[sedandme]

look @ these cute pics I found in my drafts from last summer.. 

Wrote a post about living with an invisible illness on my blog, it was hard finding the words, hope u like-> http://www.hanayas.co.uk/2015/04/living-with-an-invisible-illness.html

#not me but I have this illness #I think most of my followers have sed not me but yh #interesting pov

[sedandme]

so I'm new to the SED tag and it's amazing to find a few people who also have this disorder. I was wondering if you (or any other followers) have trouble taking tablets and believe it's related to SED. I struggle extremely with this and similarly to SED get told that I need to grow up etc.

Im happy youve found the SED tag and my blog! Though I havent been posting recently, I apologise for that!

I actually have a problem taking tablets! I have another illness which requires a lot of medication and up until about a year and a half ago I was taking maybe 30+ tablets a day however I started getting side effects (mostly vomiting) and as my worst fear is vomiting .. now I cannot take them. On all liquid meds now!!

I believe it might be related to SED- they were something I didnt care for but didnt hate and now im just as repulsed by them as pasta. 

However unlike many of the things I dislike due to SED I started disliking them after a bad experience.

-

Hope you dont mind me making this public as Id love to get some of other peoples feedback! 

ps. Just like when dealing with SED just tell those people to mind their own business and remember that they make almost every med in liquid form (however it may taste really gross.. the less of two evils??)

#justwannabearebel #sed #selective eating disorder #arfid #avoidant restrictive food intake disorder #justawannaberebel

[sedandme]

So I decided that I'm going to try one new food every month. And this month I tried a cheeseburger and I actually liked it.. Enough. I'm so excited!!!!! And I just had to share

Yay! Thats excellent news!!!! Oh im so happy for you! 

I love it when people try new foods, let alone actually like them! 

Thats such a huge step! Keep me updated on how the rest of the months go??

#there is hope! #sed #arfid #selective eating disorder #avoidant restrictive food intake disorder #bottleredstoner

[sedandme]

ruffleyourfeathers replied to your post “Its all in my head? I know that?! I cant do anything about it though ...”

I'm so sorry :( I hate when that happens. I've had very similar things happen Like french fries are one of my fav safe food. One bad fry stopped me from eating them for a month. It's not In your head. Stay strong :)

It just reminds me how little control I actually have over things. Its horrible :( Especially as I didnt like the milkshakes much to begin with... now its just.... I only had todays a few hours ago and Im already worrying about tomorrow.

I dont like not being in control.

It happened to me with chips too! But seeing as I knew deep down that I liked them at one point, after a few months I managed to get myself to try one. I dont know how im gonna get out of this one

Theres no hope...

#ruffleyourfeathers #sed #arfid #selective eating disorder #avoidant restrictive food intake disorder

[sedandme]

Its all in my head? I know that?! I cant do anything about it though

Yesterday I was drinking my milkshake and it had a lump in it. Not a big one but one like when you get to the bottom of a hot chocolate. Except it wasnt at the bottom. It was just a bit of powder. Thats all. A tiny bit of undissolved powder. I know that. I still gagged when I eventually drink that last bit.

AAnyway, today I gagged when trying to drink it. and gagged and gagged and when I finally got it all down.. It wanted to come straight back up. 

One little thing happening should not make me not be able to drink it again but it seems to be doing that.

I mean, Ive drank it. but it should be this traumatic. 

whats wrong with me

its all in my head its all in my head its all in my head its all in my head

I can still taste it

I hate this

I said to my mom "I can still feel the lump from yesterday.. in my throat.. I dont think I can drink this" and she said "its all in your head" 

its all in my head

that doesnt make it any easier though

#selective eating disorder #sed #arfid #avoidant restrictive food intake disorder

[sedandme]

Had chocolate again today! I can't seem to get myself to try banana... I've tried two new things in two(three?) days and that's more than the past few years combined :x

I don't usually like banana things either so maybe that's why I'm so hesitant?

Had chocolate flavour today! It was better than neutral but still not great..

[sedandme]

A little OT from my usual posts/ weight related so don’t read if your not interested…

August 2013, I weighed around 115lbs comfortably, I could eat whatever I wanted and I didn’t gain or lose weight. December 2013, after a few months of being rather unwell I weighed 103lbs. For the next few months after I could eat whatever whenever and remain under 105lbs. December 2014, after a year of slowly putting on ‘healthy’ weight I weighed my biggest in years…123lbs.

Feb?? (today) 2015, I weigh 115.8lbs. I have been unwell for around a week. Please bare in mind that I tried to eat more healthy during Jan - eg. Eating breakfast, snacking less, no cola..

But doesn’t that seem like a lot of lost weight to you? I think it might just be water weight but idk…

#idk how to tag this #ed #arfid #chronic illness #selective eating disorder

[sedandme]

Having a chronic illness gives me drive and ambition to achieve as much as possible, because every day my body reminds me that life is short and that mine is shorter.

(via mamas-still-doing-it-all)

[sedandme]

Had chocolate flavour today! It was better than neutral but still not great..

#SED #arfid #selective eating disorder #avoidant restrictive food intake disorder

[sedandme]

"She isn't as dehydrated as I thought she would be considering the amount she is drinking...maybe she's been secretly drinking more" ??????? Are you an actual doctor??? Why would I not admit to drinking water omg I just want to be better I am doing the best that I can why would I hide me drinking from my mom aka MY MOM

#im still really annoyed from the doctor visit earlier today

[sedandme]

LQ pic of my first one.. Let’s just say….neutral ISNT neutral.

It doesn’t taste like milk and the worst thing is because my mom blended(?) it the milk isn’t even that cold. And when I asked her to add more milk to dilute it she went back downstairs and blended(whisked?) it more and came back upstairs with the same thing.

I had to make her leave the room, hold my nose and just sorta drink it as fast as I could (like u do with shots) and then I had a ginger biscuit to get rid of the horrible taste.

So that’s Neutral.

EDIT: This was only half ... I have to have another glass later today 😷

#selective eating disorder #sed #arfid #avoidant restrictive food intake disorder

[sedandme]

Oh and... I've been so unwell (and eating so little) that a doctor made a home visit and instead of addressing the problem, the pain I'm in, she addressed the not eating much thing.. and threatened to admit me into hospital if I didn't start eating more. So that's got me a little down. If she would help me with the problem then id happily go back to eating whatever I want (I don't think I'll ever eat three set meals a day though😳) I'm happy I'm not going to hospital but I'm sad/annoyed because I'm now expected to eat quite a bit while in so so much pain and taking meds that make me nauseous and have actually caused me to throw up. Fix the pain plz NOT the thing that happened because of the pain.. That's like sticking a plaster over a leak instead of fixing the leak😐

#SED #selective eating disorder #avoidant restrictive food intake disorder #myalgic encephalomyelitis #chronic illness

[sedandme]

Here's a picture! Right now I'm at one a day and the doctors want to build it up slowly... I have three flavours! Neutral (should taste just like milk when mixed with milk), Chocolate and Banana.

#sed #selective eating disorder #arfid #avoidant restrictive food intake disorder

[sedandme]

Is it too tmi to tell you that I just threw up and in my very watery vomit there were half dissolved tablets?? I'm so lucky that when I'm unwell I barely eat...watery vomit is probably the better of the two

#water? stomach bile?? all the same tbh #myalgic encephalomyelitis #chronic illness #me cfs

[sedandme]

New person! 

List of people with SED/ARFID that are always up for talking/listening

Sometimes it feels like there isnt anyone to talk to, and even when making a text post and tagging it you might feel like noone is listening to you. I know I stalk the tags a lot and message/reblog/like as many things as I can to just sorta let people know theyre not alone/ has someone to complain to..

But I thought that it could be a good thing to make a masterpost of sorts of everyone and their blogs/interests so that messaging people/etc is less daunting .. and that we all seem a little more human ?

Please feel free to reblog this and add yourself! In the event that the list gets split due to different people reblogging it from different people you can refer to here http://sedandme.tumblr.com/directory as I will be keep this list updated with everyone no matter if this orignal post gets split or not.

Ill start.

sedandme - Hannah, 18, England - interests: alt fashion, so bad theyre good movies and …baking >.>

wendycorduroy - Wendy; 19, washington state usa. i like cartoons, social jerstice, and vidya games.

abovespooktations aka abovelimitations - Damian, 16, only recently realized I have SED/ARFID but def. Still up for talking. Ummm… i really love dogs and equality? Pff

pathwaysend - Sasha, 17, England. uhhh fandom stuff mostly, i’m not gonna try and list them. i spent ages trying to think of more to say and gave up

sed-dlp - Danielle, 18, Scotland. Likes Stand Up comedy, Back To The Future and chatting. X

itsnotjustpickyeating - Jess, 16, plays guitar, likes every kind of music, gets real deep and metaphorical after midnight 😘

Skellagirl - Hailey, 23, Oregon. Likes cartoons, video games, drawing, writing, and animals. I’m sort of terrible at giving advice but I love to talk and listen, and offer a shoulder to cry on!

diaryofashowgroom - Niamh, Ireland

#just message me if you want to be added!

[sedandme]

Do you know if there are any "colors" for sed/arfid? like for dermatillomania and other bfrb it's blue/green.

Im not sure!

If I had to say a colour Id go for Periwinkle as its the colour for 'eating disorder awareness'

http://en.wikipedia.org/wiki/Periwinkle_ribbon

However I dont think that theres a colour specific for SED

#sed #arfid #selective eating disorder #avoidant restrictive food intake disorder #skellagirl