#NOT ''you don't have it if u selfdiagnose''

[inkskinned]

i both firmly believe that self-diagnosing saved my life and i think that the way tiktok and instagram have recently been spreading misinformation about mental illness/neurodivergence is incredibly harmful.

people who are looking for answers are already people who are in a vulnerable situation.

much of the misinformation appears logically sound; and is presented as definitive fact (prefaced with claims such as "research shows"). it's imperative we remember correlation does not prove causation. it is incredibly dangerous to make definitive statements like "if X happened in your childhood, you now Z as an adult." real scientists will almost always use may or other less-definitive terms. similarly, equating one behavior/experience with any single condition is also unsafe. many conditions have overlapping symptoms; and many people "mask" their key symptoms, even to themselves.

we cannot discern from a singular data point any conclusion. in official diagnosis, for a behavior/experience to be considered a symptom, it must significantly influence your life. many people enjoy an organized space. that is a preference. disrupting your daily life even at personal cost in order to prioritize organization is more likely a symptom.

again, a single data point is not an effective diagnostic tool. it is necessary and important work to catalogue and consider all unwanted/distressing behaviors in order to understand a complete picture of the person.

i will see creators in paid partnerships make generalized behavioral/emotional claims that apply to a large portion of a community, and then they will suggest that the "solution" to that behavior is through their paid partner/through their personal support. "follow for more psych tips/facts" is an incredibly evil marketing tactic. i very rarely see unpartnered/unbranded content on how to aid/comfort those behaviors and feelings.

much of the misinformation employs a subtle technique (called confirmation bias) of setting up a conclusion before "proving" the conclusion. "you know you have X when you experience A,B, and C." no person's experience of their conditions/behaviors will look exactly the same as another's. while knowing certain things might be a sign/symptom of a condition, it is irresponsible to consider it definitive.

confirmation bias is unfortunately extremely effective on tiktok specifically. the algorithm will notice that you interacted longer with the video that "proves" (through a singular video) that you "have" a condition. it will continue to feed you related videos that further confirm what you believe.

this is dangerous because we are, unfortunately, not good at knowing ourselves. i did not know it was unusual to vividly nightmare every night; i didn't consider it a symptom. i was similarly dismissive also of any other signs of my PTSD - i incorrectly assigned them to anxiety/adhd. on the small scale, this can mean a longer journey to healing. on the larger scale, it can mean people with extremely difficult situations are unable to get the help they need.

please, if you can, and you're looking to self-diagnose: be careful about what you assume about yourself. try to keep an honest journal of what you're thinking/feeling/doing for a few days.

do not go in with an assumption. try to keep an open mind. i think we all "suspect" we have something - but like i said, i completely missed my own PTSD symptoms, because i suspected the ADHD the most, and only "saw" those symptoms.

do your own research. if the tiktok says "research shows", google that research. figure out who paid for that research. do further research related to that study - has it ever been repeated? is it peer reviewed? do other researchers seem to accept it as conclusive?

if you feel you really resonate with the materials of one person's experience with a condition, find other examples. see if you relate to other creators who identify similarly.

and please - please do not stop once you come to a conclusion. i fully believe that the diagnostic process should be seen as a first step, not a destination. by knowing what you might be struggling with, you gain an incredibly powerful tool on how to gain peace with that condition.

if you feel yourself emotionally respond to a tiktok/etc that suggests something that might be true about yourself, i'm glad you had that experience. but it's also important to not relax into the "easy" answer. interrogate it. start googling what else that could mean; what ways you could work on healing that wound.

healing does not "belong" to any one condition. i want you to begin to look into healing no matter if you have "proven" you have a condition or not. it is never selfish to practice responsible self-care. even if you don't relate to having adhd, you are not harming me by using adhd-inspired study tips. it is not making my condition worse for you to seek peace by asking for more time on tests. even if it was - the fault would be with the system, not in your need of something the system makes inaccessible.

remind yourself that everything you experience is real. and because it is real, it is complicated. while things might be related - even sometimes clearly related - a stranger on the internet cannot make that discernment for you. you as a person deserve the work, attention, and care that goes into the process of unravelling the harm that has been done to you.

it makes me very, very upset to see how popular these videos have become, because they're so irresponsible. and they clearly are targeting a vulnerable group. for example, making generalized claims about children of unloving caretakers is targeting those who have experienced neglect. there is no way to use 30 second videos to correctly analyze what that neglect might have caused in your adult life. i'm sorry, but it's snake oil.

i know it is so powerful soothing to recognize that you aren't broken. that others exist like you out there. i want every person looking for answers to find their answer. i want you to feel seen and heard and understood. i want you to find your community.

i just want it to happen safely.

#every time i write this im like #i just want to say a short thing about this #and every time it ends up being 12 pages long #but since it keeps happening #and i keep seeing shit like this... #this isn't even everything i feel about this #i hope this is clear like #what im saying is #NOT ''you don't have it if u selfdiagnose'' #it's instead.... #you might!!! just don't let 1 or 2 videos confirm it!! #also!!! don't assume that symptom A belongs to condition X!! #even as someone who did eventually get diagnosed like #i still find myself being like - oh that's my adhd #only to figure out 12 hours later. nope that was a panic attack #also none of those videos are about how to HELP the behavior #also this doesn't talk about getting a therapist eventually but please get professional help if you can #it took me fucking forever tho #what im saying is that in the meantime #u can heal now #this is too long im posting it on a sunday so nobody reads it