snowglobesend

[snowglobesend]

march in a few days and i still haven’t recovered from march 2020

[snowglobesend]

New love.

#analog photography #photography #35mm film #35mm photography

[snowglobesend]

the show (going out to get groceries. making myself a nice dinner. showering and opening the windows. being kind to myself in everything i do) Must go on

[snowglobesend]

[snowglobesend]

Peak Gay Culture is watching The Fosters, filled with a desperate, aching longing for Stef and Lena to be your parents and love you

[snowglobesend]

Sometimes I just think about how good of a show The Fosters is. Like…..it is still one of my favorite shows ever. Maybe it’s the fact that it shows that blood doesn’t make a family, love does, and that hits me hard because I’m adopted.

[snowglobesend]

I acknowledge, respect and feel connected to trans people who’s transition “begins and ends w changing pronouns” for a lot of reasons but one is that I have watched countless queer + trans ppl be disowned, made homeless, abused and even killed for asserting a change of pronouns.

Social transition comes with countless consequences, which now definitely includes the fact that if someone doesn’t immediately work to physically transition other queer and trans people will start calling them a fake trans predator desperate to steal oppression. Lol.

Personally I want to live in a world where all kinds of trans ppl are allowed to exist comfortably. I embrace what’s called “contradictory” because it shouldn’t be. Be a bearded trans woman getting vaginoplasty. Be a trans man getting 800cc silicone breast implants. I want it all.

[snowglobesend]

ppl in the age of cell phones: fucking up their necks

ppl in the age of books: fucking up their necks

ppl in the age of textile art: fucking up their necks

ppl in the age of picking lice: fucking up their necks

ppl in the age of cooking: fucking up their necks

[snowglobesend]

[snowglobesend]

Your daily dose of spooky posts

[snowglobesend]

Shout out to Spanish for having the correct word for kitties. This is literally el gato there's no other word for it

[snowglobesend]

So I have FND and as a result of that I sometimes suddenly have difficulty walking and it’s so hard not the think the imposter thoughts. When my legs Don’t Function I think “??But I know how to walk?? I do it all the time??”

[snowglobesend]

I forgot that it's Functional Neurological Disorder awareness month until the last minute but I'll say a blurb anyway

FND is a Mysterious Ailment that does not show up on medical scans and doctors still to this day can't agree on what causes it. Stress? Childhood trauma? Maybe, but not always, so probably not (like any good ailment it was also diagnosed as hysteria until frighteningly recently). "Functional" does not mean "your brain is funny but you function normally", it means the disorder affects your neurological functions.

This causes a whole rainbow of wack-ass symptoms. My most significant are Persistent Postural-Perceptual Dizziness (looking at moving things makes my brain turn into wet sand), fatigue, disordered gait (real-life QWOP), twitching/jerking, and functional seizures (which again doesn't mean 'seizure but still functional', it means a neurological attack that closely mimics a seizure, what with the violent convulsions. I am still fully conscious for them though so it's a ride).

There's no known cure or even treatment since the disorder is made out of goddamn smoke. The best you can do is have a good sense of humor about it. Such as referring to your tics and thrashing as wiggles or seeing the Clickers from The Last of Us walk and going "haha that's me"

The bad stretches come and go. It's manageable in the good times and incapacitating in the bad. My worst experience with it so far was having a functional seizure at the grocery store and having to ask for help while also yelling "DON'T CALL 911, I'LL BE FINE" at distressed onlookers. A manager was nice enough to help me into a back room where I could ride it out, and then help me get a cab home.

FND is supposedly common but I'd never heard about it until I was diagnosed, and I've never seen it mentioned anywhere else apart from specific groups and tags online. It would be nice if more people knew about it. Even though we might never understand the cause, we can at least understand the kind of accomodations people with FND might need. If everyone at the grocery store knew and understood FND, maybe I wouldn't have had to maneuver such a dramatic scene in order to get help.

Another great and important thing to remember: FND, while mysterious, is a very real thing and people suffering from it are NOT faking it. It's not a mental illness. Fucking seethed a while ago while perusing available info on FND on some random site and saw "People with this condition are not purposefully faking their symptoms". They're not faking them at all! The symptoms are 100% physically real! It's like they saw someone having a functional seizure and went "Well it's not epilepsy so clearly nothing is wrong here". I'd like everyone who has ever thought this to try feeling like they're being electrocuted from the brain down for a couple minutes and see how fake they still think it is.

So. Go forth and hug your local FND-haver (and hug tight because they might accidentally wriggle our of your arms like a fish).

[snowglobesend]

People with tics do NOT have to suppress around you just to make you feel comfortable.

People with tics do NOT have to hold down a tic attack just for you to not feel uncomfortable.

People with tics do NOT have to suppress.

Suppressing is a shitty thing, when I suppress my tics, my whole body tenses up, I can’t talk because I’m afraid a vocal tic may come, I let small tics go because it can go unnoticed, I can’t focus on anything that isn’t suppressing tics, I suppress because I’m afraid people can look at me weird, say something bad, or bully me.

And yes, is a form of surviving in a neurotypical world, but it makes US have tic attacks, it make US tired, it make US feel like shit because we can’t unmask around people, we can’t be us with our tics.

So if you have a friend, family, anyone you know with tics, please, let them unmask, let them be free with their tics.

[snowglobesend]

i sure do put the Fun in functional neurological disorder!!

[snowglobesend]

When people I ask me if I'm okay, I always say "I'm alive" and they look at me like that's such a shitty answer but bitch I'm suicidal so honestly that's an achievement.

[snowglobesend]

A guide to designing wheelchair using characters!

I hope this helps anyone who's trying to design their oc using a wheelchair, it's not a complete guide but I tried my best! deffo do more research if you're writing them as a character